
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
With all the emotional drain on me, I slept 12 hours straight, didn't wake up till noon today. I am feeling more logical about the situation. My sis and I talked about the situation for quite a long time today. I told her that since she feels the lady who is helping mother with her checking account seems to be honest, I think it is best to let it ride as it is. The woman told me sister she has other people she is helping and that she has a limit of what she will do for them. She was glad my sister called her because she didn't want to ask my mother for our phone numbers without raising red flags. She also told sis she knows we are not trying to steal mother's money and are not neglecting her in anyway. She will contact my sister if she feels things have gone beyond what she is willing to do or if she feels my mother has declined further. I asked my sis to call her to get her address so we can send her occasionally a bouquet of flowers or something since she cannot accept any payment as an AARP volunteer. I am feeling better about all it with the prayers and good wishes from everyone here on AC. This wonderful lady told my sis that she is fortunate because her husband (deceased) left her well cared for and she volunteers her time to help elderly people and then takes a cruise once a year.
I know that the guidelines for what the law considers incompetency is much more beyond where my mother is currently at and that what my sis and I are trying to accomplish is considered acting too soon. However , it is beyond my understanding of allowing a person continue on when they clearly need help. Her insurance provider told us we have to wait until something happens, she hurts herself from a fall or something else. I find it hard to believe that while we are trying to prolong her life by being proactive, we hit legal road blocks that say we are violating her rights, while these laws can actually be accelerating her demise. It is with great sadness that I write these words, but I can only hope the Alzheimer's progresses to the point of where my mother will no longer accuse us of stealing from her so we can follow what she and my daddy wanted with their living trust.
As far as the DMV written test goes, my mother will probably have to go to a DMV office out of town. Apparently only certain cities have the authority to have re-examinations done. This includes the driving test as well. Can you imagine someone who has Alzheimer's having to go to another city for the written test and a driving test??? It is unnecessary stress for an Alzheimer's patient to have to go through. I am not saying she should be allowed to drive, but having her go to a city with one way streets and she knows that Stockton, Modesto and Sacramento all have one way streets, my heart goes out to her with this stress she must be carrying, but because of the PD she will never verbalize that to us so we could help her through it.
You all have been wonderful with the support and I can only say how blessed I am to have found this site and everyone t provide support, prayer, positive thoughts and just your words have helped me so much. I thank you all from the bottom of my heart and hoping everyone has a wonderful weekend and week ahead♥♥♥!!!
SunnyD: I so appreciate your frustration with your brother and his antics. Your sister too. Nevertheless, it seems a shame that the family closest to your parents; those that truly understand the real issues are washing their hands of the parents. Maybe you could tell your parents that you will provide accommodations for their sibs that come once a year. Maybe you are doing the right thing. I'm not sure, but eventually your parents will suffer an injury that will get the ball moving. I'm sorry you are going through this. Your sibs sound so unreasonable. My heart goes out to you.
Book: I thought your post about states in the US trying to put the cost of parents medical care on the back of their children could not be true. I read up on it and yowser, another train heading our way. This does not apply to parents on medicaid. Glad my dad has managed that hurdle.
Hey everyone, try to stay positive. Love you all, Cattails
needs that from someone else to meet some of the unmet needs) but as therapists we had to "re-teach" / "reparent" so the person w PD could learn new
adaptive ways to get needs met n to interact w others in appropriate ways. I have been doing this w mom since she got here! Starting to see some improvement!
Also DH gets the triangulation concept n has firm boundaries. I warned him some
of the tactics he'd likely see, so he's super united w me when stuff comes up-really a blessing! My sis jokes she's glad we got to be parents together, but sad it's to mom. When we were still dating n had a little bump in the road, she tried to get my girlfriend to arrange a date for them- not to help fix our spat either! My friend was shocked to death as my mom comes off as so sweet, innocent n angelic to others. I'm thankful God got me to the Point where I can handle her. Frankly I WAS terrified at the thought that it could ruin my life, n then I'd have to place her n be so mad I wouldn't be able to deal w her at all. Bottom line- I totally get why it can't be done in many cases...neither of my sibs could handle it. I probably couldn't if not for the extra training n learning curve my career entailed! I try to never make a big decision when I'm upset, if I can remove myself for a while, I find things work out better for me. I also try to use humor to deflect some of the crazy stuff! My mom wasn't getting her way one day, n she announced she was leaving, to go back to her prior home (3000 mi away). I said oh, ok, I think I have a bandanna n pole around here we can pack up for you, huc Finn. Will that do? She couldn't help but laugh, even tho just a min prior she was so mad, I thought her head might blow off. I think she's figured out I'm not gonna play her game...I thank God for the strength to stand firm and not let her push my buttons!
