
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
duck - I wrote this on another post A child whose parents abuse it doesn't stop loving its parents, it stops loving itself. We have to learn to reparent ourselves.
fraz - how are things?
nomore - I am glad you are done, You have to look after yourself. It sounds awful!
ali - might be worth trying some of the bipolar drugs. My dd has been through quite a few meds and seems to have a decent combination now. Like you, I can tell very quickly if something suits me or not.
I don't have depression as a primary symptom. I have history of chronic fatigue and anxiety disorder, and some mood swings that may fit cyclothymia or bipolar 2.
I started the Seroquel last night, took only a fraction of the tablet to try it. I feel like someone slipped me a mickey. I think for me, the sedating effect is going to be too counter productive to my already persistent fatigue issues!
Ya can't give me something that makes me more tired because I'm already the most tired person I know! So even if the point is to calm the mind, the overall effect is that I feel sedated, not calm.
I'm contemplating how much more trying of this I want to do. I want to tell my doc I tried it so we can cross it off the list. I told him I tried the mirtazapine he Rx'd 2 months ago for 5 days and he said something like "not much of a trial." Thing is, I have had bad reactions to mirtazapine in the past so it wasn't unexpected for me to have increased jumpiness and angina after 5 days, since that's what I experienced before. Ugh.
I'm doing ok without medication insomuch that I'm meeting most of the demands on my life -- my job, getting other necessary things done. I still have plenty of bad days but maybe trying all these things right now isn't a good idea.
These last two experiences are making me rethink this. The psilocybin regimen has helped some, I know that for sure. Maybe I should just let my brain get used to that psychoactive substance's effects longterm... and just wait a bit to see what symptoms I still have that are bothersome enough to warrant trying a medication.
based on the Viking's experience, seroquel may knock you for a loop
she was initially given 12.5 mg which kept her in bed all day and did nothing to calm her
rather than keep increasing it, we switched her to a different 2nd generation anti-psychotic and now have her on a very low dose - a quarter of the original
I admire you for seeking our help as so many don't
TG what I was trying to say was that its an honor to be the head of the family,and being there for your loved ones. There is a line to be drawn when being taken for granted. I am coming from a very sensitive place and feelings of isolation and at times my sensiitivity over rides common sense.
.
Some times I get stuck on stupid. Go back to being so sensitive. I think I am doing something right and it blows up and keeps blowing up. I am not blaming just seeing some left over threads of sabotage. I feel if I am hurting from it then they have won. I want to stop hurting.
Trying to find the key. Maybe I never will but I have not choice but to keep trying. Its painful to see how deep and far reaching some scars go in me and my life.
Other stuff I want to share but I feeling to out of sorts to put it in words so I will leave it
Off for a few days. Got a medical apt. See lawyer soon. Maybe its underlying anticipation about health and lawyer and state of this family.
Just lost a lot of my post.
I wish you all the best.
He thinks I could have some of the bipolar type 2 symptoms and he's right, I do. This med is not first line med for that, he said, but it is included in treatment options for bipolar 2.
I'm going to start with a tiny, tiny dose then. I thought someone here might have some input about it, which is why I mentioned. I'm going to try it though because I have nothing to lose and I'd like to have my symptoms fully under control. I'm 44 next month. How many years of my life are going to be spent managing mental illness symptoms? I'm tired of it. If I can get relief, I have to try. Thanks for the input, though.
It is prescribed off label for elderly with agitation/sundowning behaviors. It is actually commonly used for schizophrenia, I think. It is an antipsychotic.
I have no idea what to expect. I'm going to start with half of the prescribed dose because I've had good success with starting a new med that way in the past, taking it very slow.
Cinderella is going on strike. I’m done here. My health is going down the toilet and I don’t have insurance...
Today was one of those days. I was missing my son. spoke to oldest grand got a text from DIL that package I sent arrived and it felt so good to not be outcast and a thought to someone.
I have so many issues and it scares me sometimes thinking about some decisions and choices I have made and what in the world was missing, why didnt I love myself enought to reject certain issues with my mother and later my sister as normal and then continue to need that semblance of love. What happened to my self persevation button. I would have jump a tall building in a single bound for anyone else. Guess I should be on the whine line but I dont want to relive these thoughts. Although once when I was back and forth in different forums I ended up working my stuff out eventually in my posting.
