
Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
1 box of macaroni noodles/whatever noodle you like, cooked.
1 pound of ground meat + 1 chopped onion, browned together and drained of fat. Season well.
1 can cream of mushroom soup + 1/2 can milk
Velveeta cubes. I use about 2 cups. You can do more or less. Real cheddar does not melt and perform correctly.
In a Hurry Method:
Brown your meat, boil your noodles, and combine everything into a skillet. Heat through and serve.
Standard Method:
Combine everything into a baking dish and bake at 350F for 30 minutes.
Bon Apetite!
That is a good one, "My kitchen is not a restaurant". Ha. My people won't eat salad. I try to sneak veggies into things. Like you would with a two year old who won't eat his veggies.
Funny thing happened too. MIL is obsessed with bowel movements. Both theirs and the little darned dog of theirs. Well, she decided the dog was constipated because she wouldn't poop when she was taken outside. So she gave her a small spoonful of butter. And I am cleaning up the dog poop from my carpets every day, so nothing wrong with the dog's digestion! Haha. It is a trial, I am not fond of lap dogs to begin with. We have a border collie/lab mix, who is polite and trained. I probably lose it more over that little dog more than over the parents. :)
Thanks for listening,
Christine
Oh I'd forgotten about the fact they may not be in touch with other kinds of food.
But if you've gone for three weeks without repeating a menu, that is pretty good.
Well I hope they don't get too fussy on you. My husband at times gets picky.
I then tell him, that, "my kitchen isn't a restaurant." Last night I made lentils, which I usually would accompany with a salad. I was too lazy to make the salad.
This was fine, though. He has a palate for richer food than I do, and I am trying to cut down a bit on that. Our diet has become too acidic. When the temps warm up, I will be doing the sandwiches also.
Much Love & Light! Margeaux
OK, so last night was really hard on me. I am sensitive and am dealing with FIL during his worst time of day...I feel for him, and can see that his behaviors are from fear and insecurity. I can't fix that, but spent a few hours trying to just be soothing. After I finally got him to go to bed, I called the Alzheimers caregiver help line. The number is 800.272.3900 if anyone ever needs it. They are there 24/7, and the counselor there talked me down from the rafters. I felt like I didn't know what to do with FIL. What to say to him. Intellectually I know this is part of the disease, but it is really hard for me to sit there and try to listen and help him. I was freaking out. I have known a mentally ill person, who had schizophrenia. And talked crazy. FIL is talking crazy. He is in a different place. At least he wasn't being aggressive. But he told me this delusional story about a woman sitting in a chair out in the yard, and that he offered her money to drive him home. Then he said she stole his car. The woman was his wife, who he did not recognize at that moment. And his car has never been here. He kept saying that he needed to report it to the FBI. And that he didn't know how he had gotten to our house. I tried to remind him once or twice, which did no good as he asked me again a minute later. Then I tried just reassuring him, that the car was in the driveway at his house, that his niece was checking on things there every day, and that he was safe and we were so glad he was visiting us. He would just look at me with an unfocused look and start all over again. The night before I got him to sit and watch An Officer and a Gentleman with me, I watched most of it with my eyes closed but he seemed to like it and it made him talk about his days in the Navy. And there was a commercial for a candy bar that he was remembering that he liked. So I stopped at the store and got him some of the candy. Of course he didn't remember but he seemed to sense the kindness, which is what I am thinking will maybe help reassure him.
Oh, I know I can't fix this, and that it won't get better. The counselor last night said that it might take some time for him to adjust to the new living arrangements. But it has gotten worse. He is really out of it most of the time now. He talks about going to work, and keeps obsessively counting the money in his wallet, although he never knows how much he has, thinking he needs bus fare.
What I need to do is walk away and go to my room for a while. I have no time to myself anymore. And I am feeling like a real wimp, falling apart after only three weeks of this.
MIL is really upset about FIL, she is avoiding him, I can see why she is upset to see him this way. But her distress is not helping, and I can't help her either.
