
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Joan~I hope you get things taken care of in Edmonton. Yes, I would have to be destitute or more to accept my mother's money for support. I have spent quite a bit of my own money out of pocket for groceries, repair work on mom's personal belongings...I don't even know what it has added up to because it has not caused me a hardship and I really have no concerns.
I will make this short...(an understatement for me, LOL!!) I am off on tues./wed. and the time will be spent here at home as I need desperately to get many things organized again after all the time I spent going through mom's belongings. I know she is being well taken care of so I will visit during the next weekend. Hang in there everyone, Hugs to all!!
We never had a childhood and were the responsible one from small children. I have two younger brothers (8 & 9) yrs and was a terrible 2nd mother and sadly they have not turned out well. They both had it worse than me since I got out young too. I was not a good marriage but beat being at home. After high school I left and never looked back but still Mother has always depeneded on me and makes excuses for the boys and I cannot do eough or good enough and I stopped trying. I am like you I am doing the best I can while protecting the progress I am finally making and refuse to upset my life like it was most of the time. I lived such a roller coaster ride, it was hard for me to accept when something was going smooth since I knew it would not last long. But, now that I can accept Mother as she is and back off when she starts manipulating and blaming, I can take it. But never in my home.
We all love our parents and want to help them and the ideal situation is to be their with them but as the life span is getting much longer, they should be in a place with nursing and professional care. Most of us are not trained to deal with all the issues. And don't know when to run them to the doctor or what to do with the toxic personality, when they are no longer responsible. But, we are human and can only take so much abuse and most of us have reached the breaking point trying to change and help our loved ones. Alcoholism was a major problem in our home and as I child of 13, I called the police on my father for getting rough with my mother but I saw her push him to the limited and cause much of it. But, we as children had to be the adults and responsible ones. Of course we were the "pefect child," we had no choice but Mother still pulls my strings, I am just learning to walk away and let her get over it. She needs me now and is not as bad but I have to keep a safe distance and I have to be careful that she will not manipute me with her Dementia and forgetfulness. The last two weeks she says she is not eating and getting Diarrhea. I think the move shook he up a bit and it may be her nerves but if she does not do better, I will take her to the doctor. I do know this move has been hard for her but it is so helpful for me to have her close enough to help. But, I don't want to be an enabler and it will be difficult to tell what mode she is in now with her Dementia. Some days she is beginning to act like a child and she will be a Myrta for attention so it difficult to know what is real with her. I will just do like you said and let go and let God lead me to help the best I can without it ruining my life. So, far she can pretty much take care of herself financially and I don't mind helping when I can. But, I believe she needs to be in the Assisted Living rather than her apartment but she will not consider it.
Her apartments are adjacent to the Assisted Living and there will be no problem getting her in unless she fights us but her physician is mine and he is good and will have her committed there when it is time if she refuses to go, and he will put her in a nursing home, which she would not like. He is a wonder geriatric doctor and you cannot fool him. He has her telling him everything and he will know when it is not true. He has given her something to calm her nerves but she will not take it like she should. I am going to let him know and deal with that. I have preached and begged enough. I will let him be the bad guy and she will probably quit him. She just started taking any medicine this year at 91 and she wants to be noble and let everyone know she does not take anything other than her Tylenol PM. lol
My warm wishes to all of you. I truly can feel all the pain, frustration and hurt for each one with such difficult situations. My love and prayers are with each of you and I know we can help each other. I am sincerely thankful for each of you. Your understanding has meant so much. I truly am proud of and love each you, my new family. Each of you are so special and my heart is with you and your suffering. Just hand in and don't expect more than you can give. Your own health and welfare is so important to yourself and others.
Warm wishes and God Bless,
Sunny:)
Sunny:)
sharyn , I guess we see it the same - their money is for caring for them. If I was destitute and she needed me -maybe, but not otherwise. Thanks for filling us in about the service. sil getting the ashes must have been very emotional.
book your family is not unique - lots of dysfunction around
kd - not sure what you are referring to - but welcome
ABB -glad if any of my experience is helpful. I have learned the hard way, as we tend to do. Keep dumping! How to be yourself in the midst of it all in not easy. Not good to lose yourself. A finite time line sounds like a plan to me. There are alternatives for your dad and you need some peace in your life, I think making a plan is a great choice! Keep us updated!
