
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Anyway I wish this to all of you, and even some of you that have no children.
I feel that through caregiving, in what manner better than this, can one not demonstrate their nurturing side. Happy Mother's Day to you too! Much Love & Light! Margeaux
It is still too soon to have any info regarding my brother's step son's services. He (my brother notified us by email of "C"'s passing, I already knew because my great nephew had posted it on f/b, he is only 14 so it is understandable he would post it).I have contacted my brother via email since but have not heard anything. With tomorrow being Mother's Day, his wife is going to have a doubly hard day, (I can only imagine what she must be feeling). I/we decided not to call them, to give them some time with all their immediate family. Believe me, we would love to rush in with open arms to all of them, but they need time together now.
I am off today, very busy day!! Went to the community, had lunch with mom and took her to her apartment. I gave her a card and a mini rose which I will get a larger pot so we can put it out on her balcony. She does ask how long she will be there, but not as often. She asks about her sister, who is in a NH in PA on a feeding tube for 10 years. I steer her away from this because she when I have told her the truth, she is shocked. I spent all afternoon with her, doing laundry and visiting. I realized today, that mom moves things around constanting, which I thought she was doing because she was hiding things. It dawned on me today that mom is (partly hiding things) organizing because she is a organiziner. All this time over the years when we got together, mom would not socialize with us by sitting an visiting with us, she was always busy doing other things (her inability to be comfortable in her own skin), she was organizing because she was taught to be busy doing something constructive!!! Wow...what a realization on my part, I never put it together until today...she is working, not avoiding us like I thought. I spent 5 hours with her and all she did (Just like when she was at home) was busy herself with other things rather than sit down and talk with me. I asked her, Mom what are you doing (a simple question I never asked before), she said, I am just trying to organize things.....BINGO!!! I got it!!!We stripped her bed, including the mattress cover and washed everything. How I wish I had realized this before...she had a sense of purpose in all this endless organizing and we saw it as her avoiding contact with us. I am so glad that she still has this sense of purpose, now that I understand it, I say...have at it mom, and good for you!!!
Realizing that your mom is keeping busy and organizing is a positive thing.
Blessings that she can still do this! As it has been said that one may not be able to change certain elements about another person, but we sure can do our best to change they way we react to things, or not react at all (will write about this later).
This is quite a big break through for you too. Even if we didn't get, all the warm and fuzzy from our mothers, maybe looking at the dynamics about who some of these people are as individuals. If one has this attitude then maybe we can appreciae and be grateful for the elder person we are now dealing with. This is emotional maturity. Well, I'm very happy for you to hear about this realization.
Yes, I think it is so important to allow people to have their own moments for grieving. It must be so very difficult for your brother's family at this time.
I know that about the grieving point, I'm sure my brother is experiencing this with respect to the loss of his job. That SIL, all she's ever done is tow her energies in the complete opposite direction. She's doing this again, when she texts my sister saying these negative remarks. I am so not into this, "Get over it," mentality. I notice that so many people suffer from this today.
My mom didn't know it was Mother's Day either.
My two brothers came with candy and flowers. After they'd wished her a Happy Mother's Day, and been there awhile, mom asked them why they were there.
It was a funny and cute mother moment. We laughed!
Hope you had a great Mother's Day, Sharynmarie!
I will keep you and yours in my thoughts! Much Love & Light! Margeaux
I needed to be there about 10:30 a.m., since my sister was going to brunch with her daughters.
My plan was to drive through the flower district in our city, to buy a few bouquets.
When I arrived in the flower district, it was quite crowded already. Parking there is all about meters, or lots. I drove around the block with no luck. Then I saw this huge truck that was leaving a space open, so I pulled up right behind it. As the truck left, I pulled my car up. I now saw a car in front of me, and this angry lady was signaling me to leave, because this was her space. Oh boy! Here I was on about 3 hrs. sleep, the night before. Well, I was still seated in the driver's seat, when this woman got out of her car and came up to my window, and started to yell at me, "You have to leave, I've been waiting for this space for half an hour." My window was almost rolled up, but I completely closed it, and locked my doors. She did scare me, being so aggressive. So I just sat there, and I did tell her that I didn't see her. She wouldn't back down. It was making me very mad, and I was tempted to tell her off. But then, something came over me. I just let her keep on ranting. Then I said, "If you're standing right there, how do you expect me to move my car." She then reluctantly backed off, returned to her car. I had to wait to make my move out of the space now, because there was a lot of traffic. So she had to wait some more, and it was too much to witness how aggressive she continued to be. I had to bite my tongue too, from saying, "Happy Mother's Day." Anyway, I now thought, possibly that I would rather be on time to allow my sister to be at brunch by 11:00, so I decided to skip the flowers.
