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PolarBear, ty so much for recounting that NDE story! You lifted my spirits even higher today bc I love nothing more than hearing about these types of experiences!
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I'm with you cxmoody doing a HAPPY DANCE here in NC. God is SO good!!!
And yes, He does answer prayers. Those of us that pray will continue to until you get a clean bill of health.
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Hallelujah! I've been lurking and reading here several times a day since the beginning of your cancer journey (and before, with Chuck's liver transplant journey), not sure what to say that others haven't. Even though I know you only through what you write, I feel as though a pall has been lifted from a dear friend. Like Alva, I'm not religious and don't have prayers to offer, only my deepest respect, admiration, and heartfelt wishes for long remission and improving side effects.
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What wonderful news! I’m doing a happy dance in California. Hope you are in remission forever and your side effects go away soon.
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Praise be to God on your behalf Lea! I'm so excited for you!
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Woo-hoo! Let's hear it for good labs!
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I am so happy for you. So you ended up a blessed day!

((HUG))💞
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NeedHelpWithMom still cant post, but wants to say how thrilled she is to read my blood numbers are NORMAL! 😁

Get with the program A.C. and restore our accounts already, FOR CRYING OUT LOUD 😑😶😏😣🤐

Thanks ladies and to newbiewife for lurking and wishing me well. I'm really glad you stuck around! 😁 You've always had MY respect and admiration, thats for sure.
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Great news!!!
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Lea!
Thanking the Lord for answering prayers concerning you.
His mercies are never ending.
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Smiling here on my sofa, so very grateful to hear your positive news
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Pecan......please be sure to check your PMs bc I sent you one awhile back I'm not sure you've seen.

I wasn't clear with my UC Health consult. I AM going in person to meet with Dr M who's a melanoma specialist, on April 18th. My oncologist Dr C will confer with her afterward about how they feel it best for me to proceed w/o being able to take standard IT treatments anymore. With limited options in that regard, I'm thrilled my DD made this appointment for me. UC Health also has clinical trials going on, as a last resort, if need be, that Kaiser does not.

I'm not in the clear except by virtue of the excellent bloodwork numbers. We suspect remission based on that and the lack of pain, that my calcium was sky high in hospital bc the bone tumors were leaching calcium into my bloodstream as they deteriorated after treatment 2, etc, but the PET scan will tell the story.

Funny thing today w Dr C. He was super involved in my test results and what transpired w the neurologist. He was recommending how to best titrate off the prednisone (can you say Jabba the Hut?😑) safely and then called me on the phone w the good liver number news. While at the appt, he said how "its a good thing I'm not some asshole you can't even communicate with or talk to." !!!!!!! DD was patched in over my cell phone listening and I almost heard her snort! It was all I could do to not lol, too. I can't believe he said those words, and have no idea what prompted it either, unless he has access to A.C. and this thread. Maybe he saw himself as being a bit too much OF a non listening A-hole in the past and had a change of heart. Idk.

😁😂🤣😃

He was acting like a real doctor today and happy I'm going to UC Health where he will stay on top of my case. I'm grateful for that, tbh.
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A**holes usually aren't aware they are a**holes. That's part of their a**holiness!
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My doctor doesn't even look up from his computer when I see him. He probably couldn't recognize me if he saw me five minutes after I left my appt.

Speaking of which I go see him on Tuesday. Oh joy, oh bliss.
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Gershun omg you have me laughing about a**holiness! So true! I hope your doc looks up from his computer on Tues when we'll both be together in spirit that day.
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Lea Praise God, the change in Dr C is another answer to prayer.

a**holiness - that's funny!
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Lea, I'll welcome your spirit there. Maybe if you are you can give my doc a nudge. See if he's still breathing. :)
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Lea,

So happy to hear about your blood work!!!!! So happy. Heading to bed now with a heart full of gratitude for your news.
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Lea: What fantastic news on your blood work! That is great! Sending love and virtual hugs.💜
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A**holiness 🤣🤣🤣🤣🤣
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Lea , I am SO SO happy to hear this positive news. Fist pumping for you! YEAH!! ✊️
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Your news Lealonnie, makes my Friday even happier. 😊😊😊
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Scripture du jour: Back in the 70s growing up, I loved incense. And now I love scented candles. Ocean. Campfire. Pine. Clean Linen. Even if you don't like faux fragrance, we all love how favorite aromas make us feel. In the Bible, our prayers are likened to incense.�� �May my prayer be set before you like incense; may the lifting up of my hands be like the evening sacrifice.� - Psalm 141:2 "Then another angel with a gold incense burner came and stood at the altar. And a great amount of incense was given to him to mix with the prayers of God�s people as an offering on the gold altar before the throne.��The smoke of the incense, mixed with the prayers of God�s holy people, ascended up to God from the altar where the angel had poured them out." - Revelation 8:3-4 "And when he took the scroll, the four living beings and the twenty-four elders fell down before the Lamb. Each one had a harp, and they held golden bowls filled with incense, which are the prayers of God�s people." - Revelation 5:8 Why are our prayers compared to incense?�� - Its raw material comes from God. - It is ignited in a "burning censer" (our hearts). - It is pleasant & relaxing to our senses and brings peace to our environment/situation. - It's fragrance ascends upward naturally. - It pleases the heart of our Heavenly Father and perfumes heaven. As we "stand in the gap" with our intercessary prayers for lealonnie1, remember that it is also aromatherapy for God! He loves that we are praying for her!
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Lea, SUCH AMAZINGLY WONDERFUL NEWS!!! I became so teary-eyed reading your Extremely Fantastic update and I had to read your message twice - to continue the "happy tears!" May you continue to feel better and better and receive positive updates and advances forward!! I'm so very happy for you ...as is everyone in our "forum family!" :)

