
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
S2 says to S1 as she's leaving: "Call me when Mom wakes up. I'll come by and see if she'll go home with me." [Now, for those you late to this fiasco, I'm Mom's live-in caregiver and have been away from home doing so for a year.] S1 says, "I'm not spending the night." As S2 leaves the house, she repeats to S1: "Call me when Mom wakes up."
Just because your rude sisters treat you like Cinderella, you don't have to follow suit, you know.
Did you fancy the concert? (personally I'd rather take a bath in sick, but that's just me) Next time, say "thanks! I'd love to! Hang on while I get my leather jacket..."
Wait for them to be normal, you'll wait a long time. So you have to fake it for them.
Ali - It's wonderful that you are feeling more hopeful and joyful!! Letting go is the biggest gift we can give ourselves. Your post was a good reminder to me. Thank you.
Margeaux - so good to hear from you. The job situation sounds really frustrating. Particularly since you had to wait two months to qualify for the work! I hope you get another better client soon.
Have a great day all!
Margeaux, good head from you. Glad to hear your mom is doing well!
Maybe you can do something nice for yourself and not consult them for a change? A concert ticket might be unaffordable, but what if one evening when they are there, you just quietly gussy yourself up and walk out the door - don't even tell them where you are going! If they ask, just say, "I'm going out! 'Bye!" And keep moving. Even if you end up sitting in a coffee shop or a library for a few hours. Let them stew.
dori - that is an amazing email from your bro, amd a real treasure. I can't imagine anything like that from my sister. I hope you are still getting a little respite and relaxation. Your job with mum isn't getting any easier.
glad - hope you get that insurance mess sorted out. I know how it drags on and on. Proof of fraud should help.
moose - I understand. I am the cinderella child too. Stick up for yourself any way you can. It is so demoralising.
trying -good to see you back.
guest -how are things in fil/mil land?
becky - glad you got through surgery and are better
margeaux - good to see you posting and that your mum is doing well. That job is frustrating!!!
sharyn - hope the twins are doing well
Everyone - hi - I am a bit foggy these days, so apologies to anyone I left out.
The good news is that finally my other lens is in so I will get my glasses done next week. It does seem an unreasonably long time. The bad news is that the brand of FM pain meds that I use is not due in till May, and I am running out. One version is due the end of March, but I have had an allergic reaction to everyone I tried before except the one I am on. Hoping that the one that comes in sooner will work for me.
Having a spring CFS/FM flareup and maybe allergy to snow mould. It is the time of year.
Looks like Kelowna is off the books, but R has applied for another one in southern BC. Meanwhile the daily routine grinds on. One more northern winter under my belt.
Take care all.
Hang on. He TOLD you you were on duty over Easter? Or you inferred that from his saying that would be away on vacation? He said, or you understood; which.
Ah! You answer my question later on. He told you no such thing, East, did he? He said he would be going away for the holiday. He did NOT say, "so you're dealing with mother."
You conclude: "I have been put in the middle of this craziness."
Again, no such thing. You have been consistently *excluded* by your brother. He does not inform you about your mother's arrangements. He does not list you among people to be contacted. He expects your mother to rely on the services he has set up.
And East, I say this in all kindness and concern: please get help. Anyone who can spend three hours a day on the phone to their mother talking about NOTHING is in a brain fog. Your mother is in rehab, it makes no difference to her whether she's giving you a running commentary or not, and if she isn't on the phone then the staff and the t.v. and her room-mate and sleep will provide her with all the occupation she needs. But you are in your home, with what should be the everyday routine going on around you. One hour would be stretching it; fifteen to thirty minutes should qualify as ample for a morale-boosting, "thinking of you" chat. Three hours and more? Stop it!
It concerns your mother, knowing that if she asks your brother to do anything for her she is taking him away from his work and imposing on him. Well, she IS imposing on him. But if he minded that much, he would increase the range and hours of services. There isn't a problem, or at least not a problem he isn't manifestly handling just fine.
But the point, as far as it concerns you, is that NEITHER your mother nor your brother expects you to carry out any of these tasks.
The way that they have excluded you over all the time you have been posting on this thread has saddened me before. On the occasions when you have tried to help in practical ways, they have, it struck me, been rather impatient and dismissive; and it must be hurtful.
To return to the crazy amount of time you spend on the phone to your mother; I'm not sure of what exactly, but this is symptomatic of something. Three to four hours every day is... dramatically excessive.
What are you doing to take care of yourself emotionally?
No, you absolutely should NOT alter your historical relationship with your grandmother and your father to your mother's world view . You are not your mother. Separate your identities. Adopting your mother's emotions is incredibly unhealthy, it's enmeshment in spades. Sympathising with a person, acknowledging her feelings, is NOT at all the same thing as believing that they are objectively the only correct truth.
My Dad died in 1999. From the next day (I'd been quite close to both parents) I called and/or saw my mother every day unless she was out of the country, right up until the day I moved in with her, before we moved again together with my exSO to our shared house.