Sharyn, I am confident that you will figure out what is best for you and your family, too. I guess I am just trying to say, in both posts, that I understand, and that I support you whatever you decide. ((((((((((((((((hugs)))))))))))))
You are in a very difficult situation. Trying to save someone from themselves is well nigh impossible. At least so far your mother is not wasting money, or being scammed by anyone, as has happen to some.. It sounds like confusion is the main issue along with the accusations. I think to other posts from people whose parents refuse help for physical issues, and sometimes the only recourse is to wait until something happens that shows them they must make some changes. I know that is scary, but there do not seem to be a lot of alternatives. I totally understand and agree that you should not go into a lot of expense over this. Would any agency on aging, or social services have and ideas how to handle the situation? I am sorry that her doc is straddling the fence re her driving. Certainly she should not be driving.
What a mess. Too many cracks in the system for her to fall through.
As your sister is POA, you are would not be leaving your mum high and dry. It seems to me you have researched the options and thought them through well. If contacting APS would get a guradian appointed. that would accomplish some of your goals.
Hope your talk with your sister goes well, and you come up with some solutions.
(((((((((((((((((((((((hugs))))))))))))))))))
My dad, since I can remember, has always told people (not to me) that I was not doing enough helping him with mom. Out of 8 kids, I was the one who STAYED home, did not marry or have kids...I was the only one who was physically helping him...Yet, Everyone believed him! I got lectured on how "you should do more to help your father."
All I'm saying is, with regards to your mom's accusations, there will always be people who will believe her. And one day, like my sils, you might reach your boiling point where you can no longer shrug it off.
By the way, before, my brother's name was with my dad/mom's bank account. Then my dad started accusing him of stealing money from his bank. So, I had to withdraw my brother's name (who was soooo relieved that it was finally done!) and had to put my name in. So far, my dad hasn't accused me of stealing his money...only now it's the bank stealing his money and that's why his paycheck is gone....
But, you also can't just leave your mom "as is." If something happens to her, because your such a decent person, you will feel guilty and start blaming yourself that if only you hung on longer, or if only I got her a guardianship, etc..So like Cat recommended - sleep on it. And if you really don't want DPOA, then find someone to replace you - guardianship.
Here accusations of stealing her money, etc. would get old really fast. I would have a very hard time dealing with a parent who is always insisting that I am stealing from them. Why continue to do this? Why continue to subject yourself to trying to help someone who just spits in your face? The fact that she says these things to you only reinforces in my mind that she is not mentally well.
I think it is very wise of you to consider eliminating yourself from being responsible for her care and financial management. I would strongly suggest, however, that you also take steps with her doctor and the attorney to set up a Guardian to look after her affairs.
Again, sleep on it and know that all of us are on your side and praying for you. You are a good person Sharyn.
Love and Hugs, Cattails
I most likely will only be able to read AC during the weekdays. When I work alone while the bosses are gone, I usually come home brain exhausted. I'm so busy thinking, thinking, thinking on the job that I come home soooo tired - not physically but mentally.
Then, the physical exhaustion will kick in the minute I walk in the house.
Don't worry! I've been doing this for years. Except now instead of 1 person, it's 2. Even when dad was still walking, he would wait for me to come home after work to fix dinner. Sigh...nothing ever changes..."Woman's job" ! My foot!! Later!
Thanks, everybody!!
whether they accept it or not is up to them but at least they might stop trying to be the 'know it all' person. ; )
austin said "I am sure that a narcissistic person does not know what havoc they create"
we talked about denial as they can see it if others treat them that way, but can turn around and do the same thing to others, and apparently don't recognize it in themselves.
The following are quotes from the website of a psychologist, Robert M. Fraum, Ph.D., who specializes in treating personality disorders.
"People suffering from personality disorders tend to misread other people, situations and even themselves. They may be especially reactive, volatile or impulsive. They often respond in disproportionate or socially inappropriate ways."
"All personality disorders are rooted in a sense of chronic insecurity, and emotional pain that confuses, drains, and demoralizes..."
"Denial is also a key psychological feature (and basic problem) in personality disorders."
He also believes that it is rooted in childhood trauma, On the other hand, the Mayo clinic claims "Personality disorders are thought to be caused by a combination of (these) genetic and environmental influences. I have to agree with the latter, as I see it in my mother's side of the family - several cousins show the symptoms, and the rest of the family are so nice and normal. None of my father's family showed it.
