
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Sharynmarie, I do think that gender norms are a big part of the issue in the way that the men in my family are handling this situation. For instance when's was at my parents house my father wastrying to help her by becoming the expert on the oxygen tanks. I let him enter the caretaking through that; at least its a start. And he was outside the house working on their backyard. He was trying to find objective or technical things and leaving the caretaking to me out of a sense that it is women's work. Now he is going to have to change because my mother just can't do all the cooking and cleaning anymore.
Karlthesavage, yep, if someone can't be a help then facing what you are facing, the boot and boundaries have to be the survival option.
Joan, I think you do well to actively practice detachment to be able to survive the digs and the way that you are being treated. The discussion of "viable seeds" is symbolic. Where can growth and change be nurtured and where is the dysfunction so rooted as to stifle and transformation.
Burned,I hope that your job comes through to get you time out of the house. This week my teaching job started up again; today I felt so happy not to think of the situation with my mother for several hours.
Lildeb, I know, when he started this mini lecture I felt super annoyed. I did not want to be rude or disrespectful but he was just being ridiculous. At that moment of holding my tongue for fear of lashing out, the dysfunction was so clear but making the circumscribed observation was the best I could do to stay true to myself in the crazy situation. Caregiver1963,, I hear what you are saying about finding the strength to deal with the family dysfunction, to speak up or defend yourself is challenging in the moment.
Burned, haven't anything about home-care cut-out but they have done stupid stuff before like cutting education cost. As for siblings, they can be a pain in the ass n have no clue what really goes on behind close doors. dumb asses! Tell her get her butt here an see if she can do better. Sibs, ah!
Yes exercise that emotional muscle the more you do it the easier it becomes!! Thank you Margeaux~it is difficult to watch someone decline mentally and you can't help them due to the Law or their refusal to let you help.
Joan~I worked in seed production/saving with tomatoes for many years, anything with plants I love, also have A.A. in plant science ( doesn't make me an expert but I have a little knowledge about it).
karlthesavage~Thank you for sharing the info on the on line course. The more we understand, the better we can help!!
Enjoy the week, tomorrow will cool into the 80's YAY!!! Delta breezes are a wonderful thing here in the summer.
Yes my dad was quite a gardener.
I hope to plant the seeds someday, but right now the space I live in is too small.
I think my sister is a narcissist also! I haven't been at all in touch with her since over a week ago. But you see w/her, last year when she really needed a soundboard, (me) to listen to all of the crazy things our aunt was doing before she passed, she was very in touch w/me. I foolishly at times thought that maybe this was going to be the event that brought us somewhat together. But the aunt has now been deceased 7 mos. In that 7 mos., the need for contact like last year went from a 10 to about a 3. So you see, it is not what i would call a relationship of authenticity, only of service.
This must feel strange to you, that your sister is trying to initiate a relationship w/you, also.
So this Thursday is the family history get together. I still have yet to inform my sister that Dee and I w/be going on our own. I'm looking forward to that meeting.
I'm going to exercise the emotional muscle this week, big time!
Well Emjo, I trust you're going to do the same.
Much Love, Margeaux
I'm sorry about you having a bad day. Yes, it is difficult to see a loved one becoming more confused on account of the ALZ.
I remember before mom was actually diagnosed, or at least that we her children knew about the diagnosis on one visit, I witnessed very confused behavior by mom.
Since she and my aunt, at that time were living together, (before my sister moved in), I'd noticed that their phone message system seemed to have been disconnected. So I tried to reconnect it, as I felt it was important this be working.
I tried to instruct my mom, (poor thing) about how to listen to the messages, and noticed her becoming very frustrated. Meanwhile, she was doing everything in her power to act as if she knew what she was doing. I didn't know at that time, the narcissist-sister of hers & my mom had some kind of a secret conspiracy going on between the two of them. Mom had already been diagnosed by the doc for ALZ, & was on meds. I however didn't discover THIS fact, until about 7 mos. later! So it was a secret between she and her sister.
So for some time while I was adapting to the fact about the ALZ, I felt so bad, even guilty about that day I took my mother through all of this.
Anyway, I remember that you were having a hard time having her consent to seeing, was it the neurologist? Has that happened yet? It might help you, in the sense that some of her affairs, especially finances would have to be taken care of by someone who can handle them.
I definitely know from mother's situation, the denial here definitely was at work.
I just didn't like the way it happened, that the narcissist aunt kept something like that a secret. Mom was on meds, and was at the time was still driving around a bit. You see, her sister could not drive anymore, so how do you like that.
My aunt was willing to endanger both of them by keeping their secret, and they thought it was going to ensure their independence. All I can say is, they had some biig guardian angels looking out after them.
