
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
I understand.
I told my aunt about the friend, that it is NONE of her business or anybody else's who is in my house! Also told her that I had heard this lots before so I was very prepped for her comment! The gall of some people! And I also told her my sisters are doing themselves a terrible disservice because all their bit##ing and moaning is actually helping to motivate me to continue to care for Mom to the best of my ability. I will get this done, at least until I cannot any longer. And I will be DA**ED if sisters will have anything to do with MY decision of when I can't do this any more! I always was contrary that way. :/
Fruit flies are proliferating here - didn't get the garbage out in time. I set up my fruit fly traps and they .are working well.
We may get mother moved by Christmas, God willing. I really hope it doesn't stretch out into Jan and Feb with the extreme cold which makes everything harder.
Sharon - the due date is coming soon!!! Exciting!!!
Have a good week everyone - do something good for you. Think I will get my hair done this week. At least that does not take much energy. (((((hugs)))) to all.
Sandwich - well put!!!! I so agree "When other people demand more than they can get out of you, well, their upset feelings are their problem" Actually other people's feelings are always their problem and not yours/ours.
Loo -I am not surprised that you can log a lot of time. I feel that I put in a lot too, whether it is simply searching online for washable outfits that fit her and that she will wear (hopefully), or dealing with various financial/business matters , or trips there or etc. It is not just time, but money too. Then there is even mail that has been erroneously redirected here for her which belongs to someone else. I need to do something about that. And with limited energy, I wonder why I don't get my own stuff done.
Christine -good for you. Would Charles and/or mil buy in better of the doctor was firm about it?
glad - I think of you as a pillar of strength and a very well organised lady. I have no doubt you are doing an excellent job, even in the face of the opposition you get from your narc sis.
Sharyn -sounds like you work with some immature people. Hope your vacay time off doesn't cause any more problems. I know you are going to go anyway
Marg - your bro probably is ADHD. That can get lost in a dysf home. Good observations. It is a tremendous amount of work, but it has paid off. Kids with these problems must have the support of their parents or at least one parent. A wise psychologist once said to me "Let them know that you love them". I am still working on that.
new developments with mother a new post for that I think
karan - is it time to look at alternatives for yourself. it sounds like you are in a very stressful and negative environment. Maybe your social worker can help.
vjohnson -I am so sorry about your situation. "Who says things like that to their child?" Many of us can identify with that. it is a good idea to check Medicaid and also va benefits. Maybe approach your local agency on aging and also social services to see what resources are available. Yes. you need to get a job.
cm and renea - good advice
me -I don't know where to start. You can say No to your grandfather and to others. Like sandwich, I think that unless he has set up something in writing about the house going to you, he is just using it to manipulate you. Beware the FOG - fear, obligation and guilt. You sound like you are in continual stress and that will, if anything, make your kids worse, as they are living in chaos. You really have way too much on your plate, and are letting others run your life. There was some one else on this site whose father wanted her to live with him to give her kids a nice home and neighbourhood, and so she could look after him. It was h*ll on wheels for her and her kids. Finally she moved out. I can't remember what arrangements were made for her father's care, but she was much, much happier in her own home, even though it was smaller. Just because your grandfather doesn't want to hire someone else, doesn't mean you are obligated to look after him. Your kids need a good routine, less stress and you available to help them with their pribllems. sandwich it sounds like you had that routine down pat
I've been reading about the ADD, etc.
I recently saw some information on one of the news channels, and educationally speaking some experts were questioning the traditional method of education used in most countries. One person stated that there was a growing question about the validity, and even the benefit of putting young children through pressures of tests, and so much homework, as it relates to a beneficial learning environment for kids.
My sister and me have always suspected that golden boy, our brother could have ADD. He was super hyper as a kid, and didn't know how to follow things to their conclusion. This I'm sure was attributable by possibly the wrong messages sent to him, by both our parents of being a little leader w/in our family, he being the oldest boy. Of course this whole idea never served me, in any way, since truth be told, I had to be thee most responsible one; I was the eldest sibling.