Besides, I'll just drop in sometime next week and do the flowers on my next visit.
Well now my nerves were completely jangled for the morning.
When I arrived at my mom's my sister was in the kitchen, fussing making rice.
I thought to myself, "Maybe she had a change of plans." But no, she was just leaving some food prepared for my brothers and me, and I'm sure for any grandkids that may come by. I thought, that this was nice of her to do, but really shouldn't be doing this on M's Day. But oh well, that's my sister!
Mom was up, and had already eaten breakfast. She looked very well. She was in a good mood, watching some tv. So after my sister left, my brothers showed up together. I was so happy my youngest brother, who just lost his job a week ago, did not bring his horrible wife. As some of you know, she's being very selfish and un-supportive of the fact that he is now in this situation. I just didn't want to have to be around her, because I know I would have been walking on egg shells, as one always has to around her.
My brother with the job situation was his usual quiet self. I wanted to ask him about how he felt about his first week of unemployment, and about any job prospects. I did not though, because I figure that my sister has been asking him this, and who knows who else. Maybe he just needs some time not being asked.
I thought I'd give him his space. Besides, on the other hand my other brother, golden boy wouldn't stop talking. When he talks, it all is about himself. He was so draining. The things he talks about also, shows his ignorance. We had the tv on. Of course one of the news channels was discussing this trial about Jodi Arias. I could tell by the things that golden boy said about this, he doesn't know much about the facts, and what happened in this case. But he was so opinionated about it. I think this woman has been using the media as a circus with her trial, and I know she's not the first to do something as such. Anyway, my brother asked and seemed uninformed but knew she was claiming abuse by the boyfriend as a defense. So I told him, that according to other facts, the manner in which she killed the boyfriend, was way over the top to say the least. Anyway, I just could not bear to have to hear my brother end it saying something like, "She's not a bad looking woman," blah di blah!! So in other words, I was reading, that he thinks, if you're a good looking woman, you somehow don't possess the ability to commit a crime. My thinking is, I couldn't care how "good looking," anybody could be. The fact that they'd do something so horrible, diminishes any kind of "good looks." Anyway, I so don't like this kind of thinking, it is so shallow. This is golden boy!
They did not stay too long. BTW, not one of those grandchildren showed up either, to wish my mom a Happy Mother's Day, no phone call, etc.
It would have been nice, had my youngest brother been there by himself.
Maybe I could have had the possibility to talk to him, and offer some kind of encouragement. Another thing golden boy brought up which I thought was very insensitive on his part....he complained about his job. He repeated over and over how his job is run like the military concerning their breaks and other rules.
I thought to myself, "Well, no matter what, you still have a job, where as my other brother does not." It is interesting how this brother has no problem talking about himself constantly.
After they left, mom and me were there alone. It was great. We sat and watched "Peyton Place," the movie. I had never seen this version. We ate some chocolates. Mother ate very well too. The one thing I did notice, is the fact that she cannot sit for too long at the dinner table. She doesn't have anymore pain, from the gallbladder surgery. But it has only been 3 weeks ago.
Even if she's saying the tenderness in that area has disappeared, I don't think it's strong enough to support her back in certain chairs. So at least the day ended on a good note at mom's.
I hope all of you had a good Mother's Day! Much Love & Light! Margeaux
It was nice of your sister to try and make some food for the visitors. Hope she had a nice time with her children at brunch.
Sounds like "Golden Boy" is living up to his name! Isn't it irritating to have to sit there and hear all of that me, me, me stuff. To hold your tongue and keep your eyes from rolling out of socket must be hard.
Glad you and Mom enjoyed Peyton Place. It was a rather risqué movie in the 60's as I recall. The entire town was upset about their lives being put on the pages.
Hope Monday is better for you.
Bonnie
Yes, I was sorry about the flowers. However, I could care less what kind of day this, she was no lady either, she was an ogre, was having. She got super aggressive, when she came to my car window, almost stuck her hand in the window, but I pushed the button and raised it, and also hit the lock on the doors.
To yell this kind of stuff from one's own car would be bad enough, but what she did was too much!!! Actually, when she came at me like this, it aggravated me so much, but I was sitting still belted in the car seat, so I also felt somewhat vulnerable. Anyway, I think I handled it the best way I could, and she I know thought she was some kind of winner. In my book, she's a loser with this kind of an attitude.
