
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
upset - hope the eye injections are OK.
beth - I am so sorry that you have all this stress with your dad. When they are so independent it makes it hard for family trying to help. Please try to accept that he is who he is and as long as he is safe it is ok. If he is not safe then maybe a note to his doctor would be in order.
Exercised this morning and napped this afternoon. After discussions with dd (my personal trainer lol) I have ordered a weighted vest as wearing it is the easiest way for me to increase the strength building capacity of my exercises. I have made progress from when I started and feel I am ready for this. I need to remember that my recovery time is long both due to my age and due to the CFS/FM so exercising 2x a week is probably right and if I am OK in between I can do a little more. However I do walk most days of the week if I am feeling up to it. And it is OK to take a week or so off if I am too tired or have a flare up. It makes me feel better to know that spending all this down time is actually accomplishing things inside me like building muscle as well as restoring energy. I really encourage anyone to do a little more than you are doing and do it on a regular basis. You will benefit. I can squat now without needing to hang onto anything to balance myself Yay!!! And be sure to eat enough protein -100 gms a day minimum!!!
Off my soapbox now. R has two different interviews tomorrow. Prayers appreciated.
Have a good evening!
UpsetSister, sorry your kidney function isn't functioning up to par! Good luck with your treatment plan, I'm sorry to say that I don't know too much about dialysis, assuming it is a form of dialysis! Make sure to rest up in between!
I've been lucky with my health care providers, and have had the same PCP and Rheumatologist for years. I'm liking this new Cardiologist too, but hope she is a short term specialist!
You guys were All Right about Bb, after my previous post, Bb never called my husband back, and I'm disgusted with him. I at least thought he would call my husband back and try to make things right, but I guess he didn't like the tables turned on him. It's true, a leopard cannot change his spots. Too bad, he could have had good friend in my husband, but it is now to late, and hubby is fine with it. He'd better hope that I'm not the one who answers the phone next time he calls, if he calls, as I'm going to lambaste him if I answer! I've tried so hard to give him the benifit of the doubt these past few months, buying into his health woes, but I'm now believing they are all a ploy to gain sympathy from us, and probably a ploy to request monies from us down the road. He just pizzed off the wrong (and only) little brother, who's wife can be a nasty wench when crossed too! We are definitely Done with his BS! Wish him well in his future, but that's about it! So long sucker!
I'm so glad my hubby is home tomorrow, I've missed him, and Charlie-girl has missed him too! We've talked more in these last 5 days than we normally do though, Lol! It is Weird how he turned out So Different from the rest of his family! Thank God! Lol!
Stacey, again my heart goes out to you and your hubby after all you have given and tolerated to have Bb play this game with your hubby. You both deserve to move forward with your life now, enjoy your marriage, the new carpet and vinyl when all is completed.
Yesterday was busy, my hubs and I went out looking for a new artificial Christmas tree. We tossed the old one as it had seen better days. Afterwards dd and I went to target to look for full size bed blankets. Got home from target and made split pea soup.
I should do squats and can squat down with good balance, I just can’t get back up without holding onto something.
Upset, mom takes treatments for her macular. Uncomfortable but her sight is maintaining for over 3 years, check for grants to offset costs...
I've made the decision, that when the times comes for dialysis, I'm going to have the slower New Zealand style treatments at home. They take twice as long, but they are easier on your system and life expectancy is longer. New Zealand style also lowers risk of heart attack and stroke. I hope my kidney function numbers will hold steady and it will be awhile before I have to start dialysis treatment.
Just as I suspected, Bb started calling here today, while hubby was in route to home, but I let his calls go to voice mail. I don't want to talk to him, and listen to his excuses as to why he ghosted my husband for 4 1/2 days he was there, waiting around and listening to excuse after excuse! Hubby has no intention of talking to him for a while I'm sure, he's sick of the entire mess that is his brothers life!
I'm just glad this is behind us, lesson learned, that said, hubby just had to see it with his own eyes, and now he has. I'm glad he lives 800+ miles away! The End!
Thanks for letting me Vent these past few days! You guys are Awesome! Stace
Had a nice day today with my kiddos and grands. Baby's first birthday. Gosh time goes fast. Party was at ex's as son and dil do not have enough space for the 16 people that were there. It was nice to be together. Found out ex was diagnosed with MS about six months ago. Kids did not tell me anything. Evidently he has been having trouble with a lazy foot for about nine years. His doc retired and he got a new doc that ordered the proper tests. Ex has had vision issues for about 25 years, maybe that was the start of it. This type of MS is usually diagnosed when someone is in their 30's. Sad.
I once dated a man with MS and with a flare up became a real AH!
