
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
I work with a woman whose elderly Mom lives with her. She goes on and on about how close they are and how much she adores her mother. Another co-worker lost her Dad a couple years ago and tears up every time she talks about him. Apparently he was the sweetest man alive and she was his darling daughter.
Don't get me wrong. I'm happy for these people but the concept of loving, supportive parents is totally alien to me. It's story book stuff and nothing like my own life. I made the mistake once of telling my co-worker, who is besties with her Mom, that I limit my caretaking to one day a week and she looked at me like I was a monster. Ugh... needless to say I keep to myself on that subject now.
On a brighter note TGIF! I am soooo glad it's Friday!
Another thing I'm grateful for is....if I hadn't experienced the crazy side of my mother again, I would have blamed only my father for the rest of my life, for the violence in our home. At least now he gets some rehabilitation in my head.
I'm going to try and get a bit more sleep before the next round of crazy. Thanks all for being there at....jeez, it's 4:15 in the morning here.
You are probably an empathic, loving person who merged with the life force of your mother, and are exhausted and fighting for your own life force. You may also be experiencing the full, raw, irreversible gamut of letting go. Your body is hyper mobilized, your brain is firing hard and it seems to me quite normal and ok to find oxygen, space, and take care of yourself. You've done so well for your mother, and she is in good hands. You are doing what it takes to keep your strength up, and I hope you can hold onto knowing that.
That was 44 years ago and I don't suppose she's forgotten it any more than I have. I have never in my life wailed internally more for anyone.
This almost seems like a cakewalk by comparison.
Tinnitus, though....that would be a serious barrier to pulling off a successful Joni Mitchell tribute. ;-)
And to be honest, a huge part of me is secretly grateful that there's an end in sight now.
At least I can blame menopause on my inability to sleep more than 3 or 4 hours at a time. Right?
In the middle of my sh***y life (no pun intended), I decided this week that I need to do a Songs of Joni Mitchell show this summer. God knows how I'm going to pull it off, but I'll be d***ed if I'm going to let my mother suck every last bit of life out of me.
You're digesting terminal news about your mother. You're fielding calls, visits and input left right and centre. You're *thrilled* that you get a whole eight hours' break a week. You're excited and delighted that you can get adult diapers delivered. Your mother, meanwhile, continues to present you with all of the historical and current issues that were already there.
But, yeah, could be the menopause...
Well, I found out I get 2 4-hour blocks of respite, not 3-hour blocks. Yay! I changed the time so I can get the cheap rate at the swimming pool. Now it's set in stone. I will have to make myself get up and go exercise, lol. But I'm excited about going, too. I always feel better when I'm active. Plus...it's just time OUT. Social time, too, when BFF can come.
I'm kind of all over the map today, emotionally. Met with the occupational therapist and talking about getting a wheelchair and a transfer lift nearly made me cry. Not because we'll need them (the home support workers require them under occupational health and safety rules), but because of how SOON we'll probably need them. I realized that I've lost track of how fast time can go by. Saved my crying till after she left though.
Having a giant box of Depends and wipes delivered to my door from Amazon made me happy too. What a weird thing to make someone happy! But it WAS nice to sit on my bed and order them on my laptop, and have them show up 2 days later - not to have to go out and troop through the slush and snow, stand in line at the store....I do love the 21st century. Plus....holy sh** (no pun intended), Depends are way cheaper on Amazon.
Must be the menopause. I really am all over the map.
Tomorrow the area nurse is coming over in the morning, then she and the occupational therapist will work on the palliative care plan some more. But the plan started today. Still one more visit from home support this evening. (Mom was asleep at suppertime and I let her sleep....just meeting with the occupational therapist wore her out.)
I'm really sorrowful that we're at this place, because it means my mother really is dying. But I'm really happy that I'm getting more help and some break time, because I need to get away from her and not be her everything like she wants me to. Is that weird? Terrible?
Trying - I hope so too! Plus winters are hard here, sometimes even moreso. Ask golden about that, lol!
50sChild - Well anyway, now I have researched all the details about permanent residency and accessing health care in Canada, if you decide to make the great border crossing, lol!
So.....I am going to get 2 3-hour blocks of respite per week, on Tuesday and Thursday afternoon. I was hoping for weekends! Plus she's usually sleeping in the afternoons. But I'll take what I can get....and when mom gets worse and absolutely must have someone here 24/7, then it's in place. I actually think I will take the opportunity to go swimming....I've been bemoaning the fact that things have been too unpredictable to plan trips to the pool with BFF. I haven't been since June! And it's the one exercise I can do without pain from my stupid leg and hip.
Then we get the same 2 blocks of personal care and meal service for dialysis days, plus on the other days, they'll come at suppertime and at around 9:30 pm....that's the latest they go. Also now that it's free, it will free up almost $500 a month that I can maybe use to pay for some weekend respite.
Mom didn't want to get up and go to dialysis today. I kind of let her off the hook, if she promised to go Friday, and also to let home support give her a bed bath and a change this morning, plus she agreed to get up at 6 and have an Ensure shake when they come back. (We'll see if she follows through on that last one.)
I am so unbelievably relieved to be getting some extra help. I didn't really realize HOW exhausted I am till this week when the plan started clicking into place. Now I'm moving in slow-mo and my limbs feel like lead weights.
Dori, with your mom’s issues, I don’t know if she can take the stimulant. Her dr can advise you.
I know how you feel about your mom not eating. My mom didn't even get up today, not even for crackers. (((((hugs)))))
I hope you all are well. I certainly appreciate all the feedback and understanding. Sometimes its so darn hard, sometimes to have to deal with foolish selfrighteous people who need helmets cause dang if they get what they think is a ball they just run and dont see the wall getting closer.
I extended rays of light and love and peace to you all!! Smile!! Smile!!! Smile!!! its contagious.
Ontario:
ontario.ca/page/apply-ohip-and-get-health-card
Also Quebec:
ramq.gouv.qc.ca/en/citizens/health-insurance/registration/Pages/eligibility.aspx
Edited to add: all these policies talk about a 3 month wait till your health care kicks in....that's true of every province, as your old province is supposed to cover you for those 3 months. I remember that from when I moved to Alberta. So yeah, you'd definitely need temporary coverage for that time period, though you still can get emergency services without. Maybe I'm missing some crucial piece of documentation that says you don't qualify anyway, but I can't see it anywhere....?
Edited again: does your friend maybe get extended medical through her husband? That's w0uld be our medications, dental care, and stuff. Not everyone has extended medical, as it's through private insurers.
Here, I just found the policy:
www2.gov.bc.ca/gov/content/health/health-drug-coverage/msp/bc-residents/eligibility-and-enrolment/are-you-eligible
Vancouver is dreadfully expensive also.
I like your dad's story!