
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Only two people with me now are my two second cousins. They are both over 21, have jobs, going to graduate school. Big help to me right now.
Yes, the timing is lousy with so much upheaval in your life, but try not think of today as a lost day - having the cataract surgery will help you enjoy the beautiful scenery of where you live
even if you can't sleep, try just to rest your eyes now and take a few deep breaths - imagine the oxygen filling your body down to your toes
sending healing thoughts your way
Today is mostly a lost day. I’m having my first cataract surgery at 9:00 am. I hope it goes well. Should have my other eye done in three weeks. My cousin is driving me to the hospital. She’s read all of the pre and post op instructions. She doesn’t have a class today and only works late afternoon hours today. She’s going to put my eye drops in.
When end this move is over I’m going to sit down and cry for a couple of days.
I am glad to hear good things happening around the posts. It keeps hope strong.
I will be off for a few days.
Rays of love peace and happiness to all.
Dad is already telling everyone we are coming and telling me every goat path to go on. I tried to set up a quick meet with my best friend but no, the time will not allow.
So he is trying to manipulate the trip. Me its a turn and burn. get in get out. The last one cost me 2 grand to take him. This one hopefully will be fuel and tolls and a quick lunch.
The guilt gets me. I try to be the good son but somehow this will bite me in the ass again. The last one the family still wont talk to me. I have no idea what I do other than vote for the other party they dont like. I dont even bring up politics, they do, I try to keep my mouth shut but they take that as a fight when I say nothing.
So in and out as stealthy as I can.
I am sure I will get smacked with the olive branch again....
I cannot imagine doing all the canning you did last weekend, after closing on the house knowing you had a big move and cleaning out a well and long lived in house.
As I mentioned before my mother has always been a priority for me and in my life even when I was not there. So the things I do now I have always been doing. The frustration comes with the belittlement and being excluded from her care and seeing the farce in her care.
Book, Yes, my sister may be avoiding a homeattendant because someone in that house on a daily basis would be a witness to my sister doing nothing. With some real help the dog mess would not be an issue.
That is my frustration, this Family front is bull. If we were pulling together and truly all of us working towards the same goal my mother would be getting better care and home would be in better condition.
So, I find my self in a better place. I know I have to learn to let go. I feel I had every right in my feelings when my property was sabatoged. There is no stove, my mother needs to eat and all I am trying to do is prepare her a decent meal that she will eat. We used to eat turkey wings with greans and macaroni every sunday. I keep it simple, I just want to do something special sometimes especialy when her appetite decreases and she acts out. It was my way to give her special attention. And with all that in my heart, it was very upsetting to have my intentions dismissed by a lie about family concerns. What family?
Anyways I appreciate the feeback I received. it trully helps and was very grounding. This is who I am. I was brainwashed from chidhood to be just who I am. Now I realize this, stepping out of the cast is a difficult process. Which is why I reach out here. And I thank you all for the help.
glad- yep!!! Love the high ceilings
becky - where will jay live? You just remodelled to make a place for him. So much change...
dori - would be great to have your own place. Looks like things are falling into place for you. Watch those twisted sisters and cousins.
madge - how is your mum doing with the reduced dose of risperdal?
Turned into fall here a few days ago. Leaves are starting to turn yellow and it goes down to 40s at night. Love this time of year. I wish the winters weren't so long. I am still off meat so I gave lots from my freezer to my dd as I doubt I am going back to it. "They say" a vegan diet is healthy. I am seriously thinking about getting a cat when I get back from my next trip south mid September. Otherwise it is just plugging away at tossing things, if even a few at a time. I have been having "sweats" which I can't attribute to anything in particular,. My temp is normal and I am well past "that" age and I don't feel sick. I know they can come with CFS/FM. Oh, well!
Take care all - do something good for you!
Dori, thank you. It sounds like you have good plans. I am so happy you and your brother are helping each other, letting bygones be bye bye.
it will be good to have some company in the new house
I’m going all the paperwork and sorting thing too. Never paid much attention to how many “boy toys” PJ accumulated, but I’m finding out now. I knew he was very stable financially, but have found some pleasant surprises.
Glad - yup, that was the anthem of my generation. Lol.
Well, still waiting on an actual date for the memorial, but the ball is rolling. I also bought something called "estate protection," which they didn't have when mom set up her funeral. They will notify all the credit bureaus and send them the death cert. so no one can use mom's name or identity to get credit cards, loans, mortgages, etc. I never even thought of that before, but once I started wondering what mom's TS and my creepy cousin might be capable of (and how many times cousin tried to manipulate mom into co-signing things).....yeah.
Going through papers and files this week - apparently mom had a LOT of money socked away in investments. There's more than enough there that I'm going to talk to my bro about buying him out on mom's apartment. (Her will says everything is to be split equally between him and I.) It is a nice apartment, and you are allowed to rent them out despite the building being strata. I have seen others in the building listed for rent at almost twice what I pay in rent for my place. I know there are taxes and fees and such, but I do think it would help pay my own expenses, plus.....I would own something. Plus I really have no idea what I'm going to do for work now, with my injury. At least if my rent and a couple of bills got paid, I could possibly make up the rest with my artistic endeavours. Plus....yeah, I'd own something.
I’m over my head in moving. Have to be out as early on Friday as possible. Decorator did a wonderful job on window treatments. This was supposed to have been mine and PJ’s dream house, but didn’t turn out quite as planned. But it does have many features I love. Simply getting moved is the biggest issue. Sons and grandsons are a huge help.
