
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Thank you so much for the advice you gave me regarding my husband.
You are right, this widower has no right to interfere where the organization is concerned.
I hope all is well with you and your father.
The recent advice you have been giving to Jody, is excellent and I think applies to other posters here. We do need to know when to back off, because if we don't who knows to what level some of the narcissists, or people w/issues will try to take it.
Take care, Much Love & Light! Margeaux
You are doing way tooo much for your mother. It's very important to back up and let her find her way back to her own 2 feet. Fear of falling? Then she will remain permanently on that wheelchair. Father fears falling, so he absolutely refuses to leave the bed - not even to the wheelchair - here at home or at the hospital. The nurse had a difficult time trying to squeeze the big bed out of the door to wheel him to Radiology department. But just because he's bedridden, I do NOT spoil him. Sis spoils him. She got to the point that she would raise or lower the bed with the remote control. Father can do that, he has a working right hand. He expected me to do it for him. I got mad and told him to do it himself. He has a working hand......Father wants me to go behind the head board of his bed, lean down, and Pull him up. The hospital people and the govt caregivers do that. I Do Not. He weighs more than me. Plus mom's dead weight - all these years - have affected my back, my shoulders, my elbows, and my neck - from pulling her up daily - 2 times a day for years. Father wanted me to do that. I said NO. You have a working right hand (he can grab the trapeze bar overhead) and I showed him to put his right foot against the right railing, and use his left leg to help push himself Up the bed. Jody...do you see what I'm trying to show you with these examples? Sister spoils him. I do not. Know when to step in and help and when to back off and let her struggle and learn to do it herself. Not Trying - is Not an option.
Maybe you can start by deciding what YOU want. What you can do and what your mom can do. I think if you're mom can still stand and walk - that if she desires to do so - she will do it. As long as you keep pampering her, she will continue to treat you "as is." Gain some independence, and your mom will know that you can walk out any time if she treats you badly enough.
I believe ..this is what is called.. Detaching and lovingly Setting Boundaries. Hmmm... I just call it "Tough Love." Whatever you decide, just know that we will not be disappointed or hurt or angry if you decide to continue "as is." Okay? You Do What YOU Have to Do. {{HUGS}} to you.
I now fully accept that he is going to do as he pleases, whether its good for him or not, and thats just how it is. I don't try to change him in the least anymore. My acceptance of him is a big relief to me. I did/do worry about his inactivity. But I have tried everything I can think of to get him to be more active. He just refuses. So I stopped trying and found much greater peace as his caregiver. I don't know that my choice here is the "right one" for you, of course. But I thought I would offer my story and just let you know that I understand the frustration you're feeling.
sharyn - I am reading a Cloud book on Boundaries - I think it is the same one . I like it. I was going to bring it with me, but packed another book by mistake.
juju - you are amazing -I can't imagine all the work you have to do right now with the home renos - your mum is so lucky to have you
travelled today - Gordie's 11th anniversary - made some phone calls and appointments but couldn't go to the hospital. It is the same one he died in 11 years ago. The bank lady was supposed to call me today about the POA but didn't so I have to try to chase her down tomorrow, and also one of the doctors to find out how they think their care plan for mother is doing!!! I would say they are not quite on the mark. Supper with a friend and visit mother after, . Thursday an appointment for me re hearing, It is a family problem and mine needs some attention, and maybe meet the church lady. and visit mother again I am sure there will be errands to run for mother. and so it goes.
Take care all, and remember - do something good for you!
You are getting it, you are learning and, I believe that you will continue to. Yes, it does get easier with practice. And, hey, Alison, if they don't like it -so what - as long as you like it, you maintain your dignity -you do what you feel is right for you, you keep your own self respect and so on. Positive changes will bring about good - maybe not exactly what you imagine, but it will be good. It is my sense that the hurt/betrayal from your mother is deeper.
Of course you are wary - there is a lot at stake here and you are wise to be cautious. We each walk our own journey and find out own way. My prayers are with you.
quote "- My only thing is I want my mom to be peaceful and happy with her self in her old age. I'm starting to see that she cant come to terms with herself about getting old"
and you can't fix or change her, or anyone else, jody, you can only change yourself.
Please think ahead about your own life. No, you don't have to give up everything. You can go back to work, and build up some retirement funds for yourself - in fact you probably need to. Let go of the guilt. You would be doing nothing to feel guilty about. Who will look after you if you don't? In dysfunctional families, guilt is a tool to manipulate others. We had guilt buttons implanted onto us at an early age. FOG -fear, obligation and guilt are things we should look out for and not have drive our decisions.. In codependent relationships we put the other person's interests before our own. This is not healthy and will end up with resentment and us being martyrs. You deserve better than that, (((((((hugs)))))
Boundaries: When to Say YES, When to Say NO, To Take Control of Your Life by Henry Cloud and
Boundaries Where You End And I Begin: How To Recognize And Set Healthy Boundaries by Anne Katherine, M.A.
