
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
it will be good to have some company in the new house
Dori, thank you. It sounds like you have good plans. I am so happy you and your brother are helping each other, letting bygones be bye bye.
glad- yep!!! Love the high ceilings
becky - where will jay live? You just remodelled to make a place for him. So much change...
dori - would be great to have your own place. Looks like things are falling into place for you. Watch those twisted sisters and cousins.
madge - how is your mum doing with the reduced dose of risperdal?
Turned into fall here a few days ago. Leaves are starting to turn yellow and it goes down to 40s at night. Love this time of year. I wish the winters weren't so long. I am still off meat so I gave lots from my freezer to my dd as I doubt I am going back to it. "They say" a vegan diet is healthy. I am seriously thinking about getting a cat when I get back from my next trip south mid September. Otherwise it is just plugging away at tossing things, if even a few at a time. I have been having "sweats" which I can't attribute to anything in particular,. My temp is normal and I am well past "that" age and I don't feel sick. I know they can come with CFS/FM. Oh, well!
Take care all - do something good for you!
As I mentioned before my mother has always been a priority for me and in my life even when I was not there. So the things I do now I have always been doing. The frustration comes with the belittlement and being excluded from her care and seeing the farce in her care.
Book, Yes, my sister may be avoiding a homeattendant because someone in that house on a daily basis would be a witness to my sister doing nothing. With some real help the dog mess would not be an issue.
That is my frustration, this Family front is bull. If we were pulling together and truly all of us working towards the same goal my mother would be getting better care and home would be in better condition.
So, I find my self in a better place. I know I have to learn to let go. I feel I had every right in my feelings when my property was sabatoged. There is no stove, my mother needs to eat and all I am trying to do is prepare her a decent meal that she will eat. We used to eat turkey wings with greans and macaroni every sunday. I keep it simple, I just want to do something special sometimes especialy when her appetite decreases and she acts out. It was my way to give her special attention. And with all that in my heart, it was very upsetting to have my intentions dismissed by a lie about family concerns. What family?
Anyways I appreciate the feeback I received. it trully helps and was very grounding. This is who I am. I was brainwashed from chidhood to be just who I am. Now I realize this, stepping out of the cast is a difficult process. Which is why I reach out here. And I thank you all for the help.
I cannot imagine doing all the canning you did last weekend, after closing on the house knowing you had a big move and cleaning out a well and long lived in house.
Dad is already telling everyone we are coming and telling me every goat path to go on. I tried to set up a quick meet with my best friend but no, the time will not allow.
So he is trying to manipulate the trip. Me its a turn and burn. get in get out. The last one cost me 2 grand to take him. This one hopefully will be fuel and tolls and a quick lunch.
The guilt gets me. I try to be the good son but somehow this will bite me in the ass again. The last one the family still wont talk to me. I have no idea what I do other than vote for the other party they dont like. I dont even bring up politics, they do, I try to keep my mouth shut but they take that as a fight when I say nothing.
So in and out as stealthy as I can.
I am sure I will get smacked with the olive branch again....
I am glad to hear good things happening around the posts. It keeps hope strong.
I will be off for a few days.
Rays of love peace and happiness to all.
Today is mostly a lost day. I’m having my first cataract surgery at 9:00 am. I hope it goes well. Should have my other eye done in three weeks. My cousin is driving me to the hospital. She’s read all of the pre and post op instructions. She doesn’t have a class today and only works late afternoon hours today. She’s going to put my eye drops in.
When end this move is over I’m going to sit down and cry for a couple of days.
Yes, the timing is lousy with so much upheaval in your life, but try not think of today as a lost day - having the cataract surgery will help you enjoy the beautiful scenery of where you live
even if you can't sleep, try just to rest your eyes now and take a few deep breaths - imagine the oxygen filling your body down to your toes
sending healing thoughts your way
Only two people with me now are my two second cousins. They are both over 21, have jobs, going to graduate school. Big help to me right now.
In any case, obviously you are distressed. My sympathies.
Be glad to get move behind me and move forward. At the time we decided to make the move, it was something we both wanted. But things took a big change and now I wish I wasn’t having to do all of this.
