
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
*bangs head on steering wheel*
So, it has always been a long and complicated situation. There were times when my brother refused to drive my Parents to a family function, and he would not tell them until the last minute, but they would never really say anything to him, and there were no consequences for his behavior. I think that is why he treats my Mother with a lack of respect, but he expects so much from other people.
No, you absolutely should NOT alter your historical relationship with your grandmother and your father to your mother's world view . You are not your mother. Separate your identities. Adopting your mother's emotions is incredibly unhealthy, it's enmeshment in spades. Sympathising with a person, acknowledging her feelings, is NOT at all the same thing as believing that they are objectively the only correct truth.
My Dad died in 1999. From the next day (I'd been quite close to both parents) I called and/or saw my mother every day unless she was out of the country, right up until the day I moved in with her, before we moved again together with my exSO to our shared house.
So it isn't, believe me, that I somehow "disapprove" of close, supportive mother-daughter relationships, not at all. What pains me, and has done for a while, is how you have seemed to me to be running around the outside of your mother's life looking for a way in. You feel very closely connected with her and what is happening with her; but when it comes to including you in a practical way, the reality is that you are excluded.
It's for perfectly good reasons, actually. Because of distance, age and other physical barriers, you are not on hand to perform the support services your mother needs. Your brother has made other arrangements. They, your mother and brother, have sorted this all out to suit themselves. It's fine.
But having been so closely involved for so long, it is you who seems to be having the real trouble adapting. Is it some residual guilt at having asserted your own family's right to branch out to a different location? - if so, I do kind of suspect it's coming from you, more than from them.
Take another sentence - you say you are the only person your mother can really talk to or complain to.
Well, now. You are the only you. The conversations she has with you are different from those she has with other people. That's simply true.
But that does not mean that you are the only person who can contribute meaning and human contact to her life.
Off on a little flight of fancy... suppose you developed severe laryngitis, or your phone got cut off? Your mother would be fine. She could talk to other people if she wanted to, or not if she didn't. The point is that no material harm would come to her.
Your daily calls to her, I'm sure, are important to her and do benefit her. They could be just a pleasant, healthy habit in her daily routine. But right now they're not, are they? They cause her to ruminate on past injuries. They bore the a** off you, when they don't actually upset you. And they obstruct her interaction with other people: not every relationship has to be permanent, deep or meaningful. Chatting about the weather or the terrible food to her roommate also has value.
"Variety's the very spice of life, that gives it all its savour..."
And you know what else is okay? Feeling dissatisfied. Your mother is a lady of decided opinions. She likes to express them. That's fine! But it doesn't mean that she *needs* someone to bounce her opinions, her complaints, her grievances off. She's entitled to her feelings, and she's entitled to have them whether or not she puts them into words and sticks them in your ear. I wouldn't want to change your mother or any other characterful lady for the world! More power to them, I say. This is ONLY a question of how you respond to her, not of her absolute right to be as she is.
This built up gradually, over years. So, you can equally well water it down gradually, taking your time. You can, for example, make it a rule to cut the conversation short once you've put the world to rights. Or, you can alternate days with marathon phone calls and days when your call is just a quick check up, you have to rush but you'll call her again tomorrow as normal.
What I'd like to know, though, is how you'll be spending the time you save. Because I don't want it to be sitting in a chair worrying about whether you've hurt your mother's feelings by limiting your call to a half hour.
Hang on. He TOLD you you were on duty over Easter? Or you inferred that from his saying that would be away on vacation? He said, or you understood; which.
Ah! You answer my question later on. He told you no such thing, East, did he? He said he would be going away for the holiday. He did NOT say, "so you're dealing with mother."
You conclude: "I have been put in the middle of this craziness."
Again, no such thing. You have been consistently *excluded* by your brother. He does not inform you about your mother's arrangements. He does not list you among people to be contacted. He expects your mother to rely on the services he has set up.
And East, I say this in all kindness and concern: please get help. Anyone who can spend three hours a day on the phone to their mother talking about NOTHING is in a brain fog. Your mother is in rehab, it makes no difference to her whether she's giving you a running commentary or not, and if she isn't on the phone then the staff and the t.v. and her room-mate and sleep will provide her with all the occupation she needs. But you are in your home, with what should be the everyday routine going on around you. One hour would be stretching it; fifteen to thirty minutes should qualify as ample for a morale-boosting, "thinking of you" chat. Three hours and more? Stop it!
It concerns your mother, knowing that if she asks your brother to do anything for her she is taking him away from his work and imposing on him. Well, she IS imposing on him. But if he minded that much, he would increase the range and hours of services. There isn't a problem, or at least not a problem he isn't manifestly handling just fine.
But the point, as far as it concerns you, is that NEITHER your mother nor your brother expects you to carry out any of these tasks.
