
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Glad, so good to hear from you. I am looking forward to therapy and your sharing your experience eased some of my fear. I really cant wait. But I am also scared. Facing myself and issues get very emotional for me.
Like everyhing seems like this therapy thing is going to take a while. I took down email address over phone. Imailed job insurance card which is very minimal which is first step. I dont have computer at home right now (in the works) so when I get to work tonight I see it didnt even go through. On my days off. I thought to call but told my self to give them time to check out insurance. Now I see I havent even got the ball rolling. Aye yi yieeee!!!!!
Becky, thanks for the advice. You know I had the bath chair in my head for a reason. But all I could see is it was not safe for my mother to even try to get in the tub not even recognizing it may be fear. Because she was an ardent bather. So that bath chair is in the works. Meanwhile I am making her warm shakes with an infant formula and milk in addition to the spoon feeding which she seems to be used to now. She does eat on her own but its after she has poor appetite.
I bought so more stuff to rubb and moisturize her legs and diabetic socks. She had key chain small flashligt in shoe walking on it. Her foot was tender there and i told her it was from the flashligtht. Cleaned them good and cut the toe nails down.
So sorry about the condition with your eyes. Looks like you are on top of it. All the best in maintaining it.
Golden, the nerve of that woman. I will be careful here on expressing my thoughts. but some people are just plain old tricky. I think you handled her good and the nerve of her to take your property. My goodness. Its a self righteous and selfish spirit. Meeism.
I am glad things are flowing for you. Oh and about the stairs. They do keep you in shape but I sure did love the evlevator the one time I lived in building that had one. I mean its so smooth walking on with your load and walking to your door. Of course then I did a lot of walking. I have two flights to walk up now. I do it like nothing just a lot of phewing once I get in but when my knees were acting up it was horrific up and down. I started back on the glucosamine for joint care. I took for a while, orthro doctor recommended it on my last shot. She was using my visit to teach. (starting to go off tangent here Babble babble.
Dorriane your post bought tears to my eyes.
Ali you are so good at wrapping the delima in a nutshell and showing its normal. That eases the pain. I am rootin for you always.
Guest good luck at the family dinner. Good you standing your ground you have been the bigger person and tolerated so much.
I just realized how my sister talks to my mother like a dog and the intimidation that she accused me of is what she does. I was taken aback when she said it because my mother has never been a person to be intimitdated but I am seeing it now and I feel a kind of way about it. My imagination makes me wonder why she is so timid especially since she disappeard for a while.
I sit and watch my mother, while try to feed her or cook and I am so glad that I can spend time in her presence with out coiling up or rushing to get away. Those bad moments are still there but I prayed not to remember and I was anwered because now with all the kindness and sweetness and innocence I am not drawn to past memories. It just makes me look at her and I cant help but wonder how I am going to make it when she is gone if I am still here. All the bad and the good. I wanted to tell her when my father died, that I dont know what Id do if something happened to her.
It scares me if she doesnt eat or dring that she will get dehydrated and malnourished. I get different kinds of advice from friends who have different experiences and some of the feedback I know is not right. I couldnt just leave before and certainly not now even if I had the means. Deep down in side I long for justice with my sister. I cant understand what makes her need to block me from my mothers care. And I wish I could say it doesnt bother me. It just speaks so much of the true ugly between us that I fooled my self about.
The holiday season makes it a little worse. Christmas is Sunday!!. I see people shopping and cars with trees wrapped on top and it brings back such memories. I wish you all the best in this season. Rays of love, light and happiness. Its about love and I plan to share it with others if I cant with my own family.
Trying, People on this thread will try to help you and relate their experiences if they think it will help. None of us have all the answers, and we all have different experiences, but it's a safe space.
Sorry about the leg cramps. I used to take a med that caused them. Not pleasant.
I'm at the ER with my cousin. She was having back pain that her Ibuprofen was not handling. I called PJ's son who is a doctor. He told me to bring her in and he had an oncologist on duty come to the ER to see her. The doctor was very nice and very good to her. She's been asleep for about 3 hours. I think she has been doing too much the last couple of days and exacerbated her pain problems. It's been snowing all night, but the plows, salt and sand trucks have been out since yesterday evening. This is when learning to drive on the bad back roads of West Virginia is an advantage. We'll head home after the hospital pharmacy opens at 7:00 and I get her prescriptions picked up. The oncologist set her up with appointments at his office and also with pain specialist.
I'm feeling glum and weepy these days. I hate Christmas. Sooooo many sh***y memories. Soooo much pressure to have some mythical happy family event that never existed for me, that isn't even possible now. I've always secretly envied people that had enough money to run off to the tropics for Christmas. It's not that I feel sorry for myself, it's just that I'm not good at pretending to feel things I don't.
I'm certainly not ready for it, whatever Christmas there is this year. I dragged the tree out, but I haven't finished it. What's the point - mom doesn't participate, or care or even know what day it is half the time. She didn't care about getting a present or a card for anyone, not even my brother. (It's kind of startling to realize you're in charge of picking out your mother's card and present to your brother.) I know some of it is dementia, but mostly she just doesn't care anymore. So I haven't put my heart into anything. There's nothing for under the tree yet. I haven't gotten anything done except soap-making. I'll be scrambling to put some things together for my friends at the last minute.
