
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Well you've figured it out! How great when one can not take things personally.
This is one of my sister's biggest pitfalls. Yes, I realize she lives there, but she's not w/mother 24/7, there's quite a bit of help. I have given my sister credit too, because I know she's done a lot, and is good at administering for the caregiving, something I feel she's way better at, than I. But she takes too many things personally, instead of looking at things the way you have chosen which is much more emotionally efficient. I'm about someone has to behave like the adult, and it sure isn't going to be mom.
My mom still can feed herself. She moves around much slower than she did about a year and a half ago, but w/assistance of a walker now. Finally she's realized that she can keep her balance by using it consistently. She still dresses, undresses, and can use the bathroom on her own for now. So in many ways she still is mobile w/in certain limits, but pretty good for a 91 yr. old, I must say. Her appetite is pretty good also.
Even the other night while I decided not to go through making her go to bed at say 8:30, or 9:00 because of the noise, I thought, oh well so she goes to sleep later.
But she sleeps a lot during the day. Sure I lost sleep that night, but it was o.k., I don't live there. It's good to remind ourselves not to make everything a federal case, or we stress ourselves out even more unnecessarily.
Hopefully your mom won't go losing more items. One day I was there and she and her sister had these small bean bag style neck cushions so one can lean their head up against the couch. My mom had her's and her sister's around her neck, so she had two. It was quite comical. Anyway, these are things that amuse me,
'her too, so she's participating even at that level.
I'm probably going to meet our newly appointed woman police chief in our city tonight w/my lovely neighbor at a town hall style meeting. After that I'll have some dinner ready for us to eat. She's a beautiful neighbor I have taken under my wing; her daughter ignores her. Have a great evening! Much Love, Margeaux
Take care Margeaux, and get all those #'s you need by bypassing your sister on it.
Hugs to you!!
I will look this up, because really when this happened last Sat., it also occurred to me what if I had a medical emergency w/mom while I'm there alone, and I don't have her medical info., e.g., insurance. Come to think of it, my sister has never really left any of this info., for me.
It appears from my sister's stories about mother's behavior since our aunt died, that she's become at least more vocal in terms of what, and when she wants to eat. She also shows more of her stubborn side. I'm sure this is so since when my aunt was alive, she was so controlling, that mom just gave her power over to her sister. Oh, and I do remember how my aunt was constantly ordering the caregivers around to do for her and mom. My aunt was so bad, that whenever mom fell asleep during the day on the couch she would wake mom up and tell her that she shouldn't be sleeping so much, if you can imagine.
Well this episode my sister had about the ice cream, while I do understand anyone trying to get an elder to eat food, before they would eat desert. I think this was really in part that my sister still has a lot of resentment towards mom, not only on account of some of mom's past narcissism, but also mom's sister's. I admit, I have some of this also towards mother. But I have decided that now I need to let some of this go. Mom at this point isn't going to understand any kind of other behavior w/ALZ. She's like a child now. It is what it is. Thanks to people like my dad and grandmother who taught us that we should care, I have chosen to look at it this way. Move forward, instead of getting too stuck in the past.
Thank you, and I agree that if one can make it any easier for an elder to cooperate, that makes way more sense to me, instead of creating combative situations, for what? This serves no purpose. While our aunt was alive that's all that ever happened over there at mom's house.
It must have been difficult for you to eat meat with braces.
Yes, we only take it one day at a time as you've decided to do with the attorney.
Good approach, Sharynmarie. Much Love, and Hugs! Margeaux
Joan~The attny. is going by the book and I respect him for that, we just didn't care for the way he treated us, his attitude was more like we were a fly flitting around his head, Lol!! I would not want to be in my sis's shoes when she takes over the finances!! I am glad Gary's son has the best medical team helping him. I know nothing on how pain meds work or how they affect the internal organs, other than vicodin causing liver damage. I know you are hurting right along side of Gary. Hugs to you!!!
It was a freak accident, Sharyn. He has the best of medical care (his brother is a physician) but I wonder if there isn't another way to administer pain meds than taking pills that ruin your gut. It seems to me that injections would be preferable - or a pump, but what do I know? His options are getting more limited. I know the lawyer is just doing things by the book, but it is very frustrating when your mum needs help and you can't get it for her. Many children look after their parents finances with integrity.
angel -what sharyn has said makes sense to me. It sounds like there needs to be some intervention. Is there reliable documentation of the abuse? I know it is more difficult when she denies it. Has she had an evaluation for her mental state? I would think that is important, and may help you to get the right things done, even if mum defends them, if she is suffering from dementia for example you may be able to proceed on her behalf. APS should be able to advise you. Good luck and let us know how you make out.