I imagine there is some kind of respite care available, I just have to figure out how to get it. Charles is trying to do some of the phone call things as he is home in the mornings. But he is not having the same problem as I am, he has better boundaries with his parents and he is not falling apart so isn't in the same sort of hurry as I am to get things done. Story of my life there. Anyway,
Thanks for listening
Christine
Slight complication as they do not have much experience with foods other than what they are 'used to'. Everything else is looked at askance. I did do the sub sandwiches last night, seemed to work. Wish they liked more things...I have been craving mexican food myself. No way for them. Anyway, I will get it together. I am laughing at myself because my dinner 'vocabulary' only is about three weeks worth. Guess I can start repeating now. Ha.
Thanks for listening,
Christine
Anyway. The reason I had to ring was that I decided to pick on my son, as Senior Grandson, to give a short, affectionate and amusing speech in honour of his granny at this party that I'm beginning to regret ever suggesting. Son, as ex-officer and (I hope not ex-) gentleman, said he would be delighted to but didn't want to usurp his uncles' prior claim to the privilege (ironic? A child of mine? Surely not); he insisted I check that they would not object. Well I did tell him I was quite sure they wouldn't, especially seeing as one would be out of the country and the other would rather cut his own toes off than speak in public… but he was correct, I suppose, and now we have it confirmed. Senior Grandson to deliver speech and propose toast.
Gosh, I hope he'll keep it clean.
Now he wants material for it. I'm considering suggesting he consult his siblings and cousins, and ask each to contribute a favourite memory/anecdote/moral tale learned from/saying of their grandmother - wouldn't that be cute? And touching? Is this a good idea or am I losing my mind? There are seven of them, not including quasi-step-sisters, so that should cover quite as much time as anyone will want to listen for. Hm. Have to remember this is her birthday, not a wake, and she'll be there to hear it of course. I'm also a little afraid that it's only my children who've spent very much time with her over the last thirty years and it might look as if I'm making a point. But surely Lovely Nephews 1, 2 and 3 and Lovely Only Niece can rustle up something to say about her?
I have been a total coward and dropped the idea of making the birthday cake. I was enjoying the initial design stages, but then the reality of the baking, construction, icing and decoration began to dawn and I realised that instead of being fun and lovely it could turn into a major stress and I never would get to the hairdresser - I'd be up at four in the morning desperately trying to turn a blob of icing into a snow leopard or trying to print pictures off the internet onto rice paper. Know thyself, I told myself, and rang the baker to order one. If she gets to 100, I'll do the Carnival Cake. Promise.
Emjo, please take good care of yourself. Can you estimate in weeks how long it will be before you can really expect the bulk of arrangements to be more or less settled down? I always think it's easier to grit your teeth if you've some idea of how long you have to grit your teeth for. And there do seem to be some old stress symptoms bubbling up, are there? Hope you've got some breaks timetabled in, days or weekends when you can just relax and please yourself. Sorry G is having a worrying time with the horses.
Speaking of Gs, ours upstairs has a severely blocked nose, can't sleep and is feeling terrible: I've been up to administer paracetamol and decongestant vapour and soothing hot drinks, so I hope he at least feels cared about even if we're not a couple any more. The pollen count is horrendous just now - everybody is sneezing, me, the cat, the dog, Alice the hen - but he's really suffering. I think it's the stress of waiting, too; he had an MRI and a bone scan the week before last and was told he'd get the results in a fortnight, which means by this Friday. It's reasonable to hope for good news, but the waiting is very trying all the same.
I'm not even going to think what happens if it's not good news. It will be. Fingers crossed.
I made spaghetti last night.
But I'm trying to stay away from meat right now, trying to clean up my diet a bit.
Margeaux
Oh do I know about coming up with dinner ideas, and sometimes we just don't know what to prepare. I cook a lot here at home, which I don't mind, because for us it's way healthier than eating out, or take out, etc. Plus, where I live it's quite pricey, and quality is low, so I'm not going there.
What I do on what I like to call my low maintenance dinner menu's is,
sometimes I'll pick a day when I'm less busy. I'll make beans, lentils, etc.
Then I'll use these ingredients to make things such as burritos. For the burritos of course you'd need tortillas, don't know where you live. But I saute up some chicken, make some white or brown rice. Of course, it's easier if you've made most of these things before hand. Then you can just assemble it, by placing some of the chicken in the tortilla, little bit of rice, then the beans. On top of that you can shred some cheddar or your choice cheese. Actually you can put whatever added things you want when you saute the chicken such as onions, garlic, "making myself hungry."