Well I hope you can resolve some of this, so that at least you can be able to relate to your situation in a different and productive way for yourself. You are in my thoughts, Sharynmarie. Love and plenty of Light! Margeaux
Warm today -nearly 90., and lots of sun :)
Once the seedlings have reached between six inches to a foot tall, they can be transplanted outdoors.
Hope this helps. Enjoy the weekend!!
I like the term "reeling you in" That is how I feel. They set you up and then the digs start. I have to stay detached, and also distant in every way. Sounds to me like your sister is narcissistic it is all about her. Infection is clearing -the trick is to catch it sooner. Learning about narcissism and BPD has helped me a lot.
rose - how are you doing -I understand your anger at siblings for not helping. I have gone past that, and now am glad my sister is not involved as it only means trouble and a chance for her to "get at" me.
sharyn - hope your are having a stress freer weekend - re sis - boundaries, boundaries, boundaries!
Hi karithesavage - interesting name - I agree entirely - tell anyone who interfers to go home - you need help not interference. I tried Pam Hiti's site but it didn't work, but got the video on another site. It helps so much to have professionals support our gut instincts. come back and vent any time you like
bw - hope you reel them in and get help. I don't knnow how you do what you do. Look after yourself!
Kimbee -where are you????
austin - take care
cmag -thanks again for starting this thread - lots of us come from seriously dysfunctional families. Hope you are doing well.
everyone - let us know how you are and enjoy the remaining days of summer - here fall is coming all too soon ((((((((((((hugs))))))))))))
bw- thank you for that suggestion When I told Gordie's dad he brightened up. Both he and gary can carve so we would keep part of the tree if it dies. It looks fine now - time will tell
hi rose - glad you joined us - you have a lot on your plate with both parents and all the issues. Therapy helps -you are not alone. Antidepressants can help too. Glad you reralize about taking care of you - it is so important when faced with all the emotions and responsibilites you are
sharyn -funny about Marcia, Marcia, Marcia and the Brady Bunch - finallly I am feeling better - I thik thew tree will survive. Time will tell.I don't know how to grow a pine tree from seeds but might be worth trying when we moveSorry your mum is overwhelmed - I am waiting for that to happen to mother too - so far she manages everything but may not one day.Hope you had a good day
thanks Kim -I will ask G about grafting.had't thought of that - I know his grandfather and possibly father grafted some apple trees
lildeb - hope you are havig a decent weekend - respite is certainly needed for at home caregivers
hi austin- helpful as always
burned sorry your sil was negative - no one needs that
going to post this now so i don't lose it and finish later(((((hugs to all))))))
I'm really sorry about what the city did to Gordie's tree.
I can also understand your attachment to it, since he brought it home at such a young age.
My dad used to be a very good hobbyist gardener. His garden was beautifull
His specialty was grafting trees. Well he'd planted this lemon tree, which produced these cherry tomato sized lemons, which were delicious. After he passed this tree was constantly producing the lemons, and my mom who was not yet in the ALZ condition she is today had someone chop it down. I could not believe she would do that. But then again, for the insensitivity she's show over the years, I could. It made me very sad and very mad at her. Possibly you could, as Shaynmarie suggested save some of the needles, or another part of the tree and re-plant it.
I have some seeds from those lemons.
So your sister is trying to connect with you? Isn't it interesting when our sisters try to connect with us, after they've created so much havoc? My sister does this by inviting me for lunch, I call it trying to reel me in. She is financially more secure than I am. So sometimes she'll do the invitation, picking up the tab, (which isn't real often), as I don't feel comfortable with this. But then I realize that, as she did a couple days later, when we went w/mom. She'll mention a bit of a dig comment to me, as when I said, I'd be out to visit mom soon, and she said "O.K" It was the tone in her voice as if saying, yeah sure. This totally turns me off. Truth be told, I really feel that part of she taking mother this next week to the family get together is to do show and tell for herself in front of our cousins. I think my sister takes her view of herself in the mother role way too seriously, but it's really clingy, and to me her motives many times are about the control and co-dependency. It's funny too, because while we were growing up, my sister did not at all like our mom, and criticized, still does every now and again for the dysfunction. I got along better w/mom. I however knew something wasn't right, and once I could claim some kind of independence from all of that, I did. I'm really the only one in the family unit who has ventured away from the family.
Well, now I'm going to use a phrase my cousin used to say, "they lay their tender trap down," so what we must be cautious of is not to get caught up in it; the emotional detachment.
I looked at the lighthouse.com, and the DONM websites.
