
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Becky, heal quickly. You have a lot going on with teeth, Pam and the center. It is great you there for Pam.
Ali, sorry you dealing with such pain. I had a pain one night at work a few years ago that radiated from my left ear down under my tongue and in my throat. I attributed it to TMJ. So far it has not happened again. It started suddenly and stopped suddenly.
Went out with dd today. She upgraded her cell phone. She pays her portion of the bill ( she is on our plan. Hubs has complained about it since I added her, insisting dd was not paying. I have asked her 2 time over the last 2 years. Hubs asked her once. After I got back home I mentioned to hubs that dd upgraded her phone. It set him off again. I told him let’s go to the cell provider and talk with them (I was tired of the subject). To my surprise, there is no record of dd paying. S has has it set up to pay automatically each month. Dd got scammed by a fake website.
Golden, happy that your eyes seem to be improving. I understand about electronics dying due to extreme cold, but I've only experienced it once recently a couple years ago and it was darn near the worst night of my life when my car electronic window became stuck in down position when I was an hour away from home, middle of the night, -10º and who knows what windchill was, phone wouldn't charge because car charger wouldn't work and I had no GPS to navigate. So when you mention that your electronics are kaput due to cold, I think that is............ MISERABLY COLD. lol Bundle up and stay warm.
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Yesterday during the day and after leaving work around 6-7pm, my head, jaw, and throat on right side of my head throbbed and hurt viciously. It was relentless. I've been using a sock of warmed rice as a heating pad on my face for a week now, and it does help a lot. But why SOOOO bad?? It was horrible. I don't know why so bad. Does the stress come first and then the pain? I know I'm not sleeping well, but I still sleep more than most people, but I do wonder if the stress AND the pain are due to bad sleep, so then I'm not recuperating well when I sleep. I'm not sure where to start chasing this problem that severely messes with my quality of life. I don't have to figure it out TODAY, it's enough to start a new job and get in the flow of things there (going well enough, btw), but it's demoralizing and just incredibly uncomfortable at times. I get up in the morning with no sign that I'm going to be miserable that day (unless I wake up with the head/jaw ache, which has happened, and oh my word that is awful). It feels unstable, it scares me and just makes anxiety all that much worse because I could swear I must have a brain tumor when the pressure on my eye feels so bad that my vision is messed up ! geesh ! And of course I don't think I have a brain tumor because this is a chronic condition for me. But when it's acting up, it's just overwhelming the pain. "Migraines" have been brought up before, but if that's what they are, they don't mirror anyone else's migraines that I know of. I hope things calm down and I'm looking forward to trying some new approaches with new doctor. I see her again this Friday.
Onwards and upwards. I feel better today, thank goodness, but... even 1 day a week like yesterday is too much. It's too painful, it's too demoralizing. I can't tell what is happening more often, or what is the first/root symptom or cause, because they all go together -- anxiety attack symptoms and the headache/TMJ symptoms and bad sleep. Then I had nightmares last night even though I took a Valium before I went to bed. What the heck. The nightmares reminded me of the recent issues with adrenaline surges, due to cortisol rising during the day.
I think I'm describing a stress disorder. It's not news to me that I have a stress disorder, it's just strange how it acts up differently on different days/nights.
Wah. :-/ I think I'll continue to shake things out and get improvement on everything, it just can't come fast enough for me. -_-
duck - psalm 37 is a very good one for your situation. I have read it a lot at times.
guest - that is shocking and very sad. I can't imagine what your coworker is going through. You do so well at keeping boundaries and I know that came from necessity.
becky - I am glad you are through that part of the implant procedure without much trouble. I have only had three implants - 2 at one time and one at another time. I didn't have much pain at all. I expect you will be happy with the results. It is such a relief to get it done I am sure. Cataracts are nothing compared to implants. What a lot going on with that, and with Pam, and arranging care for her. Sounds like she is doing as well as can be expected. (((((hugs)))) to you all for being there for her. So lovely that she can visit with Holly. Sad about your great uncle. I hope you are taking it easy for a few days to help with healing.
glad - I am staying inside and warm. I went out yesterday and when I was out of the car wanted to use my cell phone and it died in the spot. Shocked by the cold, no doubt. Both car remotes have died too. Ming is so fortunate that you adopted her. I would love a Siamese too.
east - I agree with the others. Just let it be. Your mother is getting some help. You are getting stories from both your bro and your mother. You don't know what is true, but they have to work it out. Go and help when he will inherit the house??? I don't think so. I am not as optimistic as cm, and think he wants free labour. I don't think there is anything to see a lawyer about.
