
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
You will do fine if you keep your head about you.
Perhaps she wants it this way, but he certainly should not have forced or coerced her to do something she didn't wish to do. Unless she has dementia or diminished capacity, then she might not be able to make changes?
It's terrible when people take advantage of their parents and their money. My husband's siblings have done that for years, and I'm finding it dificult to a ascertain if now that my FIL has just been diagnosed with a life ending Cancer, and is on Hospice in my home (only just the second day), if the concern my BIL is lamenting is honest, or only a ploy for financial gain. He is certainly doing everything he can to get on my husband's good side, not that my FIL would make changes to his Will or anything at this point.
I don't like feeling this way, not being able to trust in the most vulnerable time of someone's life, but in the 30 plus years I've known him, he has proven to be Not trustworthy, and now to the point that we don't even want him to stay in our home, as we're afraid he might actually steal from us, as he has in the past.
I don't Want to have to lock up my jewelry or valuables, my FIL's narcotic medications (for his cancer), or my husband's valuable coin collection. I just don't want people like that entering my home, people who we cannot trust, but it is his Father too, and now that his is going to live out his days on Hospice in our home, and we don't how long it might be, I guess we are going to have to figure out a way to do just that, as he is pushing hard to come from another state to see his Dad before he dies (he has only seen his Dad twice in 13 years), another thing that makes me distrustful, I mean Really, you couldn't have found a day or 2 in 13 years to pay your old Man a visit? The medications are no problem to lock away, and we have already since we have small Grandchildren, but now we are going to have to put secure locks on our Walk in closet and our bedroom doors, just to keep things safe, it such an icky feeling!
I'm sorry you are having struggles with your shady brother! Seems to be going around!
R is the one working hard. I just admire and encourage, and feed him well, though I do work when it comes to the computers. My garage door opener is working properly now - hadn't been for several years.
I am not a drinker either, upset. If alcohol disappeared off the face of the earth it would be a few years before I noticed. The closest I have been to moonshine was some crabapple gin a friend made. They weren't really drinkers, either, but they had bushels of crabapples to do something with, and had made all the jelly they could cope with. We used to go over there to play bridge on Friday evenings and J served us crab apple gin, which was a lovely pink colour. I took one sip and started to choke. It was soooo sweet and my throat spasmed, which it does with really sweet things. That was the end of that.
I hope you have a peaceful few days before returning home and that you have some closure over bro John.
Margeaux -that is a very stressful situation with your 2 bils. Your hub must be quite worried. Then the bbc on your face, and considerations of treatment. ((((((hugs)))). I am sorry that you have ths to deal with.
thx sharyn - you had a moonshine experience too!
I am sure R and I will get to the mountains eventually. I actually found my old rubber boots and will take them along for the fishing.
My sil's great aunt and uncle brought moonshine to the wedding/reception. It was handled similarly out of their car. We didn't know until after our daughter wedding was over. No, I would not have tried it even though I was drinking then.
Margeaux, sorry to hear about your bils health issues. I am sure it is taking its toll on you and your hubs. I hope your own issue bcc is resolved in a way you feel comfortable. How is your mom doing? Hope to hear more from you.
Golden, you have been kept busy with R. It sounds like lots was accomplished. I hope you can have the mountain trip.
Have a good evening everyone.
Golden, I don't know what he said. But I'm sure he knows all about how the farm was handled by my Dad and uncle to keep my Mom and brother out of it. Shine is fairly common in WV. These days most makers flavor with some kind of fruit. It's not the pure grain alcohol it used to be. I'm simply not an alcohol person - just don't like the taste. All in all I think things went well other than SIL and nephew. Hope you're getting a lot accomplished and get your trip to the mountains.
I am sure you are glad it is over.
stacey - let us know how things are when you have a moment.
Glad to hear things went fairly well other than SIL and nephew. Why am I not surprised? Woulda given anything to hear what the neighbor said to get them to hightail it out! Bet it was good! Your family sounds very interesting, Peach Moonshine? I would have had to try a shot, just because I have never had moonshine. SIL showing up in a tank top?!?! Wow, now that is a class act! Was it at least black?
Hopefully you are done with them now.
Much Love & Light! Margeaux
All in all it went well other than SIL and my nephew. She certainly wasn't the grieving widow.
"I'm BaaaaacccK."
Well, just been trying to catch up just a bit, reading what everyone has been going through the last few weeks.
There's a lot happening here.
Sorry that I went MIA again. It's just been a lot of upheaval over here!
