
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
We arrived at the funeral home around 11:40am. As I was passing by oldest bro-of-next-door talking to older sis (in-charge), I heard bro tell her that he was not going to bring dad over. I was shocked and continued to walk. I quickly went to fave sis and told her what I overheard. I whispered to her that oldest bro tricked us. That he’s not going home to bring father. Sis quickly told her hubby. Then we had to start the rosary. It ended at 1pm. At 1:15pm, we decided to go get him. We all sped on the wet road to the house, rushed in, told father that he’s going and that mom looks beautiful. He was ready to go. My niece who stayed behind told me on the way to the funeral home, that father said that we should have taken him with us.
We siblings were so upset with these events. So many things occurring in which older sis (the one in charge) disregards the majority (all us 7) to listen to oldest-bro or SIL. As for me, I don’t really let it bother me until today with father. Like baby sister (so upset her voice shook in anger) said – this is father’s Wife, he Loves her, he took very good care of mom all these years…and we were not going to take him to her viewing? She couldn’t believe oldest bro was going to do that. She couldn’t understand how he thought to get away with it. I replied – Simple. When people ask, he will just tell them that father did not want to leave the bed…..Her mouth fell open and then she was angrier than before – because it’s plausible and believable. Sigh…. I’m soooo tired. Emotions ran high today.
How are you doing? Well I read you last posts, and it brought to mind when my sister said that the last time, she took mom for a check up to her doctor. My sister was asking the doctor about possibly cutting back on some medication for mom because as I've written previously that she's sleeping way too much. The doctor told my sister, that she (sister) has to stimulate her. But then my sister tells me, "How they heck do you stimulate a person who is always sleeping/"
She also said, that it's easy for the doctor to say these kinds of things and I totally agree with her. All they do is prescribe, diagnose. But they don't live with the person, so they have NO CLUE! Sometimes I really feel that as a caregiver if one hasn't walked in those shoes, most everyone else can give you is ideas, theory and all of that. Each shoes are so individual also!
It's normal to feel whatever you are feeling. Remember, again because I'm feeling sometimes on this thread, that we're kind of straying from the "Dysfunction," theme, if you know what I mean. You're absolutely brilliant, and I know you are doing things from your big heart. We've been communicating now here for a little over a year, so I feel I can really say this to you having read many of your postings and how you've handled many of the issues that you've faced.
I've have seen you grow, and I know you have done a lot of work to get here.
Remember, that this whole situation about dysfunctional families is a work in progress, I know for me it always is, and will be.
Glad to hear that your sister and family will assist you with the move when the time comes. Trust. You're in my thoughts. Much Love & Light! Margeaux
And yes, he has spoken with the PT and no doublt when Mom is at the rehab they will be able to give further advise. So very glad we have Andrea, the PA, she is a godsent!
I can't remember where I read Mom wont be taking a bath, shower only.
Thanks for your concern and tips!
When will you be moving your mom? So glad you are not doing it alone!
Bonnie
You might want to find that issue on line or at the grocery store. Lots of good ideas/tips.
Update on my mother. She has to have a blood transfusion due to her near anemic condition today before the hospital will release her to rehab. Also, some reason they want to do a CAT scan. Again, before she is released.
The decision of the elevator and/or stair climber...Elevator must go on the outside of the house and estimated cost of $75K and will take 6-9 months to get it done with all the approvals, etc. So, the stair climber is "only" $20K and that takes 5 weeks.
The stair climber won.
Now to find out more about bathtub to showers!
Who says YOU have to be the one to take your mom to the new resort? Maybe get a letter from her doctor which tells her he has determined it is unsafe for her to live outside the "resort" or whatever it is? That she cannot live alone.
If she is going to be abusive to you verbally or otherwise, don't take her alone. Maybe the "resort" can come with you or come and get her w/o you?
If she is abusive to the people in the "resort" they will kick her out. She has to learn she cannot treat people badly. Maybe it is just her children who get the wrath? What a shame as she is missing out on opportunities to enjoy her grandchildren.
Let me know what you decide to do. Bonnie
On a brighter note, today we had a down pour of hail that covered rooftops like snow. The parking lot at work was not only flooded but piles of hail were all over. My windshield wipers were completely covered over. This doesn't happen here very often so everyone at work and in the store were out taking pictures, Lol!! Have a good night!