...on a separate note, I also wanted to mention that when I previously had taken a bad fall a while back, shortly after that, I experienced similar to what you had described regarding the eye floaters and these shadows in my eye that looked like an insect...it was maddening - and I was nervous about it. It took around 6 - 8 weeks to fully disappear, and what I think helped me were two products that I had gotten on Amazon (if you go on to the site, and type in "get ride of eye floaters" a lot of supplements will be shown. For me, I used an eye gel and an eye lubricant from Refresh, which helped sooth my eyes...and then I had taken a supplement called "Bodymune EyeCare All Natural Supplement for Eye Floaters"...I changed over after a month to taking "Dr Whitaker Ocular Pressure & Retina Defense Supplement" - both are on the Amazon site. I thankfully started noticing improvements each week.

...and regarding the dizziness/ vertigo that you mentioned, it may be a long shot, but I'm not sure if you ever tried using the "Sea Bands" - it focuses on acupressure and pressure points...and in some cases, it states that it may help with the dizzy feeling. And also, you may want to type in "anti dizziness" on the Amazon site, and there are certain supplements that deal specifically with this, and it may just be worth giving it a look at..and reading some of the customer reviews. (and you may want to make sure from your dr that it's ok to try them)

My heartfelt wish for you is that that's all it would take for you to find relief, and to return to feeling completely renewed!!

Wishing you All Blessed days!!!!
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Hope....yes....the SeaBands! I completely forgot about those so ty for the reminder. I won't take supplements for anything right now bc I'm certain everything makes this dizziness worse. Plus I've begun the titration down from prednisone and am expecting ugly symptoms tonight. Ugh. The eye floaters are down to one small spider in my left peripheral vision, which I pretty much tune out at this point. Ty for the list of items you used to get relief.....it may come in handy. Its 3 weeks yesterday since the Skyrizi iv that started it all. The neuropathy in my feet may respond to acupuncture I read...,my bff had good results w it from a trigger finger issue where it'd lock up nightly and wake her up in pain. 5 treatments later, it's gone for good. Idk if Kaiser offers acupuncture or not. Anyone have experience with it?

Thank you for all the positive feedback about my bloodwork numbers! We're hopeful and grateful for GOOD PET scan results Next week to confirm these suspicions of remission.

When I get scared and worried, I HAVE to keep reminding myself that I found that DIME on the floor of the ER that day the cancer was discovered. Which was not some insignificant coincidence but a clearly divine message that things would be ok.....that God's got my back. Miracles DO happen to ordinary people, thats a fact! 😁
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It's been a while so I'm really glad I looked to see how you were doing today.
Yay!!! Prayers are answered! I will continue to pray for you. And yes, my Friday is happier knowing this too!
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I am hoping that the prednisone withdrawal will not be so bad as you fear, and may even bring some relief.

How exciting that the spiders are leaving. I was afraid they were somewhat permanent little vessel breaks, and you would have to adjust to them, but seems NOT, and I am glad to be wrong. I do think those spiders have perhaps moved to my garden. The rains have made everything out there quite lush and overgrown and there's just a ton of spiders this year; the birds are quite excited about it!

I hope today is a good one, Lea.
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Ty rapidswimmer for your sweet comment!

Hope, I did some Amazon damage and ordered a vertigo bracelet that has awesome reviews. The Sea Bands are specifically for nausea and respond to an acupressure point on an exact spot on the wrists, per the info, so I didn't get them bc I don't have nausea.

Alva, I hope the withdrawal isn't too bad myself. Fingers crossed. Even if I wind up w eye floaters permanently, I'll live w it. I think some things never fully resolve after IT or chemo txs, and its a matter of acceptance. At nearly 66, I'll never be 35 again. But I'll be grateful to be alive next year, even if I look like 5 miles of bad road or whatever.
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Gershun, same with our doctor and he is not our doctor any more. One visit my DH told him, at least 2x, he needed to look at him when he talked because he could not hear him. Dr handed DH a prescription and said "now you know how to use that" my DH said "No because I told u 2x I could not hear you". Dr ignored him. I had to ask the pharmacist what it was for.

I know what DR Cs problem is, you were proven right and are now seeing another Dr. Its like when I fought with the staff at the hospital that Mom could not be sent to Rehab when she could not even respond to me. DD comes in with her scrubs on and now they listened. DD looked up the antibiotic that was being used and found out penicillin was in it which the hospital records show Mom was allergic to.

Looks like things are looking up. Here is my ((HUG))💞 and wishing u very blessed day.
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Happy Friday Lea and everyone else.

JoAnn, I am on the hunt for a new doctor. But there is a big shortage of doctors here in Vancouver where I live. I have put my name on a registry waiting list for a new doc which can take forever but at least I've done something. In the meantime I guess I just have to tolerate the doc I have. I'll try praying for him. God does work miracles.

Let's all keep praying for each other. Prayer is powerful.
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