
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
I did say exactly that to Daughter - remember only too well how stressful and thankless this can be, do let me know, Mum is clearly jumbling some recollections (sounds better than "I know you weren't sleeping with your stepdad," I thought). In her shoes I expect I would want everyone to sod off out of the way and just let me get my mother locked up. I wouldn't blame her for a second.
Golden Boy was over for a long visit, two or three months, with his wife, a few years back. J couldn't wait to see the back of them after a couple of weeks! - but oh doesn't absence make the heart grow fonder, not to mention his having nothing to do with insisting on care J doesn't want to need.
Some progress this afternoon, after I'd dithered for another two hours. The hospital safeguarding team isn't in the same office - phew! - and one of them is going to pop up to the ward and do a medication check. Brilliant, just what I'd hoped.
With luck that might lead to J's mental state improving, or at least being better understood, so that her more terrifying accusations stop and anything she's still unhappy about can be handled much more easily and calmly. The hospital team advised me that financial abuse and verbal/emotional abuse concerns have to go back - groan - to the main social services team. So I'll see what if anything is new by Monday, and hold my horses 'til then.
Now back to fond recollections of how I pinched mother's arm, pushed her over on concrete steps, hated her cuddly penguin (I did, actually. What about it?) and left her alone and unfed in an unlit room for days on end.
Droning girl on the line at Adult Safeguarding said I'd need to go through the hospital team.
Yeah, that would make sense. Except that the hospital's "Safeguarding Team", I suspect, is the lady who sits next to my volunteer co-ordinator in the office next to the main reception desk. And I think she already thinks I'm quite noisy.
Awkward.
Could fill in a form and drop it off anonymously, though...
Might do that instead.
I picked up the family and dropped them at Pam's. She was up and dressed. They were going to go to the dining room for their breakfast. We asked if she wanted us to call down and have delivered, but she said no she wanted to go down. The respiratory therapist had given her a breathing treatment which always helps. Sometimes I get too overprotective. But, mostly I try to let her do what she feels like doing. Her nurses are working out well. They keep very good records of what they have done and her status.
Today PJ and I are working on cleaning out more of the "stuff". He went to the town dump at 7:00 and is loading up for another run. One of his sons is supposed to come clean out some of his things in the attic. I'm going to work on his daughter's things. He says all of her toys will still be in the boxes. He said they used to buy her girl toys, but she only played with her brothers sports equipment. I mentioned that to my son. He laughed and said "yep, she beat the sh-- out of me with a hockey stick when I called her "Too Tall" in 10th grade". Cleaning out her things will be hard on PJ.
Everyone have a nice day.
Ugh. Help, please! Been chewing my nails all morning and I'm no further forward.
J is in her late eighties. Love her to bits, she's a colourful lady and a hoot and was a good neighbour to us as far as she was able.
She married her third husband in 2010 or so. She battled through a dreadful hip replacement, roundly blaming the surgeons for it (she didn't have any bone to speak of. She must have been a nightmare for them), and recovered well enough to be mobile with a walking frame. In c. 2015 her chronic heart disease took a downturn, with chest infections and loss of heart function, but she was still very much with us. Her husband was her primary caregiver, with good support from visiting nurses; but he was pretty resistant to any other help, refused to stop driving in spite of accidents and J's concerns and neighbours' concerns, and nobody was very confident that he was really coping. Died just before Christmas of leukaemia before he could kill anyone, though. I'd moved away in 2016 and didn't feel welcome (on his part) when I visited or called.
Daughter stepped in and placed J in temporary care, no real option but to do that, fair enough; but the care home wasn't up to the job and J has landed in hospital. Is now doing well. Daughter has found a NH place nearer her own home, plans to sell J's house, make the move permanent.
I've contacted the Office of the Public Guardian requesting a register search. In a week or two, they will let me know whether or not Daughter has Enduring Power of Attorney for her mother, what sort, and if it's been registered (which would mean that J is considered legally incompetent).
But J is in hospital *now*, and care plans are being developed *now*, and I don't think Daughter is getting things quite right.
I'm completely sympathetic to Daughter. Wouldn't we all be? Your mother hates you, she's making wild accusations, she's also making credible accusations, and all you're trying to do is make her life manageable for everyone and keep her safe.