Resentment with the siblings and mom WILL continue to worsen. Jody, I KNOW that I can take care of my parents much better than any of my siblings. Father keeps putting me down and just doesn’t appreciate what I do for him. I aggressively attack his stupid bedsore on his butt because he REFUSES to take turns on his sides. He has been sitting on his butt All Day and All NIGHT (yes, even at nights, he sleeps elevated on his back) for 2 years now. His Bedsore Butt is getting bigger and is bleeding now. He Don’t Care –because It’s MY problem to solve!
Jody, do you have a friend that you can go to? Maybe you can tell mom that you’re going on a trip. Pack everything that is needed for mom’s care – be it just a week. Not a weekend because your mom can behave if it’s only 2 days. Give her a week with bro for both of them to sea Text bro or call him up when you reach his home. Stay there until someone is home, and then leave. I think your brother needs a reality-check on how difficult it is. FYI, I refused to give up my job. I was willing to die of exhaustion if it means still having my job. I knew that I could never care for them without having an outside life. It’s not too late for you. Are you able to find a part-time job? Can your mom handle you gone for a few hours a day? Even if you start out as a volunteer for a hospital, clinic,etc...You will have one foot in the door.
So if I found life-changing tools inside of Breathing Exercises, and, in general, doing positive habits for myself... why is it so hard to believe that changing a few little things about how I handle myself when I interact with my mother will not also yield really great dividends? I think, for me, I just require some "digestive time." I can know something mentally and not know it, or own it, emotionally just yet. So I am waiting for my emotions to catch up to my knowledge. And this relationship with my mother strikes me as even more primal in its betrayal/hurt than the one with my father. I don't know. I do feel promising... just wary, at the same time.
As to what my mother actually wants: its hard for me to break that down. She says she wants to help. And that she greatly loves me. But telling the neighbor I am a drug user and am "messed up," going to the local police with allegations of financial abuse, and now widely claiming to all extended family that I have "mental illness" ... and leaving me a list of Bible verses that have to do with self-control after her last forced visit... I am trying very hard to see where I have been handing over the reigns to my dignity to my mother. And I do see some of my behavior at fault. But she never sees her own actions as being a player in the bad dynamics, and THIS is where I keep having a problem with her. She takes no responsibility at all. And the blame for any temper I display is put on my shoulders in the form of - "something is Wrong with Alison." And its just too much sometimes.
So, yeah, my resolve is there. Its been a bitter pill to swallow, to realize this is the name of my problem - Forever Dysfunctional Family, and I now have to utilize the tools I have, and find more, and enact them from now until eternity, just so that I can keep from allowing my mother to hand over the keys to my dignity. But its worth it. I'm ready. Its also a bit daunting until I get the hang of it a few times. This week's trip will be another milestone. I'd really like to establish some new patterns.
I've been reading, and re-reading, and keep reading much of what is in this thread. All of you have dealt with my issues. And that gives me great comfort and strength. I will feel a lot better after I have utilized my new tools a few times and I see that things are different.
I've very much felt like "all hell broke loose" during the past several weeks, and my mom's visits from out of town. And I'm dreading the upcoming trip, like I said, since it means interacting with Dysfunctional Family. But... I'm getting through it. And I'm learning. And I think everyone here would tell me that that is ALL I can do.
I love you guys. Thank you for this thread and for your honest words. Its helping. Its not easy, but it is helping.
do you have to give up everything? I might have a good 15 years to work, get some SS behind me, maybe a couple of retirements, but I cant even get a day off. This is the hardest patient I've ever had to take care of!
anewleaf - I will say wow too. What a situation!!! I do hope that this new arrangement with your sis works out. Dysfunctional relationships sure do affect caregiving. Maintaining distance sounds like a good thing, but cutting ties altogether is scary. I have come to a point that if it is a matter of my survival, I will cut ties - whether it is my mother, my child or whomever. I know it sounds hard, but sometimes it is a matter of tough love for others and loving and caring for oneself. Take care and come back and share more.
Alison - how are you and your new resolve?
To everyone love, hugs and prayers Joan
Book~I am happy you are comfortable with your therapist, it is very important to feel comfortable so you can share your feelings. You are a very strong woman and I wish I had half your strength. Big hugs for you!!
Joan~It is sad thinking about the mental state of our parents with mental illnesses and how what they think is so real to them. I agree that the right drug or combination would be a huge difference, hopefully they can figure that our sooner rather than later. Wishing you a positive outcome when to get to your mother's city. Take care of you and hugs for you on this trip!!