I applaud all of you, who have dedicated time, and have become advocates for your children who were affected by ADD, ADHD.
Much Love & Light! Margeaux
Anyways grandpa was upset and telling me you should be done down there you can do your stuff later you cant have that much I need my windows done now.. oh my god whats wrong with you etc"! A call an hr later, he told this to my dad( I explained previously my house what and where I need to look for the clothes and etc my son is acting up I just cant!!!! )Well Im loudly saying I have lost it!!! Im not in the mental state to be near anyone, I cant do this .... someone can fix your lunch and dinner like dad, neighbors ...I can clean windows later tonight in the background while hes telling that to my dad. Honestly I dont want to go down tonight... I dont want to be home either...My kids wont help with anything.......dad cant physically but is now trying because I cant.. I cant touch anything Im shaking.. Imy mind slips and I cant finish whatever it was,, I have to stop ... my mind is fried... I get up and leave my room and I start feeling sick.. Im so upset.. Im so done ...I look at everything to do around.. waiting for the phone to ring and get yelled at... well, I get yelled at here too, and yes hit by my son. Isnt it something, I get beat up by my son!! If he doesnt hit me, he throws things.. anything at me...all of us. Remember I told you all he was violent.
Grandpa keeps calling for me to help ask questions omg I just want to be alone from everyone! Im sure thats how u all feel with me too being on here several times a day.. Im not allowed to go anywhere ..Im in hel$... or prison or something. My son again hates me, wished I was dead again, I really lost it and told him one day he will get his wish and hopefully that will make him and everyone happy........
Im so sorry Im really sorry.. Its something how I came here to see what I wasn't doing for my grandpa , what else I can do for him, as well as my dad ..to now its all about me, all about how I cant balance anything..cant fix anything.. Im sorry its either all in my head or this is my real life?
He can be tough...very serious.
sandwich42plus-Thank you, I know, Im not counting on it and still planning well was to save once Im working for a used mobile home or similar, Idk what Im doing anymore. I list priorities and it goes to the shredder. I went out today because my dad wanted me to go, we fought all the way to the dog store and back because I am just done, didnt want to go and wanted to get started cleaning here, I couldnt even finish my shower because I had to talk to grandpa when he called. I hate going out, I hate trying to put on a show of smiles and talks to people,they see it in my face when I walk in, I try I do I just cant. I want to be by myself no calls, no company, no in public. Im so drained and its non stop he$$ of arguing if I dont jump for everyone. I dont work, but I need to otherwise I cant pay bills and I can lose my kids, but I have no time to work, and now, its to the point I dont want to be around people.. I love talking to people and strangers..well, I used to. I jump on everyone even if its just one word of"hello". Im trying to be here for others but Im finding it harder and harder everyday. How can I offer help when I cant help myself?
Im sorry you had such a hard time with your family as well, the kids understand a little but not fully, glad you were able to get them back to where they were, of course you had to handle your mom.
sharynmarie- Hopefully everything works out for you, enjoy that vacation! I know people have to follow rules on the orders but under certain circumstance, not everyone things ahead because their mind is so cloudy, I know that all to well. Its nice of you to help him out!
When I went to work yesterday, I checked the schedule for next week. I am scheduled to have Mon/Tues off and work the rest of the week. Because the dept manager is on a mini vacay for 5 days and won't be back until next Tuesday, she was not there. I told a co-worker this is not going to work, I am leaving for Idaho on the 14th. I asked the dpet manager last week if I was going to get my vacay and she said it should be ok. My co-worker said to com line the assist store manager right now, tell him you have non refundable tickets to Idaho and the dept manager told you last week it should be ok. I did, he said we will work something out. We changed the schedule around with the assist store manager's approval...however, they still need a closer for next Sunday. Our dept manager can deal with that when she comes back on Tuesday.