Thanks for the prayers everyone. I haven't heard any more, but will update when I do.
Every year Wells Fargo sends out new insurance packets for the retired employees to choose an insurance for the next year. I am hoping that the insurance she currently has is still an option. Mom's co-worker, N, said she would talk with mom about the choices since mom still thinks my sis and I are 6 years old and can't help her with it, Lol!! I don't like to impose on N in this way because she has her hands full babysitting a ggson with autism. My mom has declined a lot in the last 4 months, and I suspect she will be incompetent within 6 months. At that time, we will probably have to call APS, and if they decide she can't live alone, even with home healthcare, we will have no choice but to place her. This not want mom wants in reality, but because of how things are set up with her attorney, it is most likely what will happen. Maybe I am dreaming, but I believe we have a great relationship with our daughter and will be able to trust her to act in our best interest with our finances. My mom's attorney also made it clear that when the time comes that mom is incompetent and my sis is handling her finances, he will be watching very closely to make sure there is no mismanagement of her money.
Yes, Calaveras Big Trees is in the Sierra's. It is very beautiful there. The dogwoods were so pretty with yellow, pink, crimson leaf colors. A ranger told us that they are not as vivid this year as Oct. has been unseasonably warm this year. We went at a good time cuz its been raining in this part of Cali since Sunday evening with snow in the mountains.
Well I have said enough about the situation with my mom, and we can only take it day by day and learn as we go along. I have to keep my emotions under control and out of the situation. Have a great week, wishing you well, and sending hugs!!
How are you? Please first and foremost of all do take care of yourself.
You have obviously gone through more than your share.
Is there some way you can start to look for some kind of help, not from your family? A 24/7 situation with your mom is quite a lot for you to handle, even if you didn't have the health challenges you are currently facing yourself. Maybe your could look into organizations such as Department of Social Services in your area, for starters. You have come to the right place to share, and come back anytime! Much Love & Light!
Margeaux
I find that comment about your mom being able to live her life her way, interesting and even self serving on the attorney's behalf. Sure, this is after all your MOM'S attorney. But I completely disagree on the level that, well now I'm probably going to sound philosophical. As we all come to learn, especially when it's about caring for elders.....THEY NEED OTHERS HELP! The sooner the one needing the help can sign onto this thought, the better hopefully their life w/be also. There's got to be more of a cooperative mentality when it comes to this, as I've discovered even in my situation w/my sister. Yes, mom even though I've described her as not being outwardly combative, nor difficult right now, before the ALZ, she had already put many things in order as far as her property, the selection of POA's and all of that. We too had to suffer as a result of this, and her sister's awful behavior while she was alive.
So I have felt this playing out, especially now that she can no longer be in charge of herself. This factor definitely hasn't made it smooth sailing many times. So I understand the frustration you must have felt that day talking to her attorney.
This is the frustration I experience w/my sister...I'm trying to help at whatever level, but for the controls she in her mind must have, oh well possibly I could be of more willing help over there. But I know my sister has inherited the divide and conquer attitude also.
Well you will see, I feel it won't be long before you'll be writing in a different vein, because whether the elders realize it or not, things do change. I hope the selection process about the insurance goes well.
Is this the Calaveras out by Yosemite? If it is, this is beautiful country, I've been there many years ago. Much Love, Margeaux
In many families this responsibility does fall upon the women.
I don't want to generalize either because if you read other threads on this site,
there are men who come here and tell of their involvement as caregivers are concerned. In our family we are two daughters and two sons. The hands on caregiving has definitely fallen way more on the women than our brothers.
My sister lives w/our mom who has ALZ. I go there to relieve her. As Emjo has suggested to you, is there any help available to you other than your brothers so that you can have a break? Many factors can make this difficult, and if you're saying your family was never that close, well it's hard to imagine that the guys are going to step up to the plate at this point, but usually this unfortunately is the way it plays out. In our family, our brothers were somewhat looked up to, just because of their gender, so my sister and I learned early on, our pecking order in the family. We too are older than my brothers so we had to take care of them.
Anyway, we are with you on this, as been there done that, and please come back here to share your story, because it does help. Much Love & Light!
Margeaux
My sister is too much at times. On the one hand she's very good at administration of the caregiving, since she's been in charge of mom for last almost 4 yrs. But she enjoys too much drama, and is a complete control freak, so this makes it hard when I go there to relieve her. She doesn't really know the meaning of working together as that would take away the controlling factor she so enjoys. Just curious, what's your "dilly," sister like?