College - welcome - a bossy mum can be hard to take at times, especially when she did not do much when you were young. Lots of us did not really have a childhood.
Sunny - narcissism and control are hard to deal with. Congrats that you are out of the people pleasing and the guilt. We can't "fix" anyone. I wish I had learned some things sooner, but have to be thankful for what I have learned. Sometimes we have to let go and let God with others. We were brought up to be hyper responsible and have to unlearn that. Yes, we need one another. This site and the people on it have been a big blessing to me.
I realised in the past few days that I cannot help mother any more other than dealing with her finances and physical things, and overseeing that the professionals are doing their jobs. She is unmanageable by any normal means and needs ongoing professional care I will tell the hospital that this has gone too far and I will not deal with her self created crises any more. I have done it all my life - literally from a very young age - my father drank, my sister hid in the shadows, I broke up fights between them when I was still in grade school, when I was 13, I once told her to go to her room when she was having a tantrum and she went. I have been the scape goat the whipping boy, the servant. No more!Whatever decisions they make about her affect me and my life deeply and I am going to let them know that I am DONE with the abuse, anger and manipulation. I do love my mother and want the best for her, but have to deal with that at a distance. I know the BPD and narcissism is the major problem, and I would not wish it on anyone, but you don't stick your hand out to a biting dog for him to do it again. I look forward to seeing her in heaven, as she was designed to be. Have a great week everyone. I always bring my computer so I will be in touch. Do something good for you! I got my nails done yesterday -a nice sparkly orange/coral - goes with some sandals I have! Love and blessings - Joan
Its difficult. I've been an exacting, demanding person on myself and my life. And now I'm grouped in with a crazy person (father), in his home, and I have to find the balance of how to still be me, and find simple happiness in each day, and deal one-on-one with craziness and anger each day as well.
Every day lately I'm thinking more and more about a finite timeline where I do as much as I can to benefit my dad's situation but make plans to extract myself from this situation... I'm hoping I can be out of my dad's house, and have his care/plans figured out, by the end of 2013.
I guess I'm just so aware now that I never truly have a moment's peace in my current situation. Could I make it work living here? Certainly. But I don't think that's a good choice for my happiness long term.
This has allowed me to remove the guilt and anger. There will always be scars and personality traits, I cannot change but I do like the new me who wants to help my mother but not at the risk of making my own family and health worse. I know I have to be happy within and I am proud of the progress I am making. It is just so sad, it took me most of my life to understand the real problem was never about me.
Please keep this wonderful new thread going. It is right in line with the caregivers since we all suffer from "too much "responsibility" for everyone. And not only my family but dear friends come to me as if I can solve their problems. But, I listen and try to give less advice and just show the love and compassion I have in my heart for others. But, no longer do I feel "responsible" to make them happy. I want to be a good friend, but I have to keep my head above water and cannot allows those who have used me to continue. I will love them all but with my own health issues and disabilities, I have learned to take care of myself without the guilt.
God Bless you CMag for your insight to start this new thread. It is so nice to see my new friends here from How Are You Doing Caregivers thread with all the wisdom they have shared. They will be an asset to you here and I hope you find the comfort you are looking for. We do need each other.
Warm wishes,
Sunny:)
Learning to laugh at myself, and really take the time to lighten up, is one of the greatest gifts I've received recently since caregiving onset a few years ago. I get way too serious about all of the craziness and then I have to BACK UP and realize... there is just NO WAY the Benevolent Universe intended for ME to RULE over my father (my charge). So then, everything I do is just my opinion and what I think is right, given the situation.
If I start from this place... of opinion... and trying to do what is right... given my limited human knowledge...
Then I do better as caregiver, and as a (happy) person, than I do if I believe its ABSOLUTE FACT that father absolutely needs this, or father absolutely needs that.
This is just the philosophy/opinion on my mind at the moment, nothing more.
I appreciate this new safe place to dump my deepest thoughts, thank you!
Ok, onwards and upwards my fellow caregivers!
And emjo, "caregiving at arm's length" makes all the sense in the World to me right now. I'm definitely "living and learning."
Joan, I do try to separate my costs with father's. Still lacking and know it. But, I'm a procrastinator. Eventually I will get it right. I'm finding your situation fascinating. Actually I find everyone's situation fascinating. It's just so strange to think that my family is not unique...that it's actually so prevalent.