It really is a shame to cause extra upset with people due to your own oversights but it seems to be notorious for this store. Then a customer comes in around 2pm, said his buddy's mother just passed away and people would be coming to the house within the hour. I said you want party trays...here are our trays and the sizes and prices. He picked out 6 different party trays. We started to work on them...the customer asked...will you have them done in about an hour? "A" told him yes about an hour because we still have to help other customers that approach the deli.He looked at me and winking,saying in about an hour...I said yes!. He had already passed the remark to "Y" that "A" did not seem very on board with this..."Y" said, oh "A" is just like that nothing personal. After the customer left, "A" said, and if you pressure me to go faster, I will just go slower and see how you like that. Really??? This man's buddy's mother just died have some compassion...not to mention capitalism and a plus for our dept for giving great customer service to a customer going thru a painful situation. "Y" made excuses for her...she doesn't do will with people. Ok...I get that...when I was "A" age, I was the same way...but I was held accountable for it, hurt very badly in order to wake me up and force me to grow as a human being.. No one wants to do that today. What do you all think about that??
1. You don't owe anybody anything. Let's get that straight. Promising property is easy to do. Following through is something else entirely. If he's serious about that, it needs to be done now to make his estate probate a lot easier! I'm not there and didn't hear anything in person, but I'm terribly jaded by nature. The promise of a house later if you do everything exactly like I want now seems like manipulation to me. If the paperwork doesn't back up what he's saying, don't count on a house. There will be nothing you can do about it after the fact.
Even so, you are within your rights to set boundaries on that relationship and the work you are able to do. If you aren't enough, then that's too darn bad. Stop saddling yourself with unnecessary obligation to the detriment of yourself and your life.
2. When I got saddled with my mom's care, I had a chat back at the ranch. I gathered my darling family members up and explained that I have a new and never before seen level of responsibility on my shoulders. As a result, "thangs be changin up in here!" You're all going to have more chores, more responsibility too, and I know you can rise to the occasion. My left boot will help you if you need it.
To offset that, it's important to spend time with the kids. Probably more important than anything else, even Grandpa. I was kind of MIA for a few months, and my young teens started acting up, being snots, and pretty mouthy. They really missed me and needed me to be around more. So, mom didn't get me "on tap" anymore and she started acting up, being a snot and really mouthy. Turning out nice young people was more important to me than trying to keep mom satisfied (not possible).
List out your priorities. Post them on your mirror. Post them at work. Put them in your pocket. And then stick to them. Life sucks when it's out of balance. When other people demand more than they can get out of you, well, their upset feelings are their problem.
The dog has to go to the Vet because she is 10 months, spayed and has "peed" on herself while lying down, twice. Its as if she didnt notice she did it, and when I ask her what happened, poor puppy looks sad and down. I never yelled at her, just asked. She is potty trained, so its not that. Anyways, my dad is blowing up mad because I now have to be with grandpa and he doesnt want the other dog alone because he goes crazy when his sister isnt here. I mean, he really gets all bent out of shape, jumping the dog gate and piece furn I have to block him from other rooms!
I feel I owe grandfather even more now that he promises to leave the house to us. If I tell him no when its just cleaning and he already hired the girl, I still feel I can never tell him no. IDK what to do.He got upset that I would be at his house at the old time of 8:30 instead of 6:30pm!!! Just so I can attempt to clean my home!!! Well, most of the time he doesnt need me, and he has a phone to call me, neighbors in an emergency. I have the P.E. uniforms my son needs somewhere in a box in the shed that my daughter "passed" down that I have to sort through before Monday!!! School is Monday and they are graded on P.E. Uniforms!! I dont have the money to just go buy more either. Oh P.E. clothes are unisex and was what my daughter wore a couple years a go so I packed it knowing by son would fit it this year. So another reason I needed to be here! I wonder, how is this going to work when Im asking dad or son to go down in place of me ( acting as if Id be at work) and they get a little upset! Whats going to happen when I am at work? Grandpa probably yell at me Im not there for him, but under same breath hes happy Im working uggh!!!!!!!!!!!
Well, anyways, yes, Im going to gpas early, he wins for tonight because I had no get up with pep to clean here when I have to do what I have to do 2morrow. Am I going to try to get out of it? Yes, flat out tell him I cant move furn and pics, and fragile figurines! I really am clumsy lol, I LOVE PLASTIC EVERYTHING! I collect plastic cups and swear by the plates too haha. Ok a bit of subject but true!!!!
