
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Golden, Hope your back home and resting up.
Ali, How are your allergic reactions?
Stacy, You're not lazy. You're working at your own pace.
I'm back to my up way too early routine. Baking cookies. Think I'll make some banana bread next.
The indoor porch! Yes! Love it! Just heard the canandian geese honking away overhead on their evening commute! I love nature! I would be sitting on that porch with ya, glass of wine in hand! 😉🍷
It is a great comfort knowing such a great contractor you do not have to babysit!
I cannot believe he came over to your house for a week every year, paid for by your Mom. I would have never let him in! My goodness, you really are a saint! I would have creamed my brother if he came over, mooched off me and then caused horrible incidents to scar my family! My husbands cousins are no longer welcome back after their performance this time around. We have developed a zero tolerance policy since the brother blow-out. No more. You act like a jerk, you lose the privilege. That simple. My brother is lashing out because by law, I CAN ban him from the property, that is why he won't stop bashing me in his cards to my mother. He is just giving me more evidence if ever I need it.
Thanks Rainey. If I had hit my brother , Mom would have had me thrown in jail. I do have a great contractor. He always estimates his time correctly. My original degree is in housing and real estate. He was a classmate years ago in a housing construction class. He's good. I think my next project is going to be having my front porch refloored and screened in. I would love to sit out and watch the loons and ducks on the lake, but the black flies and mosquitoes make that impossible.
You must have the greatest contractors on your bath, that is half the battle! Happy all is going well without any added stress! So sad about your Mom and brother but believe me, I understand! I can't believe he hit you as an adult! I would have found the nearest cast iron frying pan or filed charges. Your Mom enabled him just like mine did. I am so sorry he hurt you so, I have to believe in karma, whether in this life or the next.
East, I hope your brother gets your mother the care she needs. I wouldn't want her to have another fall.
Rainey, My Mom would let my brother say or do what he wanted. A couple of years ago he slapped me - got a bloody nose and bruise on my face. She said I asked for it because I told him to stay out of my business. It was like going back to our childhood. For a brief time before Mom died I thought she changed. But then I found the evidence she was still doing the same old things for him. I hate the way she acted, but I'm glad that I did what I could for her.
PJ brought a bunch of his grandson's over. They helped pull weeds, picked a bushel of green beans. I've got the green beans all strung and snapped. Ready to start canning in the morning. I made cucumber/green/red pepper relish today. Also made green chili tomato salsa. I've got six kinds of peppers ready. PJ likes really hot salsa - I think I've got just the thing for him.
EastEagle, you say your brother went to see your mother last night, some hours after the care planning meeting that you both took part in, and said he was concerned about how much 24/7 in-home care would cost.
Well he's not wrong. It'll cost a mint. Be that as it may...
It was your mother who reported your brother's comments to you, was it?
What was agreed as a result of the care planning meeting? Call your brother and discuss that with him direct.
My FIL wouldn't have had the money to live in Assisted living, had he lived on his own, as they surely would have ramped up their demands of any money he had left, and for that reason only, I am glad he lived with us all those years.
Interestingly enough, now that my FIL is in AL, my husband's brother is "acting" remorseful, and wanting a relationship with my husband and his Dad, and is even calling the Old Man. When I speak with my BIL, I am cordial, as often this is the only way to find out information (BAD STACEY!), and he tells me that his longest phone call with his Dad is 45 seconds, so that kinda tells you the state of their relationship, while my husband spends a good hour with him at the AL nearly every day. Oh well, I can't change the history of their relationships! Not my circus, not my monkey, as the saying goes! They were really horrible to their parents, it's so sad! We still have to be careful, but my husband controls his Dad's checkbook, and they both live out of state, so that's good!
She will likely take another fall, and could do, even With home health care in attendance. It's all so very sad, when family doesn't adhere to the advice of the medical professionals, and I know you are upset with this! Why ever doesn't she go directly into a Nursing home, where she would get All of her needs met, as it certainly seems likely that it is eventually going to be what's needed, and then you will finally be able to stop the ever ending worry of her, or at least it would lessen quite a bit.
I'm so sorry you are having to go through all of this stress, as I know it isn't good for your own health!
The one thing that I always found interesting is that WE WORRY about our parents All the time, while they sit back and let us, often throwing obstacles in our way! Grrr, I find/found that so frustrating, but there's the way of it, I suppose. These are the things that I think about regarding my own kids. I never want to be a burden to them, and of course both my kids say "don't worry Mom, we'll be there for you. See, I'm already worrying about it! Lol! But then again, I'm a worrier by nature. It keeps me up at night, and I know how bad it is for your health, raising cortisol levels, Never good!