If there were a financial issue, then I can see the kids chipping in for the cost of a place for mom...But it sounds like your mother is $$ okay and can afford this luxury. Don't dump guilt on your your halo. You are a wonderful daughter to a not so wonderful mother. And, forwarning, don't go over there frequently as she will become accustomed to just your company rather than mixing in with the others living at the resort. Once a week is enough. Let's hope she has a nice personality and will make friends.
My point is I don't know anyone (except my neighbor) that has in-laws living with their family. (and my new neighbor is already unhappy with her daughter and SIL).
Most importantly Sharynmarie is for you to feel alright about this move to the resort and stop feeling that you need to justify or explain away your feelings of guilt. Phooey...
My thought is to avoid people, places or things that make me feel bad about myself, guilty of the damned if I do and damned if I don't situations, and/or makes me sick to my stomach.
Remember, you can't make someone love you and you certainly can't make someone happy if they are bound and determined to be miserable.
As Easter is about Redemption let your wrongs be forgiven and those who have wronged you, too.
one more "daughter's like me" who think I am just fine and dandy!
Bonnie
Thanks for explaining about your mom's family. I do understand, when you've described them as being, "remote." At first I just thought originally you meant as they lived far from you, which I know they do. But do you mean they really don't initiate the contact with your mom's side of the family over the years?
Oh, this friend who relieved the wife that day for my husband's sick friend is a wonderful friend also.
I couldn't help but laugh at your description of your mom barricading herself!
So the accusations are in gear? This is interesting, because we have not experienced this kind of behavior with mom. But this also goes to show you how individual each case of Alz/Dementia manifests.
The Assisted Living resort sounds like quite nice. I'm very happy that you have found it, and that she can take her poodle with her. This is a big plus!
Well Sharynmarie, I wish you the very best as to how you will be dealing in telling your mother about the Assisted Living. From many postings I've read, I find that having the programs they offer, to stimulate someone w/Alz/Dementia is very important. I say this, because I see as in our case, the fact that my sister didn't seek this avenue out earlier w/mother has unfortunately impacted her ability to still connect someway. Of course, the situation as you remember was very tense, while the narcissistic aunt was still alive. But needless to say, I many times think that I wish something along those lines would have been done, and mom could have been going to at least an Adult Day Care, instead of just sitting in front of the TV, all the time. The caregivers do a good job, but I'm afraid they do nothing to stimulate her. So I personally do see the benefit in these programs for elders.
O.K., Sharynmarie, you and yours are in my thoughts!
Have a wonderful Easter Day! Much Love & Stay Strong! Margeaux
I'm just saying I find it intersting that so many of the folks on this thread have faced unfair financial accusations.
Reminds me of the divorced person who kept telling me ...I used to have...."
When my MIL was ready for a resort like retirement/asst. living place after her husband died, she choose a two bedroom unit, which cost more but it was what she wanted and what was available. She really enjoyed the place and said she should have moved years before. My husband is the eldest of 6 children and again, he is the only one that lives out of state, like me. His mom chose what furniture she wanted to move and flat out said she wanted a new sofa/couch to fit the new apartment! She had "the boys" move her stuff while she was off having her hair done at the "new" place. I just hope your mom, Sharynmarie, has a good attitude on her move. If the "resort" has assigned table seating, that worked well for my MIL. The tables were set up in 4's and great effort was made to find good table companions. Those who needed mechanical movement vehicles were aided by staff and then the vehicles were put out of sight in a closet as some folks did not the idea of seeing all these folks in wheelchairs. Interesting!
so I hope your Mom gets a good attitude and enjoys her stay with the resort.
Happy Easter! Bonnie
Welcome to the thread. As Sharynmarie has suggested to you, try to seek out an elder attorney. She's right that you do need first and foremost of all to get legal control over your mother. By doing this you and your brother would be able to start to put in place necessary living conditions for her welfare.
This must be very stressful for you and your children. It is great, that you and your brother are working together in this. Please keep us updated.
Much Love & Light! Margeaux
Gosh, this must be really hard on you. Either putting your mom in a "home" or keeping her with you...tough to deal with either way.
