
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Upset, funny the surprise was spoiled. Those youngsters feel so knowledgeable to know a secret and share. Ahhh, the honesty of youth. Have a happy birthday party tomorrow.
Stacey, so exciting so much new! Take it easy on yourself putting it all back.
Glad, Siamese cats are a bit more energetic than the tabby. My Siamese played fetch with a little toy mouse. I have never had a cat climb a tree, but they do love to sleep under them. So far buster is behaving around the tree, mostly ignoring it and Rusty too.
Upset, enjoy the rest of your vacation with family. I got homesick yesterday after facing timing with my dd in California. Seeing the forest around her, oh my Sierra Nevadas! Now I feel like John Muir, lol!,
glad - Ming will settle down but it will take a while. Dd has several cats that liked Christmas trees. One would climb into it and poke her head out periodically - looked very cute, but knocked ornaments off. Another one stayed underneath but ate the light bulbs. When dd told me that I didn't believe it, until I visited and heard a "crunch" from under the tree. He took the bulb in his mouth and bit down on it till it broke. Thankfully he didn't swallow any of it. Very strange cat! Of course there were the tales of cats eating tinsel in the days we used that.
sharyn - you are going to miss your old home state for a while, I am sure. I need to be near trees. Good that the puppies are behaving.
stacey - I am still concerned about you too.
ali - how are you?
I find it strange being concerned about mother fending for herself. Apart from her problems, she has been a very good advocate for herself all these years. She fussed about things that some people would not fuss about, but that was her and I tried to stay out if it. I guess part of it is accepting the decline. One's role as a caretaker changes. Her first case meeting is scheduled a couple of days before my eye surgery so that works well.
I have released myself from getting the house ready for sale for next year. At my age ,it is just too much on top of all I have been through the past 18 months. I will slowly continue to get rid of things I don't need, but without a deadline. I am taking some time out. We are still thinking of a condo if we can swing it. It would be nice to spend more time together, as well as being closer to mother. Funny, as much as I dread winters here, I was dreading the pressure of getting the house ready for sale more.
Here's to the little mysteries of life - mother's hearing aide batteries went somewhere, but no one knows where. I ordered new ones. These better not get lost!!!
Hope all those turkey tummies are recovering.
I have been wanting to come in this thread since I joined the forum, but I've been putting it off....mostly because....oh my god, explaining family is such a LOOOOOONG story, isn't it? Most times I look at the thread, want to say something, and then decide I don't have the energy to talk about my dumb family.
Except it's kind of in my face this week. My mom is being an a******. A total a******. And her behaviour towards me is making me re-think everything I thought I knew about my family.
My mom is 79 and has end stage renal disease, depression, and some dementia. She is an alcoholic. She's been sober since I was 17 (I'll be 49 next month). But a recovering alcoholic is still an alcoholic, and she would've said so first. She thinks she drank all those years because of depression. She also took tranquillizers for a period of time, and once tried to kill herself by overdosing.
The thing about her personality right now is it's a lot like her alcoholic personality. It's only partly dementia. It's also partly from being so sick - there is a lot of stuff she is aware of, and remembers.
Her alcoholic personality is combative, contemptuous, and dismissive towards me. She's kind of like a 4-year old in the tired, cranky, whiny, lashing out phase. She's childish. And mean. She's MEAN, god help me. And the thing about a 4-year old is you can physically pick them up and put them in a time out. But my mom is fully aware that she's an adult, and that she's my mother. She even tries to pull the "authority card" on me sometimes, but she sounds like an angry 4-year old when she does it, if that makes sense.
The only real difference between when she was drinking and now, is that sometimes, she is not fully aware that *I'M* an adult now.
I don't think she's a narcissist - maybe a little, but in the self-absorbed, self-pitying sense that can come with depression and anxiety. I guess the thing is, I am realizing....I don't think I really know her.
