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Izsabella, I completely agree with Cattails. Why would you take your mom to the Mayo Clinic. Under the circumstances I'm sure this would totally distract your attentions from what's going on with your son. It's o.k. to say NO. I'm currently dealing with similar issues w/my sister who is the live-in caregiver of mom. My sister is wonderful, but just doesn't know when to stop. I'll talk about it in another post, but I've read about your situation and it sounds like you've spread yourself very thin. I think it's rather detrimental for a caregiver to think they can do everything, be everything for everyone. We just can't do that w/o some repercussions. Please take care of yourself, and yes nothing will happen to your mom if you are not the one w/her 24/7, especially under your current circumstance. Sending you love and light, wonderful woman. Margeaux
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195Austin, Thank you so much for explaining about the wall. I was rather confused. Hope you are well! Margeaux
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Yes i am still married to my husband btw it his doctor here in Az. Accused me of arsenic poisioning when its in the water and etc. I haven't heard no one from his family accuse me of doing that but then again I am the subject ridicule and supposed fantasy world that I live in which has no bearing on this concurring situation being there for my husband and children. I didnt mean to confuse you but also under attack from a sinus head cold and allergy so what may sound simple and straight forward may come out as gibberish. Right now trying to keep my head above it all and pray that one my wallet is found soon and 2 i get rid of this damned cold ...i truly got a frog going on and doing a disco in my throat and someone doing the bongo drums in my head with side can ya hear me drill pls noise lol...forgive me one of those days still...
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To go to someones wall just click their name under their picture or no picture is located then when you get to their wall it shows how to give a hug and or a note then submit.
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Good Morning Everyone,

I'm still getting used to Daylight Savings Time. Last week my body clock was all out of sync, kind of felt like a slight jet lag. Anyway how are you all doing? I noticed on my wall that I received hugs, and I don't know where else to ask, so here goes. I'm trying to figure out where I'd respond to the hugs I noticed when I viewed my wall I've received. No hug goes unnoticed! I'm still learning how to navigate in this tech world, can anybody help me please? O.K. going for my second cup of Joe. Margeaux
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Hi Izzy: Just checking in. I was really sad to hear you say that you would have to take your mom with you to the Mayo Clinic. No offense, sweetheart, but that's just nuts. Isabella, you have a husband and your mom has an income. Between the two there should be some way of having care for your mom while you are gone. I'm sure no one will like it, but you have to start somewhere and this is the place. Your son will be going through a lot at the Mayo. He needs your undivided attention.

You know my husband is not a happy camper when he ends of being the one to takes my dad to the bathroom when he has a BM. Usually I do all the bathroom stuff, but sometimes it just can't be helped. But the good news is I love him for doing it and he knows that and he takes a certain pride in not leaving me with all the dirty work. Time for your hubby to step up to the plate.

Don't ask them, just tell them that you need to focus on your son and they need to make other arrangements. Your husband is a big boy and you can help with lining up a caregiver. Your mom won't like it, but she'll survive.

This is a critical time for your son. I've read up on his illness and I know the testing period will be intense for him. Let me repeat, this is a critical time. It's also the perfect time for you to say NO to your mom and husband and drive to the airport or hospital ALONE with your son.

How often do you have the chance to be there just for him. He needs you more than your mom does. Please try to do this. Please Izzy, you have to start somewhere. Do it now.