Another very easy: Quesadilla. Flour or corn tortilla, here. Shred the cheese,
add some onions, fresh cut tomatoes, cilantro and place all of that on the tortilla.
Warm it up in a fry pan, (no oil involved here), only to heat the tortilla, and melt the cheese. If you really want to get fancy w/these, you can add beans, and small cut pieces of cooked chicken. These are easier than the burritos, if you don't have things prepped before hand.
What about a soup and salad menu? Soup is easy to prep before hand, also better tasting next day, anyway (my opinion). Then you just get your salad going.
Voila! Bon appetite. The casserole ideas are good too!
Mmmmmmmm! If you have any questions, just give me a holler!
Now I have made myself real hungry,
Much Love & Light! Margeaux
I realize you have done so,, so much for your father, which is a good thing!
Who else in your clan would do all that for him?
But.....I will say also that if this behavior of he placing the chair in front of your supply place, short of it being something unsafe try to look at it also as possibly the few ways he takes the initiative to do something, since I'm aware that you've told us he doesn't want to go get his groceries. In other words, it's getting him up out of his bed/sofa, etc. to do something. My sister who is the one who moved in w/mother, also has complained to me of how she dislikes it whenever mother barely hints at the idea of my sister taking over things such as re-decoration of mother's house w/lot's of sister's own furniture, and pictures, etc.
Even if they are elderly and their homes many times suffer from neglect and disrepair, I've reminded my sister too......that it is still mom's home. So in other words, try ignoring their attempts at displaying some kind of control. They really no longer have real control anymore, so it could be coming from that angle.
Yes, and I agree with you, that this is for crazy making! But you've done and continue to do a wonderful job with your dad. He is more than a fortunate man to have such a great daughter such as you.
Hugs,
Much Love & Light! Margeaux
Good grief, tonight I came home to hear that FIL was going to offer people money to drive him to his home. I can't get the straight of it, if he asked a neighbor or one of the visiting nurses that come to see MIL.
I am going to be crazy soon.
Thanks for listening,
Christine
youtube/watch?v=xUjOarB8XUc
Christine
The repetitive money counting is a symptom of dementia. Teepa Snow discusses that behavior in one of her training videos. I'm 90% sure this is the one: youtube/watch?v=pqmqC-702Yg
bunny, I can identify with the worthless presents - not as bad as you have it but it doesn't take too many instances of being treated like that to leave a lasting effect. You mention anger and resentment. They eat at you and affect your physical health too. The past few months I am better realising the negative effect her disease has on me, as I have a break from direct contact with mother. It is not just the past, but the ongoing abuses which are bad enough on their own, but also trigger the past. Glad the ACT is helping. You should not allow her to destroy your life - definitely get off the merry go round.
Christine, you are handling this all very gracefully. I do hope you and your husband are looking into a placement for his dad. The stress of having the two of them with you, declining is significant.
marg - good for sidestepping your sis, though she will try to take advantage of any opportunity...
Sharyn - sounds like you are getting a handle on that co worker. Yes, you will have to visit your daughter. New life brings changes.
glad - wonderful that the probiotics are working so well. I would not be surprised if more seniors would benefit from them Too many antibiotics upset the gut balance.
Grace - I hope you stop beating yourself up over what you perceive as your deficiencies. "no matter what my heart offers it is like throwing pearls to swine on a bad day" Yes, it does feel like that. How many times I have gone to visit mother, to reassure her, to take her out for a nice meal, to do something for her, to have it thrown back in my face, or have her try to start an argument with me, or have her accuse me of something. It is a lose - lose, but they win by the losing, as they have that kind of nature. To me, it sounds like you are pretty stressed and need to look at some alternate arrangements for your parents and start putting you and your healing first. I do not believe that God wants you bitter and broken down. Sharyn mentioned detaching. It is necessary to survive, not just endure, narcissistic parents.
sandwich -wow - seen a few like that over the years and too many bosses who fall for it, or the cleavage they show. Usually it works out in the wash, but can take years. I know one who used to boast about using her physical attributes to get what she wanted from men. probably good for Aunt B to see how your mum is, but what a shock for her.
