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Sharyn,
How terrible for you to have that worry earllier today. did Mom say why she had locked the bedroom door? She seems to be very afraid, doesn't she.
You are certainly going to be in my prayers knowing this is hard on you.
Can you develop a mantra to get yourself through this? "This move is so good for Mom"
"Mom will be safe and happy in her new home"
"Knowing Mom will be safe and cared for makes me confident and thankful"

Keep positive and let that attitude come through in your interactions with your Mom and siblings. You want your Mom to feel she is on an adventure or at a resort vacation. How lucky for her to have the wherewithall to afford such a lovely place! so on and so forth.
She will "pick up" your sentiments and take clues from your voice and actions...Smile as much as possible, talk softly and send her good vibes.

Will continue to look for your posts. Everything will be okay, sharyn and it is great your husband is helping with the move. You can sure rely upon him, can't you!
Maybe you two could go to the ocean again, soon?
Bonnie

Keep yourself on a
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Sharyn, I was just sitting here thinking about you and mom. I was just about to sign off and do father when I decided to check my NEWS FEED one more time. Saw you posted. You must be very very nervous. Might as well turn that energy to do what needs to be done today. Keeping you in my thoughts....
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I sit here with my stomach in knots today knowing that tomorrow we will move mom. I took all her meds to the community and gave mom meds for today. When I got there, I could hear the dog barking from a distance. At first I thought they were in the backyard, as I unlocked the doors, I realized they were in the bedroom. She had the door locked and I knocked a couple times calling out to her. She finally opened the door said she was sleeping. This is another reason why I have to get her out of there. I fear going over there and having her not respond and I will have to remove the door knob to get in the bedroom. Enough of this, I have to get something done here today.
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Margeaux~So sorry your poor mom is going through all this.Having dementia is enough without being rushed to ER, staying for a long period. The laporscopic surgery is less invasive, hopefully they can do it that way. Hang in there and let us know what happens. Hugs to you!!
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I haven't looked at any news about the Boston bombing. Under these circumstances is reasonable to believe their police force would go checking house to house.
But instead of creating in our own minds more unfortunate circumstances, all the "what ifs." let's instead send out energies that the guy on the loose is caught!
Margeaux
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I don't think they are over reacting. They have reason to suspect that others are involved so they are doing what needs to be done to protect public safety. Last I heard they thought he might be wounded, if so, I doubt he will get far is probably holed up in that house.. It is scary that they have basically shut down a big city like Boston and I hope it is over soon.
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It looks as if this situation with my mom is up and down. Now my sister had to take her to ER, again Wed. night. Apparently they spent just about all night there as they were running some tests on mom. Poor thing, she had a major flare up with the pain as a result of the gallstones. They arrived at home at 5:00 a.m. after this.

On Thurs., she was scheduled for two appointments. The first one w/her primary care doctor, the second with the gallstone specialist. The gallstone specialist advised that she needed to be hospitalized, and monitored. So my sister had to spend another long day/night at another hospital. By the time she called me to convey all of this, she told me the doctor said she was not a candidate for Gallbladder surgery. I guess the gallbladder itself, is checking out in good condition. However, he was talking about the Laparoscopic method to address the gallstones. Anyway, he still needed some info.-tests taken the night before from the ER, so mom was sent home w/my sister very late last night. They did give her Morphine for the pain.

So now we are at being stuck between a rock and a hard place. Mother has had several flare ups with the intense pain. One can just imagine if they've had to prescribe Morphine, and Vicodin. So now after the doctor clears all necessary tests for pre-op, right now it looks as if the situation could be pointing towards a Laparoscopic procedure. I do have my very mixed feelings about ANY surgical procedure possibly done on her. But I definitely concur with my sister, I do not want my mother in excruciating pain. Ay yay yay!, Oy vey! Anyway, I'm going to do a search about this. Margeaux
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I think the scariest thought is....if he gets away...where will he strike next?????
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I agree, no over reaction. We were hit here on our own ground during a time of celebration! Boston, needs to make an example out of this.....to let others know, THIS WILL NOT BE TOLERATED!
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It may seem like the the Boston/Massachusetts is over-reacting but they're not. It seems when trying to get away, one brother ran over the other brother. The older bro that died may have been wearing explosives. As for the younger bro, he stated online (FB?) that he wants to kill people. He, too, might have explosives on him. The police needs to catch him ASAP so they have cut off his escape routes - people stay in homes (so he can't kidnap them and force them to take him out of there), business closed, shut down the train system. then the cab systems. And just now the airplanes. They have literally stopped all major transportations....