Have have a lunch date with my 3 sisters and 3 cousins today, and the weather is Gorgeous once more! Life isn't bad at all right now, so I need to concentrate on the here and now! There's plenty of time to worry later!
Have a Wonderful Day everyone!
MIL is now in AL. FIL told them when she hit end of rehab days after supra pubic catheter and 2nd hospital stay in 4 months that he could no longer do 24/7 care at home. Which is true for the COPD in end stages, stroke survivor, dry alcoholic NARCISSIST. I actually think she'll get better care in the AL. Now the funny part. BIL and husband have visited MIL and FIL very seldom in their home or at rehab over last 7 months. *shrug*. I don't take over, I'm not managing it THIS TIME. *freedom*. Last Saturday, BIL calls husband while we are waiting for seating for brunch and talks about his visit with MIL in AL this week. "She's so unhappy. It wasn't her idea. FIL made the decision. She's in Medicaid bed in shared room and it's not very nice. I think FIL is trying to have her declared spousal impoverishment. FIL is controlling her and won't allow visitors." I listened to husband vent, then said mildly "MIL's not been declared incompetent. If she has home health care that she can organize and pay for, or can self-care, she can go home. FIL has every right to speak for himself and say that HE can't do it any more without help at home that she keeps sending away or he doesn't want to pay for." THE STUNNED LOOK. I waited for the next piece from husband; doesn't take long. "Let's visit BIL - he suggested we come by. No, we don't need to call." Of course, BIL is not at his car shop 4 hours later. And hubs is now within 5 miles of parents' home and AL. I'm sitting quietly in car as we leave shop and head for city that his parents home and AL are in. He asks what I would like to do. In my enabling past, I would have asked if he wanted to visit parents. In my difficult present, I suggested we go eat BBQ at restaurant that is 45 minutes away but eventually on the route we are on ;) ....We get to an intersection and hubs says "oh, if you turn right here we would be at *the AL*." I reply "oh. and if you look on the left, there's a new brunch place." We drove on and had BBQ later. Dysfunction junction - Hubs wants me to be the involved driving force. He finally broke that:( Now today, he wanted to know plans. I'm having dinner with friend. Oh, he was thinking about parents and visit. Perfect - he can go and I won't be "alone and him worried about me". Oh, he wanted company for the trip although he knew it was not what I wanted to do. Said let me know where he was going tonight-I have dinner plans with friend:)))). Naughty me.
(((((((upset))))) the meltdown was coming. I know so well those mixed feelings of grief and compassion, for a parent who was abusive. Such ugly behaviour by bad bro. She deserved better. My sis wanted to please mother by moving her to a cheaper inferior alf which mother had chosen for herself while the dementia was progressing. Up till then mother had made good decisions for herself. I could not stop them, but I let them know that I felt it was not a good place for mother and I would not help. As sis had no intention of actually doing the work, it stopped the move.
These sibs!!!
Rainey I know you are going through it too. ((((hugs)))) to you
stacey - both errors were mother getting some one else's meds. I can see you are overwhelmed by all the changes and potential changes. I don't think you are lazy but tired. You have been dealing with a lot and it builds up after a while. Maybe you and hub need a holiday.
ali - one step at a time. Personally I would not lie on an application. It might come back and bite you in the butt. Starting small is fine.
cm - not worth the aggravation? We suffer fools less well after a loss.
sharyn - thx I am doing OK.
Up and almost ready to go. Had a lovely dinner last night with R. They have a very good kitchen here and will invent a sauce for me if the one on the menu has dairy or gluten. The day is cool, but clear. I had breakfast and sat outside on the hotel patio for while and relaxed with my coffee. They have a very nice area enclosed with evergreens and focussed on a 24/7 year around fire in a large stone bowl. It doesn't entirely shut out the city, but you can hear the birds chirping and look at the greenery. I should make it back home with time to spare before my appointment.
Anyone I have left out, (((((hugs))))) to you too.
Have a good day, all. Find a little pocket of peace.
Upset, I understand how poignant that bath installation must be. Among the things I couldn't get the joint POA sibs to authorise were damp treatment and new carpeting in mother's rooms. "Not worth it." I still want to reach out and take them warmly by the throat over that.
Email from an old friend to say he's coming to the UK next month. I quote: "If you are free it would be really great to see you after so long - over 2 years - last visit April 15 when chaos is the only way to describe house visitors, home help and estate agents [tr. realtors]."