I want to go to my BFF's like I've done the last several years. It's so peaceful and drama-free - no one fights or gets drunk; it's just playing with grandbabies and over-eating and playing games and watching Doctor Who. Mom doesn't really want to go there this year. I don't blame her, the way she feels, but I don't know what she WANTS to do. She won't give me any indication. It seems cruel to leave her here on her own, but it could easily end up being yet another day where she sleeps through till the next one, and then I'll end up rattling around here feeling resentful. I don't know what to do.
Work is going well. You know, it’s work. The young girl I mentioned in a previous post is leaving, last Day is the 28th. Most of us are glad as we are tired of listening to her complain about the manager.
The snow is mostly all melted, that is normal as it seldom accumulates before more snow falls here. I would like a white Christmas though.
You are getting all of this information about what's been going on from your mother, yes? So it's necessarily unreliable - might be true, might be half-true, might be baloney. So-and-so was very rude (maybe). So-and-so did this (could be). So-and-so did that (who knows).
You could text your brother and say: "mother is manifestly not safe on her own. Who is responsible for her welfare while you are away?" And if he doesn't reply, or you're not satisfied with his answer, you could call APS and tell them what the situation is - that your mother lives alone with your brother's support and you are not physically able to assist .
But you can't DO anything. She won't come to you, you can't go to her and you have already made that extremely plain, she has rejected sensible proposals and she is not (not yet anyway) mentally incapacitated. She has tied your hands. It's not your fault.
And, very importantly, for all you know there is actually a lot more help being sneaked in behind the scenes than she is admitting to, or possibly aware of. It's not your fault that you can't possibly know that, either.
Yes you should let her make her own mistakes, especially as your brother is her primary caregiver and not you, plus you know she is already on social services' radar, plus your mother and brother have intentionally excluded you from responsibility by, for example, omitting you from the emergency contact list. But if you really can't stop worrying, then text brother, give him 24 hours, and if you're still worried call APS for advice.
sharyn - a BLT was one of my faves before allergies. Glad work is going well and the complainer is leaving. Everyone will heave a sigh of relief. I gather you are enjoying your first Idaho winter. Hope you have a white Christmas too. Has there been enough snow for the boys to build a snowman?
trying - mostly you will get support here and not be judged. Once in a while a weirdo appears on a thread and once in a while there are misunderstandings, but most of the time it works very well. Your mother is fortunate to have you and you are doing a great job. Hoarding is a mental illness and if she can't do it where she is then she is much better off. I am glad she is already on medicaid. That is a large hurdle crossed. Sorry about your hubs mum. I am sure he is busy with his dad.
duck - so good that you can help your mum in a day to day basis. You are very tender with her. Your sis is who she is and likely won't change, so work around her as you are doing. I have been to much therapy and hope that you have a positive experience. It has been very good for me. No more signs of the crazy lady thankfully. All the best for the season for you too. Yes, it is about love.
((((((dori)))))) - the season does bring back memories. It would be good to cut yourself some slack. Re what your mother wants -maybe she doesn't know or maybe she doesn't care and that's OK. You can't fix it and I know that hurts at times. I think Becky's compromise idea is a good one. You need some good times for just you. I am alone most of Christmas and I am fine with that. Your mother may be fine with it too.
east - what cm said. Work on yourself -- not getting stressed. There is very little you can actually do about your mother/bro situation. Your mother has refused help for the most part. She is, to me, showing signs of mental decline with the repetitions etc. It reminds me of my mother when she first started declining - she insisted that everyone else was confused. Hope you have a great Christmas with your family.
cm - very good suggestions about east texting her bro then after an appropriate time calling APS. The lady (east's mum) is not quite safe on her own. Hope your neighbour does not get more bad news about the blob. Happy Hanukkah!
East, please listen to CM. You cannot make people take help from others when they are determined that YOU are going to give it to them. You were programmed to be the servant. You have your own health and mental challenges, and your husband as well. If your mother refuses help? It's not your responsibility. Your brother took it on. He only wants things his way. It hurts the heart, but free will is exactly that. The greatest gift and curse we were all granted.
Sharyn, hope you have great holidays and glad environment is less toxic.
Glad, hope your feet feel better. I have plantar fasci (sp) issues and need really good arch support. SAS shoes are great for me, but I have to replace the arch support every 3-4 months.
Golden, you keep beating them back! Taking care of your own health and managing the stresses of disasters.
As the dinner looms closer, the volleys begin. MIL went out to dinner and to her house yesterday with FIL on pass from facility. She was looking for nice outfit for Friday dinner to come. Oh, no, the food they ate didn't agree with her and she had to return to facility (please note MIL insists on eating foods that do not work well with her medications EVER and always thinks it will be OK THIS TIME). "Hey, SON, Perhaps we could rearrange as the restaurant might not be a good idea...we could fix food at the house..." To husband from me: how is the Parkinson's patient or the COPD guy who eats ensure by the caseload going to fix dinner...yeah, that would be a no for me to fix or bring food in to prepare, serve and clean up after. Who will clean the house that FIL has been living the bachelor life in? that would be a no to me organizing that too. FIL refuses to hire housekeeping help. Family should pitch in. (He and MIL never helped anyone else in the family at all). So, just keep your good thoughts coming. Hugs to all I've not mentioned - I think of you, really, just try to sneak posts in on breaks at work.