There are three children. Golden boy M is in Australia, rumoured to be planning to visit. Baby daughter L has multiple sclerosis (the put you in a wheelchair type) and is therefore, fair enough, protected and cosseted somewhat. That leaves Daughter D to be the practical one, the worker, who also has to make the hard decisions and take the flak for it. Would you blame her if D had sometimes boiled over about this and said things she'd probably like to take back? I wouldn't. But it does mean that J's claims of verbal abuse are uncomfortably credible.
J's claim that she discovered 3rd husband and D in bed together... not so credible. Neither is her belief that the non-hip replacement leg hurts because she got hit by shrapnel in the NH. But I think that might have more to do with a separate concern, that J's pain relief isn't being monitored. Her kidney function suffered in the NH, poorly kidneys mean codeine isn't metabolised right, if she's on the same px... Somebody needs to *ask*.
D. is pushing a vascular dementia diagnosis. I expect it would be a great relief to her if that could be blamed for everything. It could even be that her EPA depends on it. I would be surprised if J didn't have *some* vascular dementia; but I really don't think it's that simple.
I emailed an update to D including that J is having some kind of mild visual hallucinations - she mistook the curtain hooks for medication dispensers, asked me to pass her a small green handbag that wasn't there, that kind of thing. No biggie, just wants checking out. D replied that her mother wouldn't wear her glasses. Er... I don't think she's quite getting this.
And I don't know if D is aware of what J is telling people. Or how, in the wrong ears, this could rebound on her.
D. is a capable, business-like woman. Capable people don't like asking for help, or admitting that there are things they don't know about. They certainly don't like, who does, confiding in strangers that they feel like a five year old whose mother blames them for everything.
I spoke to a lovely lady on an advice line. She said I should call Social Services and ask them to check that all is as it should be.
Yes? No?
Sharyn - that's so sad about the fire, and with a new baby! Hope your neighbours are managing ok now. GoFundMes are awesome.
golden - I actually have been thinking about going to talk to the doc about mom for awhile now, before I was even staying here. But with our doctor shortage, she's always sooooo busy (5500 patients!). So I'm glad she is the one who brought it up. I'll pop in next week and arrange an appointment.
Becky - That IS amazing about your cousin's sewing skills! We had a family friend when I was younger, who was also blind, who did the most intricate and amazing macrame. I guess maybe one's fingers must become super sensitive when one can't see?
Duck - that wig sounds awesome! I always go through these stages where I long for short hair, but I don't think it would suit me at all. And that song, Downtown! I love it! I learned to play it a few years ago! Our business association pays musicians to perform live music on the streets downtown, during summer....so I learned at as kind of my "love song" to our lovely little downtown, lol. I especially love the part of the song that builds up and "lifts" right before the chorus....it's very fun to sing! "The lights are much brighter there....you can forget all your troubles, forget all your cares....and go DOWN-TOWN!"
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Edit: I should've split this post in 2 - it's so long!
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You guys, I am SO excited about going home tomorrow evening! My spirits are lifting already. Even the cats are picking up on my energy and are being more lovey-dovey than usual. I can't wait for my kitten to spend a night or two in our REAL home! He's only even seen it once, when I was visiting my subletting friend.
I've prepared a bunch of snacks for mom that she can just pull out of the fridge and eat - though she'll probably just keep eating Ritz crackers. Whatever. I've done my due diligence! I'll do some shopping tomorrow while mom's at dialysis, because there will be nothing to eat at my apartment. I also belatedly remembered to pack up the alcohol....I hardly ever drink! Basically 2 bottles of wine and a bottle of medicinal Jagermeister (the singer's friend). I'm not taking it to drink, but with mom's dementia....the last thing I want is for her to find the booze and start drinking after 30 years of sobriety!
Seven months. I can't believe I've been away from my home for 7 months. I spent 3 weeks in Ottawa for work once, and I thought I was going to lose my mind. Of course, that was partly because I was away from my beloved city and my beautiful province, too, which is part of what I consider "home." But honestly, it's been sooooo bloody hard not being in my safe little apartment for this long. It's probably 3/4 of the resentment I feel for my mother right now.
Mom doesn't really get it. When I told her, she said, "What, are you sick of being around me already?" I called her out on trying to make me feel guilty about this. And I said, "When have you EVER been away from your own home for 7 months?" Silence. I realized she's never even given it a second thought, what it must be like for me to not be in my own home....she, of all people, who resists even overnight hospital stays because she'd rather be home! Grrr. She said she was trying to make a joke, but it's not the first time she's implied I don't want to be around her. Which, ok, it's partly true, but largely because I don't want to be around ANY human being 24/7. I'm unmarried and childless at 49 for a REASON.
