
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
SS~ It is life changing taking care of our parents. Your siblings will have to deal with it in the end as you said. My heart goes out to you because when you never get a break, the stress and burnout can wear a person down. I hope you get someone to come in, even if it is just a few hours a couple days a week. It would allow you to leave the house to do something for yourself. Check into adult day care for a couple days a week also.((Hugs)) to you!!
We do no literally take care of her -- she is still capable of taking care of herself. She has no nausea, no constipation, no Depends or pads in her pants, no heart attacks, no strokes (ever in her lifetime), no amputations, no wheel chairs, etc. She goes up and down our stairs. Since she is capable, we let her be as independent as possible. We let her make her own breakfast and we make dinner. During the day she sits, sleeps or just watches me. She has put a wedge in our marriage and I'm ready to divorce my husband because of her. That would make her extremely happy I am sure.
She is narcisstic and knows everything and is right about everything.
I have only touched the tip of the iceberg and telling you a fraction of what has been going on. The situation will never change between her and her son. It dosen't matter to him what I think or say or how I feel about anything. All that matters is that his mother is safe and with us.
I need help in the worst way. I talk to friends, but if they have not experienced this they don't know what I am talking about, so I don't feel they really understand the dynamics of what is going on.
Please help me find help before I lose it completely. It helps so very much to talk to people who really understand where you are coming from.
Thanks and God bless. Judy
Have a good day everyone.
-SS
I'm with ya girlfriend! I have a brother and a sister and neither do anything to help me take care of BOTH my aging Mom and Dad. Dad now in a nursing home but I have to do it all, all the paperwork, the finances, the groceries, the meds, the doctor appts, church, haircuts, shit, the list goes on....I won't bore the rest of you as you've heard my story all too many times before. I've asked for help from both and both said NO! One just wants their money and the other is just lazy....I have days where I hate them tremendously, and other days that I know putting my energy into such negative thoughts is very damaging to me so I "don't go there." It's hard to do that but it's a survival technique. Hang out with us and moan a bit. It feels good!
Luv to all!
-SS
Margeaux~My sis doesn't do 360's, she is however a Polly Anna. She views life through rose colored glasses. As a result it takes a little longer for her to grasp the truth!
So when I arrived, the caregiver had been there all day with mom. My mom suffers from these terrible allergies, and had this for a very long time now, way before ALZ.I
I suffer from the same allergies as my mom. For awhile now I've had to become a food detective of sorts for myself, as I'm trying to address this, if I don't it manifests as bad sinus condition. I've in the past tried alerting my sister to this fact. But she is not one to really follow what I'd consider a healthy eating plan. So what this means is, mom is at her mercy in terms of diet, and of the caregivers. My poor mother had very bad heartburn Saturday evening. She'd eaten some breakfast and a light snack in the afternoon. Before the caregiver left me in charge, she showed me what my sister apparently had bought so that this was to be mom's dinner; I'd just have to heat it up. When I saw what it was, it by no means is something a 91 yr. old woman w/consistent heartburn should eat period. It was completely acidic and had some strong chili sauce on it. Oy vey!! Well mom, slept pretty much into the evening. I started to prepare some millet with a stir fry of vegetables and some tuna. I figured this would be a much lighter dinner for her system to digest. Well it was 730, mom was still asleep, so I ate. She didn't wake up until 8:45, so I thought it would be best for her not to eat at that hour. Besides she was still having heartburn and wasn't hungry. She does take a product I won't mention by name that has aluminum in it, and seems to rely on these pills So right now Im having an issue about the quality of mom's eating. Everything she currently eats is like poison to her system. So when my sister returned and I tried engaging her in a conversation about this, her question to me was whether I'd given her those pills. I don't understand why some people don't address the root of what's happening instead of just reaching for a supposed cure product, that doesn't do that anyway. O.K. have a good evening all. Margeaux
Take care, Margeaux
She says one thing and will go on and on about it, etc., then she completely does a 360 and does something totally contradictory. She's always has had this quality of keeping one guessing what her next move is going to be, not to mention her secretive nature. YIKES=CONTROL! She too is trying to somehow capture something w/mom she's never going to receive emotionally speaking, the warm and fuzzy feeling. Especially not now w/mom's ALZ. But there again she thinks she can even control that outcome. Well, good for you that you worked through this and can see through the smoke and mirrors, we all know there's plenty to do, and who has the time and energy for these games! I wish you well w/sis, and the meeting with the attorney. Stay strong! Margeaux
I hope things are getting a bit better for you. Is your wife feeling a bit better also?
This is a lot that you've been dealing with. Hopefully, if your wife feels better, maybe this will also change the vibes a bit in your household. But yes, if you have some sunlight out your way, I forget if it was Cattails or Sharynmarie who suggested you sit out there. Do you have some good music you can put on. I find that many times this can change the whole mood. Well anyway, I just want to send you some good vibes in hopes that today is brighter for you and yours!
Love & light, Margeaux
-SS
-SS
Anyway, so if you both have ANY relationship with a sibling helping you through your elder care issues, be grateful and take what help you can get!!! :)
xo
-SS