The Caregiver & Dysfunctional Families: How are you doing?

Bad CGs:

After P, Iv was the 2nd CG. She was a 19yo who smoked pot in her car while on the clock and came back in to care for GM completely high and squinting/smiling like a doofus. I found Iv's public tweets were full of talk about smoking weed and getting high. I reported her to the agency. She was replaced with K.

K had been convicted of theft/assault, which requires a waiver per IL licensing for in-home caregivers. I said this to the agency. Nothing was done about K, as now the agency was working to frame me as the problem. Other than the conviction, the issue with K is that she simply didn't do the job of feeding and changing my GM consistently or with any professionalism. My GM would literally hold her poo until it was K's shift to show her displeasure with how K treated her. GM knew what she was doing and told B/me she didn't like K.

Ber was hired as a 3rd caregiver in the home for the sole purpose of getting dirt on me/dad. After I found out she covertly recorded us in the home, my attorney told her that she had to delete the recordings.

It was a proper mess all around. And while I would go back and change many things, ultimately, it was an evil agency causing the issues to avoid a hurdle to their cash. Rockhill lied to my cousin/guardian, and, for whatever reason, he took their side. Looking back, I think the owner was just that slick, and she threw enough against the wall that some of it stuck. She turned him against his uncle and me, even though he should have known better.

One day, I found all the new clothes I had bought for GM packed in trash bags in her room. The agency had told Ber to take her. I called the guardian and the police. The plan was stopped for that day as the police said they had to have an order. After that, a legal petition was filed, full of lies, and signed off by my cousin. To this day, he says he didn't know they were planning to take her. I don't know what to think. He signed it. Surely he read it.

They moved my GM to an assisted living over an hour away. The agency left a sign at the front desk saying that no family was allowed to visit. I got past that a few times, not knowing it was there, and visited my GM. Later, I was shown the sign. I called Dv. He wouldn't answer my calls. GM stopped eating in the AL and would lose 40 lbs in the next month.

She became so bad she was hospitalized, and c-diff was dx'd. I went to see her and was asked by a nurse and hospital security to leave. They were pleasant enough, just doing their jobs, and I was cooperative. They told me that the guardian said me/dad weren't to visit. Bro was with me during the trip and was allowed to visit. To this day, Dv says he didn't do this. I believe him on that one. I think it was the agency.

On discharge, one of her instructions was to take her back home. The agency had K remove the page from her file. I later got it through a records request.

They kept her away for about 45 days. At some point, I got Dv's permission to bring her back. B drove her home, and there is a video of me and B dripping juice into her mouth, and she is swallowing and asking for more. She would die in about two weeks.

...

There's more bad stuff I'm still finding. Many things about the agency seemed sketchy: a fictitious business address, a sales/marketing person getting into the caregiving agency business, and she openly bragged about having my cousin in her pocket. The franchise agency had a documented incentive contract for placement with the AL.

And I'm just grieving it fresh. I haven't thought much about it since then because once GM died, I had nothing to fight for. I became ill in 2012 and then was pretty much bedridden for a few months in 2013; the mold was found and remediated, and I suffered through the next 4-5 years chasing my dad's care needs around and kept us and the house together.

HI Burnt, your comment coincides with some things I'm remembering.

I had good rapport with my cousin/guardian before I went to help in person. We had talked a couple of times. We were on good terms, and I could never have predicted that he would stop taking my calls within a couple of months and sign off on a petition to change residency for GM. I would have left the home before I let that happen, but they never gave me a chance. The petition also called for the eviction of my father, and I knew my GM would NEVER want that, so I had to stay and fight for his sake. I had my immediate family's support because we all knew GM didn't want my dad away. He wasn't physically/financially abusive, just challenged (TBI, disability rating), and sometimes difficult for bad CGs to interact with.

I had good rapport with the agency owner. We had talked many times on the phone and met several times in person. I couldn't have predicted that within a couple of months, she would be saying that I was a drug user and was financially abusing my grandmother. (I'm sure many family caregivers can relate to how ridiculous that accusation is. I left that situation with $16k in unreimbursed receipts and never got a dollar for helping). E.g., Rockhill said I ordered a new washing machine through the trust but didn't put it in the house. It was RIGHT THERE, in the house, and the caregivers used it.