Anyway my train ride was a lecture about the president and the wall and how things used to be in the 70's by a guy I see outside begging. In NY where I am every block you walk someone is asking for change some even state the dollor or five dollars. Then a man got on and he had a story about cancer. How he was diagnosed with bad exzema but it was acutally cancer and 3rd stage he learned when he came to NY. He said gave options on how to give him. Share the story or give him change. Its was sad, I gave him change and just partly shared the story. So that still had me a little sad and then I get on the bus and this woman with a toddler and baby sat next to me and the baby was crying and just stopped when I started to guu guu gaa gaa her, everyone near was doing same and it was so funny to see people from all walks and ages frown again when she started crying again. Well seeing that youth and innocence and love made me feel a tad better. Sometimes I get tired of feeling like poop.
I am still trying to get approval for a pelvic mri, and have apts set next month about the thyroid biopsy and Gastric issue. These past few week the gastric pain started to flare up so I am back on those meds. So I will be busy enough and then I will be glad to complete my promise to take Shams' children iceskating. so far they are doing okay. They have a lot of support from the church and friends of family. I am looking forward but dont have the level of motivation so it bother me.
So thanks for letting me vent. I guess I will go back to my hobbie - tv series. I am almost finished binge watch reign and am in the last season now. Cant wait for start trek to return that was really good. Ooh,and I watched "What They Had" which is a movie about a family dealing with aging.
Rays of light , love and peace to you all. Sleep Tight.
I dont want to be the dad that says "sink or swim". I will give them every opportunity but getting tired of no alone time with my wife. Supposed to be planing a big vacation this year but may have to use some of that money to take care of crisis number 105 with daughter moving in (possibly). Dads car is tanking so may have to buy him a new used car as he has no money and we are not in an area that has transportation nor does he have the money for a car yet alone repairs.
Never having quiet time less than an hour.
duck - ah you found it. It is good to be cautious before blaming. The bubble bath was great,
gershun -feeling better thank you, Now to get my sleep hours to a good routine, Bullying does leave its mark. and can quite seriously affect people as adults. Three of my kids were bullied at school. One quite severely. I approached the school gym teacher about bullying in his classes and he acknowledged it and said there was nothing he could do about it. My oldest son was being slammed up against the gym wall and nearly knocked out a few times. I was furious. In those days bullying was not the concern it is now and there was no recourse. We supported the kids at home when they were being bullied and made suggestions about how to handle it, He has grown up well and worked out any issues he had.
We are having a warmer day tomorrow so I am running errands.
As for my grade one experience. I know people blame their past experiences for their present day problems and it's wise to just get past it and move on. But I think the bullying by someone who I thought of as my first best friend ever left it's mark and shaped the person that I've become. I don't trust easy and I think I've left good people behind in the dirt because of my trust issues. But it's hard when you want to protect your heart to let just anyone into it.
Thanks all for bearing with my crazy.
This weekend while I was off I had this strong need to post. I was introspective in a positive way and grateful for what ever bought me here, and what ever led me to getting affordable counseling with no insurance, proud of my progress in dealing with stress and anger and pain that I live everyday.
Its very difficult texting on my phone even worse now that it seems to have a malfunction. Random calling people, and repeated calling. making a call while I am talking on phone. Phew so I just gave up hoping I would remember where my heart was.
Rays of love, light and happiness to all!
Chris, hang in there. Eventually she may move out of that stage into one that is easier on the nerves in general.
I am not sure what you were saying about the HBP but when my pressure is high I forget things repeat doing things and am acutually very mildly confused and dont even know it. After I keep forgetting where I put something and it right in front of my face. Or leave something in a store or a key in the door then I realize what it is. A high salt snack or treat can send very high for days.
Make sure she is taking her meds and not hoarding them like my mother.
Sharyn, my heart and prayers are with you and your brother. Its a tough road but like you I am sure he is a fighter and will come out of thisl.
Golden! Ah the tv was found by me a on my last day of work. I got off that morning, fell a sleep woke up late in the afternoon I noticed the door to parlor floor was open and it was cold. Went to close the door and low and behold there was the tv. There is this giant stove ion the parlor floor that my mother the hoarder salvaged from a friend moving to another state. It couldnt fit through doors and has been there for many years. I was not living there at the time but I went with her and this coleman who batch jobbed the shed when she got the stove, a van full of lampshades which were beautiful, and a bunch of ice chests and junk. A lot of that stuff is still in rooms. Anyway I will babble and go on and on often told to get to the point. Well the stove was blocking the view of the tv.
