
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Sounds like your mother is getting a good deal of socialization with her lady friends. That is really important for her sense of well being. PA even helps mom with social affairs. She had an open house for her birthday day in February! and lots of people came. She had a nice dinner party for her grandaughter's soon to be in-laws...she has been thinking of having a dinner party again, now that PA can do all the prep work and clean up!
She sure is taking advantage of living in her own home!
Well, our little kitty has something wrong with her and two doctors have looked at her, rehydrated her and we are trying different cat food. If this cat dies it will really be hardest on my husband as he is very attached to Sweetie Pie. I'm just not up to more grief right now!
Haven't heard from PA today so wonder if she is busy getting mom moved. Hope so. I'm off to get going with the real work I have to do! Like clean the house. Thanks Sharynmarie.
Today was very busy, I was back and forth with mom all day starting with taking her dog to the groomer this morning, picking the dog up at 1pm. and back to mom's at 2:30pm while we waited for the nurse from the senior living community to come over and evaluate mom for either assisted living or the memory care unit. He stayed about an hour and just talked with all 3 three of us asking mom some questions, observing how she behaved and her answers. Of course mom has misplaced/hid her hearing aids so it was a challenge to get questions heard and understood. She would look at me for help and I would translate in a condensed version she could understand. He did not give us an answer as to where to place her today, said he would call sis tomorrow evening with his evaluation. Sis was shocked with how young he is...about 33. He shared that he has a 10 month old son and he used this as a way to talk with mom and get her to open up. After he left, we looked some more for the hearing aids which we didn't find, but we did find $1,300.00 mom had forgotten she had. That will be deposited back into her checking/savings account tomorrow, Lol!! "H" has been telling us that mom has been with drawing a lot of cash from her checking account but we couldn't find it until today. Tomorrow we have an appt. with mom's elder law attorney to discuss her incapacity and the conservatorship...hopefully we will get some answers and the court process will take place quickly. "E" (the nurse) suggest that we not tell mom about the move until last minute. He said from his experience, telling a parent in advance causes too much anxiety and stress. The move itself will be stressful enough for her as well as the adjustment period. We will get some additional advice from a nurse with the LTC policy on this subject.
I finally got out to prune the roses in the front yard. Long over due as roses start growing in February. I ended up cutting off many buds...it's roses and they will bloom again. My lower back hurts but it is a good hurt...if that is possible, Lol!! Hubby is going to a Stockton Ports baseball game tomorrow night with his dad. That gives me some extra time get some things done in the house.
Joan~ Where are you?? We miss you!!
Cmag~How are things going with you and your wife's recovery??
Book~I have thinking of you on and off all day...I know it was a stressful day for you with your mom's funeral. It is already Thursday where you live so give us an update as you are up to it.
Hugs to everyone!!!
I received good news this week in the mail that I'm being continued on social security disability due to my bipolar disorder. This was the first time they had reviewed this in ten years. You would not believe the amount of paper work I had to fill out about myself and my wife had to fill out about me, plus going to one of their psychiatrists for an evaluation.
My mother continues the same and my dad is declining. Sometimes when talking with me he will make statements as if he is talking with his brother and then return his focus back to me. My wife's recovery is going well as she is getting out more. Her doctor is reducing her Clonazepam , anti-anxiety med, and she is having some withdrawal symptoms from that.
If so, do you go over to visit?
As far as working with your sister, could you meet with your mom's minister or lawyer or even doctor as a family and have someone there to mediate plans for the future? Getting everyone on the same track sure helps. Wishful thinking, I guess, particularly with your cousin. But you said you have a loving relationship with your mother and your sister so maybe you all can work out some understanding of what your mother wants and how you two kids can bring those desires into play, when and if necessary. And by knowing you are an enabler, keep an open mind! Good for you to want a healthy and loving relationship with all of your kin.
I do remember something I could do when I was a CASA (court appointed specail advocate) to protect my home number. Also, some company had entered my phone number by mistake and I was getting a FAX all hours of the day and night. Then Comcast told me how to stop that by entering certain numbers which basically blocked everyone with the hope that someone would notice their FAX would not go through!
Let me know if you find some help. Worse comes to worse, change phone numbers and put as non-listed. Could your mom use a cell phone?
Gosh, I had a great Aunt that was forever being hit for missionary work, child care work, food help....I bet every dime went to the scammer's pocket. My husband says"I don't do business on the phone".
If you do get some helpful information from the phone company, please post so others may find some help, too.
Good luck!
Bonnie
PS. Mom is still in the hospital.