Alison - I can see why that would be aggravating - with everything else you have to deal with. Crazyville is not a nice place to visit and you definitely don't want to live there.
cm -how are the plans going?
everyone - have a good day and do something good for you.
Great post about your ex-coworker! I once too worked in a big law firm and there was one secretary that missed so much work. Our office manager was such a sweet, nice woman too! I couldn't understand how someone like this worker got away with the absences and kept her job. Well, when the company was laying off, back in the Reagan Era I was the one who got laid off, since I was the one with the least senority. I was so disheartened by this, as it was for a good company, and my wages were pretty good! After I left, I often wondered whether they kept that other employee. It's often so unfair what we go through at jobs....the putting up w/people who are just taking up space, or causing chaos.
I'm sorry that you're mother is being so mouthy with you!
Hugs,
Much Love & Light! Margeaux
Well, yesterday I came home and MIL told me that FIL had been sitting at the kitchen table all afternoon, counting the money in his wallet repeatedly. She doesn't know what to think or do. I thought, well, at least he was happy. His tone has changed a lot...he is living way in the past, thinks he is 20. Going to get a job tomorrow. I think this is where the money counting is from, he wants to make sure he has enough for bus fare, I guess.
I am feeling sad that he is so far gone, but glad he is peaceful. Even calm like this, though, I am not sure I can handle it. I have been feeling so exhausted lately, not by anything physical but from the emotional part. I have to get a handle on that. I can't fix this. It is also a little stressful having to come up with ideas for dinner every night. I like to cook, but am coming home and making full meals when I used to not, I would just have a sandwich or something when I was by myself. I feel like I am whining, too, it has only been a couple of weeks. I guess it takes me longer to change.
Thanks for listening,
Christine
Sandwich if anyone else spoke to you like that, I assume, they wouldn't be doing it twice. Seems to me you're taking an awful lot on the chin - which is brave of you, I'm not criticising, well done you; but how much more of this can anyone be expected to handle?
So my dad has many habits that drive me crazy and I do try to by-and-large understand that this is his home and he's a hoarder and sees clutter as necessary and good while I see it as a Big Problem since when I came here, I had to go through this house full of floor to ceiling piles of miscellaneous items and I've put much work - much work - into making this home clean, livable, and organized. So when my dad starts placing a chair in front of where I keep cleaning supplies in the basement, I put the chair back in its designated storage spot. Next time I'm in the basement storage/laundry area, I see chair is back in this weird, random, right-in-the-middle-of-things spot that it shouldn't be in. I put chair back. Dad and I play this game for the past week, and today I see that he used the wooden table I use for folding clothes to anchor his chair placement, taking the time to lift the table up and place the table leg through the chair arms, so that the chair cannot be easily moved. Now, my dad is completely capable of just doing things like this for no reason, HOWEVER I realize that my dad's shoe rack is sitting in this corner and just completely by accident was overlooked when everything else was moved back into his room in the finished part of basement from basement storage area. (There was construction, mold remediation, so all dad's items went to storage area.) That shoe rack should've come out and been placed back into his room in basement area, but just by sheer coincidence, it was overlooked. And now, I don't know what is more funny to me: that I didn't NOTICE that the reason my dad is dragging a chair to this weird, random area is because he needs to sit in it to put his shoes on - OR - that my dad didn't make the logical decision that he could now move his shoe rack back into his room where it goes! Or even that he didn't just tell me that he was moving the chair there to sit and put his shoes on... its just strange all around.
I realize some of you fight much harder battles than this, but I do feel like I live in crazy town much of the time. And I'm glad I have friends to share this with who understand. :-) (((hugs)))
I had brought my husband's Aunt B with me, so she could see how mom is. I should have known better than to go visit after 4 pm.
I was getting an angry tongue lashing the entire time about how I've done this to her deliberately and she doesn't like the way I do anything blah blah blah blah. I also brought her more clean clothes, and she looked right at me and said "It's like you think I'm going to stay here longer and I'm not." More hot & spicy verbal abuse happened. I have to say I'm bored by it today. It didn't upset me at all. I expect her to be mean as a snake and twice as ugly, so it's not in the least bit shocking to me.