Now how it got there will remain a mystery. I was glad to see it. I dont know if it was returned or was there all along. It was very similar to the crockpot express cooker that I had bought brand new still in box missing. Now my mother did a lot of sabatoge in her life towards me but she did not move that big heavy box and put it in the bathroom. Well the tv about 40 inches wide was light. My mother has often taken all the cables apart and covers the screen with towells and things but has never moved it.
The thing is I felt bad if no one moved it out of malice. I felt bad for the thoughts and anger. I had typed up these nice notes about honor and the lack of understanding of how my mother was so active in all areas in her life and is left with televison as her only form of communciation with outside.........
Things I said need to be said but I know these would be ignored and read by illogical, tainted minds so I am glad I didnt post them.
But one thing I was proud of during this event was that I kept my head. I spent a lifetime giving the benefit of the doubt in situations and events concerning my mother and my sister. I know what they are capable of, seen them in action out side of myself.
I have so many demons to deal with but I have never tried to harm or hurt anyone. (except for my son's father, I tried to run him over with the car only it didnt pick up speed fast enough that was over 36 years ago)
I know I have been brainwashed by my mother from an early to be her crutch, blame for everything. I did it. I realize this meshing is far deeper than I could have imagined and that's painful also. I mean every stage she goes through, every change if she doesnt eat i feel down. I mean I dont even get upset when she comes in bathroom while I am on toilet or shower. I guess she broke me in and I am trained. I get tired of her high pitched hoarse chatterings. I realize all she wants is a similance of who she was, always planning or counting or checking so I go along. Then there is the conspiracy thing talking about some one or saying SHhh about someone supposedly near.
She has started banging on the door again but its not long like before. If I am half asleep I hear the door knob turning or her with a key trying to get in. One morning when I was off I was startled to awake hearing her in my room, I had left the door open. She would have had a field day!! LOL
Its hard......
duck - I wonder if the tv will turn up again, In any case it is wrong. Keep working on the apartment. Glad you are keeping your cool.
gershun - I have had to, too. One I found out was a prescription drug addict and one was a narc. Neither were good for me. Nasty grade one experience you had.
nomore - good luck with the applications
send - so true that everyone needs friends
Margaret - I am sorry. Sometimes you have to go "no contact" even with your children. Marriage can make a big difference. I was "no contact" with one son for 3 years - very much his wife's doing. I know it is her problem. Now it isn't formal but is obvious she wants nothing to do with us, so I see him once in a long while. Life goes on.
cm - the video is awesome. I needed it for totally different reasons
sharyn - always thinking of you and the health issues your family has been through
chris - Happy New year to you. It's tough with your mum. High BP wont help. Hope she takes her meds.
glad -hope you feel better soon.
Getting the executor stuff done, Didn't go south as the house I like has had an offer made on it. But, it has made me think again about what I want which is good. Little bit of a sore throat but I think I can get rid of it with zinc lozenges.
Brain fog is clearing - may have been mostly stress/grief related. Had a little work done on house repairs last couple of days and I am having a quiet day today. Progress not perfection!!! The days are getting longer and we have only about 6 weeks of possibly severe winter left. Yay!!!
Take care of you everyone. I bought some bubble bath for me and plan on soaking in it soon.
(((big hugs)))
I have tried to keep daily reports about my mother. To a minimum.
I had another argument with my elderly(78 in Nov.'2018) mother. Today she stormed in my bedroom to tell me 'something'. She yelled that the FBI are doing an investigation on Pres. Trump, as if I voted for him. I purposely didn't vote at all. Because of behavior like my mother's. That when it comes to politics, only she is right. When I said I don't care what Trump supposedly did(I can't find any headline on CNN about it), or how the FBI has supposedly reacted. She stormed out of my bedroom. My elderly parents'(father, mother, step-mother) are political 'junkies'. Like they need a daily 'fix' of political discussion. But my elderly mother's reactions about it are stratospheric. Maybe her unfortunately being diagnosed with HBP(high blood pressure). Will temper her 'political' behavior. Then again, maybe not.
Loved your reference.
Harvey and Rabbit tv ad deluxe version-youtube
for those not wanting to copy and paste.
Kudos to you! You are an example of a good friend. At her time of chaos, you
were very understanding.
I do feel like... I'm not the problem here, and that friendship with me isn't the problem. But she'll either figure that out on her own or she won't, and I cannot do anything now except get out of the way for her to do the work she must do on herself.