(Edit: also one time when I said I missed home, she expressed real surprised, in a way that suggested, "How could you possibly miss that little dump when you get to be here, in this classy new, modern building?" An attitude which I still resent. Also it's not a dump, it's just older, like 1960s. Also, HI, I live on the RIVER. Surrounded by, you know, NATURE. Trees and bushes and grass, song birds, woodpeckers, ducks, geese, beavers, chirping crickets, tiny little bats, jumping fish, fishing eagles....I'll take that any day over your ugly shopping mall view and traffic noise!)
Anyway. This feels like a great big Christmas present to myself. Fingers crossed that mom manages ok on her own, or it'll be a long time before I'll get to stay at home again.....
Remember the song "Downtown" things wil get better when youre downtown!. I feel you about feeling like you are that same little girl.
Becky, I am so glad that you are surrounded by loving supportive people and you all seem to have the same vive. I think it so lovely spending calm bonding quite time with Pam and the family.
Ali, I am begining to feel like my melatonin has stopped working for me. Your post on whats for dinner sounded lovely. Turkey wings are the best , when I had oven on I cooked baby turkey wings every week. In high school my father would call and tell me to take the wings out put them in the oven with some cream of chicken soup a little salt/pepper and put them on low. He had like an 1.5 hour drive home. I fell in love with cooking them. Hope all is going well with new job and new place. You are a trooper.
Golden, Your advice about the highroad kept ringing in my head the past few days. Especially when I find that my son's military picture was taken down off the wall also and graduation pictures of me him and my mother that were in frames. I wanted to go on a rampage just noticed them yesterday. What I realize is that my mother has taken all the pictures off tv, shelves etc. and packed in shopping cart. Like a entire family and friend history exhibit. I guess my twisted figured I took them. My mother doesnt bother the things on the walls. I just noticed they were gone. Its frustrating because this is how my childhood was. Im feeling that same pent up frustration at how she got away with so much wrong without correction. Once I broke the toilet throwing some object back at my sister. I threw it back so hard it broke the toilet . Lucky I missed her. Then now Im scared I will get in trouble. I dont even remeber anything being said about it. She just got away with every thing and here I am 57years old still dealing with something that was never adresssed. How do you retaliate. That high road is a tough road to follow. I cant wait for therapy. The other venting is that things like this picture thing take a toll on my mental even though I dont notice. It wears me down. I got off tues morn and I just felt burnt. I couldnt deal with my mother and avoided going downstairs. I did this when she was more lucid and rancid. I normally just answer questions with fake answers and just go along and laugh and so on but I felt tight tues so I stayed upstairs and then I felt guilty and then I thought about AC and that it was okay to do me. Wednesday I came down and cooked and found the pidture issue. I threw out some junk from the carts and did a little damage control. The dog had peed up the hallway then do do'd the usual. I think its so unfair my twisted does not lift a finger down there. And my mother has started unpluggin the fridge again. Not to mention it has become a mess a gain. My cousin came by I told him he left a mess here. He took the casserole dish totake his food home. I can hardly find any of my pots or pans I use anywhere. and I need certain flat ones to use in the Coven. I made ribs and bbq wings they were delicious. I am burning out, feeling guilty, feeling frustrated, and I am not accomplishing small goals and I dont care and then I beat myself up.
I havent heard further about therpy I am still waiting. Dreamt I spoke with the phone conselor and she was telling me They would basically actually pay most of it. Its two different programs under the department of aging.
I cannot say enough, how much being in this forum has help me. I have learned so much about aging, life, myself, psych. Im not on line and I try to keep up. But the exchange means so much and helps me.
I feel like a the little girl I was. I see there are so many things that I have to relearn. I withheld my natural instincts because i would get in trouble or do something crazy. Thats a whole other story. But I realize that I am wide open to be bated that I need to let go of a lot of things and stope giving power to the nasty ugly things. When I was younger I turned to God. I would tell my self what would Jesus do or what would God want me to do as I played my role as cindrella. I didnt have anyone to say that it was wrong, I dont now. Im not going to take it anymore I just have to learn how?????
I think you should really focus on you and your health and your family. Its hard, there is the guilt trip we have been subtly brainwashed with by narcissistic parent/s. So we get caught up in a revolving circle of emotional strain and stress trying to do what we know is right and trying not to let the past uglies aned pain make us bitter. Basically the same issues we have had but on the shots the atheletes take.
