
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
When my mom passed away in March. Father refused to go to the funeral. He's bedridden and none of the family Volunteered to stay behind to watch him. I KNEW that I would have ended up staying behind. And that just pissed me off because my Adult nieces/nephews could have said, "Aunty, I will stay behind so that you can go to Grandma's funeral." Neither them nor my siblings spoke to their children to do this. So, I KNEW I would end up - like always - being the one to stay behind. Bad enough most people didn't know I existed all these years caring for my parents - since they all thought my bro-of-next-door and his wife were the one taking care of them.....So, I called up NFCA and ASKED the manager if she knew a program or association that I can call and hire for the day of mom's funeral so that I can attend her funeral. She said that she will discuss it with my respite caregiver to see if she's willing to use her day off to come and watch father. What ever arrangements (as in paying) is between the two of us and nothing to do with NFCA. I agreed. Respite caregiver agreed. And it worked out perfectly. I didn't have to worry of rushing after the burial to change father's pampers before the visitors arrived. The cg did that.
So, it doesn't hurt to ask. One never knows the answer they will give. =)
When people grow up around dysfunction, this is all they know, and become used to bad treatment by their so called loved ones. This definitely happened to me,
but it took for me to realize it, acknowledge it for what it is, and follow my gut instinct which was it's wrong, FOR ME! Our spirit gets so beaten down in the process, that we then become filled w/lot's of self doubt, insecure. If this happens we become that dog that's always chasing it's tale.
There's no enlisting other dysfunctional family members to do your bidding.
It would be wonderful if any of us could think that we could "stamp out narcissism
meanness/negaltivity," but we have to do this ourselves. I hate to burst your bubble, but the only ones who can rescue us is ourselves.
Much Love & Light! Margeaux
FYI, there is a video trending. I thought you all might like to Google it and get some laughs from it. I have always thought these scary movies were exaggerating when people running from something scary would fall down...until I watched this video prank.
Google: Japanese Dinosaur Prank. Part 1 is the man, Part 2 is a "woman".
I do agree with what you said about dr.'s or hospitals (ER) not doing certain testing on an elder because of their condition. We ran into this with my father when he was vomiting blood at the NH. He was very advanced with the Alz. They did not want to sedate him to scope his throat or stomach. At first I was very angry about it...but because of the advanced stage of Alz, I realized that if he had esophagus cancer or stomach cancer...the treatment would probably shorten his life since he was not strong enough to endure it. I agree that what Juju did for her mother was necessary and right.
Well everyone, I hope you have a happy Labor Day weekend. I will be working but have Monday off. Those of you who will be traveling, stay safe!! Hugs to everyone!!
That money pays for what my mother's long term care insurance policy does not cover plus it paid for those back taxes that she owed from years past when she and my step-dad failed to pay their taxes. Now with her medical expenses and securities not earning much money, she does not pay any taxes which she now files as married but separate. Those back taxes with penalties and interest took a big chunk out of the bank accounts. I now wish that when cleaning up that tax mess that I had only focused on my mother's tax liability and left my step-dad's up to his children to fix for now he owes her $37,000 which I know will not be paid back although my step-brother agrees that his dad does owe this to my mother. My step-dad is apposed to my mother being in the nursing home and does nothing to support her financially although he could.
My wife is doing well in post op and sees the surgeon on Tuesday for a follow up. My mom finally had that kidney stone blasted. Unfortunately, she has a bacterial infection in her bladder that antibiotics have not been able to cure.
When you see them actually expressing some real emotions, it tugs your heart, but it is such a small part of the whole. I treasure those moments, but do not expect more. My motto is "Take care of you". Looks like you are staring to, ((((((hugs)))))) Joan
.
A number of us here have dysfunctional sibs. Better to realize how they are, give up the hope and dreams of a good, normal relationship with them and figure out how to best deal with them and protect yourself.
Sorry I have not been much use - between sinuses and other head aches and tiredness I am not accomplishing much anywhere.
Mother called today about some correspondence from one of her pension people. She doesn't understand it as she says they don't know where she is. Obviously they do or it wouldn't have reached her. It is probably a form letter to make sure she is still at the same address or something like that. I think I need to get the addresses/phone numbers of her various pensions, account numbers for utilities, insurance etc. and have mail directed to me. She just gets confused by it. I should be able to get most of it next time I go down, and she is in hospital. I know where her files are. I will leave her bank and credit card statements going to her for now as I can get copies from the bank branch here and I think she would notice if they did not come to her, and she would get upset. She left a voice mail that this needed to be dealt with before Tuesday (I don't think so) and that lots of money was disappearing from her bank account (I don't think so about that either). I will check her account shortly. My sis wrote and asked how I was doing with mother's expenses and I answered that I wasn't doing anything about mother's expenses and that she still dealt with them, I was only viewing her account to see that all was in order. I am thinking that I should send my sis a copy of the statements I get from the bank. I plan on getting them monthly. I have yet to ask for a cc statement but think it should not be a problem. I don't trust sis not to cause trouble and am thinking this is the best way to protect myself. If it ever came down to it the bank statements could be verified by the bank. What does anyone think? If you are POA do you send statements to sibs? If you are not POA does your sib send statement to you? Looking for some wisdom here.