Well, sleep well everyone!!!!!
camaryllis- Good luck finding the right one. Its good your able to still have some time to research them! Your right you never know, hopefully he will play Bingo or something!
gladimhere- Your welcome :) And welcome to my family! Isnt something how people connect from all over the world here, helping each other, seeking support and we rely on each other more then anyone else it seems? I love you all here too, and am very happy I found this site. Well, looks like you all are stuck with me!!! Thank you too glad for your support!
And all of you thank you for everything you do for your loved ones and tjose others you care for. Yes, Ladee, even Cujo! We are all doing great jobs of it! Give yourselves a pat on the back! (And a raise, if only it were that easy!)
Well. Went to tour one NH, and another one on Saturday. Still not getting buy in from Charles and MIL, but I want to have this option nailed down if needed. There is a waiting list at one place, I already went to this one and it looks like it would be good for FIL. The place I am going to on Saturday sounds like it focuses on keeping everyone busy. Not sure that is going to work for FIL, he will not be playing bingo or going on outings to restaurants. Although you never know, he might surprise me.
Hello to all, hope things are more peaceful today...
Thanks for listening,
Christine
sharynmarie- Im glad she recognized Midget!!
Countrymouse- Hugs and hang in there, we are with you!
vjohnson- You need to worry about you. Who says hes not bad enough to go to a home? Have her checked and let them know you cant handle it anymore. Hugs to as well!! Sorry your going through this.
ReneaP1960- Great advice !!
****Well my grandpa shocked us and said hes leaving us the house directly for all we done and to make sure we all have roof over our head and are not stressing out the rules I was given by Aunt. We will see if it holds up. I kept thanking him and well, I mentioned all this in another post floating around. But basically, it went back to " clean your house and you have to look for a job" ok!! Well, today, after he knew I had plans to take my daughters dog to the Vet in the morning,shop for a mattress for him, other appts/places needed to go and FINALLY clean my home( believe me it needs it and sounds dumb but If Im not going full speed ahead no breaks, I never get done what I need to).
Well anyways, a month ago he hired a friend/neighbor (who is the one who said Im not doing enough for him.. I should work after he dies, she agrees with my Aunt etc, to clean certain rooms.) He didnt want to bother me. I dont mind a little everyday or night( Im there about 12 hours a night I can most certainly clean) SHE alone was to clean, all of a sudden he TOLD me Im cleaning something in the morning while shes doing another part. Then, he added" Oh Im having you and her paint those rooms tomorrow too!!!) I have to move furniture, expensive collectables, paint, work next to someone who doesnt like me but at least we are on speaking terms .( Im glad about that tho). Ummmm!!!!PLUS my son is still home from school and he insists I have to help ( I get by on painting, Im not as good as her or him) And he went on how hes blind but yet can paint the whole room perfectly etc etc!!! He says I always say Im too busy for HIM!!! Really??? I jump as much as possible, all the time in an emergency!! My kids start school Monday, I have a lot to get done myself to prepare them, and get my house done! I dont mind helping my grandpa, and yet, I know I owe him for all hes done and the future houese, but still, I need to handle things here too!! This is more of a pain then anything!!! Here comes the old ways.. again, how can I work if this is going to continue. Im scared if I dont jump he will change his mind, but, Im going to take that chance!!!
Countrymouse- I agree, best not to even discuss if not necessary.
gladimhere- Sounds like my family! Sorry you went through that. Esp Christmas time. And I know Im not your sister, but I will tell you your doing a wonderful job!!! Hang in glad, we are all proud of you!!!
