
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Echo.
"They also serve who only stand and wait."
The poem: They also serve who only stand and wait definition. The last line of the poem “On His Blindness,” by John Milton. The poet reflects that he has a place in God's world despite his disability. The New Dictionary of Cultural Literacy, Third Edition. Copyright © 2005 by Houghton Mifflin Company.
Thank you for standing by your friend.
Becky just being there is a lot.
Been around too many sick people, woke up with sore throat, ugh! At least I have early shift today.
Storm is just beginning. Five to ten inches by this afternoon is forecast. Now it is like sleet, the roads will be a mess until snow covers them. But then the ice beneath. I am still in bed, actually slept eight hours last night. I NEVER do that, feels good. Feeling lazy watching news and weather. Let it snow, let it snow, let it snow! Chili fixins later. Mmmmm.
Least I can do, really.
Becky, I'm sorry Pam is doing so poorly. Sending lots of healing energy your/her way.
Well, my girlcat, who has lived here 11 years of her life, was/is ECSTATIC to be home. She's spent the last 28 hours re-claiming all her old napping spots. And the boykitten spent all last evening sniffing so many things I thought he might pop! Lol. I just sat around and relaxed last night. Slept about 11 hours, which is surprising 'cause my old bed is so lumpy (I forgot!), and woke to my lovely golden southern light (mom faces east - not the same!). Maybe I slept so long just 'cause it's so durned quiet here.
Went over to mom's and everything was FINE. Thank goodness. Except she was confused about what day it was, and was a bit lonely - not just for me, but also for the cats. I took her a box of Timbits, gave her her meds, made her a cup of tea and a snack tray, and set her up with Anne (of Green Gables - the new one) on Netflix. Stayed just over an hour and promised that all 3 of us would be back tomorrow evening.
Been re-watching The Handmaid's Tale since I got back from mom's. I am still on Sudafed under doc's orders, so I took some of that lovely red wine and made beef stroganoff tonight. All just for me! My friend left my kitchen so clean and shiny, it's hard to even believe he's a man sometimes! Lol, that's sexist, I know. But honestly....even the burner rings on the stove are gleaming! Plus....I think that Sudafed might finally be working! I felt a little pop in my ear a couple of hours ago, anyway.
Lumpy bed and all, I really needed this. And with any luck, I can spend my weekends at home more often. For awhile anyway.
Hope you all have a good night!
book - a hobby is a good idea for duck.
cm - "It is abuse even if it is unintentional."That kind of tweaks the conscience doesn't it. What do they say? "Ignorance is bliss." I guess you have to go with where your mind and heart takes you. I applaud you for caring.
glad - yay for you - a snow storm. Here they come all too often.
sharyn -You made a good decision for yourself. Parents do affect us very negatively sometimes. Very sad about that young man. I hope he breaks away from their control.
madge - how is the Viking? Hope the antibiotics are helping.
Had a little recurrence of that flu, but not bad, thankfully. Husband of a cousin of R's died. Funeral was yesterday in the same chapel as his parents, and he felt it, but is doing well. The man was younger than me, and not that much older than R. Makes you realise you better get onto your bucket list, as you are becoming the older generation. He has one uncle left (much younger than R's dad) and I, of course, have mother.
Have a good night everyone.
Hope Pam can rest a bit - you and Jay are her Angels
I work with a 21 year old man who has lived a very sheltered life. His parents will not let go, continue to control his life and decisions. As a result, he spent s his free time gaming on line, hates his job and wants to try to be a voice actor. His parents do not approve so he stay in a job he doesn’t want to do forever. He can’t grow up because of his family. Another twist of how parents can stunt their children into adulthood.
CM, following through with inquiries re your neighbor is good. Just be careful as I know you are and will be.
Becky, I hope Pam is breathing better. She is probably wore out from visits, necessary goodbyes are so hard on everyone. You are a great organizer and facilitator for her. Glad you are there.
Glad, enjoy the snow! We are only getting rain now. I was hoping for more snow.
I know D also wants to find a good firm to sell the house, plus deep-cleaners, removers, possibly auctioneers and valuers, and having been through all this two years ago I can certainly tell her who to avoid locally! The house is a modern bungalow, not my thing at all, but big and well-built and its value should keep J ticking over nicely for some time.
Holding out a hand was why I sent her an update email, and I admit I was a bit disappointed that her response was so guarded. The poor woman is probably short of time and stressed out anyway, I'll keep waving. But also we do just all have to make our own mistakes, don't we? I know that too. If she thinks I've been meddling, or it comes to her ears that I actually have been (not very much!), I'll just suck it up. I'm not doing it for thanks or fun.
Book I'm glad it's not just me who changes the rules if I don't like the coin-toss! That was pretty much what I was doing all afternoon yesterday :) Then I saw this line on the social services' reporting page, in bold: "It is abuse even if it is unintentional."