Hi east - I think you are being very realistic deciding you can't go to your mum's and do all that cooking. Nor likely can she do all that shopping. The condition of her legs sounds worrisome, but she won't comply with the visiting nurses to treat them. Good luck with telling her and stay firm. I am afraid that she will have another health episode soon and land in hospital again. Nothing you can do about it. It is good that the nurses are visiting.
stacey - hope Bb stops with the phone calls, You and hub don't need it.
upset - I hope your kidney function stays good for a while too. It is great that you have insurance now to cover the costs of treatment. Do slow down and relax more.
guest - look after you and keep us updated in your friend and her mum. That is a disaster waiting to happen.
glad - boy, time flies. Baby's first birthday!!! I am sorry about your ex's diagnosis. The vision issues could be part of it. Good that you had a nice time with kids and grands. They grow up fast.
Increased my dose of resveratrol and been sleeping more which is probably good. Hope it continues.
Take care all - be good to you.
But you know, I think you should treat your mother with the same courtesy you'd extend to any other "hostess" (granted that most hostesses don't expect their guests to do all the cooking and clearing up!) and let her know as soon as possible that you've made other plans.
Put it this way. "Mother, we're spending Thanksgiving with Daughter this year." Rather than, "Mother, we're not coming to you for Thanksgiving." Same facts, still true, but not leading with the rejection - you see?
Glad, sorry to hear about ex. I’m glad you enjoyed the family, a year for the baby. She is doing well since surgery.
Stacey, good your hubby is home and saw with his own eyes. Confirms everything and now time to put it all behind him!
Upset, good luck with the eye treatments, it sounds like it will be very helpful. Hoping your kidneys hold steady.
I am using raw, local honey to see if it will help with allergies. I figure with the natural antibiotics and antifungal properties, it certainly won’t hurt.
Golden so glad your sleep situation is improved. Good exercise has great benefits. When I was not working I did a lot of walking and felt good. Was too tired to let dynamics stress me too much. LOL
Stacey its so sad, the dynamics with your husband and his brother. I dont know how it affects him, but I get teary eyed and wishful when I see sibblings just being together even the children playing. I think its the parents who set the relationship.
I have to catch up. I have been having to spoon feed my mother and I am so glad that our relatiohship is "normal". There is no vindictivness, spite, or ugliness. Its so nice and I guess its par for the cause. she hardly eats, I have to walk behind her to feed her on the most times. When I am off I get her to sit and talk to tv while I cook.
Here is the amazing? thing. I have had a lifelong history of being told by my mother and sister I dont do anything, and never did. So now my sister is singing that song. sounds just like my mother. its a form of denial but it still hurts. So much so that because I was stressing as I did, I stepped back and let her see what I am not doing so to speak. She doesnt have a clue. Does nothing. I didnt clean fridge now for about 3 weeks, well a little damage control. Just as I am realizing I am going to have to do it anyway "Duh" becuase my sister doesnt even realize the need (I start to babble) anyways my mother cleaned the shelves in fridge, spilt milk dried, syrup I was amazed. She also mopped floor said it was too filthy. So stuff kicks in. This week though I have to do the floors and bathroom. I just have too. Im fooling my self becuase it needs to be done. I just realize I dont have to do it because of demand and even if its temporary at least my mother is back to doing chores. Its good, keeps her busy.
My other thing is that she is locked in so she cant take out her trash like she usually did. I usually take a bag and stuff out fridge and junk accumulating around house and throw it out in street cans when I go do my laundry.
I also notice my mother is on something to make her sleep. I have no Idea what, but she was sleep like a baby when I left for work which is unusual. The last few weeks she is knocked out when I get home in the morning and I feed her when I leave out.
I am wondering what its going to be like when I get off. This morning is was constant bamming on the door "lets go" or come open this door. I tell her to go to her daughter upstairs. It does something to my nerves when she bams on door. I try to ignore and direct her to my sister instead of me being harrassed constantly. When it wasnt the dementia its was spiteful stuff like turn off the tv or light with the bamming.
At night now, I see my sister turns out the light on her floor. When I moved in my mother controlled the light on my floor. I learned not to depend on it. She had a string that hung down to her floor and when that broke she would go to my sisters floor to turn it on. I wasnt worthy of a light.
So my mother treats me normal now. She is not eating and my sister is carrying my mother's torch. So I leave stuff alone and let her deal with it. I just make sure my mother eats. Its sad to see 4 bottles of mayonaise, ham and boloney stuck inbetwenn shevles and rotting tomatoes in plastic bags. How are you caring for someone when you just pick up stuff and dont monitor how its used or if its used? The sad thing is that my twister is unable to see herself, She puts on the helmet and just runs no goal no aim only just because she has the ball. Then blames me for the aftermath. Like my mother.
I have ordered her some drinks. she does do the ensure. I am thinking of trying to make some kind of smoothie with her food. Its really hard to get her to eat. My twister leave the macd breakfast and she packs it with her other stuff.
]The other night she bams on door and demands I take two bags. I was scared but eventually went through them. Clothees and damp stuff was so rancid I just threw them out.
I have to lay back or I will go crazy. I will do a good clean this week because the holiday week I will be on for 5 12hrs shifts as people have familys to share love with over the holidays.
I wish it was like that with this family. My son is in Korea, I miss them also. Anyways, Rays of love and peace to all.
