
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Love and Hugs, Cattails.
My wife got so worked up over this that she called her mother about it who told her to calm down for it was not her issue for anyhow I'm in charge with both POAs. She brought it up to her therapist yesterday morning who told her the same thing. She's in a lot of pain in her back and has some pain in her foot that no one can find the cause for. It might be somatic. She's also been depressed over the pain which is understandable, but depressing to be around as well. Her therapist told her to get out of the house and walk as much as she can somewhere like the mall, etc. She is going to have an MRI done soon which I am glad of. This has made the third doctor that she's been too about this foot. In the past, I've basically learned not to absorb my wife's anxiety and drama over things, she is bipolar as well. However, the intensity of this and the repetitiveness of it was overwhelming.
I talked with my therapist yesterday about my wife's drama surrounding this drama with my step-dad over mom possibly moving back home and this easement thing. He agreed that despite her knowledge of triangulation, that she was trying to triangulate things with all of her drama over you need to say this or that when you tell your step-dad no, although she had agreed initially that just telling him the doctor says no was enough. She wanted me to make up a list of reasons why mom going home would not work and get a letter from the doctor whom I never saw last Friday, but I am glad that I saw the social worker. She was also going over all this stuff about your step-dad might try getting your mother to remove you as POA or he might try taking you to court, etc. over and over, and over again day after day saying the very same things, the very same way, etc. Looking back, I think she was manic. My therapist asked if she doesn't have enough of her own issues to not be micromanaging how I'm dealing with this myself which I had become anxious enough on my own over. He's noticed as I have that my wife goes through these cycles just like I do with her bipolar which is more the manic type than mine. He repeated that just telling my step dad that while I can understand his wanting my mother home, that the doctor has said no and leave it at that for anything else will only contribute to getting into an argument. When I got home I share with my wife that my therapist said again what to say and that a letter from the doctor was not needed. She tried to get into that drama again and I reminded her that Jesus said let your no be no and your yes be yes and thus the short answer is better. She chilled out after that. My therapist wonders if some of this physical pain, particularly the foot, is not somatic because of some issue she is dealing with. Thus, it is easier to get caught up into my stuff that deal with her own.
It is tough when she is in cycles like this and it is lonely, but I've learned to weather them until she cycles out and so to speak I have the real her back. Thus, we really having been connecting lately like we often do otherwise. Thanks for your wishes and that would be good to just get away from it all, but not always possible. Thus, I go to my man cave or go watch TV. My therapist thinks her drama plus my own anxiety over this and particularly about Friday contributed to my down time on Sunday and Monday. Sometimes too, with her PhD in social psychology, my wife tries to play armchair therapist which even therapists know not to do with their own family members. Sometimes, her head knowledge of the theories behind what therapists do and say makes her intellectualize what therapists say or what they say when she is hospitalized which is not good.
Both of us are on disability and that often adds to the burden of things. For example, right now I don't have the energy to do everything that needs to be done in the house, out in the yard, for the cars or even walk the dog. If I get groceries bought, pay the bills, cook some food for I'm buying more frozen meals now, wash the clothes, run the dishwasher, drive her to various doctor's appointments and to see her therapist, that is about all I have energy for. She stays off of her foot by sitting in front of her lap top on the little sofa or reading a book or she sleeps in very late which looks like will be the case today. I don't have to be up this early, but I got up and have stayed up anyhow, plus gone ahead and taken my medicine. Those two really bad days of mine on Sunday and Monday were made worse by the fact that I was so depressed that I failed to take several of my medicines. Now that is bad. Before I forget to since I'm writing this and it is so easy to forget when in front of the computer, I have one more med to take for this morning which should help my energy level. Unless I remember to take my androgel, i.e. testosterone, in the morning instead of later in the day, the day does not normally go as well. Thank goodness that this new version does not take four hours to dry before you can shower, swim or set, but only takes two hours.
Thanks for listening.
Here's the thing I'd like to ask you. I'm assuming you've been married a long time and it seems from your posts that your relationship with your wife is stressed. Both of you (from my limited knowledge) have been dealt a difficult hand with family members and you both have your struggles in that area. You seem to have found your salvation by setting boundaries and trying to limit the impact your wife's anxiety has on you.
So here's my question: Is there any way that you and your wife can leave all the family drama behind and spend some quality time together? Is it possible to reconnect in a way that gives you both comfort? I realize I'm preaching to the choir hear, but life is precious and comfort is a blessing.
I'm not saying what you should do by any means. I'm just saying what I would wish for you. Hugs, Cattails.