Yes. House visitors, home help, estate agents - and my dying mother. Seems to have slipped his mind, that part. Or perhaps he thinks it would be tactless to mention it in relation to the chaos.
I don't think I am free, actually. Shame.
Wow. My chin dropped again reading your story and I completely understand the bitter sweet reaction to your remodel. Wish I could give you a much needed hug. Yes, that story is heart breaking and cruel. I did a large remodel last year where a family was creating a downstairs area for the aging parent. I took one look at the blue prints and saw they had drawn in a tub. They were on a budget because it was a whole house remodel. I immediately told her that would be a mistake putting in a regular tub because eventually it would become dangerous for her as she got older. I talked her into a walk in with a bench and a hand shower. Thankfully she listened. People do not think ahead, I was trained in ADA design so I am always thinking about it. Saved her from a potential accident and another remodel. I cannot imagine your poor mother falling and nobody there to help her! Then your brother not allowing her proper safety, what a piece of work! My mind does not remotely understand the thought process. I know you are the same way.
I am so sorry your brother is rattling his cage again. These selfish siblings who all their parents money with no regard to the parents care and quality of life.
Stacey, it is hard to get my mind around my brother. No one deserves these dx's and so hard to understand sometimes. I am glad he has his wife. She has lost so much already beginning with her 38 year son in 2013 to cancer.
Ali, good luck with the apartment search. Hopefully something will become available soon.
Been a busy day as dd and I went out scavenging pallets. She wants to use them for craft projects and they were free, lol!! We actually got them right here in my neighborhood. Lots of construction still in progress with building new homes.
Tomorrow babysitting the boys for a few hours again. They sure wear out poor Midget and Tiger I have to put in the bedroom when they are here as he just can't get adjusted to their rambunctiousness.
Golden, I hope you feel some peace of mind re your mother. Yes, moving her to skilled nursing may be the best thing at this point. It sounds like they are not able to handle her needs now. I hope you rest up, rest comfortably.
The installers came today to put in the walk-in bathtub. It looks nice. They ran it full to make sure the jets worked, no leaks, shower heads worked, etc. Everything worked perfectly. After they left, so much grief hit me. Mom and I used to watch the commercials for the walk-in bathtubs. Mom really needed and wanted one. Every time she mentioned it my bad brother would point out that she signed over her half of the duplex to him and that she could not alter his building without his permission. Then he got her POA and he refused to give her anything that cost money, even though she had the money. She had a bad fall in the tub. He was on vacation for two weeks at the time. I didn't have enough ready cash for a walkin tub. But while he was gone I bought all the supplies for a walk-in shower and hired someone to install. She had a bench and dual shower heads. He threw a fit about me having something done to his house. He threatened me. Then he threatened to sue the guy who installed. The installer told him to go ahead and sue - that he would be happy to tell the judge how badly he had seen my brother treat me and Mom. Anyway, Mom should have had one of these tubs. It makes me beyond sad to have the tub that Mom should have had. She was 85 at the time and had back problems and severe arthritis. That tub could have made her more comfortable. She was a pain in the butt and played favorites, but she should have had what would have made her more comfortable. It's been a sad evening for me.
I don't like the idea, but...
These 2 bedrooms in my price range, in the area that I want, they don't come up very often at all. I'm keeping an eye out and I do have at least another month to try to find one. Fingers crossed that something will come along. And when it does, I'll be ready this time. No more "it's been rented" as the response to my application lol.
And if something else doesn't come along, I'll start with friend's building and go from there. Yeah. :) Everything will be ok, one step at a time. I'm sorting through it all now but in a few months, it will all be in place if I keep working at it. Thanks.
My heart is with you, sounds like things are getting somewhat accomplished but I am with you, I do not believe the story. Aides should not be giving meds, period. There has to be a clear trail of responsibility, one med nurse, per shift, giving out all meds so there is no question who gave who what and when. This is a lawsuit waiting to happen. That is why there is such strict protocal in any ALF's here. No exeptions.
Glad your tough mother is making a recovery. Now it sounds like you need to. Stay put if you are too wiped out to make the trip home, I have no doubt it was mentally and emotionally draining.
*Hugs*
Thanks. Today another crazy greeting card from my twisted bro, once again, accusing me of this and that, elder abuse, he is about a dozen cards short of a full deck. My mother is spoiled rotten! He is still mad I booted him from the property and will not give me a moments peace. I stopped him from taking anymore financial advantage of Mom, that is my job, to protect her. You bet this is the hardest darn thing I have ever had to deal with besides what my brother did to me when I was a child. Here we go again. If I had known how things would turn out, I would have deeply apologized to Mom and said, "I'm sorry, I just can't go through this with him again." *Sighs* Waiting for the end of dealing with him forever. Everytime I start to settle down, he is back again.