Golden Boy is very irritating. If you remember he was the brother who ended up in ER, while mom was having her gallbladder surgery. Why? Because he doesn't know how to take care of himself. But to hear him talk, he comes off as such a know it all and full of opinions.
Today, I got down and really cleaned up the apartment. My allergies have been out of control the last few days. We're having some extreme alert days here with indoor dander. Now I'm going to relax, and don't know what to make for dinner, because it's been hot here and I think the menu has to shift to cooler foods now.
Maybe a big salad. I'm feeling like my body is needing this right now, too.
Hope your Monday was very good too!
Much Love & Light! Margeaux
Anyway, it's over now and you managed to stay safe from her rotten and mean-spirited attitude.
Can't remember where you live (if I ever knew) but the West Coast Costco has the best prepackaged Asian chicken Salad "kit". It is wonderful. All you need for a fabulous meal are greens, like lettuce or spinach or whatever. The dressing is delightful, the chicken breast cubes are grilled perfectly and almonds, crispy things and such are all there separately packaged. One "container" has two complete meals (sans green leafy stuff). When I buy it at Costco, I just freeze it. When I'm in a mood for a salad I just get it out and tear up some lettuce/spinach. Great meal with crisp bread. They don't sell it at all Costco's just on the West Coast I think.
I had a super neighbor that thought the sun rose and set around her "golden boy" only child. It was sickening to tell the truth. He really treated her like she "owed it to him" as he was so darn smart. Long story but his parents worked very hard to put him through school and that included his PhD. He was such a jerk his first wife left him for fooling around on her. But oh no, he was just perfect for my friend. Rolled my eyes over and over. I get irked just remembering how he used her financially. But then, she really wanted him to "be responsible for me" and insisted on giving him all the money she had when her husband died. Of course, he bought a house and she moved in but then in a couple of years he had found a new girlfriend and there you go...out the door! So in the end my husband I did most of the real caregiving for her. We even took her husband to the hospital numerous times until he finally died. Saint William, as I called Golden Boy, thought he was smarter and better than anyone else. What a jerk. But then, I really think his mom, my friend put herself in a bad place by giving him her money and insisting on wanting him to act like he had her for his main attention. I don't get it where some folks think their children owe it to them to be the focus of their lives.
And I'm not a mean person at all...but it does strike me as odd that grown up folks think the younger generation has to put up with all this caregiving just because the person "Wants" the kid to do it
Anyway, I'm fussing with more committee business and have spent the afternoon on the computer.
About time for a nice glass of wine!
My Monday was good. Board meeting this morning and now tackling some of the assigned work.
Hope your weather improves~
Oh, Jodi Arias goes on TV again Wednesday. Cold killer in my book. Scary that folks had been saying she was a stalker. At least she didn't get off! Abused???? The jury didn't buy it but if they did, that jury ought to listen to some of the abusive tales from folks on this site! That's abuse at times!!!
Take care. Hope you had a wonderful salad. I'm thinking that sounds good, too.
hugs,
Bonnie
Thank you for your idea about my SIL. Oh Austin, she is terrible. The main reason we haven't confronted her is basically because, our brother (husband) to her deals with her, through avoidance. She's a total nag. Believe me, I've on many occasions have wanted to blow a fuse with her. My sister has done this. She did it many years ago one time when she mistakenly went on a camping trip w/them. They ended up in a squabble on account of my sister's then young daughter playing the horse shoe game. SIL's daughter apparently wasn't winning, and SIL threw a hissy fit, and went off on my niece. Then my sister came out of the tent and told her off. They have a competition going to this day regarding their daughters who are now grown up. After that, they didn't speak nor gather together at mom's on holidays for over 10 years. They somewhat made their peace finally. In my opinion though, I don't understand why my sister more recently started to text with her, and maintain some boundaries.
But I'm totally fed up w/she putting my brother down, criticizing. She criticizes in a manner that appears to be a joke. I know what I plan on telling her the next time she tries this, and that is, that I don't want to hear it anymore.
But I will still try to keep my cool when that time comes.
It is terrible as in your situation when people criticize the work you do.
Is this volunteer work of some sort? I would not want to return to that kind of atmosphere either. Much Love & Light! Margeaux
How are you doing?