Mom got sober when I was 17, but I was 15 when I went to live with my dad and stepmom. (Because I couldn't take my mom anymore.) I went back and forth between parents for about a year after high school, figuring out my life. I lived in a whole different part of the country from everyone for 5 years, but eventually landed back in the same town as my dad and stepmom. I built my life nearby them. Both dad and stepmom are gone now.
About 2.5 years ago, I convinced my mom to move here, so that I wouldn't have to give up my life here to care for her. It was a hard sell - she had a hard time seeing that my life here mattered enough to make the move.
It's funny, I was really happy until she moved here. I really don't know what happened to me since then. It changed a lot about living here for me.
Then last winter she started getting more sick and confused and depressed. She was falling all the time, not managing home dialysis, not paying the bills, not taking her meds properly, not eating properly, etc. She was sleeping almost all the time. She was not managing her life anymore. She was lying to me and medical staff about how bad it was. I had to intervene and get her better medical help. I had to force her to accept home support. And by June, I was staying here in her apartment. I've sort of sublet my apartment in the meantime (because it's the only "safe" home I've ever known, and I've been there so long it's cheap, so I'm not giving it up).
In the beginning - I was trying to save her life, you know? I stepped in and started managing her life for her, got her on a different kind of dialysis, under the care of nurses. After a hard summer where I gave up a lot to care for her (thinking she was dying), she is finally starting to do a little better. She is more aware, not as sick, and rarely has a fall.
But she still can't live on her own. She's a cigarette-smoking fire hazzard. She doesn't eat well at all. She can't even work the microwave half the time. She doesn't know if the bills are paid or not. She doesn't know what day it is, sometimes she doesn't know whether it's day or night, even if she looks out the window. She takes the wrong meds if I don't monitor them, even though they are in a blister pack. She is confused, sometimes dazed, and she is bleeping NASTY sometimes.
It's the nastiness that's getting to me. I think I could handle all of it if she weren't so bleeping nasty. Contemptuous. Combative. Dismissive of my concerns, even the health and safety ones. She just does everything she can think of to try to provoke me into doing something....I don't know what. Maybe she expects me to turn violent? And I won't, I don't, that's not who I am. But she pokes hard and pokes mean.
My parents split up because they were both alcoholics who got violent with each other. They fought often. Up until now, I saw this through a different lens. I thought dad was the abuser and mom was the victim. But they were violent with each other, and now I finally have to admit it. My mother was just as likely to pull a knife from a drawer and threaten my father with it. She started it at least as often as he did. Possibly more often.
It's not that I would ever justify my father's violence But I have been justifying my mother's violence for years. I'm actually even starting to have a little empathy for my father. Because my mother provokes, she pushes, she prods - she actually slapped my hand the other day, when I was trying to give her diarrhea medication. And I thought, "Is this the start of the violence?" Because I can't be pushed into participating in it. And I'm not sticking around to take it.
Dad met my stepmom when I was 12. He was never violent to her. My stepmom was a better mom to me. That's the truth. She was tough, but loving. Dad tried treatment a bunch of times and finally got totally sober when I was 19. I guess I chose them, in a way, when I chose to settle here. I got some counseling and learned some things and settled down to have a career and a happy life.
Maybe as much as I don't know who my mother really is, she doesn't know who I really am. It's not that I don't love her. We've had a good relationship for 30 years now. From a distance. All I know is I was happy here, until she came.
This is soooooo long. And I'm so sorry. I have been trying to process this s*** for a few days now. Maybe a few weeks. Maybe the whole time she's been here. I don't know. This week, I'm questioning everything about my family, everything I thought I knew about my mother. Maybe if I can get it out here, then I won't be as likely to react to my mother and make it worse. I need to detach from her and figure out my s***.
So, January the clan got together to divvy up the spoils, ie. my Mom's estate. Narc sis was the executor of the will so she was in her element, lording it over us all. I basically reached my limit at that point. A couple of mths. later I sent her an e-mail stating as such. Probably only the second time in my 56 years on earth that I ever stood up to her. We ended it on an okay note I guess.