So it isn't, believe me, that I somehow "disapprove" of close, supportive mother-daughter relationships, not at all. What pains me, and has done for a while, is how you have seemed to me to be running around the outside of your mother's life looking for a way in. You feel very closely connected with her and what is happening with her; but when it comes to including you in a practical way, the reality is that you are excluded.
It's for perfectly good reasons, actually. Because of distance, age and other physical barriers, you are not on hand to perform the support services your mother needs. Your brother has made other arrangements. They, your mother and brother, have sorted this all out to suit themselves. It's fine.
But having been so closely involved for so long, it is you who seems to be having the real trouble adapting. Is it some residual guilt at having asserted your own family's right to branch out to a different location? - if so, I do kind of suspect it's coming from you, more than from them.
Take another sentence - you say you are the only person your mother can really talk to or complain to.
Well, now. You are the only you. The conversations she has with you are different from those she has with other people. That's simply true.
But that does not mean that you are the only person who can contribute meaning and human contact to her life.
Off on a little flight of fancy... suppose you developed severe laryngitis, or your phone got cut off? Your mother would be fine. She could talk to other people if she wanted to, or not if she didn't. The point is that no material harm would come to her.
Your daily calls to her, I'm sure, are important to her and do benefit her. They could be just a pleasant, healthy habit in her daily routine. But right now they're not, are they? They cause her to ruminate on past injuries. They bore the a** off you, when they don't actually upset you. And they obstruct her interaction with other people: not every relationship has to be permanent, deep or meaningful. Chatting about the weather or the terrible food to her roommate also has value.
"Variety's the very spice of life, that gives it all its savour..."
And you know what else is okay? Feeling dissatisfied. Your mother is a lady of decided opinions. She likes to express them. That's fine! But it doesn't mean that she *needs* someone to bounce her opinions, her complaints, her grievances off. She's entitled to her feelings, and she's entitled to have them whether or not she puts them into words and sticks them in your ear. I wouldn't want to change your mother or any other characterful lady for the world! More power to them, I say. This is ONLY a question of how you respond to her, not of her absolute right to be as she is.
This built up gradually, over years. So, you can equally well water it down gradually, taking your time. You can, for example, make it a rule to cut the conversation short once you've put the world to rights. Or, you can alternate days with marathon phone calls and days when your call is just a quick check up, you have to rush but you'll call her again tomorrow as normal.
What I'd like to know, though, is how you'll be spending the time you save. Because I don't want it to be sitting in a chair worrying about whether you've hurt your mother's feelings by limiting your call to a half hour.
So, it has always been a long and complicated situation. There were times when my brother refused to drive my Parents to a family function, and he would not tell them until the last minute, but they would never really say anything to him, and there were no consequences for his behavior. I think that is why he treats my Mother with a lack of respect, but he expects so much from other people.
*bangs head on steering wheel*
My first thought was how do you set boundaries when no one respects you or your boundaries.
I get a little depressed when I see things done and dont know who is doing them. My nephew threw out the second garbbage can. The last one of the three is a white one which I had just cleaned. I put it in backyard and use it when I am cleaning because I dont want it to get messed up and then thrown outwith the rest. I came down and found someone had cleaned up dirty chucks but didnt put anymore down. So I mopped the whole level and put some chucks down. I see someone is picking up the chucks and throwing them out for now. That is the frustration for me. The trashcan is thrown away and now wwho ever is throwing out the chucks reguallarly for now but how long will that last.
Also my mother is a little more confused. its so painful to look in her eyes and know she is not really there. I came down today and when I passed she mutter look at that ugly thang just came in here. I wonder sometimes if that is how she really feels about me. Its things like that that make me wonder what the hell I am doing here and why. Then things were normal and regualar. She flitts around constantly and that has me concerned. She takes things out the freezer like she is going to cook so I see I have to stop buying stuff ahead of time.
My heart is heavy not just watching mymother deteriorate. It what she means to me even if we have this sordid relationship. Then its what I wonder what the truth really is with me her and my twisted. maybe I dont really need to know. I just dont understand any of this situation and the how and the why of it all. Family has always meant so much to me and I spent a lot of love and energy and committment to my family not realizing the the feelings were not the same. Not even considering that possiblity.
The house is a mess. The floors all need cleaning. Part of the ceeiling fell in the kitchen on my sister floor and she left the pile right thre. The same in the back room when my mother was more herself. Its just left like that. When I came back I was surprised to see that just about every roomin the house is full of junk. How my sister does nothing to fix up or build up or keep up. How i plan to get the gbathroom on my floor working now, even though I am not finished paying for the shed (the work is still not finished)
I just wish I didnt feel so all alone in this situation. But the truth is I am and I realize that I am the enemy to my twisted and nephew. I feel sad about that. Now it seems someone is stepping up to the plate and helping with the dog mess. I was glad to see but its frustrating because I see this as temporary and only because I had stoppped my selft from doing it as I got tire being the lonly one cleanin up the pee and do it seemed like it was being left for me. Am I crazy. I just always wished i had a normal clean house. A family where everyone did there part. pulled their weight or at least had a common goal. I make my self reponsible because I care. I care about my mothers surrounding about the family house about her eating. It just pisses me off to see the flux when the concern and attendtion is increased ususally inspired by a lack eirtherr real or imagined on my part and it lasts for a while then its right back to the same old oblivion. I know i sound bitter. I feel this way at times. My mother needs a home attendant there with her. Someone who can get to know her now, and learn her and she can get used to them before she gets worse because that is what is happening Its subtle and maybe as I type that is what is really bothering me.