Sharyn, I’m glad that you finally spoke up. Your sis kept pushing and pushing. She finally pushed you too far. I’m waiting for that stage when oldest sis pushes me too far. Then I’ll speak my mind. You do know that your mom is progressively getting worse. If you look at the ratio of the employees vs. the clients, I don’t think your mom will get the hands-on assistance that you want. If you want that kind of place, you may need to look for a much smaller community. You know how regular supermarkets don’t really have that personal touch. But, if you go to the small mom & pops store, they’re much friendlier and talkative. The same with AL. The bigger the place, the less personal touch/help. I think that’s why you read over and over from the different posters here on AC who said that when their parent went into AL or NH, it was just as much work as if they were at home. I’ve read of some people paying for someone to go visit daily their parent to do whatever extra service that AL does not provide. I guess you will really know when you’re on FMLA.
As for Midget, is she small enough to use permanently a dog’s litter box? You can train her. And maybe swing by on the way home and empty the mess at the same time ensure that your mom atleast have one very good meal a day.
Book~My mom is living on assisted living side, I don't know if they would assist her in bathing on that side but we will find out when we have the 30day review. It may cost more and sis probably won't want to pay more and if it turns out mom is starting have incontinent issues, she would not be able to stay on the AL side. Right now they have no room in the memory care unit for mom to live there. I feel mom is not as advanced as some of the residents in memory care and am concerned that if she is living there, she will advance faster. We don't have care homes that are set up for dementia care. Yes, placing a parent does not take your responsibilities away unless you just don't visit them. I don't think they are neglecting my mom, they are going by what is in her care plan for the first 30 days and that is to give mom reminders to bathe. Sis thinks mom is washing herself out of the bathroom sink (sponge bathing). My sister wants mom living in the memory care unit ASAP because it is cheaper so I don't know if sis is rushing things. We will have to tell them that mom needs assistance bathing and we will have to make sure mom takes a shower when we visit until the review.
Please understand I am not trying to make my sister out to look bad. We see things differently. We argued last night because sis insists mom is wetting the bed. I told her no she isn't, I stripped the bed down on Saturday and the mattress is not stained or wet. She said because mom has a rubber pad on the bed. Again, I said no she doesn't, there was no pad on the bed Saturday. Sis said it was there the day we moved her. The issue with the clock was just too ridiculous for me to handle. Then she said she is going to bring over a couple pantsuits for mom to wear when we eat in the dining hall on AL side because everyone else is dressed up. I don't see that as being important and I am not going to change mom into a pantsuit to eat, sis can if she wants to. We agreed to disagree because we see things differently. I am going to PetSmart to see if they have something for the dog such as a grass patch. It is sprinkling now and I don't want that dog stuck out on the balcony in the rain all day, she is a little dog, just 13lbs. about the size of a cat. Mom is getting 3 meals a day, she has put on a couple lbs. already. Book, I work a swing shift, don't get off until 9-9:30 at night.
I was wondering, if your mom suffers from incontinence, will this be some kind of pre-requisite to get her into the Memory Care Unit, faster? If so, and I only say this because you've said that your sister sounds eager to accomplish this. Maybe it's her way of manipulating this, and it does sound strange since you're the one changing the bed sheets, washing clothes and no evidence. Just an idea.
Poodles are high strung. The doggie I'm sure is going through her own adjustment to an unfamiliar environment. I hope you can figure out this incontinence issue.
Much Love & Light! Margeaux
How great that you do some volunteer work. But I definitely understand that you want to be there w/o the critiques. It's good to hear you have good friends there,
and this wonderful man. Enjoy!
Much Love & Light! Margeaux
The SIL, had texted my sister end of last week with a text that said, "Your brother is driving me nuts." So my sister brought this topic up again to me. To be quite honest, I don't understand why my sister got rather caught up texting w/SIL.
They don't have an amiable relationship to begin with. So my sister kept talking about the negative text; her reply, etc. My sister is claiming that she desires to create a lot of distance between she and the SIL. She also said, that she wishes that the SIL would refrain from texting. To this, I said, "Well maybe what you ought to do, is completely stop. Don't even reply to her texts. But w/my sister, she likes to play a passive aggressive role in this. She gets angered annoyed at the texts, and instead of taking a stand of just not texting, she plays this cat and mouse game w/the SIL. I'm going to say it, "I think my sister is stupid."
My sister has even said because of the so called distance she says she has created between she and the SIL, that SIL is definitely feeling her wrath. Is this controlling language by my sister, or what? I had a good private laugh about that one. Margeaux
Sharyn, your mom's gaining, no wet bed, the evidence shows you are right. Only problem to solve is Midget.