Need to go today for a thyroid check as well. Been feeling a bit hyper.
Christmas Day I will go to dd's for a full Newfie Jiggs dinner. Her hub is a great cook. R usually visits his grands, all of them far south, but they, like he, are last minute people so he is in a tizzy not knowing what is going on. Last year the family seasonal marathon fell apart as each family had developed their own traditions. I wouldn't be surprised if that is the case again this year - all a normal progression. And if the weather is colder and snowy, as promised, travelling is not a good idea. Where he is staying they will, at least, feed him well.
Hope everyone is doing reasonably well. It can be a stressful time of year. Be cool (not cold) chill out, stay warm, and all those other good things... and look after you!
Plantar fasciitis is no fun. I have had it but with stretching, it went away. You are doing well avoiding the in law's plans.
Do you remember Lil Abner and Joe Btfsplk? Sometimes I feel like Joe, only the disasters come to me not others. I want a little boredom. Well, maybe I don't after all. "Stuff" keeps my brain cells active.
R's comment about the crazy lady was that we would know she was really crazy if she came back after the way I treated her. Someone shovelled the sidewalk in front and a little into the driveway the other day. I didn't see who. I am not sure it is over yet. The nice next door neighbour's back is too bad for her to do it. I assure you all I am not rude normally - only when really called for.
Glad - been wondering how Ming is doing. Is she driving you nuts? Hope the weather there is not too bad. However, you have a good vehicle for driving in the snow!
Many are facing a first Christmas without a loved one. My thoughts and prayers are with you.
New twist. Brother MIGHT be coming up. I wrote him an e-mail a couple of weeks ago, letting him know how bad mom is and hinting that it might be the last Christmas for her. He didn't really give me a straight answer till I texted him today, to let him know I put his present in the Express post. Now he says he says he has new snow tires and a tune up scheduled for Saturday, but that the highway weather is predicted to be bad next week. That's it. No date, no mention of how long.
So now I'm all up in the air again, and I'd just decided to take the advice you all gave, lol. I guess....I'll finish the tree and get something simple for the freezer. (I've never cooked a turkey in my life, I'm not gonna learn based on a "maybe.")
Might be just as well I stay with mom. BFF has decreed that the womenfolk are going to do the sitting around being lazy this year, and the menfolk (husband and 3 sons) have to make the Christmas dinner! I last saw hubby googling turkeys that were dressed to look like the creepy facehugger from the Aliens movies....
"Jiggs’ Dinner – also known as “boiled” or “Sunday” dinner – is a traditional meal that consists of salt beef, turnip, cabbage, potato, carrot, pease pudding, and more often than not, some kind of dessert. Our Jiggs’ Dinner, on both sides of the family, included a turkey."
In sil's family, the turkey was included, so it works well for Christmas. He will also include sweet pickles, pickled beets and cranberry sauce. He makes gluten free, savory seasoned stuffing, and gravy to accommodate me.
Pease pudding, for the uninitiated, is a pudding or porridge of boiled, seasoned, split peas, traditionally cooked a cloth bag.
He doesn't have a particular dessert, but I usually bring ice cream and pie.
It is a fair amount of work as the water has to be drained off the salt beef periodically or it is too salty. The vegetables need to be timed so they are properly cooked when everything else is ready. He starts in the morning to be ready for supper.
It is a good feed and I go home with leftovers!
Pease pudding cold
Pease pudding in the pot
Nine days old.
I've never knowingly eaten it, mind!
cm - it is like a very thick split pea soup which has set. I think you would know if you had eaten it. I love pea soup, so I took to it naturally.
Had my post op check up and she says my vision is 20/20. I don't get a new prescription for my left eye till the Jan 29th final checkup, so between that and the broken machine, I will not have proper glasses till halfway through Feb. I am not pleased with that. She says I have dry eyes, so I got prescriptions for stuff for that. We had an interesting discussion. She was much more approachable this time. I commented on my dd's efforts with weight lifting etc and she said she was weight lifting had thought about becoming a personal trainer too, but thought she was too old, She was encouraged to hear about dd. I estimate she is in her mid 40's. Dd is 52.
I ordered Christmas flowers for mother - cymbidium orchids and red roses. Made me a bit sad as I used to send to ex mil and R's mum too. My list has dwindled and I am indulging in nostalgic moments.
Final accomplishment of the day so far, I got my TSH test done and will find out tomorrow what the results are. Moving along...
There's a Canadian store called M&M Meats....they sell pre-cooked or at least pre-marinated frozen foods - lots of things cook right from frozen. They do a great pot roasts and lovely spareribs. I think I'll just pick something up and keep it in the freezer. Then if bro doesn't make it up here, I can feed it to my best guy friend (starving musician) some evening, ha ha.