I worry about the people in their homes. What if he breaks in? Or he knocks and a child rushes to open the door? I hope no one with dementia wanders out - to do their every day thing. I hope everyone is hunkered down and have some kind of hiding place with lots of self-defense weapons. I hope no more civilians get hurt.
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So much going on first the marathon bombing the expulsion in west Texas and the rain and flooding in the Midwest.
A lot of info is coming out on the bombers I just hope no one is killed. Two security officers werekilled aswell.
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Yeah, I've been glued to the TV since I got home. The police sent automated calls at 2-4am to every residence in Watertown. The recording warns them not to go outside, keep all doors/windows locked and do not open the door unless the person can prove they are the real police. While people are locked in, the cops are going house to house searching each ones. Cops from all the surrounding towns and even from the state of Massachusetts.... the guys are brothers from Chesnia.
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I don't usually post on issues that are in the news, however, I just happened to wake up here at 3:30am and hubby has on the tv while getting ready for work. The police are searching for one suspect in the Boston Marathon bombing, another suspect is dead from a shootout . It sounds like they know who is responsible for it and hopefully will capture the other suspect without any further bloodshed. Stay safe those of you in Watertown/Boston area.
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Book~Awww...I know so much has changed and you and I have changed as a result. I can understand your anger at Hospice. There is something that I have learned and it is not because you or I are not trying. It is this: We have to ask the right questions to get the right answers. People are not listening to us so they just give us what they have been trained to say. No one wants to elaborate on the subject. It is just like where I work, if a customer does not ask a question in a certain way, I give them the same old response part of it is because I am not really listening to their question and part of it is because I have so much to deal with that I truly don't want to go out of my way for them because of the time of day they are requesting it. When I had to deal with Verizon regarding my mom's account, I just got the run around every time I called. I finally sent an email to "Call 3" which is a television news network that helps people who are having a problem with a business. I received a call from Verizon's corporate office and they were finally listening to me and took care of the problem. It is sad that we have to get so angry and be nasty to a business in order to get results. Of course I don't work with life and death situations or health care but it does not excuse the fact that we are trained to answer a question a certain way without thinking outside the box. That is why I have learned so much on this site because people are willing to share information that we can't always get from the sources who should be giving it.

Alas, mom is not accepting it, she finally called me about the subject at hand 10 minutes ago. We will go through with the move and see how she reacts with them. She usually does not create problems with people she sees as authority figures. She will try to assert herself but does not become nasty like she does with us. While all this is going on, I am grateful that mom still has a fight within, it gives me hope that she will comply and thrive. I have more respect for my dr. as we have journeyed through this because I felt for quite some time that he was not very supportive to me and sis. I have learned that even though he is a dr., he has limitations of what he can actually do to help us emotionally in a personal way. Unfortunately, we have to learn a lot of things the hard way because there is no manual on what questions to ask to get the right answers, what we should do next, is it time to place a parent, should I call for hospice?? Thank you Book, you always are supportive even when you have your hands full. Luv you and hugs!! Sharyn
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Sharyn, I so hope your mom accepts. We can hope really, really hard. Depending on how deepseated she always view doctors, maybe she will accept the doctor's word - even in her dementia state of mind. Or she can turn against doctors like my father. "The doctor doesn't know anything. I know everything. I know what's going on. He doesn't. I'm not going to the doctor anymore." That is my father's rants when it comes to me trying to get him to go to the clinic. But even before his senility, he didn't care to go to the clinic. Thinking back, I think this attitude changed when mom got diagnosed and father found out how "useless" white man's meds were towards healing mom. After that, he went gungho into herbal supplements. Whatever he did, it worked - mom's physical body lasted longer than most people - and she died with very smooth soft skin. (Everyone commented on that at mom's viewing.)

Sharyn, you have a very good and caring doctor. I went down memory lane and still remember how your mom was when I first found this site last year June. So much has changed in both our situations. HUGS!!! Book
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We had a 9am appt. with the dr. for a med review. He took a lot of time talking to mom about AL, that she can't live alone due to memory impairment. Of course she countered with I don't live alone, I have my dog!! He tried to show her how bad her memory is by asking her if she remembers calling his office. Mom said yes, I called yesterday. He said, what about the day before that? She said no, I didn't call. He said yes you did, you called 7 times 20 minutes apart. She just looked at him shaking her head no. He said the reason you don't remember is because your short term memory is impaired. It is not your fault and no one is blaming you but you can't live alone anymore and you need to trust that your daughter's are doing what is best for your safety. She said, I have been safe, there have been no problems so far! He said, that is not true because you started a fire in your kitchen.