That she is getting worse and everyday I am lossing more and more of my mother while I live with the uglyness she fostered throughout the family. Making me the sole reason for all lthe wrong. and sometimes that is just what I feel.
With all of that going in my heart I am in the down mode. But otherwishe things are good. I need to get one thing in to complete my taxes. My laundrymat had a fire in the dryers while I was drying my clothes. Thank God my clothes were not burnt. A man who was ther lost some of his clothes. Then the neighbor who is a gentleman Mr R. who checks on my mohter and who I used to share our dinner with. He had a fire in his room. Its sad he is geeting old. We all know each other and the lady he rents from says she wants him out. Our children grew up together and she and I are pretty tight. She came to the ER when I was on when her Godson got shot and killed. We have a good bit of history. She took care of Mr. R like he was her father when he was in the hsptal soon after he moved in. She says now she wants him out. he was agruing with her saying it wasnt his faault. Its sad and scary to see people aging and going down not just my mother. I just pray I dont be a burden to anyone.
I also finally got to nursing home to see my girlfriend. She had a stroke about 2months ago. It seemed like she recognized me at first. She cant speak and her right side is weak so she is in a wheel chair. But she looks really good and like she is okay with the program.
My cousin is still dealing with the shortness of breath on exertion. she passed every thing and luckily one of her doctors from the past stoped them form doing MRI on her as she had some time of metal implanted for breast implants after massectomy. Thank goodnessfor that. Other than that she is good. She stays on facebook with her shpping expeditions and showing her manicures and pedicures. Its kinda crazy, but I have my crazy to.
Maybe I can meet my crazy head on in this therapy, I truly hope so.
Rays of love peace and light to you all.
Thanks, Becky and Sharyn.
I'm just gonna start telling people I'm in this for the inheritance. Might as well be hanged for a sheep....
Edit: is Chux a brand name? Ours are generic and just called underpads.
Liz - Have you got a clean Kylie?
Self - [thinking "Minogue," like you would] - Umm..?
Liz - If we're changing the bed anyway.
Self - ?!?!?!? Ohhh, gotcha... Why's it called a Kylie?!
I can only speak from my own experience. My Mom is and always has been a bottomless pit of demand for attention. In my younger days, trying to make her happy was an obsession for me and it made me ill. I got some help and after a while I learned to value my own well being and worth. I detached and set boundaries. Mom did not like it one bit and she threw more than a few memorable tantrums, but she did fine. Mom is elderly now. I am there for her more but I still maintain boundaries and detachment. I call most days of the week but I limit the time we are on the phone. I bring a meal on Saturday, give them their meds and visit. Sometimes, I take a Saturday off. Everyone is different, only you can decide your best approach to dealing with your Mom.
As for brother going on vacation. Nothing wrong with him taking vacation but it's presumptuous of him to think you will just cover for Easter. If you don't want to do that, tell him. If you can, it might help to stop focusing on brother and think about how you want to do (or stop doing) for Mom.
My sister thought it was her job to tell me what I needed to do for our parents. I spent a lot of time resenting her attitude and behavior and it made me miserable. When I am able to let go of what sis says and does, my mind becomes more clear, my resentment melts away and I am able to make better decisions.
My practical, today, is Dad's night tenant, who is becoming unwound. I asked her, a former nun who lost her convent, to please not park on Dad's thawing Michigan permafrost lawn, as neighbors don't care for the ruts and torn up sod. Her response: I will pray all night away at a 24-hour chapel. I reply back, "Oh dear, no need for that, just park on the driveway." Her response: "The Chapel is were I belong." Turns out she was almost fired from her daytime caregiving job and creditors are piling on her. I don't have much compassion capacity, but must work this out too.
Home sick today with a fever and a chest cold. I mentioned it to Mom and told her I was staying home in bed. Her sarcastic response..."how nice that YOU can a break" then she went on and on about her woe filled life. I cut it short and I'll not be calling her back for a couple days, at least not till I am feeling better. Boundaries!
I know you love your mother and wish you had a good relationship with her. but at this point it's probably unlikely. Look at it from the perspective that it is her loss that she chose not to love a daughter who so obviously loves her and wants the best for her. I guess what I'm trying to say is to not internalize what your mom and sister do to you. When you think of what they are doing to you, turn it around and think of what they have lost by not accepting your love and caring for them over the years. That might be better than you beating yourself up over everything they do. Love yourself first. Do that and you will find the people who will love you in return.