Good, I'm glad you w/make the chutney. I've had this recipe in my collection,
but still have not made it. Well Thanksgiving is around the corner, so maybe it's time for chutney! Enjoy, Bon Appetite! Margeaux
I'm very sorry to hear about Gary's son.
He will definitely be in my thoughts! Much Love & Light to you & yours! Margeaux
MARGEAUX: I know about sister's making you have bad judgements. Mine is a really dilly. And about the chutney recipe you gave Emjo. I really think it sounds delicious. Have never had chutney. gonna try it and let you know. I am trying to fall asleep. Gettin harder and harder. I bet you guys may be snoozing now. hope so. God bless you all and everyone. Good night.
What I had written some posts ago about the sleeping arrangement, is totally off the charts! Well my sister did end up letting that caregiver go, (the one who wouldn't sleep w/mother). My sister was also saying that since mom is sleeping a lot during the day, which she does on the couch in from of the tv, this caregiver was also not wanting to cooperate to do like light housekeeping and was basically just sitting there next to mother watching tv.
Well, this niece is a case! She's there as I said watching her sister's 8 mo. old baby at mom's house. So this weekend my sister mentioned about her what a wonderful job she's doing caring for her nephew. This girl apparently has taken some time off from going to college to do this. My sister also said, that my niece had said, "He's my baby." When my sister said this, I said, "Oh, Oh," as in she's also going overboard, and I wouldn't want my other niece (her sister) to get wind of this, because you know how this could cause jealousies. I think this kind of attachment by the niece to her nephew is rather unhealthy. But you see, she has my sister to thank for this attitude, they're possessive types.
O.K., Emjo please let me know if and when you make the chutney.
I hope things are calm for you. Thinking of you, Much Love! Margeaux
Oh you must have read my mind, I was thinking of the chutney just today.
Here it is: 4 apples of choice, peeled, cored & chopped in qtrs.; 1 1/2 cup cider vinegar; 1 1/2 cup light brown sugar; 1 large onion chopped; 2 tsp. fine chopped ginger; 1/2 tsp. red chili pepper flakes; 2 cloves; 2 bay leaves; 2 tb. spns. lemon juice; 1 cup raisins. Simmer on low, all together for about an hour. Wow, this sounds delicious, I think I'll have to get some apples this week. Bon appetite! Margeaux
First of all, on the face of my sister's tactic to try and get mom to eat food, instead of ice cream, well, I thought this was pretty dumb on her part. My sister seemed offended by mom's reply, and expressed this and the lack of appreciation she feels at times coming from mom. But somehow, I thought the way my sister did this, was rather on the condescending side. To be quite honest, my mom in her ALZ, is not really combative, nor does she resort to these kinds of tactics as a norm. I think as I've written in the past, that my sister is still looking for that mother, we didn't really have the emotional. But she may as well give up this idea, at this point.
So I offered to go there Sat.
Well, mom was having an awake night compared to the last time I was there in which she slept the whole time. We watched tv. Then about 8:30 p.m, the neighbors were having a very loud party. They must have had a dj, because we heard boom, boom and felt the vibrations from their music for about the next 4-5 hrs. It was so awful. So since we weren't going to get any sleep, I allowed mom to stay up until 11:45. Finally I told her that we should go to bed. So I escorted her to the bed room. I then returned to the kitchen and called 411 for a phone number for the police. I had enough of the boom noise, and I guess no other neighbor had called to complain. Anyway the 411 was of no help, gave me a number which has been disconnected. I then began to search the house for some local phone books to see if I could find a number. But I couldn't find these, either. Anyway, I then headed for mom's bedroom, and tried to fall asleep.
Then, mom woke up several times throughout the night, to use the bathroom.
So hardly any sleep, but finally that noise stopped at neighbor's.
Anyway, next day my sister returned in the a.m. So I told her of my previous night. When I asked her if she had any emergency phone numbers, e.g. police,
fire dept., etc., her reply was, "Oh, I just have instructed the caregivers to call 911 in case of any emergency." But as far as I know I thought you're only supposed to call that number if it's for parameds, or fire dept. in an emergency, not for a disturbance of the peace. Anyway, then I asked her where she kept phone books. She tells me, "Oh, there in the garage." Well my sister has this garage so packed full w/her and her daughter's stuff, I wouldn't be able to find these if I tried. But my point here is, I became rather annoyed, that I go to relieve her for time off, and instead of being helpful, when I express I needed something while I was there, she's really no help. She really blew me off in my opinion, and actually I detected some kind of amusement on her part about what I'd experienced the night before. This didn't feel good at all, if anyone asks me!!