That 1918 flu was dreadful. My father's dad died due to it. They said you could hear him coughing down the block. I didn't get the flu shot this year, and looks like I didn't miss much. Dd got sick after she got it, as did R, though not as badly as she did. I did get the flu, but it was not the worse I have had, and I have my own immunity to that bug now.
Slept through the night last night, which is rare and wonderful. Don't know if it is due to the increased resveratrol, or the decreased Luvox, or both. Sleepy today, but other than that and a touchy gut, things are good. I started a new protein shake and will stop that for a few days to check out if that is affecting my gut. We are in another major arctic freeze, but only for a few days thankfully. As R says, at least we don't have to worry about mudslides.
Looks like the ghost images are less than they were. Yay!!! Answers to prayer.
Last things first: his invitation to you to come and participate in the clearing process. Uncharitable interpretation: he was being sarcastic. Charitable interpretation: he thinks there might be bits and pieces there you could use or would like to have, and he's happy for you to see what he's up to - all above board. Could be a little bit of both, of course...
Your mother has (had, anyway) $120,000 in savings. Her current monthly overspend is $100. All things being equal, she will run out of money in 1,200 months = 100 years.
But your brother has correctly warned that things never do remain equal. One, she has got a bit cavalier about her savings account. Two, he is narrowing his eyes and growling softly at certain relatives who suddenly seem to be visiting a lot more. Three, with inevitable increasing frailty, her medical and care costs are very likely to rise.
Actually, he has mainly handled this well and been responded to well. The young man did hand the cheque back graciously, and did tell his grandmother what was current standard practice for *wedding* gifts - it's just a pity that your mother misconstrued what he was saying and took offence. I'm sure if Brother were to have a discreet word with the female cousins they would also be more circumspect about accepting gifts and treats from your mother. It doesn't look to me as if your family is infested with vipers, just as if your brother is concerned to make sure your mother doesn't start throwing piles of bills into the air and is sending out warning messages.
Your mother doesn't like being told what to do with her money, doesn't like being patronised by young people, doesn't like people sticking their noses into her business. Who does? So she is in a grump about it and I don't blame her. But there is nothing untoward going on.
So what should you do about it? Ab-so-lute-ly nothing. Except pop along and take a supportive interest in the clearing and building work, if you've a mind to.
And it sounds like he is - slowly and reluctantly - working on the house, even spending $$ on it. Why do you feel you need a lawyer?
My Mother is now dipping into her savings and it is dwindling down, since she does have the renter. My Brother was supposed to fix up the 2 empty apartments and get them rented out. He has had 8 years since our Father died, and he has done very little. I told him that I want no part of the house. It will be a great burden to me. He will want to be the boss, and will want to make all of the decisions about the house, and he will never listen to my ideas. So, I told him that he can have the house all to himself. However, yesterday he texted me and said why don't you come over on Saturday and help me work on the house. He claims that he spent $3,000 on renting big dumpsters, and my Mother said he did have them in the driveway, several times. He and his younger son have cleaned out a lot of old junk from the basement and the garage. I told him that I can't help him with that king of heavy lifting. I can't believe he would ask me to do that. I reminded him that our Mother has always told my that "it is up to your Brother on what to do with the house." I told him that I was really hurt by what she said. So, my question is: should I ask an Elder Law Attorney for advice on how to help my Mother with the money situation, or should I just leave her to deal with it herself. Sometimes she seems so helpless, but then when I make suggestions, she just does not listen to me. Thanks All.
I had a little pain from my teeth during the night. Happy that it's over and done. Have to go back for check up next week and they will clip all the little stitches. I decided I looked like a cat fish with the little black strings. I'm on liquids for a week and then soft diet for a week. Then every six month gum check and cleaning. It's been a long and expensive process, but one that was seriously needed.