Golden, I've been thinking about the situation with your Mom, and the 2x's mix up of her injectable medications, and one that wasn't even her own!
I know that when I worked in Family Medicine, we as Certified Medical Assistants, gave thousands of immunizations, and many other types of injectable medications, and over the years the protocols changed, but in the last 10 or so years of my working there, it was made policy, that we Always pulled aside another MA to confirm the medications, and the dosage to check and double check. Now when my own parents were in Rehab post hospitalization for one reason or another, the RN was the only person who was allowed to dispense meds, let alone give injections, and certainly Never a Nurses Aide, not that their job isn't as important, just that they do not get the Pharmacology training or have the malpractice insurance coverage that the NA's do not have. As MA's, we fell under our Dr's malpractice insurance. I was able to give oral, rectal, any injections, draw blood from a vein or artery, but Never allowed to give any type injection directly into a vein, or do IV therapy, that was only done by the Dr or the RN, and we even gave high powered narcotic injections too! It just doesn't seem correct that a Nurses Aid should be allowed to be dispensing medications at all! And now in hindsight I believe that you said it was the Nurses Aide who gave the injections, but I could be wrong there, and if so, disregard everything I just wrote, Lol!
I hope your day went well, and that all of your concerns were answered, and hopefully from this point forward, they strive to implement a rigid safety policy that this sort of thing never happens again! It could have proven disastrous, and that would have been very sad indeed!
Stacey, there are times that I am very envious of you family and how you all manage to help each other. Wish I could say the same, it would make everything so much easier.
Ali, just get what you can to establish a history and close to where you would want to work. Hoping that you find something easily. When married we keep our credit rating that we shared with spouse, until something happens that shows differently. If the credit is bad, it is a long road back. But you being a single person, no credit rating other than your own to use. It will be hard, but I would lie. Need a reference? You can use me. That may just do the trick. Find a friend that would vouch for whatever you say, even employment. I have a friend that has done just that.
Thx re the meeting everyone.
It went well. "Strangely" enough everyone found time in their calendars to be there except the pharmacist. We cancelled the meeting on the 27th, but I will follow up with the DOC. They said they had very few drug errors. I am not convinced. We got info about what happened for the 2nd error. I was distressed to hear that mother was crying out in pain which caused the aide to rush to get meds and she got the wrong stuff, or that was the story. The first error was just a plain mistake. I questioned about the pain, as no one has mentioned it, and said if she needs more pain meds give it to her. I gather the pain was from being immobile and sitting in one position. The caseworker repeated what she told me last year which was that mother needs more and more hours from the staff, and asked if I would approve a complete evaluation of mother's physical and mental health, as she probably needs to be moved to another facility. I agreed as I think it is inevitable now, and perhaps it is better.
The actions that are being taken as a result of the errors are retraining of the individuals, general staff retraining and awareness, and bringing in this computerized system for checking the meds. We stressed the need for continually raising awareness. I asked R to run the meeting as that is his area, and he did a great job. He will follow up with phone calls and emails to several gov't departments and the politically active volunteer organization. The lady I spoke to on the weekend presented better than on the phone, I was pleased to see, but still does not inspire much confidence in me. I felt good about the DOC.
Mother's fever is back to normal, as are her vital signs,so she has weathered this storm. She is one strong lady. R and I had a visit with her, She said she could not hear us so I have to follow up with that. She recognised us right away and since talking was useless, we just sat with her, and I held her hand. Her grasp was surprisingly strong.
I am tired from the trip down and don't know if I can get back home tomorrow in time for my appointment. My therapist is going away for 3 weeks, so I would like to make it. I will have to leave by 9 am which is not bad. Will have to see how I feel. If I need to, I will stay another day.
Talking about the weather, it is cool, about 60, and threatening rain here. I prefer that to extreme heat.
Take care all.
Thx re the meeting everyone.
It went well. "Strangely" enough everyone found time in their calendars to be there except the pharmacist. We cancelled the meeting on the 27th, but I will follow up with the DOC. They said they had very few drug errors. I am not convinced. We got info about what happened for the 2nd error. I was distressed to hear that mother was crying out in pain which caused the aide to rush to get meds and she got the wrong stuff, or that was the story. The first error was just a plain mistake. I questioned about the pain, as no one has mentioned it, and said if she needs more pain meds give it to her. I gather the pain was from being immobile and sitting in one position. The caseworker repeated what she told me last year which was that mother needs more and more hours from the staff, and asked if I would approve a complete evaluation of mother's physical and mental health, as she probably needs to be moved to another facility. I agreed as I think it is inevitable now, and perhaps it is better.