The way that they have excluded you over all the time you have been posting on this thread has saddened me before. On the occasions when you have tried to help in practical ways, they have, it struck me, been rather impatient and dismissive; and it must be hurtful.
To return to the crazy amount of time you spend on the phone to your mother; I'm not sure of what exactly, but this is symptomatic of something. Three to four hours every day is... dramatically excessive.
What are you doing to take care of yourself emotionally?
dori - that is an amazing email from your bro, amd a real treasure. I can't imagine anything like that from my sister. I hope you are still getting a little respite and relaxation. Your job with mum isn't getting any easier.
glad - hope you get that insurance mess sorted out. I know how it drags on and on. Proof of fraud should help.
moose - I understand. I am the cinderella child too. Stick up for yourself any way you can. It is so demoralising.
trying -good to see you back.
guest -how are things in fil/mil land?
becky - glad you got through surgery and are better
margeaux - good to see you posting and that your mum is doing well. That job is frustrating!!!
sharyn - hope the twins are doing well
Everyone - hi - I am a bit foggy these days, so apologies to anyone I left out.
The good news is that finally my other lens is in so I will get my glasses done next week. It does seem an unreasonably long time. The bad news is that the brand of FM pain meds that I use is not due in till May, and I am running out. One version is due the end of March, but I have had an allergic reaction to everyone I tried before except the one I am on. Hoping that the one that comes in sooner will work for me.
Having a spring CFS/FM flareup and maybe allergy to snow mould. It is the time of year.
Looks like Kelowna is off the books, but R has applied for another one in southern BC. Meanwhile the daily routine grinds on. One more northern winter under my belt.
Take care all.
Maybe you can do something nice for yourself and not consult them for a change? A concert ticket might be unaffordable, but what if one evening when they are there, you just quietly gussy yourself up and walk out the door - don't even tell them where you are going! If they ask, just say, "I'm going out! 'Bye!" And keep moving. Even if you end up sitting in a coffee shop or a library for a few hours. Let them stew.
Margeaux, good head from you. Glad to hear your mom is doing well!
Ali - It's wonderful that you are feeling more hopeful and joyful!! Letting go is the biggest gift we can give ourselves. Your post was a good reminder to me. Thank you.
Margeaux - so good to hear from you. The job situation sounds really frustrating. Particularly since you had to wait two months to qualify for the work! I hope you get another better client soon.
Have a great day all!
Just because your rude sisters treat you like Cinderella, you don't have to follow suit, you know.
Did you fancy the concert? (personally I'd rather take a bath in sick, but that's just me) Next time, say "thanks! I'd love to! Hang on while I get my leather jacket..."
Wait for them to be normal, you'll wait a long time. So you have to fake it for them.
S2 says to S1 as she's leaving: "Call me when Mom wakes up. I'll come by and see if she'll go home with me." [Now, for those you late to this fiasco, I'm Mom's live-in caregiver and have been away from home doing so for a year.] S1 says, "I'm not spending the night." As S2 leaves the house, she repeats to S1: "Call me when Mom wakes up."
Ali! Terrific, about time.
And you all may remember the fraud of a contractor depositing a check that was made to me AND them for mitigation work after the fire. Well the first check I hung onto trying to get them to cover cost of broken items. They would not tell me their insurance carrier for a liability claim. The first check went stale. Insurance company reissued it then mailed to the company instead of me. Company wanted me to come by the office to endorse. Again, I told them sure once I was told how to file a claim for broken items. Then did not hear anything until asking the agent if that check made out to me AND them had cleared. It had. That was about a year and a half ago. I worked with insurance company to try to get them to process a claim on the bank for a forged check. It finally happened. I received notification from the mitigation company that if I do not pay that Bill they will turn me in to collections.
I now will contact the sheriff to report the forgery and see what they have to say about that. Part of me just wants this to go away. But, the owner of the company is a complete a##!
It's been awhile since I've posted. I hope many of you who I've known here for several years are doing well.
Well a lot has happened in my life since a couple months ago. Remember I once posted about a sweet lady neighbor, I used to help out, as her family was completely unconcerned about her, passed away during November. Poor darling she had a variety of ailments, cancer survivor, but that came back. I really miss her, since she lived right next door and I'd been friends with her about 10 yrs. now.
I'm still working part time doing inspections of acupuncture clinics, which thank the cosmos, the main office has been calling me more as of late. Then back in October, a lady I know who has an autistic grown adult son, 23 yrs., old asked whether I'd be interested in becoming his provider. So I started that process, the application, then nowadays one needs to be fingerprinted, pass a background check, etc. Well that whole process took like two months to actually complete, the bureaucracy for this IHSS is so convoluted and slow, WOW!! Anyway, finally I started to work some hours w/this woman and her son. She has a ton of problems all having to do w/waiting on her deceased mother's trust. The mother died a year ago. The lady's two older sisters are in charge of the trust & giving this woman (their youngest sister) a horrible time, putting all the obstacles out front so that she can get her money. Of course this affects the way she operates, as she is depressed.