Sis also said that mother wrote her that she would move to Ontario if she got a chance. Hmmm - still a flight risk. I don't think the nieces and nephews would welcome her with open arms.
marylee -glad things are better and your faith is holding you up. I love the psalms.
sad1 - sounds like you are making progress detaching. At least your mum is getting some of her meds.
assandache - from a while back -sorry that holidays suck for you - it seems as we get older, for a variety of reasons that is the case
Alison - looks like you are getting lots of insights and putting them to good use
Sharon - you have some good family visits coming up - enjoy!
cmag - nice to see you posting. Hope your wife is doing well post op. Did you mum finally have that procedure?
Margeaux - are you and hubby recovered from the ordeal?
austin -so happy for you and your man. I read somewhere you wrote he had a very difficult wife. My man had that too and she is still causing trouble. She is very controlling. He says she did him a favour by divorcing him.
juju - where are you? Are you and mum back home yet?
gladimhere - are you still in court with your sib?
heli - welcome - you fit right I with your dysfun fam. Lots of experience here.
Book – who are you doing?
Have I forgotten anyone? hope not but if so not intentional
I want to explain what I meant when I said, a while back, that I have some sympathy for doctors. It has to do with research into very increased numbers of procedures and surgeries during the last months to a year of life which have been shown to have no benefit for the patient, so docs are staring to back off as it is a huge cost to the system. Now as in juju's case, she knows her mum best; she pushed for appropriate treatment and finally got it. Good for her. However, there are cases where things are different. About ten years ago, before this research, my friend's husband had esophageal cancer and in his last months they kept sending him to another hospital for a certain procedure. He was terminal and everyone knew it, including him (he was a university prof). The procedures didn't do him, or anyone any good, and the trips caused him quite a bit of distress each time. She was talking to me about this and wondering about the value of it. I gently said they did not have to agree to continuing these procedures. They talked about it and decided against continuing. His last days were made as comfortable as possible, and his end, with the help of morphine, was peaceful. I was there and it was a blessed release. In the "old days" my son would have been kept on a ventilator for the rest of his life and existed in an NH. He was already getting pneumonia in the few days he did survive after the assault. We could have pushed for them to keep him on the ventilator, but we chose to go with their recommendation, and do not regret that. It was no life for him. Sometimes less is better. The main caregiver and the individual, if competent enough, know what it best. Medical people have been, to a large degree, trained to maintain life at any cost. With the growing numbers of seniors, that is being revisited and I think that is good. Unfortunately, inevitably, some judgement calls will be wrong.
Have a good weekend everyone! Love, hugs and prayers, Joan
This year try a different approach, do not ask her if you are invited. See if she brings it up. She is probably getting some sort of satisfaction from you asking. Make some other plans for yourself and have fun!
You have the right to be intimidating to an intimidating person when they are trying to inhibit you. You have to show you're not afraid.
Keep your cool
Try to appear confident.
Kick away any insecurity you still have and look for your strengths.
Love yourself and no one will be capable of bringing you down.
Be nice and polite, but don't let any of them walk over you, speak up.
Always stand straight
No one is better or worse than anyone. So be yourself and remember you're a great person in your own way. Don't let anyone walk over you or bring you down.
Don't get cocky. If you take on arrogance they may try these tricks on you.
Don't try to impress such people since the more you try to impress them the more unimpressed they will be.
Looking away or doing something unimportant while speaking may make your opponent feel that he is of lesser importance than the task you are performing. Dousing his ego in this way may give you an advantage when you turn to contest him full-on (establish eye contact, raise voice, etc.) later. Be sure to keep aware while you douse their ego, however, don't let yourself be caught unaware! Also don't run after them since that will show them that you feel like they're better or you can't manage without them. If you walk away, you'll find them running after you.
If all else fails and someone constantly tries to intimidate you, stay out of their way as much as possible and ignore them.
Sharyn, you joked about how your bro claimed you were adopted. I remember as a kid not yet understanding that I was "forever chained" to my Family, and I remember going around our church and asking other adults if they would adopt me. Of course they laughed it off, but I was very serious, lol! I knew even at preschool age I didn't really like, or feel like I belonged to, the family that biology linked me to. Oh schwell. ;D
Sharyn, your story about mom's rash reminded me of a night I spent in a hotel in LA. I don't know what they used for detergent, but I itched the entire night and woke up with red, rashy skin. So makes sense to me that it could be due to too much detergent, or too harsh a detergent. Hope she's better now?
Sad1, you seem like you are starting to get the hang of handling your crazy mom, and family. I'm happy for you! For me, its just so darn freeing being able to use a combination of humor and detachment/boundaries tools to just pull loose of the emotional grip these people - especially mothers, seems to me - have over our daily peace and happiness.