I hired an attorney to file for my guardianship when I saw the direction of things, and I think I would have won. I also fought the eviction so my dad could stay in his home, as GM wanted per her trust instructions. She declined so fast once she was taken, though. Once she passed, my dad was the beneficiary, and there could be no more legal action against him. Guardianship was terminated, and the agency was done.

This has nothing to do with why GM was so neglected previously, but I want to emphasize how FAST my GM's situation went sideways when I tried to improve it after years of her wasting away alone. It's as if no one wanted me to rock the boat, even though I only wanted to provide improved QOL for my GM.

It's my family's fault that we left GM in that situation with no in-person oversight. It was depressing: she had lost her once-fierce independence, and she and my mentally challenged dad were in that filthy house. Bro and I would visit. No one would ever stay over, and we were relieved to leave. It's sad. We didn't know about the theft. I assumed GM got decent daily care. I mainly went to clean the place up. Only after being there did I see the neglect and theft. It wasn't just caregivers, as another cousin had ordered things on my GM's cards. Carlton Sheets, No Down Payment System, $450 on GM's card. Good grief.

GM wasn't left in soiled BMs, except sometimes by the bad caregivers. I mentioned that because, though I didn't know UTIs were common in the elderly, I knew that bacteria could cause one. More about bad CGs:

Since GM needed 24/7 care, there was always a 2nd/3rd caregiver. Br, a great one, was there throughout and a godsend. The others were a revolving door of bad ones: extremely lazy, unskilled, and worse. P started at the same time as B, the same time as I arrived. P had the habit of calling my GM "mom." My GM's deceased daughter is also the same name, P. It upset GM that P would leave every day. I asked P not to call GM "mom," and P took it personally. The deal breaker was one morning, P screamed at me over my cleaning (still not sure why cleaning was bad; I think P woke up on the wrong side of the bed) and later apologized to me. I called Rockhill and said P had to go. To cover their butts, P and the agency hatched this story that I left things out while cleaning that were a fall hazard.

If I could go back, I would work it out with P. She was the best of all the bad CGs to come, and I'll write more about them in a new post.

Thanks, all, for this opportunity to get this out. It's painful but helpful. 😢

@Ali

The responsibility was on your cousin then. I had a dementia case where the family lived far away. The client was incontinent, in diapers, and bedridden. When I suspected a UTI (believe it or not I could tell by the smell), I called an ambulance and explained that I suspected a UTI. I always sent a bag and gave it to the paramedics with her name, insurance information, and call me when she was getting brought back home. My crew covered her 24 hour care. If she got admitted I called her son. Other than that I handled all of her medical things and did roght by her.
No one ever asked for POA from me in the hospital to treat her. A care agency cannot refuse treatment. I'd talk to personal injury lawyer on that.
Why was her jewelry, cash, credit cards, and social security number accessible to the agency and caregivers? A care agency doesn't get paid by credit card. They get paid by check or insuance. This is pretty basic stuff now.
Did no one communicate any of this to your cousin the POA, or the police, or APS? Like how grandmother was left with crap in her diaper and you suspected that she was sick and needed medical attention. No one thought to call APS or the police and tell them that an elderly, vulerable senior with dementia is being denied medical attention by a minimum-wage agency caregiver and their convicted criminal boss?
They'd act on it.
The responsibility for a vulernable elder with dementia cannot be left totally in the hands of a care agency and their employees.
This is what happened with your grandmother. Sadly, this happens in many families. No takes any responsibility for the elder because they believe the care agency is supposed to because they're the one getting paid. It doesn't work that way.
I've been in this line for a very long time and have worked for more clients than I can even remember. I remember the families who thought that because their LO now had a paid caregiver that the agency or caregiver now assumes full and total responsibility for their needy elder on every level.
These families usually had to learn the hard way that we are not totally repsonsible for every need your elder has.
When I went private care I had a client taken into protective custody because her family thought they'd be slick and left from work and school for the Thanksgiving weekend without coming home (she lived with them). They didn't want to bring her which is understandable, but figured I wouldn't abandon her and would keep her with me for the holiday. I left her with the cops. Her family wouldn't take my calls, but they sure answered for the police.
Families will pull stuff like this. Now your cousin had the POA. They were legally responsible for your GM. You could have done things differently too. Like calling the police. Like communicating with your cousin.