As it relates to me......I'm supposed to help her out w/errands and some light cleaning around her apartment. Now, of course there are other chores CG's can do like laundry, meal prep etc. However, given that this involves an autistic young man, she prefers to do those chores for the son, which I'm o.k., with. However, this means there's actually less things for me to do as a CG. Anyway, then this lady isn't very assertive, nor organized. I literally had to be the one contacting her to ask her what she had for me to do, and when to go to her house etc. Her kitchen for example was a complete mess. She is one of these people who lets the dishes pile up in the kitchen.
So I finally told her, "Well, you have dishes in your sink, I can do that." O.K., so finally I had something constructive to do, and be able to rack up some hours. Another time,
she mentioned I clean her fridge. So another day I spent about 4 hrs. doing that. Anyway, it was becoming completely frustrating for me, since it has become like I have to push the issue of hours worked, since DPSS gives them 44 hrs. p/mo. By week #3 having to work with someone like this, I was becoming completely frustrated about this. Well at the end of the month she now informs me that her son got booted off of Medi-Cal. Now to receive IHSS, one needs to be inscribed in Medi-Cal. So I basically charged for my hours worked during January. At this point I'm not so sure I'll be able to continue to work for this particular client. She almost behaves as if my working for her isn't that necessary, if you really ask me. Rather weird, since she's the one who asked me to become their provider. Anyway, she's trying to get the Medi-Cal going again, and we'll see.
Other than that mother is still with us, thank the cosmos! She went to the doctor a week ago, and my sis says they informed her that for a 96 yr. old she's doing pretty good, the vitals are in good shape.
Much Love & Light! Margeaux
Well that's super good news to hear from you, that finally a trust appears to be getting sorted out? I sure hope so, as its been a long time coming for you. It sounds as if lots of things have changed for the good in your life, which you deserve. Sometimes we do have to look at the bigger picture in it all, and maybe for you it would be beneficial to let it go. Hey....of course that is entirely up to you. Anyway you sound good.
Much Love & Light! Margeaux
This could be it if I'll let it be. I think I will. I'm done. Time to move on. I'm finding more strength and simple joy every day right now. My fitness trainer comes in morning a few times a week, I'm slowly going to get stronger, the landlord replaced valve in radiator that banged so I'm hoping I won't be waking up several times a night. Things could really start to even out into a Normal Life pattern for me, and I'm already on that path, just need to continue. I need that to happen. So then... it's over. I'll always have regrets for my grandmother and what she dealt with, I'll always know it was unfair and unjust how her money caused so many problems for her and her family... but it's done and over and I can't change any of it.
Becky, Sharyn and glad - I definitely won't delete that! It's possibly the nicest thing my brother has ever said to me. And he was pretty hurt when mom decided to move here, so this is an extra big leap for him.
Really... no matter what their choice is here in this matter, I do feel that it would be morally right to contact the local probate watchdog groups and just add my story to theirs. This is not first time this Trust has been accused of inappropriate and hurtful actions against individuals and families. I don't know, though. I'm doing ok in my new life, staying busy with work, still have some big health hurdles to try to get past... I'm in no place to be taking on the stress of revisiting any of that... but I also feel my grandmother deserves a voice, deserves that I put it on record about what happened to her using her own money.
The more time that passes, the more I think to just let it all go. Certainly feels better to just not think about it. The effects of the stress on me are all but done. I'm so, so glad.
Basically I just laid all the facts out - mom's condition, what the doctors say, what the palliative program is and means, what home support is providing, what hospice care will look like, etc. - basically all the decisions I've made without him! - and tried not to be pushy about it when I suggested if he wants to visit, now is the time.
Among the other things he wrote back, he said (it took me till the tenth time reading this before I started to well up, like it was unreal or something), "I should let you know I think you're doing an amazing job & that the decisions you are making are definitely the right ones. Mom knew what she was doing when she moved close to you, we all have our strengths & your abilities in this situation far exceed mine." I never thought I'd hear him say that!
He says he is planning to come up at Easter, roads permitting. Which is what I was hoping he'd say.
I feel like throwing confetti in the air. I don't know what I expected, really, but I feel like it's a huge breakthrough in our relationship....and that I've actually been judged as capable and competent, for the first time in my life, by the harshest critic I've ever known. Hence the confetti, even at a time like this.
Just did not make sense to buy a built house. Same money would have bought a 70's era home that has not been maintained or updated. Then another 100k or more to get the home where I would want it. Sooooo, here I go.