Had my surgery. Piece of cake.
The last 3 days, I went to visit my father, at his Retirement community apartment. 1 1/2 months ago, his odd self, screamed at me to never come back. I was thinking that is what I will do, but he asked me to help him with some errands, and he has never acted as if the screaming at me, has ever happened. I am from pure dysfunctional family, so the screaming at me, happens, periodically..and is not due to dementia.
So, I am happy to report..that he acted fine. He has been eating, and taking care of himself, and the visit was fine....so..until he explodes again, all is 'ok'.
He does still marginalize me, and talks over me..but..he has no idea he does it.
But just wanted to send a quick note to this group, as my prior writings were so 'down'.
Apparently no one from sis's camp showed up last week to see mom or take her with them, despite the drama from mom and sister's attorney and that whole hullabaloo. I was prepared to have to call the police if my sister took her out of there. The staff is already on alert that she is not to leave with them.
I took mom to her appointment yesterday and she did say, "I'm sorry if I said anything to make you mad." I was like, "Well, I did get mad. The stuff you told my sister isn't true." She said, "Well, I just wish you would stay longer and we could hang out more." I'm usually with her at least 2-3 days out of the week, and for about 1-2 hours at a time, although sometimes it's half a day if we end up going to appointments and then stopping for lunch, at the store, etc. I myself really don't "hang out" all that much, as I do well most weeks to keep track of everything I need to do for me, hubs, the kids, business stuff, etc. Plus she and I don't have a lot to talk about. It's the usual complaining, negative, nothing ever makes her happy, so I really don't say a lot.
I still haven't called APS yet about looking into a public guardian, although I know I really should. I feel kind of torn about it because I am doing this unpaid due to mom's limited amount of funds, but I know a state-appointed person is going to want to be paid, and I imagine it's not cheap.
I am happy with where mom is as the staff is really good to her and looks out for her, and I'm worried that she would run out of funds much sooner and have to move somewhere else that takes Medicaid. Not saying that would be a bad thing, and that ultimately may be what happens anyway if we don't get the house mess sorted out so it can be used for her care (lovely sis has it tied up in court), but I've been trying to get it fixed so she can stay there for the long haul, unless or until she reaches the point that she needs NH care, which then Medicaid would be our only option.
Sometimes I ask myself why I even care or make it my problem, and like when I was at my wit's end the other day, I was ready to just walk away from it and not look back. But when I think about her having to move out of somewhere where I know she is being taken care of and has a good quality of life, I feel guilty and I think, "Ok, maybe I can do it for a little while longer."
I may change my mind and call it quits for good when the next major crap hits the fan. *Sigh* I just never envisioned doing this at this stage of my life. I envisioned spending time with and enjoying my own family, and maybe getting to travel like she was able to do. This boundary setting thing is always a work in progress.
Sad to hear about your brother, and hope that things work out in your relationship in the end! It seems like he should know better, regarding that bad Niece, but he is stuck in the middle, as guardian of her 2 kids, is that still the case, hopefully she will begin to fly right and take over the care of her own children, God, I can't imagine being dumped on, and having to raise someone else's kids at our age? I just can't believe how everything came crashing down on you, and for that I am so very sorry!
Glad to hear that your Cataract surgery went well, that's one good thing! Is your new home anywhere near your old place? And what are you going to do with your old home, the one that you just had the addition added onto for your brother? Are you planning on selling that one too? Won't he want you to buy him out in some way, as he did put the money up for the addition, didn't he? What a mess!
Once this move is over for you, I hope that You take a good amount of time to decompress from all of the stress! You Cannot keep on at this pace, or you will become sick! There's been too much going on for you to heal properly both physically and emotionally, and I would hate to see you become really ill from all of this, in fact I can't believe you haven't already, you must be one tough cookie, that's for sure, but nobody can keep up that pace for too long, so do take care of yourself!
You mentioned that you will need a good cry once you are all moved in, now make sure that crying will not put added pressure on your healing Cataract, though I don't imagine that that is something that you have any control over, just do be careful!
Lat us know how you are doing, and Take Care, I am thinking of you during this difficult time! {{{HUGS}}}
hope you're sound asleep in your new home tonight