Sharyn, my father and his brother are oldest and youngest. Uncle, the youngest boy, and aunty, the oldest sister, died this year. Father and Uncle look soooo much alike, walk, height, smile, flirty, jokers, and mannerisms. They can pass for twins.
ABB, I didn't mean to ignore you earlier. Glad you found this thread. I tend to read mostly and comment not as often. I've comparmentized my life. This thread is where I vent about siblings, YOU thread for my caregiving stress over father.
Joan~I think it is best to always keep financial matters between ourselves (in the caregiving) separate from our parents. I could add up mileage on my car for the time I visit mom saying it was supplies and get reimbursed. I don't want to carry it that far because I don't think it is right. The nickel and diming will add up quickly and that money is for mom's care. I work to support my needs so I agree with you.
ABB~I know what you're dealing with is emotionally draining. Last year there were several times that I wanted to resign my duties as second on mom's POA. I say I am second which is true, but I live in the same city as mom which has resulted in me doing the most...I don't regret that or have hard feelings toward my sister who is primary...it is logistics. I wondered if it was worth it...the verbal abuse, accusations, threats of calling the police. You know what I mean. I am not going to recap everything, you are welcome to read my profile to get a better understanding. I am glad you came back. You are wise to take the time to get your bearings back after this blow with your mother. Take care, Hugs to you!!
Sis and I went to the graveside service for sil's mother. It was a very nice service. I thought sil's family was not very religious but apparently her mother was a believer even though she didn't go to church. Afterwards we went their home for a reception which my sil cooked all the food herself expect for a veggie tray!! She has to stay busy or she completely breaks downs. You know my sil lost her 38 year old son on May 9 to cancer and now on July 8, her mother to the cancer. Her dil who was married to the son she lost....made a great, heartfelt gesture today by bringing my sil the ashes of her son. It was so emotional for everyone. She said they could share him because that is what he would have wanted. In all the years that we came together as a family with my brother and sil, her kids were very quiet around us...you know how teenager are...today sis and I talked at great length with one of her son's for the first time. It was really great and we told him when we were leaving how much we enjoyed talking with him today. Now that my brother and sil have the traumatic losses behind them...hard part begins...the grieving, getting on with their retirement and enjoying the family and love that is around them, remembering the good times with those they lost. Hugs to everyone!!
Its very hard, at this stage of things, to keep justifying the time/energy I'm dedicating to caregiving to my father and sorting out "his life." I'm a bit demoralized at the moment but I've felt this way on and off for my entire caregiving time. Who wouldn't be demoralized? My father is an explosive yeller (theres also history of minor sex abuse... which in itself is such a complex and hurtful thing... I can't even being to deal with this issue while living as his caregiver) and loves to take out frustration on me and blames me directly for everything including his health problems, my mother is suspicious of my motives and justifies her actions (by blaming me) no matter how over-the-line they are, my siblings are either not involved or also blaming me. It gets to be a bit much, doesn't it? And this sort of mental/emotional assault is just heaped on top of what is already a large physical work load.
I'm taking things pretty slow at the moment. I'm not rushing to make emotional judgments about my mother's behavior... I'm more focused on regrouping myself, getting myself back on track and fully healthy and functional within each day. My mother definitely "knocked me for a loop" by getting the police involved to investigate my situation with my dad. But... is her behavior "par for course"? Yes, of course it is, which is why I decided to come over to this thread with all of you good people who know firsthand what its like to deal with toxic family and their crazy antics.
Emjo, you mentioned how you were caregiving to parents for years now. I can relate to that. I've often said, even before I became "in-person caregiver," that I didn't have parents... that I was as much the parent in the relationship, and have been all my life.
I'll never have a loving, trusting relationship with either of my parents. And I really don't have another second of my life to waste on grieving this or being surprised by their behavior. I must figure out how to contain the all around fallout of their dysfunction. For some time now, I've been bolstering my emotional/mental/spiritual well being by paying extra attention to my physical health. I got pretty darn sick earlier this year from all the stress. So now, when the going gets rough, I start babying myself with extra sleep, more focus on nutrition/exercise, and just let "the mess" sit there another day... until I'm feeling better. I used to just run myself ragged but I learned that that kind of repeated high-anxiety effort on my part - to solve things, fix things - just made me feel worse and LESS capable of actually understanding the true nature of the problems and make any real headway... make sense? I was spinning my wheels a lot of the time, not realizing it, because I allowed the situation to mentally/emotionally exhaust me.