Cindy - of course you are welcome, and rosebud too.
rosebud I am glad you are able to create some functionality out of the chaos. I can apart from my immediate family, but not within it. You are right about ugly stuff coming out of Pandora's box at times of need. I hope someone has been named POA for your great aunt,
sharyn - all your work is paying off. I think it is very wise to not tell your mum ahead of time. Things are falling into place for your mum. I am still struggling with F/M and though the pain is less due ti the meds, I can still feel like I have been run over by a bus.
margeaux - sorry to hear about your hubbie's friend and the restrictions on visiting. I am glad he had a phone call. I have found, over the years, it is important to have contact of some kind, It helps when a friend is declining.
bonnie -sounds like things are being organized for your mum's return home. My only concern is with the chair lift and the angle of her hip when she sits. But I am sure the PT will address that.
susan -how are things going - you have a rough row to hoe. Hope fil and everyone are behaving
Austin - hope your are getting some comfort from working on your memory garden. It is such a lovely idea.
book - how are you. This is not an easy time for you and your family. Do let us know.
cmag -glad you are walking
everyone - sorry if I forgot anyone - call it brain fog
more weather warnings here - snow, freezing rain and wind - will it never end????
love and hugs to all - Joan
Everyone,
We met today with mom's attorney giving him the letters from mom's PCP and the neurologist regarding her incapacity. He accepted them and said as of today my sister has full authority to make all medical and financial decisions for mom. He will put through the necessary paperwork to have my sisters name added as the trustee on all her accounts.He said that priority number one is getting mom placed. We do not need to get a conservatorship at this point unless mom tries to leave the assisted living community...calling a taxi to come get her,etc. He said that if she just accepts the situation there is no point and to wait and see how she reacts. He was very different than he was when we met with him in October. In October he was rude and pretty much told us to leave his office. I know that he is her attorney and looking out for mom's best interest, My sister gave him the letters from the dr.'s, he read them, then she asked him, "Are we friends now?" We laughed as he explained his position in protecting mom.
The nurse called my sister tonight regarding his evaluation of mom. He said she a stage 4 which means she can live in assisted living. (this is not an evaluation of what stage of Alzheimer's she is in). Mom's attorney suggested that we tell mom she needs to move in there temporarily for respite reasons and then tell her just a couple more weeks mom until she adjusts.( Those of you reading this that do not know my family history need to refrain from judgement). I agree that telling her in advance will cause more problems for her as well as us. Sis is having major guilt about doing it this was but she willing to go with it. If needed, we will get her PCP her prescribe something to keep her calm and sis and I will take her out for shopping , lunch,etc. while my hubby, nephews move her furniture, set up the bed. It breaks my heart to do it this way but I see no alternative considering my mom;s personality disorder. I asked sis if she notice yesterday when the nurse was there that when mom did not understand what he asked her, she looked at me to help her. She said yes. It' s not that I want to be trustee because I don't. Yet mom has always seen me as irresponsible. I guess I just want acknowledgement from her I am a good daughter and have stood by her even though I set boundaries around our relationship. Just once I would love hear her tell me she is proud of me and that I have done right in her behalf. Enough wallowing in self pity. Have a good weekend everyone and Hugs to all!!
Well finally, you have this attorney on board! It's about time!
I think it's great you've asked people not to make judgments. People many times are too quick to do this, w/o fully understanding each family's dynamics.
I know this is tough for you and your sister. But as Emjo stated, everything seems to falling into place for you. Rest assured that even though your mom may never realize and be able to express gratitude towards you, the fact that she looks at you when she doesn't understand something in and of itself is a message to you. Remember actions do speak louder than words. It totally applies here.
You're doing all of the right things to accomplish the move.
I'll keep you in my thoughts. Much Love & Light! Margeaux
Then my sister starts telling me that mom has also had a UTI. I don't know how long she's been having this issue, but she's on antibiotics for this. Anyway they sent her home, and today I guess the pain subsided. Given all of this, I thought that of course my sister would cancel this weekend's plan of taking mom out to a dinner show for her birthday. But no, my sister went back and forth telling me how she's going to monitor mom, and see how she's feeling, then she'll decide.
I can't believe this. I did ask my sister whether she thought it a good idea to keep the dinner reservations. But I could tell by her response, that she was becoming defensive, almost as if I don't trust her judgment call about the matter. So I ended the conversation. I really don't like to engage in this kind of resistance with my sister. I mean, we could go at another time when mom isn't having all of these issues. So if mom looks o.k., tomorrow to my sister, I guess the dinner is still on. How crazy is that!!??
So I started to suggest some home remedies I searched on the computer about gall stones. While I was doing this, my sister brought up, that it may be advised that mom have surgery. I really didn't like hearing this, because I understand there's one, that is rather invasive. Mom just turned 92, yesterday and would not want mother to go through something like this.
We will see what happens tomorrow. My sister is so controlling!
But I'm trying to keep my cool, and not feed this kind of energy.
