
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
I have found over the years that traditions are made and sometimes left behind, and new ones made, as people and circumstances change. Hope everyone has the holidays they want.
you too - cmag it should not be a marathon. I love your idea -sounds wonderful. I remember one Christmas after I separated from ex and things were going to be different, thinking that the real gift is Jesus, and the others don't matter that much.
austin - from Canada you are very welcome - glad we could help. Hope you have stress free hols too
luv mom - welcome - It may be very expensive to keep your mum in her home as her disease progresses, and I can see that the person with financial POA has to be involved with the decision, to make the best use of the resources. You may want to look into what will be needed. At some point your mum would need some one there 24/7. Does she have the resources for everything? There are people who have done it, so it is possible, but usually the person is cared for in their own home by a spouse or other family member, as far as I can see. It certainly would be good to keep mum in her home as long as you can.
closetotheedge - how are you doing?
Mom has repeatedly expressed her desire to stay in her home. She may have her POAHC implemented, yet is not so confused as to be able to obviously express her desires. Which, hopefully, WILL be considered for her living arrangements. I certainly would hope my wishes were considered when/if this time comes and not be thrown into an institution despite my wishes.
There is no place like HOME!
How about you and your immediate family have that very personal dinner the night before xmas? Or order take outs and bring it into your hotel room and exchange Personal gifts and talk, catch up with each other? Then you and the family will celebrate again as the clan celebration ON xmas day?
Depending onthe sibling who has financial control- does she have the control NOW or when mom is diagnosed as "Unfit"? If sibling has control now, he/she - if spiteful - can refuse to dish out the cash for your mom's maintenance/cost of living. They can say - "since you refuse to put mom in Asst.Living/NH, then YOU are responsible for all of mom's cost." I will only touch the money for mom if you do it MY Way. (I read this from one or two posters here!!)
Your mom, at the moment, has ultimate say on her life.
I wish to be primary caretaker for my Mother who has first to second stages of Alz. Battling with siblings who wish to have her sell home and be placed in either assisted living, or nursing home.
She has repeatedly stated she wishes to stay in her home. I am POAHC while other sibling is in charge of finances.
WHO ultimately has the final word?
cmag -why don't you think about what you would want for a holiday? That does not sound like much fun for your son - or the rest of you
book - thanks for the post - I saved one off facebook about the 12 things happy people do differently and may try to post here later. I have a black/grey animal print wrap my daughter gave me. I like it and one beige/brown tank top, as well as a jump suit. You can find quite a number of variations of animal prints these days - zebra for example. I like the newer ones - more subtle.
closeto the edge - hope you get some help and do some good things for you, We have to look after ourselves any way we can.
austin -not an easy time for you I am sure. Just because a parent passes, it doesn't mean all the feelings go away. How are you doing?
sharyn - hope you find the right print. We all need a pick-me-up
margeaux -how's it going?
everyone -thinking of you
Toonie and I are semi hibernating - too cold out there at 23 degrees.
G and I are travelling east early in December. He has a business meeting and I have friend nearby who I haven't seen in years. We will stay a few days with them, and also make a trip to Niagara Falls, hopefully. I understand it is quite a bit warmer there, even though it is winter. I am looking forward to the break.
Love and hugs to everyone Joan
STRESS....everybody has it.
A young lady confidently walked around the room while leading and explaining stress management to an audience with a raised glass of water. Everyone knew she was going to ask the ultimate question, 'half empty or half full?'...
She fooled them all ..... "How heavy is this glass of water?" she inquired with a smile. Answers called out ranged from 8 oz. to 20 oz.
She replied , "The absolute weight doesn't matter. It depends on how long I hold it. If I hold it for a minute, that's not a problem. If I hold it for an hour, I'll have an ache in my right arm. If I hold it for a day, you'll have to call an ambulance. In each case it's the same weight, but the longer I hold it, the heavier it becomes." She continued, "and that's the way it is with stress.
If we carry our burdens all the time, sooner or later, as the burden becomes increasingly heavy, we won't be able to carry on."
"As with the glass of water, you have to put it down for a while and rest before holding it again. When we're refreshed, we can carry on with the burden - holding stress longer and better each time practiced
So, as early in the evening as you can, put all your burdens down.
Don't carry them through the evening and into the night... Pick them up tomorrow.
1 * Accept the fact that some days you're the pigeon, and some days you're the statue!
2 * Always keep your words soft and sweet, just in case you have to eat them.
3 * Always read stuff that will make you look good if you die in the middle of it.
4 * Drive carefully... It's not only cars that can be recalled by their Maker..
5 * If you can't be kind, at least have the decency to be vague
6 * If you lend someone $20 and never see that person again, it was probably worth it.
7 * It may be that your sole purpose in life is simply to serve as a warning to others.
8 * Never buy a car you can't push.
9 * Never put both feet in your mouth at the same time, because then you won't have a leg to stand on.
10 * Nobody cares if you can't dance well. Just get up and dance.
11 * Since it's the early worm that gets eaten by the bird, sleep late.
12 * The second mouse gets the cheese.
13 * When everything's coming your way, you're in the wrong lane.
14 * Birthdays are good for you. The more you have, the longer you live.
16 * Some mistakes are too much fun to make only once.
17 * We could learn a lot from crayons. Some are sharp, some are pretty and some are dull. Some have weird names and all are different colors, but they all have to live in the same box.
18 * A truly happy person is one who can enjoy the scenery on a detour.
19 * Have an awesome day and know that someone has thought about you today.
AND MOST IMPORTANTLY
20 *Save the earth..... It's the only planet with chocolate!*
Thanks, Cmag for the info. I was feeling bad that maybe I put my foot in my mouth. Did you see the post I put in earlier from work about STRESS? I didn't have time to put it in all the threads that I visit daily. I only put it in YOU and Gross. I wonder if it will work if I copy and paste it from one thread to this? Let me give it a try. I think it's a good one!
You all have heard the saying, It takes a village to raise a child...well, it also takes a village to care for the elderly.
Close to the edge~Welcome to the thread!! We hope to hear more from you. You will get lots of support to help you.
Hi, CloseToTheEdge – I have 7 siblings. For 23 yrs father and I took care of my mom who has Alzheimer. 23 years of not much help. I have friends – 3 – whom the family pitched in to help their Alzheimer parent or stroke-ridden parent. So, I always thought that it was just OUR family that was messed up. Attended my 1st and only therapy and still didn’t believe the therapist when he quoted a very high number on which families do NOT help with the parent. Then I found this site, and over and over, you read of different posters struggling like me and you – in which our siblings do Not Help. Last year father had a stroke so I’m now caring for 2 bedridden parents. Long story short – I have taken YEARS to get where I am in which some of my siblings are now helping just last year and one more this year – 4 out of 7 is now helping.
Can you tell us more background information? Maybe someone here who is going what you are going through will be able to give you some advice….
I know the holidays are occupying many people's minds - lildeb - u forgot - I could do that!
I will be back tomorrow - a few more aches and pains getting in the way - arthritis in my typing hand now that the fibro has settled down - always something.
cmag -maybe time for your own holidays!
margeaux - hope your sis is not too overbearing
book - the black leopard print jeans sound great -I was visualizing something more startling...
looks like I will be travelling to Ontario in a few weeks.with G who has business there I have a friend there I haven't seen in years and we are hoping to get together -would be nice.
more later - Joan