I'm going to cap this novel here and be back again soon. Thanks again so much for the welcome and I do really appreciate the chance to participate here with other people who have similar caregiving experiences. ...the club we never wanted to belong to, right? ;D
Welcome to our thread. I've been on it over a year now, and came when things were absolutely bizarre w/our dysfunction.
Please come back anytime, we need some survival skills.
Much Love & Light! Margeaux
Margeaux - I agree about the rules - one seems to counteract another, and the intent, which is to ensure that seniors get care while maintaining their rights. Sometimes it seems the rights take precedence over the care. re your aunt - narcissistic people particularly want to maintain control, and when they get to a point that their minds aren't working right it becomes a nightmare. I would think that repeated verbal and physical abuse should warrant a psych eval. Doctors have put up with mother's behaviour for years without doing anything. It was only when the live-in senior nanny broke down in hospital that they did an evaluation. I don't think they pay as much attention to family members. I am waiting at home for the call from the hospital to discuss mother's care and dare not go out to do the police report, but will as soon as I can. The nurse defended herself by saying that bipolar was what was on the report. She was quite defensive in general and kept saying she couldn't tell me anything. I wasn't asking anything, I was trying to tell her things I thought they should know which, obviously, were not being recorded right. Aaaargh! Thinking about it I think she was afraid of mother who was threatening and trying to bring her lawyer into the hospital. Mother is a bully and she will throw her weight around anyway she can. She is still very bright and articulate and will throw hurtful threatening words around with no reservation. Thanks for the thoughts. I know the right diagnosis/plan will come eventually. I hope it is this time or the nightmare will continue. ((((((hugs))))
I think I pinched the nerve from being on the computer...using the mouse when I was off on FMLA. I was doing a lot of research on the computer for the teacups my mother has...looking for the same teacups that others might be selling on ebay or esty...get a general idea of what they were selling for before we priced them.
Because I have to do most of the work regarding my mother's belongings because of sis's health, we have decided that we are going to let the real estate agent locate someone to buy everything as one lot (everything we are willing to sell). This does not include the house...just everything in it and all the tools in the tool shed. We will go through the house...sis, bro, and me to pick out what we want, what we want to give our kids,etc before this is done. This process is so hard because mom is still living and we feel like we are violating her personal belongings even though the money will go into mom's accounts for her care.
Take care...you are probably on your weekend already, Hugs to you!!
When I've read stories about all of the rules in place for elder care, all I can say is how convoluted they are! Even in my sister's case....where she was the one who moved in w/mom, and her narcissistic sister. She did/does have POA and MPOA for mom. But she only had POA for the sister. My aunt's mental state especially during the last years of her life were a complete nightmare. Why?
In part it really had to do w/the fact that she still had MPOA of herself. Defiinitely,
I would think that as in her case of repeated verbal, and even physical abuse,
against one caregiver she was a candidate for psychiatric evaluation.
Yes, definitely use the RCMP and document these incidents.
This nurse telling you that your mom is Bi-polar, how unprofessional.
If she's a nurse in that facility, doesn't she have a duty to watch what she says?
O.K., Emjo....You are in my thoughts, especially that things go well that your mom may get proper diagnosis and help. Much Love & Light! Margeaux
Emjo, I had to re-read what your mom did. I couldn’t help it, I kept wondering where was sis. But I believe you had mentioned earlier that sis is off somewhere. As for her, it’s darn if you do and darn if you don’t. I guess you just go with whatever’s the result of the tests, and the doc’s pros/cons or recommendations. And if she’s deemed competent, you will be stressed over where she will be hitching a ride to.
Mamm, my attitude with my siblings regarding the parents was this: I updated them on every new change. If mom was sleeping more than usual, I tell them. If father kept falling, I tell them. But for the nitty-gritty detail, I don’t. Why should I? Are they co-caregivers with me where they need to know these details? No! I only give updates on NEW changes. Then it’s up to them to decide if they should visit the parents or not. If they throw a fit, I just tell them to visit more and find out for themselves what’s going on.