Finally the elevator showed up, not a moment too soon. It was very shocking to Aunt B. I'm used to it.
About two hours later, I get a call from mom, but don't answer. She left a message as long as the machine would allow. I could hear her tone of voice, but didn't go back to listen to the content. A second call came in later. "Hey Sh-thead bring me bathrobes blah blah blah blah wah, wanh, wanh, wah....etc." She has forgotten she has a bathrobe I guess. And nobody by the name of Sh-thead resides here, not even Steve Martin's dog.
Lesson: swearing heats up mom's neurons pretty darn quickly. Also, never ever ever go visit after work again, unless it's an emergency where somebody's eyeballs are on fire.
Good for you for caring for elderly horses - 37 is quite an age!
Went to a walk-in clinic and got some meds for the candida and F/M. I am so bloated I look 6 months pregnant!!! Got the coconut milk yogurt too, and some other things, so am well set up for the rest of my stay. The sun is shining and no rain clouds in sight at present. It was lovely walking, G and I will hot tub and have dinner one of these evenings. :)
I'm trying to get some ME time in also. My sinuses got so bad after this last week,
my husband became Smokey the Bear, burning old bills. I was aggravated when it turned out this way, for precisely my sinus/allergy conditions. Oh!!! Heavens to Murgatroy! Also, as he burned and burned......I thought, "I hope none of the neighbors complain about smell of smoke." We live in a crowded community which wants people to follow environmental rules, which I totally understand!
I think I'm going into the tub this evening myself.
This coconut yogurt sounds really good, I'm going to look for some.
Hope your flare up calms down.
Hugs,
Much Love & Light! Margeaux
As some of you know, some time in the past I'd check in with her, to coincide visits w/some relief CG time. When I arrived, which was 11:30 a.m., the caregiver was there. She's a CG from the past my sister had let go, however I think she is having her come in again. That's good, because she's very affectionate with mom, and does the do.
So I went into mom's room and she was in her little bed. She had her legs propped up, w/the blankets off her. I'm not sure whether she was feeling hot,
or just wanted to have her legs in another position. The first thing she said to me,
was "Hello, and Oh......I'm exposing my a** to you." I started laughing. She did have underwear on, her legs were exposed. She looked pretty good. After that, she got up, and we had breakfast together. Later she went to the living room couch, w/the TV on, fell asleep. So I was talking to the CG.
Later at least 2 hrs., later there was an incoming call from my sister to the CG. The CG told her I was there. When the CG got off the phone she says to me that my sister had stated, "She didn't tell me she was coming." HAAH! Interesting.......I guess I'm supposed to dock in w/her (or so SHE would like),
before I drop in.
Then later there was another call from my sister. This time the phone was passed to me. My sister tells me, that the CG was to be there til 5:00 p.m.,
if It was o.k., w/me she leave about 4:30, and I stay til 5:00. The CG had told me she was going to a small gathering for her grandaughter's "B," day. I reluctantly said O.K., as I'd already been there about 3 hrs. I really did this more for the CG. But I did have some moments of angst of feeling the trapped feeling by my sister. But I did answer her in a serious tone, so as not to give her the impression she could show up beyond said hour. I don't know where she was, nor did I ask any questions to the CG. My sister told me on this phone call that she didn't want to have to rush home. She was at her daughter's having a small cake & ice cream, since her little grand daughter's birthday was also yesterday. There's a party for her next weekend. I thought to myself, "well, I've been here since 11:30 a.m." so obviously you're not rushing home. She showed up at a little before 5:00.
We talked briefly, for about 15 mins., then I told her I had to go. I could tell by her tone and the way my sister stares at me, that she was thinking all kind of things, and even probably puzzled at the fact I didn't ask, bring up conversations I've allowed for her to engage in, in the past. Really trying to keep my distance with her. This was the best I could do, because I was hoping just to drop in visit unencumbered by my sister's and her youngest daughter's energy.
Overall, mom was real cute. I also found out that it they'll be taking her off of Hospice, because they think she's recuperated enough from the last hospital stay.
Much Love & Light! Margeaux