Margeaud
**Bonnie – believe it or not but your sister sounds like some of the other posters’ siblings. If you don’t follow their advice, they will absolutely not help you. It’s their way or not at all. I think even a 50 year old bimbo knows better than to move a leg and know that they are hurting someone who keeps saying “Ouch, stop, it hurts!” Sounds like baby spoiled sister has a bit of a masochist in her. I hope your Sweetie Pie is just going thru a health phase and pulls thru it.
***Hi Cindy, thank you for the condolence. Welcome! I just wanted to let you know that I sent you a HUG. If you click on the top right PUBLIC PROFILE you will see other people’s post to your wall and the HUGS. If you click on the box with the words: MY ACCOUNT…..NEWS FEED. The News Feed will update you with the most current topic that you have commented on. It will also have all the HUGS given to you. And the LIKE.
***Rosebud – I hope it all comes out as you expected. It will be difficult and hard work to do it. Not impossible but … a lot of hard work. Let us know how it turns out.
I read your words about how your mom view you as irresponsible. It’s the same with father and me. I can never do anything right. I don’t know what I’m doing. Let the expert do it. and so on…. When mom died, I’ve had people praise me for taking good care of her these past 23 years. I accepted it but the praise should truly go to my father. Even with her death, he has not praised me for helping him these past years. So I know what you’re going through. Hearing it from others is not the same if it comes from our parent. But, I have accepted it. Who knows? Maybe one day he will surprise me and say it! (When cows fly, hell freezes, etc…) Just like maybe one day your mom might surprise you...
Hi Joan! Sorry that your F/M has flared up. It seems to be flaring up a lot lately. Do you notice if the frequency increases a lot during wintertime? I hope you get better soon and no longer feel those pains daily. HUGS!!!!
It's good to hear from you!
My husband was quite happy to be able to talk to his friend. When he talked to him, my husband told him that he wanted to visit, but that the wife wasn't having it.
His friend thought that his wife was being too strict, and said it was o.k.
I didn't comment too much about this to my husband, though. She's not a very social person, so I think this plays a big element in this picture. But this is still his wife, and she must have her reasons. But I didn't want to overplay this aspect of the situation, because I know my husband, and I do sense he's felt a bit slighted too. In any case, he was glad they got to talk on the phone.
Maybe when the weather changes, your fibromyalgia will calm down.
O.K., Emjo I hope you are well, and don't be such a stranger. We've missed you.
Much Love & Light! Margeaux
I guess we finally seen that neither of us is perfect and stupid to hold a dark cloud over someone for so long. The one thing that made my day couple days ago was that my step dad said he loves me. It was sincere and unexpected but I guess my parents are starting to understand me which is unusual but it is still difficult to carry a conversation with me my mom with so much emotional stress between us. I mean we are trying and my parents know I am making it work. I haven't posted in a long time cuz I have had nothing worthy to say besides being so busy I can't stop to breathe. I will decide if I will continue to post on this site or not in the near future, just being burned out and my depression has gotten worse, to much of this and that. I wish everyone blessings and happiness and give condolences to the ones that lost their loved ones. So will move on and continue to take it on like usual thank you for being there.
UNLESS YOU SET YOURSELF FREE OF IT AND MAKE YOUR VERY OWN LIFE A HAPPY AND REWARDING ONE. I TRIED FOR 50 YEARS TO GET SOME MEANING OUT OF *FAMILY* NOW I HAVE FOUND MY PEACE AND YES I AM FREE AND LOVING IT.
Margeaux~I hope things worked out ok today for your mother and the dinner party. I understand your concern with your sis wanting to continue the plans even though mom may not be up to it. It should be enjoyable for her...that is the point of it all. As far as surgery for gallstones goes, at your mother's age I can see why you would be concerned. I don't have much info other than I believe it is done very simply just as the hernia surgery my mom had 2 1/2 years ago. They may even do it through the belly button and it is in and out in the same day. However, if it really invasion, it may be worth it to see if they can use lasers to break them up like they can do for kidney stones...don't know if it works??? My biggest concern is that the surgery no matter how minor it is, will cause your mother to progress in the dementia. It always did with my mom which is why her PCP told us not to do anything with her possibly having a hernia on the left side of the groin now. He could not feel it when he checked her a few months ago and mom has not mentioned anything since. Gallstones are different because that can cause her pain every time she eats. Keep up on it and let us know. Yes it is good to have the attorney on our side now. He was actually very compassionate and kind with us. A 180 to how he was when we saw him in October.
Book~How I can relate about all the traditions when people are just worn out. 12 days of mass and rosary services is a lot for you to go through. I think that what upset me about my mom is that she has given my sister some of her possessions that sis has coveted for years and was promised those things. The things that I want from her, she will not give to me. One is an old mantel clock that belonged to her parents,it is black and over 100 years old, the other is an antique picture in her entry hall of an elderly woman in what appears to be a European brick alley way near her home. It hurt my feelings when my sis told me mom had already given her the scales and grandmother clock she wanted. I know this sounds petty of me, but most things my mother has given me, she has asked for them back saying she only let me use them. I hope you are feeling better as time goes by and the sense of normalcy may not come to you until all your siblings have returned home. Hugs to you!!