First of all, I can't remember whether I'd told you that my biopsy came back as a BCC.
The derm informed me again about the MOH's. He also told me that it appeared because of the location of this BCC, (the upper lip/next to nose) area, he didn't feel comfortable to handle the extraction of it. Even if he were to do it, I'd still need to deal with a plastic surgeon. Then, my primary is supposed to send me to see an ENT,
apparently for the 2nd part of this procedure. I'm not rushing to do this, as I was starting to feel a bit pressured.
Too many outstanding questions for me. I've been reading also and was even in touch w/a couple of patients, who had considerable numbing of lips, 6 yrs., after the procedure. Sure they can extract these, but the patient has to also go in there full well knowing because if it's near the mouth, it can become rather tricky since it's so near to muscles used for chewing, etc. For now, I'm using some natural protocol, which I've researched, and had some counseling about it also. The method I'm using seems to be working. One has to be very persistent about it.
My husband has two brothers. The two of them have Leukemia, which has been managed for some years now.
Up to now, they've both lead active lives despite the Leukemia. Recently, the oldest brother was in Israel vacationing. The younger brother lives in Asia, and over a month ago he walked himself into a hospital because he wasn't feeling well. Younger brother was hospitalized with an infection in the lungs.
My husband's relationship w/the youngest brother is very, very contentious, even though they don't live in the same country. The older brother's relationship w/youngest isn't that great either. So last few weeks, my husband has been communicating a lot w/the eldest bro concerning their youngest brother's health issues. It's been rather difficult to get exact information, when either of them have called the hospital in Asia, especially because of the language issues.
So, of course this scenario brought up that their brother in Asia isn't covered by any medical insurance.
My husband did finally speak to the bro in Asia, (minimally) because he's rather weak right now, and was told no one would insure him, because he has the pre-existent condition, the Leukemia. He owns two different properties in Asia, also 2 others in two other countries. But apparently, not enough of a bank acct., so as to pay for all the medical treatments, which are over a mos., worth now. So my husband and older bro decided to send some $$ over there. The brother in Asia has a personal friend from that country, who paid w/his own credit card for part of the hospital bill we were told in full, totalling over 20,000 already. So the two brothers wanted to forward some of the money to this friend, but something needs to be done so that their other bro has something in place. YIKES!!
The oldest brother went to Asia, to see what he could do to help youngest set something up, because he's going to need some recuperation time, and can't take care of himself. Well when my husband called Asia, to see if his older brother had arrived and see what their brothers condition looked liked.......now the oldest brother had to be hospitalized. He caught an infection at the hospital. Well poor thing, his immune is compromised because of the Leukemia.
Yikes!! Well, I'm just being as supportive as I can be to my husband.
My new mantra......"One day at a time." That's my story for now, & is why I hadn't been here.
O.K., I hope everyone is doing as best as they can under challenging circs.!
Much Love & Light! Margeaux
Linda - I know you know the narc parent scene well. Hind sight!!!. Regrets, yes!
sharyn - wonder how your sis will manage when her needs increase. That lava fire is causing problems.
Oh stacey! - I am glad fil is happy to be home and you have all the support lined up. Do get some rest - you and dh, It is a very stressful time. Thanks for keeping us updated.
daughterlu - happy for you there has been some family healing
sojac - what a mess. Why is mum going along with bro re e.g. life insurance policies? Unfortunately, when mum decides to go along with bro there is not much anyone can do.
rainey - I hate to look down the road for you and your hub when mum needs more care. You can spend down and also set up a Miller Trust to get her qualified for medicaid. Not all facilities are h*ll holes. Re having children - I had an sil who chose not to have children. She was bipolar and there was other mental illness in the family. Eventually, she committed suicide.
margeaux - good to see you posting, How are things with you?
A few have asked how I am. Fine thanks, just overwhelmed at times when R is here. He can still work a 14 hour day and not show it. When he is working outside on fence or garden, (weeding is done, I have one new gate and another in progress, etc .) I have peace in the house, interrupted only by trips to hardware stores, meals, and supplying mugs of tea. When he is inside working on his computer, he needs my help , or wants my feedback frequently, as well as the meals and mugs of tea. I am used to having the house to myself, very peaceful, no interruptions, no company. So I get distracted and tired when he is here. There has to be a happy medium somewhere. Don't get me wrong. I love having him here; however, it is an adjustment. He has gone off for now. I am catching my breath, and we will figure out the next move when he has all his appointments lined up. We are still hoping to fit in that trip to the mountains.
Take care all - do something good for you today.