In reading what folks on this thread go through taking care of someone...I am in awe of each one that has such a tough situation. At a Senior Living class I took last month, the fact that caregivers die at home more than the needy person due to caregiver burn out and stress. So be kind to yourself.xxoo Bonnie
Bonnie - so sorry about your mom and the hip surgery. I hope it works out well. If your mom is able to do rehab and bounce back to her normal every day life, you're good. I hope she doesn't follow my father's footstep - refuse rehab - and is now bedridden. Unfortunately, he absolutely refuses to get off the bed - at all - not even on the wheelchair, not even to attend his own wife's funeral this coming Wednesday.
Sharyn, sorry, I gave a short laugh when I read that your mom is barracading herself. Sounded just like our mom when she was on the accusation stage. Except she didn't barracade herself. She attacked us and WE barracaded ourselves in our bedroom. =) ... FYI, prescribed meds are trial and error here. You can do a search on the top right of the meds your mom is prescribed and see how other caregiver's charges reacted to it.
I am so glad your husband got to talk to his friend on the phone. That was really a great thing the other friend did for your husband and the man who is ill.
I just got back from my dr for blood work results (mom's and hubbys dr. too). Everthing is good but blood sugar is still a tad high which he said makes me pre-diabetic. I have to get another test in June. I have had a sinus thing going and off since last week, thought it was a sinus infection but dr. told me it is allergies. We talked about mom, he said hubby told him yesterday that mom was incapacitate. He said it will make things easier for me once we get things in place for her. I told him how mom doesn't want to take the antidepressant anymore, saying she is having side effects like she always says with all prescription medicine. I asked if I could get it in liquid form, he said no, but I can crush it up. He also said that it will not hurt mom if I give her the Namenda 6-7 hours apart instead of 12. I still think I will wait on giving that to her simply because it is going to stress me too much getting up in the morning before going to work to give it to her. I am usually up til 1-2am before going to bed and sleep until 9 sometimes 10am. I get home from work btwn 9:30-10pm. I never sleep all the way through the night which adds to me sleeping later in the mornings. Without sounding selfish of my time, I don't want to add more stress to the mix and end up skipping dosages.
Mom is slowly barricading herself into the master bedroom. Ever since hubby took her ladder, she has been targeting him, accusing him of stealing everything she hides. Today she told me he took plant food, laundry soap, and several other things. Most of these things end up being found in the master bedroom. She locked the doors to the other 2 bedrooms the other day. Her house was built in the early 60's so the doorknobs have a small hole for the key to fit into but requires a flat tip to fit in the slot inside the doorknob. I had to remove the doorknobs so we could get in. I told her if she did this again, I would permanently remove the knobs. Of course she claims she didn't do it, my hubby did. Needless to say, my patients with her has been very close to the end. I know she can't help it, but when she started accusing my husband, it brought out my mother bear instinct, Lol!!
I wish everyone a Happy Easter, Happy Rebirth, and Happy Spring!! Hang in there, even if you are only hanging from a thread...this may be the thread to pull you through!! Hugs
I just want to send out a "Hello," your way! I have been thinking about you, and I hope all is well. Miss you, Much Love & LIght! Margeaux
I am really sorry to hear about your mom's broken hip.
From the descriptions about her life, it does sound as if she has a wonderful life.
Even how you have described your family, it's quite a contrast to many others on this thread who come from very dysfunctional ones, and for this I am very happy for you. You will all work together to make sure that your mom remains in good hands, and continues to be taken care of. . You and yours are in my thoughts,
Much Love & Light! Margeaux
You are right. My husband is quite a guy in this area. I know he is grieving.
I also think that with the recent passing of Vanilla, the cat, which w/be two mos., ago on the 4th of April, that the whole subject of passing is right here. I know he misses Vanilla, but of course being a guy doesn't show it as much. I on the other hand, do have my crying moments about it. Well, he did at least talk w/this friend over the phone, when one of the other friends was there relieving the wife for a bit. They hadn't talked even on the phone for quite some time. This I know, some what pacified my husband.
Your poor mom, with the situation about her sister. I'm sure she must have missed this communication once her sister was placed in the nursing home. Well on this point, I hope that your other relative will send her a card every now and then.
So, it appears by the changing of the guard at your deli, that not even a boss can be so smug in their position? Well you've probably heard, that for every action, there's a reaction. Well I hope that your next boss is fair, and that it won't be so taxing on you to get accustomed to. Much Love & Light! Maargeaux