Ali, all of this was before my time. I just want to give you a hug, tell you to do what you need to do to purge this toxic memory. If that means criminal prosecution, writing a book or whatever, do it

The board and care my dad was in was pulling some serious crap, I pursued getting this stuff exposed and corrected. They ended up being shut down by the state. That was their choice.

Evil flourishes because good people do nothing.

You do what you need to do.

Thanks for sharing that, Burnt. The industry could use a lot more people like you in it.

The agency could refuse to allow her to be taken for UTI testing because my cousin was the guardian and living out of state. Since the agency perceived me as the enemy, anything I wanted was nixed. I didn't know about the elderly and UTIs back then, but I saw GM's urine was cloudy and knew she had BMs in her Depends. When I pushed for testing, the manager told the caregivers I was being dramatic and said they weren't to take her to the local clinic.

It just stinks. And yes, caregivers stole from her. The jewelry was long gone. One caregiver had opened a credit card under GM's name, and I reported that to APS. A check came in the mail sometime later for the amount charged. So, in my case, I was finding problems and reporting them, and since I wasn't the legal rep for GM, the agency wanted to get me out of the way.

Golden, that was the feeling I first had when I started reviewing these old docs a few days ago. How the heck did I live through that...!?? And then, in the past two days, the grief is coming on.

If nothing else, I think this could be good therapy for me to revisit this stuff in the long run. I think having a decade of perspective to view these things is helpful.

Hi, Duck. :) I almost missed you, in the middle of my upheaval. I recently worked on old paperwork and laptops that I want to get rid of and found many documents and videos from the start of my caregiving in 2011. Reviewing them is causing me a whole world of feelings. I'm always thinking of you, sis. Keep walking in the Light. (((((hugs)))))

(((((((hugs))))) back. You went through some horrendous situations caregiving. I have been amazed that you managed to survive. And to go on and thrive.

I have an idea of the chaos from a dysfunctional family and what that does to a person and how it affects their growth and development. It sure did a number on me.

So sorry about your bf. That was/is a great loss. It's more than losing a person, as you haven't lost him, but a role, a way of life and plans for the future as he stated them. Since he is still a bachelor I want to hope there still is a chance for the two of you, albeit a different scenario.

I'm glad that you feel safe talking about your stuff here. I let loose a few posts below re a number of things, including my daughter, and I realized I am grieving that she has her version of the family genetic curse from my mother's line and that. although she as gotten much treatment and still sees her psychiatrist, I suspect that things are about as good for her (barring the cancer) as they can be. I guess I need to rejoice they are that good rather than focusing on what isn't. No parallel to you here - just where I am at and an understanding that life isn't easy some times.

@Ali

Your family's story is one more sad tragedy among millions of others. An elderly LO needs care and the family get screwed over by a homecare agency or a care facility.
Most homecare agencies will hire anyone. It's a shady business and I own one. For every client case I go out to open I tell the client and their family to make sure the caregivers cannot access their money or their valuables. If a potential client is cognitively challenged or elderly I require a secondary contact that I personally check up weekly to make sure everything is going smoothly in the client's home. Depending on the care situation, if there isn't a secondary person listed, my agency will not take on the case.
When it comes to payment, the client or their representative deals with the office directly.
I believe you when you say you're not exaggerating, but I don;t see how a criminal office manager can prevent a care client from having UTI testing. Who had your grandmother's POA? At over 100 I doubt she was paying her own bills every month and managing her own affairs. Someone had her legal authority to make her decisions and it wasn't the agency office manager. I also know that I was an in-home caregiver for almost 25 years. Many of those years were as agency hire. A vulnerable person cannot be left dependent on a care agency. One of the reasons I went private care only was because the business practices of homecare agencies made me sick. They screw their employees over just as hard as their clients. Complaining about a caregiver to the agency that employs them isn't enough. There has to be someone checking up all the time. You also don't have to stay with an agency you're not satisfied with either. Every homecare client gets a Bill of Rights in their care folder. Most people don't even bother to read these. A client or their legal representative has a right to know if a convicted criminal is coming in their house and to refuse to have them. Clients or their representatives can also insist on regular drug testing results from any caregiver in their home and police backround checks. You have a right to all of this.
I'm sorry your family had such a terrible experience. You should write a book. I've been working on one about my long experience for about three years now. Do it.