Love and Hugs, Cattails
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Burned: I'm trying to understand your situation. Are you saying that your husband's doctors will not discuss his medical issues with you? You have no family in Az., but your saying that your sister accused you of trying to poison your husband? If this is true, I'm assuming it was in your previous location, in another state, before you moved to Az? I know it sounds weird to ask this, but are you still legally married to your husband?
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Sold the car ...no way there last seen here at the house so anyways didn't declare my wallet stolen just missing ...and I am hoping I didn't dump it lol...omg just all this shit i am dealing to get done by April to keep my husband under his current in home care paid and since they are paying me I do not think the agency will work on finding a hospice volunteer to help me out when i need it most like being sick once more and tired and worn out. I recognize stages of Burnout and I am there again already but no hope for the loving and true. On a side note looks like my friend gonna be here before April be nice to have a familiar face to talk too and really arrange some fun times when we both can afford it . I am praying her husband lands a job once he gets down here tho i hear its not improving everywhere else by much except for upper NW like Portland and Washington. His doctor won't discuss anything with me ...specially after she accuse me of poisioning my own husband so think about that now...still wrestling with her to take his case seriously and last time i switch his physicians she stepped in and booted the other doc ...so having a tough time with that one lol...keep me in ur prayers but so far good to be drama free except for what goes on in my house...
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Burned: Age is not a requirement for Hospice. Have you discussed it with his doctor? The doc would need to make a referral to volunteer hospice. Hospice would then contact you. I hope you can make some head way as it would be a help to you. About the wallet, have you looked in your car. You've probably looked everywhere. Just a thought.
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OMG.... nothing brings out dysfunctionality out in a family then stress of caregiving.... I have 2 brothers and 1 sister. One brother is a gambler by occupation... after he tried swindling a deal where my sibs would be giving him $300 a month each, he moved in with her and paid no rent.... but to top it off spent all his time at the casinos so that when it came to laundry, moving lawn, car maintenance, etc... plus spending each and every evening with her as she was trying to cope with the loss of my father. I eventually asked her to move in with me... as an aside ... my brother is not giving me $300 per month! Now we have been coping with the maintenance of her house as we are trying to sell it in a down economy.... I am knee deep into something i never wanted to be in... my brother is no where to be found and my other brother and sister are supportive but is it enough??? My Mom just chooses to be Polly anna about my gambler brother and doesnt see the flaws.... I get it, it's her son... she shouldnt have to but in the meantime the resentment is mine...
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omg i still feel like heck and not any better...now i caught my daughter's cold and i am taking some dayquil atm to help break it down. Prayers are helping but no luck on my wallet...just sucks watch i be clear of this thing and boom ill know where it is right of the bat which is how stuff usually works lol hanging in there and 2 morrow hubby has an appt and i have reschedule my daughters pta conference....lol just way too stressed and been looking for hospice volunteer so i can take a mini vacation but no such luck and he has to be a certain age to qualify so that puts me out of the loop...oh yeah taxes ....gotta find the darn agi lol....my brain has decided not to much heavy thinking....lol who knows trying to interject some humor...
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Brandywine1949, Thank you for your response, this happens to me to.
I'll log on later, have to tend to my birdies right now. Margeaux
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Another poem about "Letting Go". It is helping me face a situation I am facing today.

"Letting Go''

To "let go'' does not mean to stop caring.
It means I can't do it for someone else.
To "let go'' is not to cut myself off.
It's the realization I can't control another.
To "let go'' is not to enable,
but to allow learning from natural consequences.
To "let go'' is to admit powerlessness
which means the outcome is not in my hands.
To "let go'' is not to try to change or blame another.
It's to make the most of myself.
To "let go'' is not to care for, but to care about.
To "let go'' is not to fix, but to be supportive.
To "let go'' is not to judge,
but to allow another to be a human being.
To "let go'' is not to be in the middle arranging all the outcomes,
but to allow others to affect their own destinies.
To "let go'' is not to be protective.
It's to permit another to face reality.
To "let go'' is not to deny, but to accept.
To "let go'' is not to nag, scold, or argue,
but instead to search out my own shortcomings and correct them.
To "let go'' is not to criticize and regulate anybody,
but to try to become what I dream I can be.
To "let go'' is not to adjust everything to my desires
but to take each day as it comes and cherish myself in it.
To "let go'' is to not regret the past,
but to grow and live for the future.
To "let go'' is to fear less and LOVE MYSELF MORE. "

Here's to "Letting Go"!
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brandy - a move would likely help, and cuold be a new start for you, but I know it costs.You are supportive, just by coming here.
Margeaux - I agree that mum will likely regress with losing her sister, and you can't expect too much from her. Expecting warm fuzzies from a narcissist is a lost cause, but some of us realise that sooner than others. Your sister must get frustrated trying to maintain control - I am glad you are out of that, and in charge of your own happiness.
Hi sballen -glad to see you back and hope things are going reasonably well at home
cmag - hope you have a good week.
austin - glad you have gained some tools - we can grow emotionally at any age, thankfully - to quote you - "now know I was not just a bad child as she wanted me to believe and finally got my power back that I had given to her all those years ago-and the power she had to hurt me-I can ignor." Amen to that!

the trick is to not get sucked into the games they need to play... which always hurt us.

hugs to all
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cmag this is a good thread it has helped me very much with dealing with Mom-now I can approch her as a stronger person and now know I was not just a bad child as she wanted me to believe and finally got my power back that I had given to her all those years ago-and the power she had to hurt me-I can ignor. A little late in life but still important nonethe less-I thank you for talking about this subject and educating others about this personality-she is not going to change at 93 but she will not hurt me any longer.
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Good morning. I'm glad to see this thread continues to be alive and well with support and encouragement for each other. Prayers, hugs, and love for all as each faces their individual trials in this another week of living!
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Good Morning Everyone!
It's been a few weeks since I've been in touch but know that you're in my prayers daily. I am so grateful for this site.
May God continue to give us strength to face each day.
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Actually I am with it but it came out wrong that I am not supportive. I definitely am supportive. Please just disregard that earlier statement. Best Wishes and Good night everyone.
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What I meant was I am very supportive of everyone here, but I just don't post that b/c I am not completely with it. But yes, I am supportive of you guys. I just didn't word it right. You'd think I could word it correctly, since I am a wordsmith. It just didn't come out right. My apologies. I really like this site and everyone on it has my best regards.
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Brandywine1949:

I'm rather curious about your statement, "I am not supportive of you guys."
Would you care to elaborate about this?
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Emjo: Thanks for the definition of a "codependent." It certainly rings true in our family.
I called my sister to see how our mom w/ALZ-91 yrs. old is doing. It's just now up on 2 mos. that her 93 yr. old sister died, w/whom mother and sister lived. My mom was a narcissist while my sister and me were growing up. So emotionally we were quite neglected. Yes, there were the roles put into place early on. But at some point, I've decided for myself, that I didn't want to continue doing the codependent thing, or at least I try my best not to. So when I asked my sister the other day, how our mom was given the recent loss of her sister, sister tells me something like, "Well mom has gone back to the sleeping all of the time bit, tuning out." My mom way before the ALZ always new how to tune out, when she should have been majorly tuning in. So my sister and me feel a bit as if this is some very old behavior on her part, now given ALZ, and age, well what can one expect? Anyway, I could hear it in my sister's voice, the frustration, and I guess she's still somehow dreaming that our mom is going to miraculously step up to the plate and provide her with some kind of warm and fuzzy behavior, and bond w/her. By contrast, I gave up that thought a long time ago. So I just told my sister that under current circumstances we cannot really expect much out of my mom. Also, I pointed out the fact as to the meds she's on, also that she may have gone to the next step in the ALZ, given grief. But I realize in my sister's case her ongoing need to be codependent, and definitely she gets paranoid when she feels she's losing control of a situation.

In general, after having read some recent posts, it would be good for several of us to read about this. We can't be responsible for people's emotional happiness, hopefully we can be for our own.
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I am thinking of temporarily moving away from this town so that I don't have to take care of Mom and get yelled at. But it is so costly to move away. I got to apologize that I am not supportive of you guys. I have a lot on my plate. I do read the posts. Hope you find your purse Burned. And yes I am co-dep.
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Izzy, ((((((hugs))))) time to say "No!" It will help to relieve the anger and resentment you feel. No one can look after any one else's emotional needs - no one can make anyone else happy. It is your mum's narcissism which expects you to do this. It is your choice whether to try to or not. Everyone is responsible for their own happiness.

cattails - I am glad you are coming to terms with your sister. I am too and life is better for that. We each have our own time lines as to when we can do this.

burned - prayers for finding your wallet. Losing important stuff is so frustrating.

A little word about codependency for everyone - something we can so easily get drawn into in caregiving, especially a narcissist.

This definition is from Wikipedia:
Codependency (or codependence, co-narcissism or inverted narcissism) is unhealthy love and a tendency to behave in overly passive or excessively caretaking ways that harm one's relationships and quality of life. It also often involves placing a lower priority on one's own needs, while being excessively preoccupied with the needs of others.[1] Codependency can occur in any type of relationship, including family, work, friendship, and also romantic, peer or community relationships.[1] Codependency may also be characterized by denial, low self-esteem, excessive compliance, or control patterns.[1] Narcissists are considered to be natural magnets for the codependent.

I quote this because I have BTDT, got the t-shirt and am not going back. It is a terrible place to be, but possible to get out of, though it does not seem so at the time. In a dysfunctional family, some are groomed to becoming codependent, to meet the needs of others. Melodie Beattie has some good books on that subject - one being "Codependent No More: How to Stop Controlling Others and Start Caring for Yourself".

Yes, strangely enough, being codependent is controlling behaviour.

A quote of hers from another book “I used to spend so much time reacting and responding to everyone else that my life had no direction. Other people's lives, problems, and wants set the course for my life. Once I realized it was okay for me to think about and identify what I wanted, remarkable things began to take place in my life.”

Another quote from Robert Burney (Joy2MeU) - "Some of us (classic codependent behavior) tried to control through people pleasing, being a chameleon, wearing a mask, dancing to other people's tunes..."

I see a lot of codependent relationships on this site. Prayers for release from these bondages.
jo
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cattails you are so right.. we need just let go of being angry at these family members that are so very selfish.. Like you I do know that my sisters have issues as to why they cannot physically help me with my mom.. but emotional support would be also welcome.. They could call and talk to her.. She gets lonely and I get so tired of being her everything.. I would welcome any type of a break even her to ramble all the daily drama to one of them on the phone.. But even that they want no part of.. But my mom will call them and act like a completely different person with them on the phone.. she shows them none of the actions I get.. That is when I get so pissed.. They have a "short and sweet" type of conversation.. and when I over hear her hang up with an "I Love You", I think are you kidding me??.. It feels like a slap in the face..