Mom had another bad weekend with phone calls. She kept calling my sister, calling her the "B" word and SOB. As a result her phone privileges have been taken away again. I really think this is how my mom is going to continue to be for quiet some time possibly until she progresses more. This is how she is when doesn't get her own way. It is a shame that our time together can't be more meaningful instead of pushing everyone away from her. Have a good day, hope you all find some peace and rest in all busyness of caregiving. Hugs!!
Mother's paranoia is progressing I got call from Megan (mother’s church friend) yesterday that mother thought she was being discharged back to her ALF, and she was panicking about it. In fact, it was not true, She is still in hospital. Yesterday, Megan visited her and found that mother thinks they are poisoning her food and would eat nothing, even the Ensure which is in a can. They had given mother something to calm her down and she was somewhat woozy. Megan took her to eat in the cafeteria, thankfully. To date, the drug they have her on is not helping the paranoia. I hope to speak with the doctors when I am down there week to see if they still think their plan will still work. I believe if they can find the right drug or combination of drugs, her quality of life will improve. I question that returning her to the her ALF is a viable option. It is sad to think of her like this.
Wish me luck!
Hi Joan, thanks for the tips on the computer and Self Care. I have several of your nice tidbits. I have even posted one of your helpful tips to another poster. It was the Detach/Setting Boundaries that I copied/pasted. She was very grateful. .. As for the computer, oh my....my computer is Very Under Protected!!! It's an old laptop. I don't know if it would be able to handle downloading all those programs. I have a Malware that's on my desktop but I never used it.
I attended the assessment therapy session. I felt very comfortable with the therapist. When done, she just didn't know where to start in our next session. Let's just say that she said that I'm a very strong woman and that she's surprised that I'm alive today. That what I'm doing with the parents are 300 times more than most people would do for them. Violent childhood, etc.... My homework is Journaling, Gratefulness and Exercise. Struggling the most with exercising. I'm just so tired all the time. Well, I skipped it yesterday, so I will Have to do it today. Boring....
Thanks for the info and everything.
1. Reduce stress. Get rid of whatever is causing emotional or physical stress in life - be ruthless is necessary. Also avoid extremes as much as possible - heat, activities, emotions, anything stressful.
2. Resolve any ongoing tensions – go to counselling if necessary.
3. Get a thorough medical to rule out or treat any conditions like thyroid imbalance, pre-diabetes, diabetes, high blood pressure, infections etc.
4. Exercise, as you can, but not to the point that you tire too much.
5. Healthy diet – may differ from one individual to another, avoid processed food, preservatives, additives, artificial sweeteners, as much as possible. Eat mainly for nutrition; but have some healthy "treats".
6. Sleep - adequate sleep. I found this one very difficult, but it can be worked on it. I sleep in the daytime if I feel I need it.,
7. Rest - I listen to my body and rest when I am tired until I feel better. Sometimes that is a lot of rest.
8. Supplements – Vitamin D for sure and more if you feel you need them - not just vitamins, but herbals
9. Read and inform yourself about your stressors and techniques that help
10. Be patient with yourself and persistent –this situation didn't develop overnight, and won't be resolved overnight.
AND
do something good for you each day! Love and hugs Joan
I travel down to mother's city Tuesday to finalize bank stuff, visit mother and do what else I can, then back Saturday and am distancing myself again. Got pretty aggravated at the RCMP who first said I should file a report about mother and 5 phone calls and some confusion later, I was told a report had already been filed and what was my problem. Also mother's lawyer suggested I create a small joint account with mother and then proceeded, in quite a personal way, to tell me I couldn't use it for my own expenses and she was worried that my creditors could affect it. So I set her straight - I don't carry ANY debt for more than a month, my house and car are paid off etc. etc. ( I didn't work till a couple of years ago for nothing) and I thought I was in more jeopardy than mother was considering that mother gave her credit card number out on the phone, though fortunately realised and cancelled it at the bank. The next time, if there is one, she may not realise! Also that I was spending $1000's of my own money this summer as other times travelling to do things for mother. Aaargh. Just what one doesn't need with everything else.
I got caught up with sleep in Montreal and saw the Botanic Gardens - lovely. This weekend I am shopping, cooking, doing laundry etc to have some food in the house for G, though he can fend for himself if he has to, Friday, I got to a new doc for prescriptions and will pick them up today, so will OK in that area for a while. I am tired and this week won't help that but I will rest when I need to and walk again which helps me to relax. Rain here today but should be mainly good next week.
This is a tough week for me with the 11th anniversary of Gordie's death on Tuesday and I have been feeling it since we returned from Montreal. Good thing G is away with the horses again as he is stressed from business crises and me from my stuff and I don't have much to give him right now. Some business bigwigs are coming up the beginning of the week to deal with the issues that could shut them down for 6 months. He offered to drive me to the airport which I appreciate, as he is escorting the visitors that day.
Well, that my vent.
Thankfully through this my fibro has been minimal, and my gut is behaving, and obviously my energy is coming back.