With regards to your sister, if she really cared for you -she would have asked your mom to give her those 2 things that YOU treasured. And when she gets it, she would have turned around and given it to you. I would have done that for my sister. I will just tell you not to tell mom that I gave it to you. and to hide it when mom visits. Simple.
So you know what, put you foot down, and Now is the time to take a stand. Because truly Sharyn, your sister is completely in charge of your mom- financially and medically. Let her start doing her duties toward your mother. You will both do it together or not at all. Simple. (Not really...)
What about mom's furnitures? Well, you both go visit the room mom is going to stay. Get an idea of what is going where. Go visit your mom. While one of you distracts mom, you can either take notes or use your cell phone to photo which furniture is going to mom's at AL. Give the cell phone to the men. Tell them this is what's going to mom and where it will be put in her new home. You can even take photos of the new place so that they know where it goes.
Or...you do what sis wants you to do and take mom out. When you go back to the AL and mom objects, you state Very Clearly that WE thought that this is best for you, that WE are concerned, etc... Emphasis the WE or say "sis name" and I. Because you know what, it is a group effort. And if mom still favors sis, oh well....at least you tried.
It is so good to hear from you. This is great news that you are walking.
It will also help with your overall mood. I notice my mood uplifted whenever I walk, plus it does help me have a better sleep, which reminds me I must do this today!!
I was watching a program the other day, that had some info., about how strict the government is, whenever one is on disability. Congratulations to you on this end, because I had a friend who was going through this a couple years ago. I remember her stories, about she not having the cooperation from some of her doctors, which complicated re-approval of her benefits. I'm sure it took a tremendous amount of patience and determination to jump through all these hoops. I'm very happy for your wife is making improvements also.
My mom had a similar episode as you've describe about your step dad.
She was also confusing my sister w/one of her long time friends with whom she had just had a conversation on the phone.
You and yours, remain in my thoughts, Cmagnum! Much Love & Light! Margeaux
Maybe your mom needs the Xanx, too. Could her doctor look into that possibility?
Frankly, I'd be a nervous wreck trying to kill 2-3 hours with a cranky mom...then to take her to the new place without talking about it!
At the AL place, do they have some sort of "welcome" for new residents?
Any chance you could take your mom to lunch at the AL before the suprise move? Around here (Seattle) all the retirement places have prospectives to dinner at least once. Wonder if you could just say you were taking her to a new restaurant and see how she reacts? This would be before the move, of course.
Good luck!
Bonnie
Book~I told my sis this morning that if mom gives me any trouble when I pull into the parking lot, I will drop her off at the main entrance for her to handle because doing this by myself is going to tear me up. I have been depressed all day over this. I also told her I was going to see if my dr. would agree to put me out on leave without it being stated it is stress. I don't want it going on my record that I have emotional stress. If he will work with me on this, I would like 3 weeks of leave, and the week of the 15th being my vacation so a total of 4 weeks off work. I will be unavailable to my sister during that time except to get my mother moved. The FMLA will probably take too long to get but I will ask my dr. I am tired and exhausted with the emotional stress and sis is so black and white she doesn't get what I am saying without me being blunt and nasty. I was crying while talking with her this morning and she still doesn't hear what I am saying. I will try again with her with an email so she understands that once mom is moved, I will not be available for 3 weeks. I have to look after myself and sis is too concerned with her health issues (understandable) to see that I may be suffering. This is going to be my last memory of my mother before she is placed, it is going to be my mother's last fleeting memory of time with me before she was placed. Tuesday or Wednesday morning sis and I will go to the assisted living to see the one bedroom apartment to decide which one is best for mom. One is located on the second floor with a balcony ( concerns that her dog could fall) and the other is located on ground level with a fenced patio that is locked on the outside only (mom can leave thru the gate anytime and anyone entering that way must have a key). I think the ground level will be better for her but we will see when we visit. As Bonnie said, you can't make someone love you when they are unable to have that emotion, even though I have had the therapy dealing with all this, it now seems to be happening too fast for me to deal with it. I can't help but remember when my father had Alz and we as a family: my brother, sil, sis and I and mom all went together to place dad in a snh. It was the beginning to the final end of his life. I know this is what is happening with mom now. Dad was more progressed than what mom is, he was so trusting of mom that he never questioned her actions (I admit, I admire my mom for keeping dad home as long as she did). However, I was very angry with how happy she was not having to deal with his care. She refused to go to the snh during lunch because they expected her to help dad eat (something a loving wife would have done).I guess she deserved her freedom and happiness at this point in her life. I digress long enough and must end this post.
Thanks for listening to me and all the support. Hugs to everyone!!