But my mom is noticeably, strangely absent these days. I've actually called a few times, just to "check in" with her, and communicate so she has no excuses to go getting paranoid and suspicious of me... and she hasn't returned my calls in the past few weeks. I don't quite know what to make of it. It isn't like her to do this. So either her feelings are hurt, or??? I suppose I will find out soon enough. I do love her and just wish she could "act nice and normal" for a change... instead of... THIS... kind of behavior... its "always something" with her. Right now I'm apparently getting "the silent treatment"?
glad, I lol'd at your spell checker story. How do our electronics, with their little tech brains, go from Xanax to Saab? ...just how does that happen...??? ;D
Margeaux, your sis and sil's dynamic sounds all too familiar to me. The tendency that certain family members have potential to clash... and the sense that it stems from one of their's perception of being slighted... and it just all adds up to DRAMA. Maybe if you keep "preaching the gospel of detachment" to sis, she will begin to enact one day. And I personally am finding the old adage of "killing them with kindness" to be something that is going to be useful to me as well... detached as hell and dripping with sweetness... cackle, cackle...
Oh, plumbers just showed up, everyone have a good day!
Should say: youngest daughter didn't say hello, not hell.
HAAH, sorry about that!
Margeaux
I'd posted some time ago....well almost a year ago, about how demoralized I came home from Thanksgiving last year. My sister who lives at mom's has for the last several years been in charge of Thanksgiving. We bring dishes, too but she does the majority of the cooking. As the years have passed, I used to suggest to her she try to cut back, since she is the main caregiver and works full time.
I also have a very difficult SIL, married to our youngest brother. She and my sister have always had a competitive spirit going on, they both have two daughters.
SIL wears the pants, and I really think my brother has come to ignore her over the years. At last TG, my brother and his family showed up. My sister's first grandson tried giving one of his toys to my SIL"s youngest girl, age 19. She ignored the baby, followed by SIL doing the same.
I was told about this later that day, by my sister who was very upset about it.
But I also came to find out that my sister's own youngest daughter didn't say hell to my brother's family when they arrived at mom's home either. This fact is something that my sister downplays too. Her daughter has been somewhat of a problem and she lives there at mom's also; she's age 24. So in essence there's always this tension between them, and my sister and SIL, are at the root of it, since I know their history.
My sister filled my ear w/all of this event for the next couple of mos.
I gave her advice.....telling her that I do think our SIL has a PD of some kind.
Sometimes I'm thinking my sister does also. Anyway, my biggest suggestion was to stop engaging.....and being in touch w/the SIL. She and my sister had been texting, or anytime there was an invitation for anything, my sister would contact SIL. Well over the mos., that came to a halt. If ever there was any communication to be had, now my sister would call our brother.
This last month, my sister was invited to go to their home w/boyfriend and mom for a barbeque. While they were there, the SIL got ahold of my sister alone, and said something like...."Oh, I wanted to go to a food truck event, today."
Of course, my sister didn't take to this comment, since according to her it implies she really didn't want them there or something of the sort. Again, I realize w/my sister that she is on the defensive too, because she isn't in much communication w/SIL.
My sister responded, "Well, you should have gone." SIL: "Yes, but I wanted your brother to go with me."
My take on SIL, is she always manages to say not only off the wall statements,
but very unkind things. My sister knows this about her. But no! I had to hear the litany of excuses by my sister as to how she perceives the relationship between my brother and his wife. Ay yay yay! I told my sister that next time if she says something like this, she should respond "That's not my problem." Honestly, I didn't know what to say to my own sister. She goes round and round with the same issues, and volunteers form some of this, if you ask me.
What I don't understand is why my sister even goes to my brother's home, given all of this weird tension. So, this and other's posts here about the holidays has reminded me all too well what is upon us very soon.
I just may finally make our own turkey this year.
Margeaux
What a day you had!
These kind of elders will find anything wrong to complain about.
The more one does for them, the more they want, too.
This is the way it was while our aunt, mom's sister was alive. Nothing but complaints, and changing or threats of changing POA, on my sister. She wasn't in a nursing home either. I thought she should be. On that end, I'm happy for you that your mom doesn't live with you.
Well I hope you were able to take care of whatever particulars you needed to tend to while you were at her nursing home, and that they find a way for her to take her medication. Her behavior has to be quite dramatic if your saying the people at the NH, have said they've never seen anything like it.
Hang in there, and I'll join you with a glass of wine and we can order up a martini for you.
You are in my thoughts.
Much Love & Light! Margeaux
antipsychotics. My mom takes 75 mg of seroquel, daily about 4. It really seems to help with the subdomains most of the time. Some AD take up to 400 mg a day. Sometimes of course there are still problems with her perception of reality, and she becomes quite angry. Ugly thing. Those times, probably once a month or so half a Saabs is added.
I really hate the spell checker on my tablet! Subdomains should have been sundowning, and saab should have been Xanax! Can you imagine taking 1/2 a Saab?! LOL!!
Sad1, how does your mom feel about jelly/jam? Has her taste buds change where she now likes sweets or has it changed where she doesn’t like it? My father doesn’t like sweets – because it’s so sweet. If your mom still likes sweet, can you ask them to crush her pills and put it in jelly? Because jelly is sweet, it will cover the bitterness of the crushed pills. If she doesn’t like sweet, then need to brainstorm on an alternative.