Alison I have not forgotten about extreme self care - need a bit of that right now but can't follow it for a while. Number one is to reduce stress in your life and be ruthless in doing so. I will post below.
Take care all, and be good to you
ASSA stands for:
ALERT the person that you want to speak to them. For example: "I want to talk to you about the way you have been yelling at me in front of other staff recently." Notice there is no blaming or emotional language at this point.
STATE your grievance by telling the person what the problem is. "I'm not happy with you shouting at me." Tell them why it's a problem. "It makes me angry and I think it makes you look unprofessional in front of other staff and customers."
SELL the benefits of them behaving better. "In future, if you have something to say to me, it'd be better for you to talk rather than shout, and do so privately. This will make you appear more professional and improve my morale, as well."
AGREE. Seek agreement for doing things differently in future. "Can we agree that from now on, you refrain from shouting and if you ever need to speak to me again, you do it away from other people?" If they agree, then remind them of their agreement if ever they renege on it. All you'll ever have to do in future is remind them of what they agreed.
Many tools are available and with "difficult "people we need to learn them. I gather your mum is of sound mind and her problem is diabetes -and a bad attitude!
Good luck and come back and let us know how you are. Venting helps the frustration and seeing that others deal with the same helps self esteem. ((((((Hugs))))
Alison - it is something when you realise that, due to a certain situation you are not the person that you know inside and then it is certainly time to make some changes. Good for you!
re keeping computers clean, I use CCleaner and Super AntiSpyWare weekly as well as WiseDiskCleaner and WiseRegistryCleaner, And Avast for virus protection. I think I have an automatic defrag set so don't worry about that. Together it works well.
cmag keep us updated in your mum's condition. She has declined.
Margeaux -the situation with your hubby's bf is distressing. I agree with the others - he should go and it is none of the controlling widow's business what happens in that group! Oh my goodness! Glad your mum and sis sang Happy Birthday for him!
sharyn - hope your mum settles down soon. It is difficult when they are unhappy,
Love and hugs to all
WOW!. My sister moved in about 4 years ago to take care of mother and her narcissistic sister. Mom and her sister used to be very involved in a senior center, until they could no longer drive.
So now any social....was all left in the hands of my sister. She's got a full time job. For awhile, my sister on some weekends used to see to it to take two elderly women who were dependent upon walkers out to eat as an outing and distraction with the assistance of her wonderful boyfriend.
But as time passed this became harder because especially my aunt's immobility like walking became very difficult as she had borderline diabetes and a heart condition so walking was a big challenge. Plus our aunt was very unappreciative and demanding always complaining and abusive.
When I'd hear about all of this, I started to tell my sister that although she lived with them, I didn't feel that my sister owed it to them to overdo these outings, or feel such obligation to provide the social for them. Besides, we inherited the care of our aunt because she didn't have her own kids, so what's up w/that! She took high maintenance to another level.
I started to call both mom and her sister cling ons. They psychologically speaking never knew how to really entertain themselves and have always depended upon others to meet their social needs. Then, in this case they never seemed satisfied, nor grateful.
I know you do more than enough for your mom, so that should never be the issue, and I hope she isn't taking you down the guilty path. Our aunt did this, in a very bullying way. Mom didn't, just went along because she's the one who has the ALZ. But with my sister....there's another ingredient.
She's a controller and a co-dependent. So she ends up falling into the guilty trap, too. But finally my sister had some major fights w/our aunt and much of the social w/my sister's input came to a halt.
It is interesting also, because when mother was younger, she always hung out with her sister. The co-dependent relationship she had with her, determined the lack of an authentic relationship we'd ever have w/our own mom. So all I can say is I love my mom, and I didn't like her sister. Hence, basically my distaste for the sister.....there was no way in China I was going to do any social w/them, if it involved her sister, which it would because mom wouldn't go out of the house unless she had that battle ax, (my name for her sis), in tow.
This is why I started to refer to them as the cling ons..
The battle ax died 1.5 yrs. ago. After that, mom started behaving just as you describe your mom. On occassion, mom asks my sister where she's going, when my sister goes upstairs and is trying to get things done around the house.
This drives my sister nuts. I'd be nuts too! But I did tell my sister that she was going to have to stop paying so much attention to mother also. She did this,
and mom stopped behaving this way.
This is where detachment comes in, which is what we talk about here on the thread. So I encourage you to try to find a way to set some boundaries.
Austin's idea is great. You and she need some constructive time away from one another. Sure, you're her caregiver, but that doesn't mean you are joined at the hip. I'm not going to tell you to be loving, because you already are. Be firm!
Much Love & Light! Margeaux
loved this post "The thing is, she's ALWAYS SORRY!!!!!!!!!!!!! She's been APOLOGIZING to me my whole damn life!
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you did VERY Well!