The actions that are being taken as a result of the errors are retraining of the individuals, general staff retraining and awareness, and bringing in this computerized system for checking the meds. We stressed the need for continually raising awareness. I asked R to run the meeting as that is his area, and he did a great job. He will follow up with phone calls and emails to several gov't departments and the politically active volunteer organization. The lady I spoke to on the weekend presented better than on the phone, I was pleased to see, but still does not inspire much confidence in me. I felt good about the DOC.
Mother's fever is back to normal, as are her vital signs,so she has weathered this storm. She is one strong lady. R and I had a visit with her, She said she could not hear us so I have to follow up with that. She recognised us right away and since talking was useless, we just sat with her, and I held her hand. Her grasp was surprisingly strong.
I am tired from the trip down and don't know if I can get back home tomorrow in time for my appointment. My therapist is going away for 3 weeks,so I would like to make it. I will have to leave by 9 am which is not bad. Will have to see how I feel. If I need to, I will stay another day.
Talking about the weather, it is cool, about 60, and threatening rain here. I prefer that to extreme heat.
Take care all.
My only option to get a bigger place (for same amount of rent) would be to fabricate application details and I'm... not crazy about that idea, as you can imagine. I'm thinking about all of it and trying to come up with what plan makes most sense at this time. :)
Rainey, I'm always amazed at the costs in CA. But, for what it's worth the schools where my son lives are excellent. Plus, all of the good roads and nice parks. Unheard of in areas where they have cut services and taxes to the bone. I guess one can't have everything. My son and his family love CA. Especially after living in a more rural part of Nebraska. They got transferred there four years ago. There probably about due to get transferred again with my daughter-in-laws company. My son is a high school math and science teacher Masters level, so he can always find a job wherever they send her. Hope you're having a nice day.
Caregiving is the hardest I have ever done in my life, and I worked in direct, hands on health care for 30 + years!
Prior to my FIL coming to live with us for 13 years, (he is now in AL X 2 months), both my parents were very ill with difficult disease processes, and my MIL had CHF too! Thankfully as I have mentioned, I come from a very close knit family of 6 siblings, and together we all chipped in, caring for them until the end, where all 3 parents passed away within a 14 months span of time, and directly, my FIL moved in with us.
Boy oh boy, it's has been a very dificult road, and still is to some degree, though much better, now that he isn't living under the same roof with us! This is the first time in our 33 years together, that we haven't been directly responsible for a child (we collectively had 4 together), or a parent. Just reestablishing our marriage is a feat in itself! We certainly do not know what it's like to live alone together, and it's Weird!
There is enough outside family goings on, that it doesn't give us time to really concentrate on it, but Man, the things that make you say Hmmm! Lol!
I have found that with my FIL out of the way here, hubby wants to get a lot of things updated, painting, clearing out STUFF, yard work and such, but without his Dad here, he is just so messy, leaving piles of stuff in the wake, things boxed up, painting drape cloths, paint cans and brushes, tools all over the kitchen counter, and everywhere else, all of the pictures from the walls are down, not yet put up on the freshly painted walls, as we are still undecided whether we are staying or selling, and my house has never been so messy and I hate it!
Something has got to give, decisions must be made, and hubby needs to get his act together! On the flip side, I am lazy, and he doesn't appreciate that either, but in my defense, I had a very bad bout of 3+ weeks of severe chest wall pain, and I truly feel that all of the stress leading up to getting his Dad placed into AL, did play part in that, so I feel we deserve to finally take break from all of the stressors, and not Rush right into Major decision making mode!
Gershun, I hope you know that you are welcome here Anytime! This just happens to be the thread where I found the most kinship and got very comfortable spilling my guts, and I also got very attached to these fine people, who also have simular stories to my own. I feel like I bring a little different perspective, in that my own family life was pretty normal, while it was my husband's that is so dysfunctional, but I love the folks on here, and have a vested interest in their lives! I Love when newcomers show up, and feel that same kinship, so Everyone is Welcome, I hope you know that! Everybody has a viewpoint that is important!
It's a Gorgeous day here in Sunny Seattle! We've had the most Glorious summer so far! My backyard us my sanctuary, where I Love to catch up on the blog!
Golden, good luck today!
Take care everyone!