Golden, it did sound like I was defensive in that comment, but I also wanted to add that context. I feel like talking about this right now, as you can tell! :) It's definitely ALL on my mind.

My life was more chaotic from 2011 forward, and you've never known me outside of that. I had different chaos before then, stemming from a rough, uber-religious childhood and the emotional immaturity I left it with. And I pushed myself hard, becoming my idea of what a successful, upwardly mobile young woman should be. lol My bf in 2011 was wealthy, and I had a spoiled life with nice things. We'd been off and on for twelve years at that point. He's still a friend and the best bf I've ever had. The sadness of losing him over this situation is also part of the grief because I regret that I left him long enough for him to realize he could live without me. :) I've often wished we had married and had children, and he wanted that when I was in my 20s. He's still a bachelor and the best man I've ever met.

I need to get over all of it again, and really, losing my bf isn't a big deal. Bringing myself back to 2011 through these videos is bringing all of this up again. I'm thankful for all the hard lessons I learned from my caregiving experience, but I paid a high price.

Thanks for being there for me right now. (((((hugs)))))

Oh ali - Please know that I am not in any way questioning that it was as bad as you say or that it has changed you. I am just saying look after yourself.

When I said probably before that to, I was referring to your family of origin issues. I know nothing about your life in MDR.

I'm indulging myself too much with these posts...

But I want to say...

I never wanted any of this. I lived in Marina del Rey before I went to south Chicago in July 2011 to help my dad and GM. I had a great life at that time. I went because my dad - who never calls me - had called me asking for help in the months after my cousin Db, GM's previous guardian, had died. Dv was the new guardian, and things weren't going well under him. I had been to visit GM in March 2011 and was sad at how filthy everything was, and she seemed depressed. I figured I would go clean the place up and try to help my dad with the new caregivers he was butting heads with, and that would be it. I'd go back to MDR.

I started working as soon as I got there. I put the house in shape while the caregivers watched GM. But I noticed there wasn't food in the pantry or refrigerator when I arrived. The good caregiver, B, started the same day I got there. We noticed these things and were suspicious together from day one. GM's account was being charged for shopping, so where was the food? I knew there was a problem. So, in addition to non-stop housework, I started looking into things. And that caused issues because I was a pest. lol If I could go back, I would simply do the work and keep quiet, but 35yo me was so confident that right always wins over wrong.

Whatever chaos was in my life before caregiving was different. The experiences with GM, the house/mold, and my dad's care changed me. I hope I never feel that disheartened ever again.

Ali, I am right there with you, I don't think I slept a wink last night. The last time this happened I made a mental note that I had a piece of Hershey's Special Dark Mini too close to bedtime. Yes, I had a piece last night as well. No more of that!

ali - I hear you. You are hurting and very, very angry. Rightfully so!!! What to do about it now is another thing.

I think first of all you need to deal with you. You have been overwhelmed with life issues - yours and your family's ever since being involved with GM's care. Probably before that too, but that it is the time period I know best.

It has been a lot!!! And you have powered through it, likely not able to deal with all the emotions as you went along, so they built up.

By all means write it all out. Feel your feelings as you do this. Use the energy you have now to benefit you. Send's idea of writing a book may be your answer. Write and exercise!

Be sure your health and hormones are in good balance. I am NOT using this as an excuse - the typical pre and menopausal junk aimed at women. I have had my thyroid out of whack and it affected my emotions deeply. You owe it to yourself to see that you are healthy.

Give yourself time and think how best to use that time.

GM would not want you to get yourself into any trouble either. She is gone. You and your memories and emotions are here. You have achieved academic success in an area where your reputation could be affected by your proposed actions. Glad made that point first. You have worked long and hard and succeeded admirably. What you have achieved is very valuable.

Right now look after yourself in all ways. Feelings are temporary. Remember we are powerless over other people. This is affecting and will affect you far more than anyone else. ((((((((hugs)))))))

Can't get back to sleep. I need to practice more self discipline.
It's too early to get up and about.
Sorry to be repetitive, but I blame the full moon, 98.5% and waxing.

I will pray starting with all of you.

Ali,
You could write a book. It would be read, and may change things for the better for elderly in facilities.

I couldn't do it, but you could.