Just text them simple words: “so-and-so sleeping more.” “so-and-so coughing a lot, refuses clinic.” Towards the end of mom’s death in March, that’s what I was doing – texting to ALL my 6 siblings at one time. One sis was debating if she should fly over when my next text decided for her: “Mom may not last long. 1 or 2 weeks.”
Margeaux, I wouldn’t put it past your neighbor also telling people about Your teeth! I think I'd be paranoid around your neighbor.
I love participating in the "YOU" thread on AC, but this might be an additional useful "vent thread" for me. My family put the "D" in dysfunction, to be sure! Ok, ok... so all of your families ALSO put the "D" in dysfunction... even better! I'm looking forward to reading up on what you all have going here over on this thread, and I'll share my own personal survival tactics, lol.
For now, its enough to know that I (we) am truly not alone... are we... obviously not. Obviously there are plenty of people that manage to do both caregiving (really tough job) to dysfunctional family (beyond words in toughness).
So hello, CaregiverDysfunctional thread, I'm Alison and its nice to meet all of you. I'll spend a little time reading up and take it from there. ;D
Margeaux, I so identify with your account of your time overseas and your mothers guilt tripping you. BTDT!!! And the "castrating" words is a good way of putting it. Yes we get drawn back in to the old feelings
sharyn - you know the road I am walking with mother. I called the hospital and the nurse was quite cool to me and said she could tell me nothing without my mother's permission - quite a different story than the other day. She said she would tell mother I called and I suggested that probably would not help the situation. The lawyer told me that I am her personal agent and can deal with the hospital, ( I suppose only if she is deemed not competent) and she will have the document notarised and ready for me - and also the EPA for the bank. I asked the nurse if they had the info from mother's recent visit and she said yes, and your mother is bipolar. Aaaargh. My confidence dropped. I corrected her and said she has never been diagnosed bipolar but she has been diagnosed Borderline PD. That, of course, did not help our communication. I also told her that the story about the doctor telling her he would put her in a nursing home was not true. She sounded surprised. By this time I was not too impressed and she realised it. She told me that she could not give me any information without mother's permission and that if the evaluation showed that mother was competent they would let her go. I would not be surprised if this happened as mother is very bright and manipulative. What mother would do then I have no idea, but it would not be good. I really need to get to the RCMP and file a report of what happened the other day, so she will be under their radar, but have been busy on the phone today and emailing. No use going on the highway now as the traffic is dreadful. Oh Lord, I am glad your mother is safe where she is, even if not happy about it. In my view you are right about the filing cabinets and also midget expenses.
This is not easy. We should get Caregiving 101 in high school - it is a necessary life skill for many.
(((((((hugs)))) to all
The point of this post is that my sister said she would pay 1/2 the cost of the cat tree out of mom's money since it is related to midget. Sis also said she would pay 1/2 the cost of the fee for having midget go through training at petsmart to stop her from barking and teach her to ignore the cat. My sister means well, but I took midget into my home by choice so that mom could see her more often than if my brother took her. I will not allow my sister to use mom's money for it because the way I look at it is that midget is now my responsibility.
When sis first started taking over all of mom's financial paperwork, which is huge because she also has past records on mom that she needs to keep, we discussed the matter of filing cabinets. Sis checked with the company she works for because they have several filing cabinets sitting around unused. They told her they were in bad shape...drawers didn't open and close properly. Sis asked me if I would have a problem if she order 2 new cabinets with mom's money. I told her that I felt she needed to have the cabinets so that she can organize all of mom's business papers, medical...past and present. I told her I had no problem as long as you are not going to insist on expensive oak cabinets (sis likes everything to be very elite). As we were talking on the phone, I looked online to see what was available...the oak cabinets were like $450 each, there were some other metal cabinets more reasonable that were sturdy...not the flimsy metal like my mom had where the drawers were bent from the weight of the files. Anyway, she got the reasonably priced cabinets. I see nothing wrong with this because it is 100% related to my mom's needs.....it does not really benefit my sisters needs other than the ease of organization in her home. Paying for 1/2 the cost of midget's training or for the cat tree is very different because midget is not living with my mom. I think my sis feels she wants to give something to help me because of the cabinets.
Take care everyone and I hope the coming weekend is pleasant and relaxing for you!! Hugs to all!