It has been 1-1/2 hours since I took her home...so far no phone calls. I am not expecting her to accept the situation totally but maybe the dr. helped her see that she needs more help than we can give her.
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Margeaux~I hope your mom can get by with following the diet for gallstones instead of surgery. I know my mom's dr. recommend not to have surgery on a suspected hernia. So far she has been ok..no pain or problems.

When I go to mom's house, she is not difficult...I don't think she realizes I am the same person she yells at on the phone.
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Emjo,

Thanks. It looks like she's getting her appetite back.
I'm so glad, too. My sister was getting like a drill sergeant with the way she'd give mom the Ensure. She wanted this small lady to drink it down in one sitting just before bed. To me, this seemed rather cruel, given mother hadn't eaten hardly a thing for several days. My sister could be way more gentle in her approach.

Yes, a surgery could be too much for mom. Let's see what they tell her.
I fear if they advise to do this, I'm going to have more than a tiff with my sister.
Who knows. I'll just have to cross that bridge, when I come to it.
I hope you're doing better, Emjo. Hugs & Much Love & Light! Margeaux
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I went to a funeral on Sunday, it was the wake. A friend, who I'm not that in touch with called on Sat., to tell me her younger sister had died. So a two other friends and myself went together to this wake.

Talk about dysfunction!! The brother of the deceased got up to say a few words about his sister. He said something like, "Our sister X, was a good woman, and she started in the ghetto....." He was then interrupted by our friend, (the one we were supporting), and she said, "Correction." She (their sister), was not from the ghetto." Apparently, our friend took offense to this term. She's a rather difficult personality, (part of reason, I'm no longer very close). Anyway, my other friends and I, had a moment of feeling embarrassed for the brother. We also found it comical. Really, it was rather sad to see this too. Margeaux
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I spoke to my sister yesterday. Tomorrow is the appointment for gall stones.
Originally, she'd told me that if I wanted to go with them to the appointment, I could. But yesterday I asked her about it, what time it was, etc. She now gave me the, "it's at 4:00 p.m., in the afternoon. The time is going to pose a problem for me, because I live way on the other side of town, and this is rough traffic.
She sounded as if she was trying to say, that it wasn't necessary to go with them.
Anyway, I doubt that I'll be able to make it. But I'm wondering why now, she was backing down? I can never understand my sister! Margeaux
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Sharynmarie,

Wow! Your last post couldn't help but take me back to the days of our narcissistic aunt. Remember her?? It is good of "H," to have spoken to your mom about the AL. What a great attitude she has about this subject.

O.K., hang in there, my dear. It does at least sound like some of this may be sinking in if she mentioned it to you. I hope so.