Arrangements are being made for my son to go to mayo.. and this will be a week (or more) trip.. so it looks like I have to take my mom with.. Im not looking forward to this.. hopefully the hotel will be close because I will spend the day going from mayo to the hotel.. back and forth..

There are times I feel somewhat guilty for even feeling this way, and yet I dont even know what Im feeling.. is it resentment.. is it anger?? I dont know.. But I do know when my mom was my age she had her life.. she worked..she went out with friends.. she ran her house as she wanted..she never had to "take care" of anyone but her favorite daughter (and it wasn't me).. And my life now is completely opposite.. everything I do I have to consider her..her health issues..her feelings.. even things in my home are now so different then the way I like them to be..she will say "Is it ok if I move this here or put that there".. and she knows I would never say no.. I so often think "you had your time..this is mine".. Im sure this is an extremely selfish thought for me to even have.. right?? .. I miss the days when it was just me and my family.. especially now that my son needs me I find myself feeling these feelings even stronger.. I cant make her life over now and yet I feel it is up to me to not only care for her health needs but also her emotional needs.. Ive tried to find her hobbies.. well she likes nothing but planting flowers and Ive tried to tell her that she needs to accept that her life has changed now she can no longer be out in the heat planting flowers.. That is when an arguement starts.. she will not accept she is 83 with health issues.. Even her Dr. tried to explain this to her.. She is now looking for a different Dr.. This is when she reminds me of a "spoiled bratty child"..

My prayers are with us all today and everyday..
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Burned: How is your husband doing?
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Burned: By the way, did you ever check into volunteer hospice?
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Burned, I am praying that you find your wallet and that your little girl gets over her ear infection. It would be nice if our families would be there for us, but if they won't then we need to accept that they are lacking and we can't change that.

My sister was supposed to be here during the holidays to see my dad and give me a break. She never came and she never told me she wasn't able too. She just chose not to talk about it. Then she said she would be here during Spring break, she has the week off as she works for the school system. I talked to her today, Spring break starts Monday and she isn't coming. She didn't tell me she isn't coming, but I know she isn't. I could get angry with her, but she has little money and she loves to avoid the fact that she doesn't come through.

I've started taking a depression medication that is really good for anxiety. It helps me to not rip my sister's face off. It is what it is, Burned. It may not be fair, but it's reality and I can't change it. So, I am trying to take care of myself and give my dad the best care I can. That's all I can do. Love and Hugs to you, Cattails.
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well I need prayers n success in locating my wallet and of all places it disappeared at the house somewhere and i am hoping i didn't trash it. LOL least hope not... as for talking too much ...i thought it didnt matter what we said as long as we support one another even if we dislike certain dramas. So ill just ignore the statment that I talk to much when it should be I type too much lol. Right now my daughter has ear infection among others a very disturbing issue my wallet being missed so il stop since rambling and needs to be limited and ty Izzie ..put the shoe down and if ur ready walk away in my current position I cannot but i feel the fact we get no support from the ones that are suppose to be there instead find ways to take advantage of our situations instead of being a shoulder to cry on or giving us a break..
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Izzie, I am not a religious person but I have some experience from my own childhood traumas. Please feel free to correct me if I am wrong on this issue. Didn't Jesus say to turn the other cheek 77x7? I understand that to mean there is a limit and then you revert to Old Testament ways of dealing with people. In your case I think the time has come to revert to Old Testament. You have such a great heart full of love but please don't let others use your goodness for their selfishness and use you up. I don't know what state you live in, here in California medical will pay for long term nursing care. If your mother has money invested in stocks, bonds, etc. that money would have to be used first. If she owns a house, the money from the sale would have to be given to medical to pay them back unless your mother has an estate set up with an attorney who has set up her assets in such a way that the state can not get any money when she passes. From what you have posted, I understand that your mother has nothing but her SSI. I know you are against placing her in a NH, but I hope your reasons for not placing her is based on guilt. There are many good NH's available. You can visit her and still advocate for her needs. You are only human which means, you can only do so much. I believe you are truly a good soul who wants to please others at the expense of your own needs. Having needs does not make you selfish, it just means you are human. Jesus understands you have limits.
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Izabella I am so sorry for the way your Mom hurts you with her mean words-I know what that is like but at least I can control how often I see my mother. As long as she does not have blood sugar concerns and takes insulin missing meals will not hurt her. I am glad you told her her behaivor was like a spoiled child-I am hoping for a good night's sleep-I can not remember if you have siblings to take her from time to time.
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