Then I told her about mom getting up 3x's during the night to pee. Apparently she had the urge, but when she'd go, it wasn't very productive. So now my sister informs me that mom had been having a UTI for which she'd been on antibiotics.
This too, would be nice to know when I arrive there. Anyway, I'm feeling that my sister is doing her passive aggressive behavior as usual.
I always tell myself, ok, go over there w/o judgments, etc. But gee, by the time I left, I had judgments, and they weren't too good. Margeaux
riz you are right - the brighter the more difficult they are nice to see you joining us
marg -it snowed a heap yesterday and is here to stay now I think. Still waiting for your chutney recipe. Educated people can be kind and compassionate, I know some, but education does not make you that way, for sure. Sharing a bed - NO WAY! Weird idea! And you niece is quite a case, isn't she? Hope your sinuses are better.
sharyn - wow nice food from your coworkers! I understand the grievng seeing your mum decline. Good decision about your brother. Not much you can do about the legal things is there? Frustrating! Your daughter has a great sense of humor! Hope the insurance gets straightened out.
claudia - self preservation has to come into play. Good for you -you can't change them, only you. It is a work in progress,
cmag -hope your wife is healing from her knee problems, and you are doing reasonably well.
book -glad you have some more support now. You are such a trooper.
austin - how is it going? Did your sibs step up to hlep your mum?
alex (((((((hugs))))) repeat -it is not your fault - to heck with your aunt and uncle. I found I have to develop a thick skin to what some others think about my personal life, and relationships. You, your husband and family need to come before your mum. Hope you can take some steps to improve your situation, take care of you.
sallie Welcome. What a load and what a mess. You have to look after you. I have given up with my sis who won't lift a finger to help, but for years has had a free holiday staying with mother. I don't expect anything but trouble from her. Can your mum go into respite while you get the treatments you need? I see other people here who make thse arrangements. Let us know what you figure out, and come back and vent.
mertle -welcome to you too . Yes, many seem to have sibs who are happy to take, but will give very little, and are not supportive at all. You are in good company. Do look after your own health. Caregivers tend to put themselves kast , and then suffer consequences. Hope to see you post again.
sallie and mertle -sharyn has made some good suggestions.
Have a good day everyone. Still snowing lightly here and more forecast for the rest of the week. ;( I saw a deer across from the house this morning, took pics and put them up on facebook - emjo2002. The pics are public if anyone wants to see them. Love, hugs and prayers Joan
I hope you are well, we are finally getting some rain here. We went to Calaveras Big Trees yesterday. It was beautiful with the dogwoods changing colors, we had a nice walk and I am sore today, LOL! I gotta go over to mom's to look for some papers she hid away. Waiting for insurance packet to arrive by mail to set up her insurance for next year...N...the lady who worked with my mom is going to come over when the packet comes in to help my mom decide what insurance she will choose...mom doesn't trust me or sis to help her with this (the insurance is for retired employees). Have a great week and I'll be thing about all you!!
Mertle, I found that the people here Knows what we are going through. They know that we are NOT exaggerating. And the advice they give are great. Not all the time but at least they try! I wanted to post more but it's midnight here and my brain's sluggish and difficult to think. I'm glad you posted. Take care!!
then P.T.for a week. She came home a few days ago. The only sis who helps when she wants visited once. I was there every day. She
now on her 4th vacation this year. Sis works, but doesn't have to. She told me the only
How are you doing? Wow, I haven't been on here all week long.
Well what you've described in terms of the meeting w/the attorney, makes things tough doesn't it. Honestly, for the life of me, I'll never understand how it is these kinds of legal set ups in terms of the law have been created. It's just so convoluted also, in terms of how and when seniors finally give their power over to capable daughters like yourselves. It's almost like some kind of cruel joke, just making people wait it out, kind of like waiting for the shoe to fall before something that makes sense-protecting a loved one. This aspect about the law, and attorneys really gets on my nerves.
I really feel bad that you had to go through this, and it worked on your emotions.
Well, sometimes whether we like it or not, this is how this kind of stuff manifests.
Believe me, I used to really feel for my sister last year while having to deal w/our aunt's craziness in terms of the legal plan she elected out to the end of her life.
Our narcissistic aunt was playing volley ball w/this POA, switch up, on her whim whenever it seemed to suit her.
Your mom doesn't realize it how good she has it, w/you, and at whatever level you sister is also involved. O.K., you're in my thoughts big time, and keep the faith, as they say, "This too shall pass." Much Love & Light! Margeaux