That, and the thought that they might cheerfully go ahead with J's mental capacity assessment without first checking that she's not off her face on opiates.
I have no advise if you should or not inject yourself into this. It's darn if you and darn if you don't. Maybe flip a coin. While it's flipping, what are you hoping the answer be? Head for yes? or Tail for no? If you aren't wishing for it by the time it lands, then go with the flip. But if it shows Head, and deep down you were hoping it was Tail, then there's your answer. Tails... I hope that wasn't confusing...
If they see you all the time on the internet, I would also automatically sign out of here every time you put down your device (mobile, tablet, laptop...) If I was unscrupulous, I would be dying to see what your doing. Then, when I know this website, I'll just sign up and see what you're 'blabbing' to the world about us. I'll use this as ammunition towards you.
I think you also need to have a hobby. Something that will give you a peace of mind. Of course, when I first found this site, I was hooked on it for hours. It basically pushed out my joy of reading books. I still kept buying books on sales but I never had time to read it - because I was always here online. I did hang on to the very few favorite authors that I love to re-read their series. Lighthearted mysteries with lots of humor and paranormal occurrences (of course!)
Kudos to PJ. He worked all day on cleaning the garage. He took 8 loads of stuff to the town dump. Plus he let some people come by and pick up some things. Boys carried down a lot from the attic. I had one of the girls unload some cabinets in the dining room. Built-ins that were packed full. Glassware that came from his ex-wife's family in Indiana. She left it all when she left 30 years ago. PJ said he kept it because he thought some of her kids might want it, but that never happened. I hope we can keep the momentum going. One good day out of what needs to be 20 days of cleaning.
duck - the point about taking the high road is that you don't retaliate. You can't control your sis's behaviour or your mum's - only your own. I think you are a better person than they are, so don't sink to their level and relaliate. Yes, these things wear you down, so you have to find some things that build you up. If you need to stay in your room for some peace, do that. Your sis is responsible for your mum's safety, you are not. Let the guilt go. Do some good things for you - whatever they are. You are entitled to treat yourself and look after yourself, even in the midst of chaos and maybe it is more important then. Don't rely on booze too much. Find things, even small and inexpensive things that make you feel good. You got yourself a new wig and you look younger -Great!!! Way to go! Do more like that for you! And reading scripture is always good. God wants us to love others as we love ourselves, Often we have to earn to love ourselves first.
dori - so happy for your excitement at going home. Your mum has Alz so don't expect her to understand you too much. I love the description of where your place is - trees, critters, on a river -sounds like heaven to me. I want to wake up to birds singing... I am an introvert too, so I know that being alone is what you need.
cm - I agree, tread very lightly. Not that you ever said anything to your mother that you wished you could have taken back. I am sure we all have. You have quoted a number of perceptions by J, which are undoubtedly off, If 60K is missing, you can't fix it. It will probably come out in the wash, Mother had many accusations at one stage, much money missing which I later found out she had withdrawn and then redeposited later. I am sure she told people I was abusive - not so, but...
Weather is holding decently these days. Now if I could get some energy to go out and do things. I am making up for that by tackling mothers paperwork. I want it in pristine shape and that is going to take some doing, but I have made a good start. Then there is filing the yet ongoing insurance claim - the dispute. And making sure we have all our ducks in a row for the soda incident. We are also starting to accumulate paper re real estate transactions. Way too much paperwork for me!
I have decided to make a raspberry coulis for the almond butter, pumpkin brownies and top that with a dollop of whipped cream for R. I think he will like it. A sprinkle of chopped walnuts would be good too.
I hope J's medication has been checked, it's been adjusted as far as it can be, everything's been done and signed off. I hope D has registered her POA(s) and taken legal advice and filed every single piece of paper. Good! No problem, then.
I'm not accusing, I'm asking. Because if nobody ever asks, what's to stop abuse?
Daughter hasn't previously been much involved in her care - I'm sure not through choice, I'm not blaming her for any of this. How can you take care of someone if she doesn't want you to and her husband backs her up? But all the same, it's a steep learning curve and it worries me that she doesn't seem to realise that. E.g. if she really has taken £60K out of her mother's bank account and didn't realise she could be asked to account for it all... what if it's too late and she can't, exactly?
Could leave some helpful leaflets about various subjects lying casually about..?
What got up my nose was my SIL contradicting not just me, but the GP, the cardiologists, the psychiatric team... all on the basis of her experience as a community dietitian but without ever going to the trouble of reading mother's notes or asking any questions. She had a theory about being "too close" to the situation. I know ignorance is bliss and all that but I'm not sure it's the very best approach to medical care... I hope this isn't quite the same!