Really sorry to hear about the turn your FIL's health has taken.
Well it appears you and your husband have made your decision to have him come home.
I was trying to catch up on what has been going on here, and am aware that this obviously hasn't been an easy decision for the two of you, given the fact he'd recently been placed in the NH, or was it an AL?
In any case, I'm thinking about you as you embark on this part of his care.
Take care,
Much Love & Light! Margeaux
I'm so sorry to hear of your brother's passing.
I've been reading that you've been on your way to WV, so hope you have arrived safely.
Do take care of yourself during the next few days, as you tend to the funeral and dealing with family.
Does sound as if you do have some good support with old friends.
I'll be thinking about you.
Much Love & Light! Margeaux
Sounds like everything is going alright under the circumstances and your organizational skills are amazing! I am amused about the "tons of food" but what a great and thoughtful thing you did with everyones containers! Leave it to the guys to know the cheerleaders and the sports illustrated bikini issues, 😉. I remember being able to wear those way back in the days of youth when I was skinny as a rail. *Sighs* Wishing you the best tomorrow, sleep well tonight.
Stacey,
I gotta hand it to ya, you are a living saint!
Blackhole, hope all is well with you.
Sojac60,
Wow, sounds like a huge mess to me. Selfish brothers, I know all about it. That is pretty nervy making himself the beneficiary on all her policies, how did he manage to swing that?
It's so exasperating (?)
Now he's telling her he will be coming home in a few weeks. . . (probably not) and I'll have to pick up the pieces when he doesn't.
He made her pay for her own funeral and then make him the beneficiary of all her life insurances policys. I mean wth? The man doesn't think about anyone but himself, she wanted a walk-in shower and he told her it wasn't possible. Regardless she is getting an estimate next week (go Mom!) I'm started going up 2 to 3 times a week again and making sure all the bills get paid and she makes all her Dr's appts. I guess I'll keep doing whatever she wants me to do and just try to make the best of it.
I'm beat, but do have to say that my FIL is cheerful, appreciative and happy he is home with us. He drifts off alot, having vivid dreams, so when he comes to, he talks about them, so funny! He thought he was on a cruise ship, "and the food is Great"! Lol! I did get my dinner in, so that's good!
There is so much Hospice stuff to read up on, and a lot of recording of all his meds, intake and output. Too much, so I'll tackle that more tomorrow. Today was for settling in, and getting our bearings. They delivered the EMERGENCY PACK of medication, and more coming tomorrow along with all the paper supplies. So much it's mind boggling!
I'll be a pro at making smoothies yet, but I'm finding that he only eats about 2 ounces at one sitting. He has no appetite, which is to be expected from here on out.
Thankfully, the nurse put in a catheter in, so that takes lot of work off of our daily routine, and he doesn't seem to mind it.
One interesting thing though, is that he still thinks he will be getting better and stronger, but I'm not about to pop his bubble. I'll be encouraging, plus I am encouraging him to feed himself, and hold his own water glass, as I guess the Nurses in hospital were having to do this for him. So far so good, he's getting the hang of it, so there may be some life yet in the old coot! LOL!
Ok, back to the sick Bay! Thank you all for the well wishes! And take care Everyone! We never really know what is around the next turn! Obviously!!! I'm staying as positive and calm as I can, trying not to complain, as hubby is stressed out today. There is a big learning curve, so getting hang of things! 😷🤒🤕
How wonderful! Nice to hear someones family can turn around! Glad to hear things working out so nicely for a change and hope it continues. Me, I would never hold my breath for my family. Too much damage to be reversed I'm afraid, so I am very happy to hear it has happened for you 👍
So right! Hindsight is 20/20. Husband and I were just lamenting about being trapped and watching our lives slip away while caring for Mom as she lives the life of Riley! She is not vicious like Upset's mom was, she is however very passive aggressive and I grew up with the Irish Catholic guilt! I have said many times "If only I had a crystal ball or a psychic to have told me what I was in for, I would not have gotten myself into this." She does want me to entertain her but I am way too busy with other chores and gardening to do so, nor do I want to. I have offered to take her to the Senior Center to socialize and do stuff to keep from boredom but she refuses. I feel zero guilt about that. She has chosen to isolate herself. I think I have sacrificed enough thank you very much!!!!
Stacey, How are things going?
Golden, hope everything is going alright for you.
Ali, hope all is still progressing with you!
Hello Sharyn, East, Guest, Glad and everyone else, hope all is well. Today is Mom's beauty and shopping day so I will check in later.