I wish you the best n this journey. You are in the right place there is a wealth of experience and wisdom here. It has helped me find my way and keep my sanity. Keep venting.
Golden, Your right it's a LOT of grading. They have to have a weekly reading/writing assignment, plus a term paper due at the end of the semester.
I've worked on filing Pam's first long term care claim. Claims for nurses have to be done as soon as I pay the weekly bill to the agency. Didn't seem complicated. I followed the instructions and scanned in a copy of the bill and payment check. Have to wait and see what happens next. The claim instructions say they will issue payment within 10 days of receipt.
becky -that's what I thought. The 8 is too fancy for me. Woah, that's a lot of grading. Bet the graduate classes are nicer. Glad you have an assistant. Hope Pam has a good visit with family. Sounds like she is holding up well now. Bunch of bakers. eh? Bet the boys love that.
dori - glad your (and mum's) doc is concerned about you too. She may have some good suggestions for the future. Anything you can do for you is good. I think being more centered around your own place will help. ((((hugs))))
sharyn - that is so sad about the young family and the fire. Insurance cos are cooperative sometimes, and sometimes not. I hope they are this time. The good news is that no one was hurt.
middle - what a story!!! and what great success extricating yourself from it and getting healthy and bringing up healthy kids. You have two very unhealthy situations to deal with, and I gather your main concern, other than for yourself, is for your mum, and the lack of sanitation at your dads. Also, as her POA, you are concerned about abuse of your mother's finances, but have a degree of control over it.
In my view, Barb and Veronica have given good advice . I think APS would act on your dad's situation. I sense you are somewhat reluctant to upset the applecart for your mum. You and your own family have to be a priority, and you have to be careful, when dealing with so much "crazy", not to get sucked in.
Is there any chance your mother will need medicaid, and the money your step dad is using could jeopardize that? Might be worth checking that out. Otherwise boundaries, boundaries, boundaries, and being very realistic about your priorities. I would have a concern about your step dad's nastiness coming out at your mum. That is abusive. She is a vulnerable senior and may need protection. Your local Agency for Aging and Social Services may have some resources/ideas for you. The more you can get others to deal with these people the better for you and your family. Then you can be a daughter to your mum in her declining days, and keep your sanity. "They are apparently going to have to decline and die as they have lived, in denial, anger and blame of others." Yes that is probably true and you can't change it. I have a mother with borderline personality disorder, who now has vascular dementia, and my father was alcoholic and developed vascular dementia. What helped was getting the right professionals and facilities for them. Let us know how things pan out. ((((((hugs)))))
As far as Dad is concerned my advice will be to call in adult protective services because a house full of sewage is an unsafe environment for anyone to be living in. Other than that the only thing you can do is just stay away . There is really absolutely nothing you can do. They have made their beds and have to lie in them till the inevitable crisis happens.
You may feel an obligation because they are your parents. Whether you love them or not is a separate issue.
The truth is unless they are declared legally incompetent there is nothing anyone can do if they refuse help.
Your mother and hubby # 3 is a different issue. I assume you already have POA for her. This does give you some power to keep her safe. Clearly moving her into your home is not and should never be an option. You owe it to your own family to stay off the road Mom has followed. you have to maintain your own mental and physical health.
Do you have siblings who can help you in some of the decision making that will be comming up?
it sounds as though Mom needs to be removed from her current living condition unless hubby is actually taking good care of her and not being abusive in any form and she is in a safe environment. It sounds as though she needs to be in some kind of supervised living situation. That of course would curtails hubby sponging off Mom because it sounds as though he is not able to support himself and any money or income Mom has will have to go towards her care and or Medicaid application made.
This is a very complex situation you are dealing with and some professional help is needed. Get advice from an eldercare attorney and see if Adult Protective Services in your area has social workers available. Step dad can be as nasty towards you as he likes but as long as he is not physically threatening there is little he can do. Go visit Mom and just ignore him. That's hard but you owe him nothing.
Make very sure Mom is not being physically abused. Check her regularly for bruises etc and don't be shy about calling the police.
If there is any sign of injury take her to the ER and tell them of your suspicions. Don't listen to her if she lies to Drs and nurses. Make sure she keeps regular appointments with her Primary Dr and alert him/her of any concerns before the appointment. You can either write him/her about your concerns or call the office and speak to the Dr's nurse and ask her to pass on your concerns.
I am sure many other AC members will have additional advice for you. This is a very caring community and you will find a lot of support here.