My two second cousins are going to staying with me this academic year. They are going to graduate school at the U. They have jobs at the university. I’m helping them out with a place to stay. They’re both good company and PJ and I invited them because we had plenty of room and wanted to help them. They’ve been great at helping me pack.
Maybe that's what they are looking at, too.
As your son says, don't feed it.
Can you see that perhaps someone might think that leaving a crockpot around for your mother to fool with (maybe try to plug in) might be a dangerous thing? And that leaving the meat where she could get at it was also dangerous?
I agree that she needs constant supervision, as in a home attendant. Has your sister applied for Medicaid for her?
Is a home attendant going to report the constant presence of dog urine and feces to her supervisor? Could this be a hold up in getting this process started, in your sister's mind?
I know that you are doing the best that you can.
Thank you Duck, take care of yourself.
I could hear my sister in my nephews response. She is magical and skillful, masterful and deciet and difileing. Just like my mother. I will be so glad when karma comes into town. I am no where near perfect but all I focus on is my mother eating, and trying to keep her area clean. I dont mess with anyone or anyones property although there are times I am highly tempted to just the same as when my mother had more of her senses.
I am hoping to get certified and get a decent enough settlement that I can get a "cottage" somewhere near my son and grands and supplement my little pension and benefits working as long as I am able and get an umpalumpa.
Meanwhile if that doesnt happen then I have to do the best I can with what I have and thrive to make it happen.
I sometimes wonder what it is that draws this type of negativity in my life. This type of sabatoge is not new. Sometimes I see it as spiritual warfare and sometimes I wonder How i got in it.
Please keep me in prayer. I am trusting that the Father will resolve this. I pray regularly for Him to show me what I need to do or how to correct myself. I am sure the answer will seem easy. I dont know where this road with my twisted and her sons is going to lead to. I just pray for justice and all I want is the best for my mother despite her ugiliness and spitefulness towards me before ;her mind got bad.
I look in her eyes as we talk or jive or she asks me a qustion. Deep down I want to ask her if she really knew what she was doing when she lied and did ugly things not just about me. I cant beleive that they truly do not see any wrong in their actions. I just cant understand it.
I wonder if when she looks at me, if she remembers how she was, if she sees the difference in how my sister and I treat her. If she realizes that she set herself and us up for this.
This is why when life feels good, I get scared. When I get a taste of happiness its like something is going to happen. When I am happy I feel like something is wrong. I wish someone could just pour wisdom and understanding in my head.
Thanks for bearing with my drama.
Rays of divine love, peace and happiness to us all.
Its hard to explain this family and allowing myself to be in the mist of the sickness. Sometimes I want to leave, just let it go. I cant leave my mother and my finances are not straight. In a few years I think I will see my way until then I have to try and put up with this so I can save and pay.
I have worked since I was thirteen so SS benefits will be good but cost of living is so high. I do intend to relocate eventually.
Guess What!! The Crockpot Express? I found it this morning in the bathroom on my floor which is dysfunctional. When i moved in my sister locked her bathroom door. This bathroom was filled with junk and dirty with cat litter box sitting right in front of the toilet. Its small. So everytime I took it out my sister put it back. I asked my motherr to lay down the rule to leave it out. It just went in a bitter circle. I was already stessed about my treatment when I moved in so I let it be. I had a pee pot which I was ashamed to mention in these past years which I emptied in that toilet, when I didnt feel like walking two flights down to use bathroom. Which is how I found it this morning. It was a shock to see someone was so vile and spiteful to do this.
I had been speaking to my son and letting him talk to my mother on video when I got in this morning, she was enjoying watching the baby and later the other two when they woke up.
I had to call my son back and he said just dont feed into it. I text my nephew say I found the box in 2nd flor bathroom on top of litter box, (Not to mention that my sister has since left that litter box filled with cat waste in bathroom and bought another one and place it in the back rooom on her floor which is what she should have done when I first moved in.) I text my nephew that the devil is usy and has full reign with people in this family. Sorry to have bothered you. Its crazy. I also texted that its sad. Ma would not be able to carry that box with both hands up 2 flights and place it there.
(In fact when I came in it was obvious she was long busy seasoning the meats with everything she could put her hands on)
So this fool texts me back: .: "The family is actully more concerned about ma's health safety and well being not a crackpot. did ma have her hot cakes sausage and coffee she likes for breakfast or should I stop and get it."
I read this text when I got off train on way to work. I almost blew a fuse. I realize that these things are done just for that purpose.
My nephew dosesnt have a clue. I was grateful that he would ask should he bring breakfasts. And I quickly texted him back asking why is the FAMILY finding it important to manipulate and focus on moving a crock-pot intead and making sure she is fed and in a clean environment. Has the F seen the mold in the shed that is not safe. Did the F address the pest situation. Does the F realize she has dementia and needs a home attendant. If they are so concerned why was something I ordered, so as to inspire her to eat become someones spiteful focus. Does the family notice her eathing habits or the problem with the fridge ( the molding the guyt replaced is falling off again!) Is the jF going to sit and wait for her to trip or fall or get injured before she gets a home attendant. Or sis the F going to continue to be delusional and Poisonous and spiteful.
Then I added When the FAMILY's true priority is Ma then they will leave my S2#$t alone.