The lighthouse web has great explanations. I did read some things from DONM,
WOW! They are both great websites! I want to learn more about the narcissism, because I'm beginning to get the feeling my sister may have some of this also.
Well, I'm happy that your mom is quiet for now. Hope your infection clears up.
Much Love, Margeaux
At the doctors appointment We learned that my mom has pulmonary hypertension as well as pulmonary fibrosis. This means more doctors appointments but also the hope that my mom can get some treatment for symptoms. My brother who lives here offered to go in on their air conditioner, which is movement. It was good that I went home because my brothers wife came the next day and saw how sick my mother is now. My father gave me a lecture about how I need to start a business in my free time and I felt so angry at him for being so insensitive and stupid. I asked him why he wasn't doing so (or getting a job) since he and my mother may have to move due to lack of funds. I am so angry at him that Whenheis speaking I feel a tightening in my chest and forehead and I am not breathing right.
-Rose
Rlamborn, sorry u r not getting any help or support from family members n that seems to be a lot from what I am reading. However, on my mil side we cannot trust some of her kin folks n she only had one son n he tries sometimes for the rest is on me. On the otherhand, we have some things in common for we both live in GA I have felt like the perosn that is living in prison in r house at least until I was able to get some help from Alz.org in my local area. I think the governement should really offer more resources for people who are caregivers to have some sort of 'respite break.' That way, the person that is ill can live longer, healthier and happier while at home n the caregiver would be less stressful n in better health. That would take a huge chunk out of $ from the Medicade for it would prevent those that r ill to be in the Nh sooner than needed or at least I guess. Well, I got off topic. woopsie!
Margeaux, 1,000 n climbing for what in the world is a 'functional family.' Ha! lol. Drive safely n try to relax as much as possible.
Austin, how r you doing today?
Anyone I have not mention your name, I have not forgotten about y'all n I hope everyone is able to have some sort of peaceful weekend as much as possible.
Cation
It so helps me to see this thread and to read some of the stories here. The themes of narcissistic peronalities using others for their own gratification, family members not communicating, taking advantage of each others money and time, and individuals having to make difficult decisions about their responses to these dynamics are helping me to tryandsee my own situation more clearly.
If I step back and see it, there are two sets of issues: financial and medical.
On the financial side of the dysfunction, my parents didn't plan for retirement, and my father has a long history of working for himself and not providing much economic security for the family. Now theirbasic housing costs total $1500 month and their social security payments are $2000, with no savings. It's terrible to see this. I have finally talked sense into my mother and am proceeding with housing applications to HUD and section 8. My father is resisting these efforts, which brings out so much anger in me. At the same time, a credit card company has put a lein on their home due to identity theft committed against my younger 30 yr old brother, who is on their mortgage. He is procrastinating filing the necessary paperwork with the lawyer to have the lien removed. I am so angry with him for his unresponsive ness to my emails on this subject. He actually lied to my parents and told them that the affidavit was filed but it is not.
On the medical side, my mom has pulmonary fibrosis. She just got out of the hospital where she had a lung biopsy. We will be fortunate if she is a candidate for a lung transplant; otherwise it will be a spiral into decline. I am experiencing significant grieving over her condition. I took care of her for a few days when she got home from the biopsy because she was throwing up and experiencing nausea. We got that under control and then I left. I've been back at my apartment feeling shell shocked from seeing her so ill. I drove the 2 1/2 hours back home and tonight will drive back to take her to the surgeons appointment tomorrow morning? Not until I get my hair done at 7 pm tonight though.
I feel so angry at all the men in my family. Towards my father for being unwilling to work and for not planning and for resisting the move to senior housing; toward my youngest brother for not proactively getting the lien removed; toward my brother who lives in the same town for being so uninvolved and leaving everything for me to do.
I have to go now - I have to go to therapy (no kidding huh). My appointment for meds is later this month. I think they will help with the depression and maybe with figuring out how to live healthier.
Thanks for reading. It makes a difference to be able to write about it.
Rose
I was wondering, if maybe you can do the same with the tree? Take a thick branch and find a person who carves and whittle it into a simple object? Or get an unusual branch and just turn it into an unusual decor in the corner of your room or bedroom or wherever? If the tree has leaves, perhaps you can press it? (I pressed my petal and put it in my album.)
This way, you will have a PART of that tree of Gordie's...Just a thought!
So, when Emjo or Margeaux ask for more details, please still post it HERE on this Discussion Dysfunction for everyone to see. This way MORE people sees the situation and might be able to comment other than Emjo or Margeaux.
I think, too, this is where the frustration is coming from. You DID give details, but it was done privately to ONE person, and no one else can see it. So it feels like no one is helping you.
Can you re-state the current situation to update everyone? ... :)