All quiet on the friend front. E texted my husband that she is waiting for insurance to contact her about adjuster checking her car out. Car was towed to E's house by insurance company so that she is not paying daily storage fees at insurance lot...so she has her wrecked car backed into her driveway behind her house waiting.... My hope is that code compliance doesn't drive by....No calls or texts over weekend for assistance of any kind. Response of "we're fine, bruised but fine" on phone call last Friday and nothing over weekend. So I am waiting *shrug*. E has appt with doctor on Wednesday pre-set before all this for colonoscopy. I've told her I can drop her off at 6 am, her Mom can wait with her, and I'll pick up after my morning work shift is done at noon. I can't cancel more work at morning part time job - the afternoon part time job canceled my Thursday and Friday shifts after I called in Wednesday for E's accident and her mom's trip to ER. I was offered a diet DP as a "tip" for leaving work, canceling shift, driving to doctor and ER on last Wednesday. Oh, and hugs from Mom (not E). However, I can't pay gas bills, son's bills, etc. on hugs. E stated on phone call to check in Thursday that she thought they'd see me in person to check on them. However, my morning job gave me 2 extra hours on Thursday and Friday because the manager found out my afternoon job canceled. He felt sorry for me and my financial situation with son at college and my own furnace and A.C. replacements having to be paid for. I told E I took the extra hours and she repeated that they thought I'd come by to check on them in person and see if they needed anything. The no call is the narc punishment, but this is where my boundaries come in. I understand E is freaked about money, but so am I. Aren't we all in this economy??
My gold standard is helping my sister with her knee surgery 4 years ago. My sis paid for plane ticket, gas and food while I stayed with her for 3 days, and my missed money for PT job while I was there so I was not out of pocket. So I know that boundaries can be respected. And it's my responsibility to enforce them. So I'll keep ya posted - but no grocery trip requests were actually made after I informed E and her mom on Thursday that I'd go shop for them to fill a list with a credit card, or pick up order placed and paid online, but I was not available for their usual weekend 3 hour aisle by aisle stall crawl. No subsequent requests or calls afterward.
Still, hubby is glad to have seen for himself and is glad it's all behind him. And expensive lesson, but done and done!
On a happier note, our carpet is in, and installation should begin in the next few days, plus we just bought 2 lots of furniture for livingroom and family room, it comes in 2 weeks, so Yeah, it will be all done by December 1st!
Dd is having Thanksgiving at their place on the Friday after the holiday, so that is settled too, Lol! I hate that anyone feels to be put out doing a big meal, but she seems fine with it now, and her hubby is excited to cook for us all.
I'm getting excited for Christmas, first time in a Long time! I'm even happy to cook a big Christmas dinner this year! I can't wait to decorate! Definitely planning on doing most of the Christmas shopping online, that's for sure! I'm feeling better with my chest symptoms, and in general now! Follow up with the Cardiologist this week, to see how my tests turned out.
Glad, so happy you had a nice visit with your Grandies and family, sorry about your ex and his dx! That's a rough one!
Hope everyone is doing well!
I haven't yet had confirmation of x y and z.
I won't be able to action that until I have heard from Ms TO.
Of course; but I will need first to speak to...
etc.
With a bit of luck he'll end up being as frustrated and annoyed as you (quite rightly) are; the difference being that he can find out where she is.
About an hour later the funeral home called. I've known the owner my whole life. They have done funerals for everyone in my family. He wanted to know how I was taking care of the funeral. I told him I wasn't. He said that my cousin and her daughter's had told him I was in charge and paying for everything. I said no I had nothing to do with it.
I called her brother. He hadn't been told his mother had died. He said they weren't doing anything. I then called my cousin and asked her why she gave the funeral home my name. She said she knew I would want her mother to have a nice funeral, wake and dinner. I told her no that wasn't my problem. She started crying and carrying on about what a horrible life she and her daughter's had and how I had everything blah, blah, blah. I asked if her mother had any money, life insurance policy, etc. they said no she didn't have anything like that. Whine, whine! They wanted to know if I would loan them $10,000 so they could have a nice funeral. I told them no because they had no way to repay a loan. What a mess!
I called their brother back. He said his brother was the executor. I called him and he told me that his Mom said my mother told his mother that she would take care of everything. I asked if he had anything in writing. He said no. I told him that I knew my Mom would never had told her that and if she had she would have put it in writing. I told him they would have to take care of this themselves. He was mad that I wasn't going to take care of things. I said I was sorry it was their responsibility. I hung up on him.
Since then I've gotten three or four more calls from various relatives. All of them mad that I'm not jumping in and taking on this expense. They think because I got money from my dad and uncle's farm that I should spend it on some funeral. I don't know what's wrong with all of them. Dysfunctional drama and stress I don't need. My Mom and her family are the gift that keeps on giving. Although I honestly don't think my Mom had anything to do with this mess.
I have to say, this family's incorrigible brass neck is quite something, isn't it - they don't seem to learn! How many sisters were there altogether? - just wondering how many more of them are going to be imagining that The Family Treasurer will solve all their problems.
We could write quite the novel or perhaps an anthology of the worst of the worst short stories.