Fast forward to today. My Hubs and I have recently moved to a new place. I received an e-mail from her the other day saying she had a housewarming present and could we get together this coming Monday. I hesitated but then agreed. Now, she has already rescheduled. My first thought was here we go again. Let's string little sis along and cancel and reschedule and see if little sis will capitulate to my will AGAIN.
A good friend told me that if I want people to see my place I am the one who should be doing the inviting and setting the time etc. and to beware of narcs bearing gifts. I agree with her but am interested in what you all think.
Where to go from here?
Your mum is not going to get better and her needs will become greater and her behaviour probably worse. Are you prepared/ able to cope with that?
I do think you need some time/space to reorient yourself in terms of your "awakening" to who your mum is. You probably are facing her realities much more than you were. I agree she probably does not know you and likely never will. That has been one of my themes -my narc mother and sis do not know me They have constructed a person which suits them.
I think you aso need to consider whether or not you can continue caring for your mum in the manner you have been, as it is seriously negatively affecting your life. Your life matters too - not just your mum's care.
Can you arrange some respite or counselling for yourself to work on detaching and re assessing your situation?
I love the quote by Paulo Coelho - “When you say 'yes' to others, make sure you're not saying 'no' to yourself.”
The secret when helping others is to do no harm to yourself.
Come and vent anytime. We understand. (((((((((((hugs))))))))))))
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The bullies/meanies in my family are so nice when they invite you to stay, but then we get into it about who knows what... I'm sure they're unkind, because that's common for my cousin and older bro, and I'm sure I blew my top about it because that's common for me. I'm sick to death of family bullies and it was one thing when they were the older children growing up, but if they do it as an adult, I don't stand for it. So I've left from cousin's and bro's and vowed to never stay there again. I won't stay at cousin's but bro is so preoccupied now, and more space in the house, so I stay out of the way with the kiddos and enjoy their company, hardly interact with bro. Several times in the past while staying with older bro he is horrible to me, going so far as to physically abuse me. They've both, cousin and bro, mellowed with age, and I'm sure I have, too, insomuch that I don't react with the same level of intolerance to whatever shite thing they say to me. Now, I feel more comfortable in my own skin, and they can say whatever they want to, it doesn't bother me nearly as bad as it used to. But... they do both still say very unkind and demeaning things. They think it's hilarious to act like that. -_- THEY THINK IT'S HILARIOUS TO BULLY ME. I just thought about that. It's literally sport for them at holidays. :-( They're so cruel, both of them. I can't relate to that. I'm not the kindest person, I get angry about things in my family, but I don't seek to pick on someone, ESPECIALLY about something that is a trauma to them. E.g., my bro loves to joke that I "lost my mind" during the mold illness, when I couldn't talk very well and had no idea what was going on with me, and was going to doctors trying to sort it out. He makes jokes about how funny it was that I was in bed and couldn't get up. He would never be sick like that, of course not, so it's hilarious to him to make fun of me.
Ok, now I'm just mad at my brother for being a big jerk lol. I'm going to eat my food and try to sleep. It's 2:45am here. I'm so busy lately, trying to get everything tended to. :-)
As I was reading yours and then ABB's stories, I realized that when my brothers left home and bedridden mom was no longer fun to pick on, he turned to me as his new punching bag on my head/face. I saw his eyes, how he loved it - that I would jump in fear every time his hands made sudden movements. He always aimed for my head - no bruises to show. The violence from dad escalated. He started aiming for my face. One day, he tried to choke me.
I hope that your mom's slapping your hand is just that. Nothing like her trying to go back to the time her and your father had their 'normal' violent relationship. I hope she's not going to try to have you replace your father's role. I would also start documenting events. My dad would tell lies to everyone about what a bad daughter I was. You need to document things going on - in case your mom decides to be vindictive to you (or get back at you.) Just write things down as a journal. No need for lengthy details.