I know that feeling you've been experiencing with your wife, of having to hear someone you live with and their take on the way things are, should be etc. In other words the drama. My sister too, keeps going at it, with respect to her take and budding in with my brother and what she deems as the lack of support from his own family. This she bases on his lack of a real marriage w/the wife he lives with. Then, he has those four grown adult children still in his house, who aren't the contributing types in any way shape or form. So aside from having to hear about my brother's health problem, with the prostate, etc., I also had to hear all of that. I'd already been hearing this the week prior, and I know because of the things my sister has been electing to do which is completely bud in, where she has no business. She's a total enabler, always reemphasizing that she does certain things with respect to my brother's health issue since his kids don't and also since his wife isn't showing any interest. When she's said things like this, I've had to remind her, that although this may be true, they'll never actively participate if there's always someone like her to run to rescue them. Anyway, for me at least I don't live in the same household w/my sister, I get all of this info. on the phone. So, I haven't been in touch with her for a few days now, got tired of the same old broken record. But , you made me laugh in a good way, when you referred to going to your man cave. Hey, I'm glad you have one! So what I can ssy to you Cmagnum, is keep your eye on the ball w/your situation re: your mom & s'dad. Your the man! Take care, Margeaux
My aunt was there by herself. So I asked where my mom was. She told me that she'd gone to the store for milk. Well, I started to become really concerned when mom didn't return for about an hour. At this point, I now asked my aunt which store she thought mom may have gone to. I could tell something was up, because my aunt kept stalling of answers, and kept trying to assure me she'd be back soon. Well, luckily mom walked in the door right after this. But, this was a HUGE RED FLAG, for me! I remember calling my sister to tell her about this. It was not too long after this, that we did finally get a confirmation about mom's ALZ diagnosis. Well, if you can imagine, she continued to drive for awhile after this. In part this was because my brother at the time had POA, and was totally mismanaging everything, including them. This didn't last, since my aunt yanked it from him and reassigned my sister and other brother. Now my sister moved in w/them, since they could no longer be alone. It was at this time that my sister had to have a talk w/our mom re: driving. In hindsight, we definitely know there were some angels w/mom when she drove towards the end of her driving days.
But, I was telling my sister, that their safety, other people's on the road is too important. Besides, one wouldn't want to be involved in a liability law suit, on account of the fact that someone just didn't take the measures to make sure an elder wasn't going to drive. Stage 4 ALZ, is nothing to play around with. Cmagnum has given you a great idea as to how to approach this. In any event, don't take too long on this one, dear. Be strong. Margeaux
Wondering if there are other identified ACA's or "alanonics," etc. also dealing with an ill parent, and what that's like (I plan to read through much of this thread, so apologies if this has already been covered)....good topic for a thread. Glad I found it.
Regards to all,
CW
Indeed, move on with your life, give yourself space and time to heal, for a lifetine with a parent with a personality disorder, is damaging, and very hurtful in many ways. Good for you!
-SS
xoxoxo
-SS
Anyway, happy Easter to all!
It's Selfish Sibs. Cmagnum -- long time no hear/see!!! I miss you!! I see Cattails and Austin are on here too. Austin, I think it was you that suggested I join in on this thread. That was only a few days ago and yet I forget!! Yikes!
Anyways, Cmagnum, I don't think they can release your Mom home without your authorization as POA. I do think that you can override the doctor by proving there is not a safe place for her to return to. may have to get Social Services in your area involved. Stay strong. But the doctors can't override you, espeically if she can't walk or care for herself. I
had a similar situation in January. Both parents living done the street from me, independently, not not really. I do everything for them with no help from two siblings that haven't even seen their parents in almost two years. People say, "You have to ask for help!" Well I do and I keep getting a big fat NO, or no response at all. That story for another posting. Anyway, Dad fell five times before Christmas, enough that it landed him in the hospital, didn't break anything (remarkably, just a very weakened state), started rehab in the hospital, then had an internal bleed, recovered, then transfer to rehab NH where he plateaued and now is a resident, pending Medicaid and miserable as all hell. So my 84-year old mother (who has been fighting with him for 40 years), who was planned to have her second hip surgery the following month says to me, "I can take care of him." I said no, you can't. He can't walk, he can't transfer himself, he's totally incontinent etc... and YOU"RE going to take care of him? No, what that meant was, he would be released and fall again in a matter of days and we'd start the whole mess all over again, the ambulance, the hospital, the rehab, Forget it. Plus, he would be putting her in danger if he grabbed her on his way down to the floor. Enough. So I said, if you make that decision, I will have no part of it. I wash my hands of everything completely. You're on your own. Don't call me for anything and I won't pick him up at the NH to bring him home. Find another ride. After three years of doing everything for both of them, everything, groceries, cvs, haircuts, church, trash, shoveling, meds, bills, insurance, plethora of doctor appointments, stamps, holidays, and so on, without even an acknowledgement from my loser siblings, I said No.
So I don't know if that works for you CMagnum, can you just say, NO to the step-Dad, I won't have any part of this if you take her home? Look, I love my Dad, but it wasn't the right decision for his safety or her safety to bring him home. Everyone's situation is different, I know. I never thought I'd be able to step aside, but I did. And he stayed in the NH. Sure he's miserable (he doesn't cooperate with the peeps in the NH either, Cmag), but he's been miserable for a long time and I'm tired of being miserable. Plus, I still have to watch over Mom living down the road who defends my loser siblings to their death. "They're too busy, they live too far away, they have their own problems." Screw that! So do I!!! I have a family, teenagers, a husband and run my own business, all of which is failing because for three straight years, I put my Mom and Dad first. No longer. I'm tired, I'm resentful and I hate my siblings but I am stepping aside. I hired a caregiver for Mom one day a week, so now I only call or see her twice a week instead of twice day. it is helping.
Luv to all-
-SS
I don't know if I shared this earlier, but I am also concerned about a business deal concerning land owned by my mother, and my two aunts that a gas company is paying for an easement through. As the spouse, according to our state law, my step-dad has to sign off with a notary on this deal which I've talked with him about, but has not signed. Being concerned that he might try with holding his signature as leverage for getting me to over ride the doctor, I called my aunt who is handling this business deal. I asked her to call my step-dad and explain this to him again and the consequences of his not signing which would mean her being taken to court and the court forcing him to sign. She made the call and learned he had just set that piece of mail aside. He did not promise to sign it, but he did promise to look at it. By the time I was finished visiting with my mother, it was my step-dad's bedtime. Thus, I did not go by the house. However, my mother thought it was 6 am.
Let me know what the doc says. Best wishes, Cattails