It's 6 am, and I woke up suddenly after four hours of sleep. I can't go back to sleep, so I came here. :)

Golden, I am grieving for my grandmother. Watching her so happy (for the first time in many years) in these videos, then seeing what she quickly became when she was removed... It was wrong then, and it's still wrong. She was taken based on lies meant to get my dad and me away from having any say about bad caregivers that Always Best Care was placing in her home (one had an assault charge, and that requires a waiver to be licensed for home care) so that the agency could continue in charge of her care. Some caregivers were fine/good, but others weren't. If they weren't, I said so, which made me an issue for ABC. They also hired a criminal as their office manager, and that person caused problems for me (they refused to allow her to be taken for UTI testing once - later, it was confirmed GM did have UTI). That office manager took the money out of the company account a few months after my GM died. What a disgrace of an agency. Just a mess. Bad hiring aside, the owner did things that caused a rift in my family and made a poor 103yo miserable and alone in the month before she died.

I exaggerate nothing. If anything, it was worse than what I'm saying, and reading through old documents reminded me of that. So what would you do?

I think I have an obligation to record the events as dispassionately as possible, and maybe I can help someone else in a similar situation.

I can't get over how wrong the agency acted here. The MB Financial Bank trust was all too willing to go along. The trust officer was a fellow parishioner of my grandmother, and she trusted him completely. I feel he betrayed that trust many times over. My cousin was a pawn. The agency owner told B, the good caregiver, that she had him in her pocket.

Maybe I grieve again and set it aside. But whew. She was an agency owner for about one year. Her brother remains with ABC in DuPage, north of Chicago, but she came and went in a year. And in that single year, she put events into place that broke my heart and caused an undignified end of a strong, healthy 103yo vulnerable senior. I wasn't allowed to see my grandmother at the residential placement facility they put her in for money (it's documented that this chain provided monetary incentives to ABC to place her with them) or the hospital in Lisle. Specifically, my father and I were banned. We were the most familiar people to her, but to push this narrative that GM had to be removed, security/staff were told that we were abusive. I have pictures of the signs in the lobbies and a video of a nurse and security in Edwards hospital telling me that I must leave. I cooperated then as best I could and hired an attorney to file for me to be guardian, but once she died... what was there to fight for anymore? Since my dad needed a lot of care soon after, and I had my own issues, and I wasn't getting anywhere with a suit, I put it away around 2012-13.

What would you do? It hurt me, but it hurt my grandmother more. She was alone and miserable, rapidly declining, refusing to eat/drink, and crying to go home.

I believe she would want me to tell what happened to her. She had a strong moral sense.

What a saga, eh? I never talked about this situation much on AC. GM had passed by the time I first came here around 2012.

I get the feeling my posts are perceived as my being emotional. That's not fully accurate. I always wanted to see accountability for this situation, but it's been out of sight for many years.

Hummingbird hugs
Ali I am so with you on the struggle with sabatoge via agencies and family.

I must express my appreciation and gratitude for tolerance and support in my issues and posts.

Ali I am not caught up on your situation.
I have to express a kindness connection to your journey

It's horrible hearing the corruption in agency that function to help and intervene and protect.

I feel your dilemma and struggles.

I also think it's great that you have the possibility to resolve or even discuss issues with your mother.

One thing I must express is the beauty and love I see in your heart that perseveres throughout your struggles. It has been inspiring from day one.

I also have to share and express that deep in my heart and essence that the corrupt agency and all involved will meet God's Justice and Judgement.

Golden as usual always I appreciate and cherish your advice. Thanks for your wisdom and being a channel and angel.

So I was losing my MOJO.
I know God is Good and always there.

I am holding on feeling a need to vent in every situation that puts me In a memory of something that has impressed me significantly.
So much to say and share.
I just know that the Father is always working for us even when we have no clue or can't fathom the possibility.
Even through these posts.

Rays of love healing greatfulness and wisdom to us all.

ali - on rereading your posts what has come to me is that you are grieving. Is something triggering your grief for your grandma? I know she was very important to you and you were blessed to have her.

Or are you grieving someone/some thing else as well - your dad, your relationship with your mother?

It's just a gut feeling from my own experiences and what I know of you.

In any case BIG (((((((hugs)))))) and🧡. We are here for you.

Be especially good to yourself these days. ☕🌷🌹🌻🛀🕯🍫

I agree with others on here Ali. Wait until you can think about this in a somewhat calm state of being. Never do anything in an emotional haste.