Pam is holding her own. She is losing a little weight. Breathing difficulties, fatigue and pain. She is still able to go to the bathroom by herself, shower with help from the nurse. She is frustrated by being so tired all the time. She has always been very active - hiking and gardening. Definitely not able to do those things. I drop in two or three times a day. Jay is there every day. PJ goes periodically - mostly if she asks for him. Our DIL stops by with her baby. Holly is Pam's favorite visitor. She enjoys holding her so much. Social worker, counselor and others from her apartment complex stop by too. She has so much grief from losing her husband last summer and her mother last year. That is difficult for her. She really likes her nurse. She is very personable, but professional. Tomorrow will be the first day of work for the other nurse. Hope she is just as good.
Everyone have a good day. I'm staying in today. PJ is doing my caregiver groups for me.
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Tough day. Things started off ok and due to unexpected things coming up (and the new job, I'm sure is playing into it, of course, of course) I was having chest pains from anxiety by noon. Tough day but it's over and I'm home. It's my monthly cycle time now, too, and that sometimes makes me agitated. I did deep breathing at work today. It's been some time since I needed to do that but glad I have that tool at the ready anytime. :-)
Take care, guys. 'Night.
Glad, just saw your post. I can see myself getting a little weary of food, at least while on the job. In high school, I worked in a coffee store selling 20-some kinds of coffee beans/grind and all the flavored beans (frangelico, amaretto, vanilla, irish cream, barf barf barf lol). I was completely grossed out by the smell of sweet coffee by time I'd worked there a month. Blech. Ming sounds so cute and cuddly, I'm glad you have her.
Ali, I have not worked in food service since high school. I lost so much weight just got sick of seeing and smelling food, that last thing I wanted to do was eat. Hope the job works well for you. Oh, and one of those food jobs was a candy store, ugh! But mom sure enjoyed their caramel corn!😉
Becky, part way done. I need to find a doc and dentist here.
Golden, hope you are doing ok and staying warm.
Sharyn, good to work with boundaries in place. Do those chips your way.
Been too lazy to type at night. But Ming and I have been reading.😽
We do rather live in a sort of Western medicine bubble where the underlying assumption is that only cancer or murder can kill you, don't we. I just wish we *could* say "that'll teach him!" - but as it is what a very sobering thing indeed to have happened.
Has FIL been vaccinated against pneumonia? If so he might have some protection against the worst effects even if this started out as a viral infection. But I can't quite see how you are worrying about *nothing*, exactly... Unless, nothing includes "what's a little pneumonia between friends and an elderly gentleman with COPD..???"
One of the guys I work with left early yesterday to check on his stay-at-home wife in her 50's who didn't answer phone. She has been sick in bed for 4 days with "the crud". When he got there, she was unconscious and he called EMT's. Long story short, she coded on way, and died of dehydration and PNEUMONIA.
Yep, I'm a worrywart and a pain...I have to remind myself that if it matters more to me than him, it's enabling...
I like that! Duck, she is right......next time she does this to you, start laughing at her and ask, "Are you still up to your childish pranks?" Then walk away still laughing. That will burn her up far better than anything. You come out smelling like a rose and she gets to look the fool. What a perfect way to take away the joy she gets from upsetting you. Love it!
Don't buy into your sisters nonsense. Don't give her the satisfaction.
Sharyn you are so right. I knew I should not have fed into it. but seeing my pictures on the floor!! and then see she put up a proof of her son where my pictures were. I typed this letter. I have type a lot of them. I was going to put it on the fridge. Then I spoke with a friend, my son and the counselor via telepone.
After I spoke to my son I went and took letter down. He thing was dont feed into it I am giving her power just act like I didnt even see it and leave it in God's Hands. Then the counselor who has this strange :) trick of listening to me and then I end up making the best decision. It was like they dont care about howI feel, will they read the note. Then my Friend said basically they same. Its petty we are grown ass women acting like we are still kids.
Its true. I havent gotten over all the past stuff done that she literally got away with. She feels entitled.
So I am following the advice and act like it never happened instead of letting them know it hurt me.