I hope your neighbors are able to get things settled quickly. I'm sure with a new baby it will be more difficult.
What is an electrical couch? Maybe there has been a recall? I would also consult with an attorney because damage was cause by a malfunction in merchandise purchased.
I guess right now I am slowly trying to reclaim my life, even in small ways. Like getting back to my music, planning to spend more time at home....I finally (!!!!) ordered a few new things to wear last night! (I hate shopping malls.) Been shuffling around in the same 4 shirts since I started staying with mom in June. Ugh!!! I'm so sick of them! I guess I can start going through my clothes when I start spending time at home, but it will be nice to have something new. I just asked a friend if she could cut my hair also....another thing I haven't done in over a year. It's so long it's getting stuck under my armpits! Lol.
It's funny how I let myself turn right back into the 14-year old who wore baggy clothes and hid from my mother in my room with the headphones on! At least I don't have zits this time around. I gotta get back to being grown up me again.
Pam is so conscious of her looks and it's unnecessary. She looks very attractive. She had long, black hair and since chemo her hair came back in white and it's still very short. On the upside she is well rested and her coughing is fairly well controlled right now. Hope it stays this way for this visit. Pam actually baked a whipping cream pound cake this afternoon. Our aunt's favorite. I was thinking about it earlier, but I never remember going to my grandmother's house, her daughter's or granddaughters homes without them having something baked and I'm that way too. I always bake. Although I'm the only chocolate junkie. I'm going to make a mandarin orange cake that my cousin can have a piece. She has type 1 diabetes and it's one of her own go-to recipes.
madge - hope the lump is just a lymph node and the antibiotics clear it up. One thing after another for you and the Viking these days (((hugs)))
dori - glad you let it all out!!! So good to have friends like that. More time in your own place would be good for you and kitty. I am concerned for you in the future when mum needs more care. Do you have a plan?
sharyn - of all things we are supposed to have freezing rain here tomorrow. The snow and ice do complicate life a bit, but you seem to be surviving it well. Wind makes a big difference.
becky - Snowmageddon is about it! I identify with the movie "The Day After Tomorrow". I am sure Pam will look fine to your aunt and cousin. They will be so happy to see her. At the college we were always expected to take the extra students. Once that resulted in a room so crammed with desks some of the students could hardly see the blackboard. My largest class at U of A was 250. That was a lot of marking.
glad - I keep checking the SPCA here for adoptable cats, but there are few and none that grab me. The timing is not good for me either. Enjoy the cuddles with Ming.
"Meh" day here. I was up half the night with allergies and bad sinuses - the new protein shake, I think. It is plant protein and certified gluten and dairy free, but I know I am sensitive to some plants, though none on the label. Another freebie to dd who can handle that stuff . I will have to stick with my egg white protein. Lots of cinnamon helps the flavour.Hoping it is just that and not withdrawal.
Mother got her new hearing aid today. I must say I am very fortunate that she just plugs along without infections and such. Some sturdy that one. Changed plans to go down in February. R figures he will be able to come up before that and get some stuff done in the house, then we can go down together. We are getting there.The last job will be painting the whole interior. Tomorrow I wanted to shop and get air in the tire, as it will be warm, and go downtown to get my remotes looked after, but I will have to see how bad the freezing rain is on the roads. May have to wait a day or so. Seems there is no "in between" this winter. Need a good night's sleep tonight too after last night.
I am happy to announce my transplanted ivy looks good. It has taken me many years to be successful with ivy. I repotted a purple tradescantia which had a root ball that was horrendous. I stuck in some of the branches to fill the pot out and hope they root. (Looked it up afterwards and found out that is what you are supposed to do - lucky guess.) I have one more plant that needs transplanting, but I have just changed its location, so I will give it a while to settle down. My zygocactus is covered with white flowers - beautiful. I think the 6 year old poinsettia bit the dust, finally. I cut it down and placed it in a cool corner, and we will see if it comes back once again. I have a couple of umbrella plants (Schefflera) and a Sansevieria which look like they want to take over the house. These are my "pets" for now.
I've done two of my three classes. Waiting on PJ to finish his class and going to go to lunch.
Classes are crowded and a bunch of students asking for overage waivers. I told them to wait until Thursday to see if there are dropouts. Both classes seemed like good groups. Class this afternoon is my favorite. A graduate school class on "Counseling Post Secondary Students". I have Caregivers group this afternoon. Busy Day. Pam is having a fair day. Worrying about how she looks since our aunt and cousins are coming.