That sounds like a fine way to expose their lies.
Did playing it back to them end your ability to record them further?
I played back the recordings numerous times to prove things they said. I played the memos for family members to prove what mom and brother did when they said mom and my brother wouldn't do those things. I also kept a daily of exactly what spent and thevreceipts. I also wrote down everything I did for Mom including mileage.
I also had a nanny cam in my bedroom to prove that my niece went in while I wasn't at home. I took that to the sheriff's dept. At least then Mom had the locks changed. I also had a nanny cam hidden in a flower arrangement at the front door to show my brother and his family coming in when Mom and I went out.
They never said a word about the recordings. My brother was too lazy to bother and Mom was too self absorbed and shortsighted to ask me not to.
dorianne - You are very welcome. How frustrating!!! I have lost long posts too. I understand.
book - I don't know how you endured it for all those years. You are a very strong person. Wise words to dorianne.
upset - I am still amazed at your documenting skills. Good for you! Mother and sis deny things too.
send -"one's" finances? Hopefully not yours.
Well, another lost day here. I woke up to visit the washroom in the middle of the night, looked out the window and saw the most amazing sight. There were "pillars of light" in a greeny gold colour rising from ground level up to the skies. I have read about them but never seen them. Apparently they are rare and belong in the sun dog family of effects. Of course, I had to get a camera and it took a while to find the setting to get the best pic, during which time they had changed to pink and blue and were less startling, but nonetheless very interesting. By then, I was chilled to the bone from being outside, and further sleep was out of the question, so I wrapped myself in woolies and drank hot coffee. I have napped off and on all morning, and hope I wake up enough to at least put a load of laundry through. But it was worth it!
@golden23 - I probably shouldn't have written that Mom had a hard time seeing that my life here mattered....what I mean is I had to push and push her to understand that I would have to give up my life here to provide more care when she started to need it, if she didn't move.
I'm still not sure she is a narcissist though, from the reading I've done. I'm sure her FATHER was one. Maybe she is borderline something. The woman I knew in between the drinking years and now was actually very thoughtful and sensitive. Although the truth is, I never spent more than a week with her at a time, so how would I know? She doesn't have any close friends, and calls herself a loner. Maybe she's just been hiding it. I don't know. I don't know anything anymore!
@bookluvr - Yes, I think the dementia had started before she moved here. She was very confused around the move itself, where she used to be an uber-organized person. And you do bring up something I worry about - my mom trying to replicate the relationship she had with my father. Because I actually look quite a lot like my father, especially as I get older. If I didn't have long hair and boobs....
And I really appreciate everyone's advice on documenting and maybe recording what's going on. I still have a flip phone, but I have been wanting to make the leap to a smart phone for awhile now. This might be the right time to do it.
It's funny, because I never think of the way I grew up as abusive. Mom never hit me or called me names. I would have said she was manipulative and neglectful, but not abusive. But I don't know anymore. I don't know anything anymore. Everything I thought I knew is up in the air for re-examination.
Anyway, I really appreciate everyone's thoughts and suggestions. I am not sure what I am going to do. Definitely I need some respite soon....
Dys families cultivate an atmosphere all their own. A narc always wants it their way, they want to suck the air out of your space. One has to find the support they need to move on. I find peace with the supportive people on this site. Most have found their footing or they are trying to learn from the situations of others. It's a good place.
I dunno if that makes sense.
How do you know the difference between narcissism and dementia? Is it that narcissism shows itself before dementia? Dementia already seems quite narcissistic, in the way that a teenager or a 3-year old is narcissistic. I don't know how to spot the difference.
I feel bad inside lying about not being able to see her but it's become about self-preservation for me. I don't want to feel that dank, empty feeling I usually feel after I've been with her. It's sad that it has come to this cause I have always wanted to be her friend but she makes that next to impossible. So be it.
You are right to try and protect your own peace from a narc sister.
Still, kinda leaves you unsettled doesn't it? Whatever did she really want anyway?