Then I leave out this evening and there is a glue trap IN the refrigerator with a picture stuck on it. I didnt pay anyattention this morning. Then I noticed a camera for survelience. Im going to have fun with that. I just cant help it. two little things that need to be plugged in. You can imagine the things that have gone through my head. I am tempted to throw them in one of my mother's bags and stick it deep in one of the shopping carts. I would just like to see some justice for once. I guess i have to wait I hope I live to see it. I mean as a kid I would be laying in bed sleep and she would just come and pull the covers off me. After a few times I would scramble out of bed and get caught choking her when my parents run up stairs to see what the commotion was. She was never corrected, it was always my fault. I am so deeply frustrated, I see the petttiness. If my mother was lucid and I had pursued thiswith my sister she would have jumped in front of my sister on her side regardless of what my sister did. I felt better after prayer and reading the 37th psalm. I am sought of good now. But I know I am going to have to pray my self out of doing something wicked with those camera just because.
Good news I have just officially sent in my application for sliding scale payments and an income affidavit from job which was emailed. I finally had a light bulb moment and ask the guy to email it. I am still waiting for a bank card the second one I requsested. At one point I was well I wont say it.
More good news is that I think that bleed is reabsorbing as my mother is gettinh more active. Still confused but back to putting the shopping carts to the door. Meanness is coming back too. She was telling the dog to put his shoes on before she hit him with can. She is taking every thing out the freezer putting it in the covection oven or in the fridge. I sure hope her nasty does not come back. So far I get to give her a kisss and get a cheep one back. And we can still laugh.
I also appreciate feedback I got in a msg. Its just that there is sabatoge in my sisters spireit with me. I am waiting for stove knob covers, I hope they work so we can have a decent meal.
Golden, I feel for you with the withdrawal symptoms. They had me sedated when I was on a respiratory about a week. That is a horrible feeling then I learned what panic attacks were.
Golden hang in there, you are so resilient, and I so admire your courage and strength probably as I write this you are feeling much better. I hope so.
Ali, girl!! I am pushing for you always I also admire your strentgth and independence and resilience. Horray about the job. Keep on pushing.
We're having our January thaw - but it will be short-lived. Back down below zero and snow on Thursday. Will it ever be spring?
ali - I remember when, as instructors, we went back to teach after the summer off and we all were beat the first week. It does take some getting used to. Hope your tummy settles down.
becky - hope the interviews went well. I agree about the photos. Your choice to go to the funeral or not. Frankly it is none of their business. I would not go if I were in your shoes.
book - thx for hugs. I am not going cold turkey, just halving my small dose, and feeling just fine today. Yay!!!
sharyn thx - doing very well today and hope it continues. Crafting is fun!
rainey (((((((hugs))))))) I hear you. Yes, mentally divorce them, and do it actually after your mother passes. I have had to do that with sis and several cousins. I am so sorry that your aunt let you down too. I know the feeling of wanting to run and pitting on the suit of armour. I visualized a brick wall between me and them, and also a castle with a moat, and a drawbridge that I could raise up to prevent anyone getting in. The moat had alligators in it.
Margeaux - waiting to hear more from you. How is your mum?
Day 2 of my chemical mind adventure. I am feeling good. I did some research on FM supplements and have upped my dose of one and added a couple of teaspoons of EVOO until the rice bran oil I ordered gets here. Why rice bran oil I could not find out, but it can't hurt. I think the idea is that this supplement gets "delivered" to where it needs to go better if taken with oil.
Bad news about turmeric - its bioavailability is so low it is not worth taking. News about calcium and Vit D - a recent study confirms that taking them is not associated with any reduction in bone fractures. That one is going to my dr. It doesn't surprise me. Exercise is probably more effective in keeping bones healthy. I will take Vit D and some calcium, as I don't eat dairy, but not the dose he gave me if there is no proof it does any good. The good news is I got the top off my bottle of thyroid meds with my trusty pliers. 👍
Darn cold here again, and windchill making it feel like the minus 30s. ❄ 😰❄ I have to go out tomorrow, and I think I will cab it. The city did a great job clearing my driveway. Taxes are going to some use.
Have a good evening everyone
Think you got me confused with someone else, 😉 I never see my nephews and never had any issues with them, just my immediate family for the most part and their co-dependent, in denial wives.
My only other contact was one of Mom's sisters because she is the only one who has her wits about her and still working as a nurse in a SNF. Mom's other sister, there is a long, on going rivalry there (between Mom and she) and now she has dementia too.
Dysfunction everywhere.
Becky I totally support your decision. If they want you to go so badly invite them to pay your expenses.