looloo- Be careful as emjo advised, I hope he has now grown up, but still be careful I really wish you both the best. I know the relationship will never be as it was before the age of 9/10 as you said, but, if possible a nice one. Also, Im sorry you and your mom are still not getting along. I hope she will soon let it go, which I think she will. Good luck Hugs
emjo23- Its scary watching htme go through so much when their little and all we can do is keep everything crossed and guide them to succeed. Im still scared but am hopeful. Both of my kids are very smart.. and no, not just saying that because they are my kids( well, what mom doesn't?) But they are, and my son once he is calm enough to sit and do the work hes succeeds! The violence part.. working on. Im so happy for you and your kids that they are doing well, your another wonderful "happy ending" on here, that our kids will be ok!!! I am glad your lunch went well and the kitty is doing better. You also take care of yourself and be careful of the heat! I really prefer the 70's, sometimes 80's (with a breeze) temps, Hawaii to be exact, maybe one day I will be able to spend at least a year or so there!
sandwich42plus-I have heard the same thing, to slap him accross his face, whoop him ,take a belt , etc.. Ughh makes me sick and I ask them you want that done to you? Yes, we have spanked him on his bottom, with only it making it worse. I never cared for that anyway, spanking makes it worse even for a child with no issues( my personal opinion) Yes, I was spanked as a child!!! Im glad your rules and structure is working, Im hoping to come on here soon and say, "it finally worked for us" One day? Anyways I get exactly what your saying , even if we let on a whim, they would expect it again, son esp and when we couldnt when he wanted to, yikes!!!
Linda22-Omg Linda, thats so sad :( Im so sorry. Hopefully that teacher was fired!
Ok. So. Imagine you didn't exist. What would be your mother's options then?
Sharyn, exactly that thing with the keys happened to Maureen Lipman, one of our national treasure actors and writers, in a big shopping centre in London. But as she was wringing her hands and thinking heck how do I get out of this, a pair of policeman happened to pass by and with them a young man they were taking into custody - he'd been caught on cctv pinching car stereos. Happy accident: she was very well known at the time and managed to persuade the coppers to let him exercise his powers constructively just this one time - I don't know if he got time off his sentence for good behaviour and public spiritedness.
Um. Speaking for myself I wouldn't be entirely happy to drive that far on a dodgy tire, unless… no, actually, unless nothing. Would getting it replaced be a real pain?
Joan~You are in a position that you have to choose your health first. You already do so much for your mother.
Glad~Great quote!! Very true what Joan said.
I took Midget to the groomers this morning only to lock my keys in the car with the engine running, Whoo Hoo for me!! I had to wait for 3A to come rescue me and missed my mammy appt as a result. I rescheduled for Sept. 17th. I noticed my right rear tire had a slow leak, took the car in to get the tired plugged and they reassured me I would have no problem driving it to Idaho and back...I am driving by myself...a 9 hour drive. Hubby isn't coming out until the 29th. I have done it before so not worried.
I took Midget to see my mom. My mom recognized her this time. We went to the park across the street and sat on a bench in the shade. Lots to do and not enough time as usual...take care everyone!
I haven't visited mom since 7/12. Almost a whole month. Which is fine.
She has found the phone in the visiting room and calls the house, leaving messages I don't listen to. It's either angry blaming, demands for things she doesn't have room to store, or everyone's favorite: thick F.O.G.
I stumbled across a blog article (that I can't find again - of course!) that was about saing goodbye to someone close with mental illness. It's OK. We do not have to be heros. Trying to chase that goal is a fool's errand.
I think I did my part. I got mom into a safe place. I watch over her personal business. I fill out paperwork & pay bills. I'm not the traveling circus for entertainment. I'm not her employee. I'm not her personal shopper. I'm not the chauffer. I'm not here to fix everything wrong in her opinion.
Now that she is on a secure floor, she wants to go places. When she lived in an independent apartment, the good Lord himself could not get her to attend a field trip anywhere. Well, I don't have time to run her hither & yon for absolutely no reason. Sorry mom, but you missed the boat. Literally. It's not coming back.
I can't personally make up for all the events and opportunities she turned down before she had to go into nursing home care. I wouldn't want to get to that point and realize I'm stuck now and I didn't live life when I could, so I try to live now, with the goal in mind to be at peace with the big changes that come with aging. When I get to that point, I want to be able to say that I did enough, I lived, I played the game as much as I wanted to, and it's OK to get off the field now.
"Giving up doesn't always mean you are weak. Sometimes it means you are strong enough to let go"