During my days of caregiving for my mom I sent off a string of angry e-mails to my family members that I totally regret now. While what I said was true and sound they should probably have never been sent. Later once the dust had settled I reread them and felt foolish.

You'll resolve this eventually because it is so important to you. But take deep breaths and settle your mind first.

Ali,
As a caregiver, we have taken some big hits.
You are right, it is not good to rehash if it takes you to a dark place.

If you can wait until the full moon passes, and you feel better.
Yes, deep breaths.
You are wise to put it away for now.
Just for now.
Justice needs to be addressed sooner or later.
You can work this out, but later?

Okay?

You're 100% right, Glad. Rehashing all this takes me to a dark place, and I know it isn't good for me. Ok! I'm putting it down for tonight! 😁 Thank you. 😘

*Oh, but for sure, the house was undervalued for the purpose of the trust. Comps are $200k for the neighborhood, same house, same condition as when I left. It was tract housing from the 1960s. All the houses are built the same. I did all the cosmetic work I could -- painted and restained cabinets and wood, and took up carpet over the hardwood floors. The basement was completely rehabbed through mold remediation. It was worth more than $90k. I don't know how much more, but more. The flipper put in new bathroom cabinets.

Ali, I can almost see your wheels spinning. I did that so often about sissies BS while I was caring for mom. It is surprising I didn't make myself sick or worse.

Try to stop the wheels spinning. Be smart, be deliberate, and take you time. Be smart.👵👵

Check the assessor's site for ownership of the house. Then see if you can determine if that person was a friend. Check on sales of similar homes in the same time frame. If you have a realtor friend they can help guide you in that.

Re: the trust. With help from an elder attorney, I set my dad up so well that he has never needed the trust for anything since he's been in his IL. The only payment from that trust in the past five years is to themselves for the managing fees -- about $500/month. I was never paid anything for my caregiving time, and that's ok, but it IS ridiculous that the money never went to help me take care of my dad. I had to beg them for a mileage allotment to help with gas taking my dad to and from appointments at the VA an hour away. My nephew is in finance and looked into getting the trust (only maybe $100k at this point) cashed out so he could manage it privately. The trust said no.

My grandmother meant so well by setting this trust up, but it's been a mess once she was deemed incompetent.

*The trust flipped my grandmother's house for a $100k profit. I had done the work to get it cleaned and fixed up, and they appraised it at $90k for the purpose of the trust. But it was sold for $200k in 2017 after the bathrooms were updated. Not gutted; they just updated the fixtures. I can see all of it on Zillow. It's dirty stuff. This is pretty common and has been reported in local probate watchdog groups, but it's legal. The main trust officer I dealt with during the caregiving days had done this before - he bought outdated houses from his trusts, rehabbed and sold them. It's public record. An LLC bought my grandmother's house. I tried to find out more about the LLC, but this is the only house - and only business transaction - linked to them. I find it all very interesting. If nothing else, I can add this info to the local probate watchdog forums. Cook county has notorious probate corruption.

Now I need to take many deep breaths and leave this all for another time. 💗😌

Glad, I feel certain that I do not have legal action here. I tried very hard back then to pursue one and talked to several attorneys. The agency was reported to several entities (APS got involved with me at one point against them), and there was documented wrongdoing on their part with some things around licensing. Then they went out of business.

I think the worst that could happen is that I am sued. But on what basis? It's all true; as I said, much of it is public record through the probate court. The only part that isn't public is the video of the owner lying on camera the day she came to take my GM. But that video shows the owner is clearly aware she's being recorded, so I don't believe there is any legal issue with publishing that video.

But I will get legal advice before I do this because that's just smart. Thank you.

I found one of the old caregivers on Facebook -- a great lady and a true friend to me and my grandmother -- and messaged her. She knows everything and knew her owner was lying and being manipulative. Because of this caregiver, I knew much of what I did - like how the agency removed the hospital discharge instructions that said to take my grandmother back home. And that it was the agency owner responsible for the local police showing up at my door and asking about drug use. There was just so much dirty stuff. :/

I've always wanted to catch up with her and give her something to show my appreciation. She stopped by to see my dad and me about a year after my grandmother passed. We were really close in those months before my GM died. The morning GM died, she and I held each other and sobbed. We both hoped we could turn things around and get my GM to how she was before she was taken, but it wasn't possible.