I certainly have seen the denial, the misreading of others, the insecurity and so on. In mother's case, being borderline persosnality disorder, she has much anger as well.
I have said it before, I am so thankful that I don't have that condition. How much they could change their behaviour, or not is a good question. Apparently treatment for personality disorders is often not very successful, and the diagnosis is often missed. I am amazed considering the number of times my mother was in hospital in her life that she was only diagnosed a few years ago. It is not that her dysfunctional behaviours didn"t show. It is an area that needs improvement, which is not much help to those of us who deal with it daily. (((((((hugs))))))
burned mine thinks I am holding a grudge against her too - i am not but, I just do not want contact with her as trouble always follows
margeaux, I think your sis is a narcissist too - not healthy for sure, and very controlling. My sis wants a relationship because it serves her purpose. She used to vacation at mother's for years. Then as mother got older, and couldn't do as much, she wanted to come to me for her holidays. Even though I was working full tine she expected me to make all her meals, hogged the TV remote all the time, wore a flimsy negligee when I had grown sons on the house (I gave her one of mine and told her to wear it), and so on. There is a history of some pretty dysfunctional behaviour n her part, yet she always manages to convinvce mother that I was the "bad seed". You all know the type of thing. I like your phrase "a relationship of service". Exactly. It doesn't feel strange, actually. I know she wants to keep me in her loop for her own reasons. But I am not playing those games any more. When mother goe, I expect she will try harder. Do keep your boundaries in place and go only with Dee. Really it is not your sister's business, though she will try to make it that.
Hi sharyn - love your pictur, pretty woman! You have such a nice smile! Plant Science must have been interesting, and something you can use on life. Here is warms into the 80s lol. I hope you get the infromation you need about getting your mother evaluated. If she ever goes into hospital, there may ber an opportunity for it. Mother went in and her senior nanny told the hospital staff about mother's behaviour and that she couldn't take it any more and was quitting but (bless her)wukld wait till we had a placement of sone kind for mother. I think that spurred them into action, and I also think that when a non family member describes the behaviours, the situation may be taken more seriously than from a family member does, as it may be brushed off as family squabbles. Praying for you to find a way through this for a proper eval for your mum.
caregiver1963 - Good for you! You set a boundary. I know well the scenario where upsetting anyone else is more important than how it impacts me. Glad you can let go of the guilt somewhat. It is awful when we feel guilty about looking after ourselves. Glad you are taking a break from the sis family drama/ I think it is the best way to deal with it. If they don't get a rise out of you they will find someone else to pester.The support here has helped me a lot too.
The more I read other people's stories, they more I see the truth in my own.
rose - glad your dad is helping with the oxygen tanks - like you say, it is a start, but you are right, he will have to take on more.Gary's dad at 89 does all the housework, and they cook together. Nothing wrong with his mum's mind but she has a shattered shoulder so her right arm is not much use. Dad is not strong but he keeps going. They have put their house up for sale and will move into a ALF when it is sold. Wonderful to see a couple who manage themselves so well. Of course they both are still sharp which makes all the difference.Thanks for saying I manage well - it is still a work in prgress. I hear you about the seeds - we must nurture healthy life for ourselves and others, and limit the dysfunction as much as possible. I have had many more years at this than most of you, and can really identify with the frustrations people experience. You teach!!! I taught for year. Loved it! It was a great distraction for me too.
lildeb - you are right - speaking up appropriately is so important. Learning to be assertive with dy fun fam takes a while. but is soooo worth it!
bw -hope you find a few moments for yourself these next few weeks. I don't know how you do it. You can copy and paste - just drag your cursor to select the lines you want to copy, then right click in the blue lines to get the drop down menu, and left click on "copy", then move to the page you want to paste, and right click in the comment box for the menu again and left click on paste from the drop down menu. Voila - you have copied and pasted! Clear as mud, I know.
karithesavage and others, - how are you doing/
Hope everyone has a good day, maintains good boundaries amd practices assertion! ((((((((((((((((((((((hugs)))))))))))))))))))))
I'm going to try if I can copy and paste this. Too tired to go to the correct thread & retype. later....
First of all, I found this very easily readable/understandable site about self-harm. I actually liked it! I hope you take the time to just look on it:
Second, Sharynmarie mentioned one of the best online sites for self-harm:
Peach, when you're ready to move on from self-harming,
I'm sorry...I'm really tired and it's only 9pm. I'm going to stop now cuz I need to do tend to parents which will take 2 hours. I can feel myself swaying while typing. Later....