Have a wonderful vacation, you've more than earned and need it!
Much Love & Light! Margeaux
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Joan~Thank you♥! The true is two shots of Tequila and I would be out like a light, Lol!! My sister went over mom's about an hour after I left yesterday to take mom grocery shopping. Mom refused to go. This morning mom called 5 times, I answered the first 2 calls. She was combative and hung up on me so I didn't answer after that. Then I got a call from "H", the woman who has been balancing my mom's checkbook. Mom had called her telling her about us possibly moving her to AL. "H" encouraged mom and has encouraged her all along to move to assisted living. She told me to stand strong because she knows my mom is difficult and selfish. She said don't let her guilt you, this is best for your mom. She went on to tell me that she will eventually go to AL when the time comes because she does not want her daughter's last memory of her to be about cleaning her bottom. This is from a Christian lady who is 92 years old.Disclaimer: This is one 92 year old's perspective and in no way is a criticism of anyone who is caregiving and dealing with incontinence. Anyway...long story longer, Lol!! I was feeling better and went to pick up mom's script for Namenda and decided to go over her house to give her the meds. She was compliant. I took her grocery shopping, she mentioned the AL once and I just nodded. On the phone she still fights but in person she doesn't. She has called me once since we got back from shopping and is back to fighting so I won't answer anymore of her calls. Tomorrow she has an appt. for a med review and I may ask the dr. to script mom her own Xanax so it can be given to her during the first couple weeks after moving. If she makes things too difficult, we will have to get the conservatorship. I really think I am going to have to go to my dr. next week and be put out on leave. Mom is going to fight this like she has everything else and her personality disorder makes her too selfish to have the ability to care about anyone else's health and well being. Yes...it will be a Xanax night for me!! Hugs!
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Wow, there are so very many kinds of dysfunction, I have yet to meet a family who doesen't have some sort of it.
When this post came across, I thought about the scenero. My mother was a strong woman, my father was hardworking, but silent person, rarely rose his voice. looking back he was totally absent emotionally, I know he loved me under the faciad, but coming from a old country style of living, it was not thought of to show anyone your emotions as that would be demeaning. I knew my mother loved me, she showed it in physical ways (Hugs, etc), but emotionally she did not. Then I went from that environment into a marriage of an emotional/verbal abuser (it took me many years to recogonize this) brought 3 children into the mix. and now as adults they are voicing what they dealt with growing up. I am like OMG how could I be so blind to the scerano. No there was NEVER the drugs or alcohol involved, or divorce. but I attempted to leave/divorce my spouse twice, he again "convinced" me he would change (never happened) Now I am his caretaker of this person. My daughter is divorced from a "passive agressive, alcoholic, gambler" they have a little boy who is being bantered about because of the fathers issues. My one son has gone the faith/religious way, my other son, dislikes me becausea I moved his father away from him, and I am a hateful person, who it is difficult to speak to. When does this cycle cease? This post has brought up numerous memories, many of which are a challenge to become aware of......
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Margeaux - glad your mum is eating better -hope she is on the mend from the gall bladder attacks. Surgery would be very hard on her. (((((((hugs))))))
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((((sharyn))))) good for you, for telling her, but the repercussions are coming now - as you knew they would. This is such a tense time. I'll join you in the rubber room -, but I need painkillers for the fibro and I don't think tequila will do it. You are doing s well. Your mother is very fortunate to have you. and you are doing everything you can for the best outcomes. I wish she would appreciate you more. Hang in there One ste at a time, and abive all - lok after you!!! (((((((((((((hugs)))))))))))) and love
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I told my mother today that I need to rest for about 4 weeks and because her dr.'s have said she can't stay by herself, she will need to think about assisted living. She took it well but I know my mother too well to know that she would just accept it. The phone calls have started, hanging up on me. At this point I am ready for a rubber room, a bottle of tequila and good old rock and roll!!
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Margeaux~I am so happy that you spoke up to your sister. I agree that people we have a relationship with will not always understand what we are feeling unless we speak up, leaving out the anger of feeling put upon but explain how it affects us personally. I admit that I do have a problem with telling family how I really feel in order to keep the peace, but this time I just had to let my sister know that I could not deal with this without support.

I am glad to hear your mom is eating better. I know how the not eating is a big concern with our elderly loved ones. They need the nutrient packed foods to keep up their strength and when they start to loss it, it is so much harder and longer to gain it back. Keep us updated on your mom, the appt. and how you are doing. Love and hugs to you!!
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I spoke to my sister yesterday. She said that finally mom had a full on breakfast.
She had oatmeal, a soft cooked egg, with toast. I was so happy to hear this.
I hope she continues to improve her appetite. Margeaux
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Sharynmarie,

This is very good advice your friend, the psychologist has given you.
No matter the participators or non-participants I feel that every party should partake in at least having the choice of taking your mom to the ALF. I think many times too, maybe certain people don't speak up, because they're used to non-participation by some. Whether it's because as in your case that your sister has her health issues, or she lives 45 mins. away, or, whether as you've said a brother is estranged. Unless they know how important this is,, they're just going to sit back and leave it to you, the party in the family who usually takes action.
By them, you've asserted yourself. Now they know, and the choice is up to them.

I'm looking at things this way w/mom's case. I who don't live w/mom, but would appreciate that my sister be more transparent w/me about developments as to mom's current changes in her health. When she hides things from me, or I find things out later, I feel dissed and left out. Anyway, I don't know if I'm even making any sense. But I just wanted to share something that went on like a light bulb in my head and how I see some similarities about people and some of the issues we are experiencing right now. I was shocked when my sister finally invited me to mom's doctor's appointment. The other day, I became kind of bold, and told her too that I'd appreciate it, if she'd call me is being taken to the ER, and such.
Normally, I'd just keep quiet and not say anything, but I thought it high time to speak up.

O.K., I'm very happy that hopefully it got through to your sister, and I hope she and your brothers participate in supporting you on this day. Much Love & Light!
Margeaux
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Thank you very much for the helpful comments. Tonight I really need the support this site gives me.
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