She will be a good sounding board about this.

Ali, he very careful. What should you do? First consult an attorney so you don't get yourself into trouble, especially in something like this. You do not want to jeopardize that degree you worked so hard for, and grandma wouldn't want you to do that either.

If you feel the need to do something, consider contacting the DA. Maybe there are illegal actions that took place that are still within the statute of limitations.

ali - much sympathy for the position you are in. What that person did is horrible. I understand you feeling it needs to be exposed. All I can suggest at this point is take your time so you know beyond a shadow of a doubt what you want to accomplish and maybe consult a lawyer so you don't get yourself in trouble. However, it sounds like you have looked into that aspect of disclosing. I know you had all kinds of problems with trust as well. It really was a nightmare.

Deep breaths,-feel your feelings, you will figure this out. (((((hugs))))

Most importantly, get the help that she needs so you have time for yourself to take a break, daily for a couple of hours would be wonderful. Admit to rehab following surgery for at least as long as insurance will pay for it.👵👵

Hi, I have been hovering around from time to time. My wife has a torn rotator cuff. It requires surgery and it means a 6-month recovery with a lot of PT. I'm starting to wonder what I need in order to survive being 'nurse ned' as I've done before for my wife who is now 68 and I'm 65. All wisdom and ideas are appreciated.

I wish I could move on without feeling like I need to do something. But, whew. I don't know about this one. It's so much injustice. It was so corrupt and cruel what an agency owner did to my family and my grandmother. I want to put it all online for my other family if they're interested, and in my last gesture of caring for my grandmother.

It's been emotional for me to revisit all the old caregiving stuff on my old laptop.

There's one thing that is begging me for some better resolution/closure: My grandmother's old agency owner had everything to do with GM being taken from her home, against doctor's orders, around Christmas 2011. GM was 103yo and VERY lively/healthy. She became depressed and lost 40 pounds in the next month and died Feb 16th.

I looked into suing them at the time, but because my out-of-town cousin, who was the guardian, had signed off on the change of placement petition, I would not have been successful. (He'd only been the guardian for a couple of months as the previous guardian, his sister, died that year.) However, the basis of the petition was lies formed by the owner. She hired an "elder expert" to come in and assess my grandmother's living situation with the intent to frame my father and me as bad for my grandmother. It was all about money. I had found out that unlicensed, criminal caregivers were being put in my grandma's home, and to secure her one main account, this agency owner did some horrible things.

As I've come across so much evidence of what happened back then - the videos of GM so happy, chatty, and content in the months before she was taken, the video of my not being allowed to visit her in the hospital when she was dying, video of the owner lying on camera about the reason for removing GM from her home - I'm feeling overwhelmed. I'll sit with my feelings for a couple of weeks before deciding what to do. (Because she declined so much so quickly, eventually, in February, I was able to take GM back home, where I nursed her for a week or so before she died.)

I think all of this needs to go into my YouTube channel. I absolutely plan to name and shame, as it's a matter of public record, and all videos with the agency owner show that she is aware she's being recorded. She drove a wedge in my family that would take years to undo. While there are no hard feelings now between that cousin and me, the owner robbed me and my family of anything else my grandmother would share with us had she not been taken out of her home.

I had this effect on GM that was remarkable. Even though she had 10 years of dementia, once I was there from July 2011, she started talking more. She just hadn't had anyone to talk to as I talked to her daily, and I would steer the conversation to her childhood. There's so much I learned in just a few months. Even one more day/video of that would mean so much to me.

I figure I sound nuts. I'm definitely feeling emotional, but this is not a new thing. It's what I always wanted to do, to somehow hold the owner accountable for what she did and what happened to my grandmother. She did some very evil things for a little bit of money. And though I've forgiven my cousin and believe he was a pawn in all this, some things have come up in the documentation that...

Well. I don't know how to put it. Except that I think the naked truth needs to be published. I'm not out to slander anyone. This sales/marketing lady took a shot at owning a caregiving agency, and since my grandmother was her best client in her first few months, then she did some very ugly stuff to protect that "asset." That's the truth. And I want to make it public.

I'm not vengeful. But my grandmother deserved better.

I won't go off half-cocked. I'm musing out loud at this point. But I ask myself, what can I live with..? I don't think I can live with not giving my grandmother a voice about what happened to her.