
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
And yes, He does answer prayers. Those of us that pray will continue to until you get a clean bill of health.
((HUG))💞
Get with the program A.C. and restore our accounts already, FOR CRYING OUT LOUD 😑😶😏😣🤐
Thanks ladies and to newbiewife for lurking and wishing me well. I'm really glad you stuck around! 😁 You've always had MY respect and admiration, thats for sure.
Thanking the Lord for answering prayers concerning you.
His mercies are never ending.
I wasn't clear with my UC Health consult. I AM going in person to meet with Dr M who's a melanoma specialist, on April 18th. My oncologist Dr C will confer with her afterward about how they feel it best for me to proceed w/o being able to take standard IT treatments anymore. With limited options in that regard, I'm thrilled my DD made this appointment for me. UC Health also has clinical trials going on, as a last resort, if need be, that Kaiser does not.
I'm not in the clear except by virtue of the excellent bloodwork numbers. We suspect remission based on that and the lack of pain, that my calcium was sky high in hospital bc the bone tumors were leaching calcium into my bloodstream as they deteriorated after treatment 2, etc, but the PET scan will tell the story.
Funny thing today w Dr C. He was super involved in my test results and what transpired w the neurologist. He was recommending how to best titrate off the prednisone (can you say Jabba the Hut?😑) safely and then called me on the phone w the good liver number news. While at the appt, he said how "its a good thing I'm not some asshole you can't even communicate with or talk to." !!!!!!! DD was patched in over my cell phone listening and I almost heard her snort! It was all I could do to not lol, too. I can't believe he said those words, and have no idea what prompted it either, unless he has access to A.C. and this thread. Maybe he saw himself as being a bit too much OF a non listening A-hole in the past and had a change of heart. Idk.
😁😂🤣😃
He was acting like a real doctor today and happy I'm going to UC Health where he will stay on top of my case. I'm grateful for that, tbh.
Speaking of which I go see him on Tuesday. Oh joy, oh bliss.
a**holiness - that's funny!
So happy to hear about your blood work!!!!! So happy. Heading to bed now with a heart full of gratitude for your news.
...on a separate note, I also wanted to mention that when I previously had taken a bad fall a while back, shortly after that, I experienced similar to what you had described regarding the eye floaters and these shadows in my eye that looked like an insect...it was maddening - and I was nervous about it. It took around 6 - 8 weeks to fully disappear, and what I think helped me were two products that I had gotten on Amazon (if you go on to the site, and type in "get ride of eye floaters" a lot of supplements will be shown. For me, I used an eye gel and an eye lubricant from Refresh, which helped sooth my eyes...and then I had taken a supplement called "Bodymune EyeCare All Natural Supplement for Eye Floaters"...I changed over after a month to taking "Dr Whitaker Ocular Pressure & Retina Defense Supplement" - both are on the Amazon site. I thankfully started noticing improvements each week.
...and regarding the dizziness/ vertigo that you mentioned, it may be a long shot, but I'm not sure if you ever tried using the "Sea Bands" - it focuses on acupressure and pressure points...and in some cases, it states that it may help with the dizzy feeling. And also, you may want to type in "anti dizziness" on the Amazon site, and there are certain supplements that deal specifically with this, and it may just be worth giving it a look at..and reading some of the customer reviews. (and you may want to make sure from your dr that it's ok to try them)
My heartfelt wish for you is that that's all it would take for you to find relief, and to return to feeling completely renewed!!
Wishing you All Blessed days!!!!
Thank you for all the positive feedback about my bloodwork numbers! We're hopeful and grateful for GOOD PET scan results Next week to confirm these suspicions of remission.
When I get scared and worried, I HAVE to keep reminding myself that I found that DIME on the floor of the ER that day the cancer was discovered. Which was not some insignificant coincidence but a clearly divine message that things would be ok.....that God's got my back. Miracles DO happen to ordinary people, thats a fact! 😁
Yay!!! Prayers are answered! I will continue to pray for you. And yes, my Friday is happier knowing this too!
How exciting that the spiders are leaving. I was afraid they were somewhat permanent little vessel breaks, and you would have to adjust to them, but seems NOT, and I am glad to be wrong. I do think those spiders have perhaps moved to my garden. The rains have made everything out there quite lush and overgrown and there's just a ton of spiders this year; the birds are quite excited about it!
I hope today is a good one, Lea.
Hope, I did some Amazon damage and ordered a vertigo bracelet that has awesome reviews. The Sea Bands are specifically for nausea and respond to an acupressure point on an exact spot on the wrists, per the info, so I didn't get them bc I don't have nausea.
Alva, I hope the withdrawal isn't too bad myself. Fingers crossed. Even if I wind up w eye floaters permanently, I'll live w it. I think some things never fully resolve after IT or chemo txs, and its a matter of acceptance. At nearly 66, I'll never be 35 again. But I'll be grateful to be alive next year, even if I look like 5 miles of bad road or whatever.
I know what DR Cs problem is, you were proven right and are now seeing another Dr. Its like when I fought with the staff at the hospital that Mom could not be sent to Rehab when she could not even respond to me. DD comes in with her scrubs on and now they listened. DD looked up the antibiotic that was being used and found out penicillin was in it which the hospital records show Mom was allergic to.
Looks like things are looking up. Here is my ((HUG))💞 and wishing u very blessed day.
JoAnn, I am on the hunt for a new doctor. But there is a big shortage of doctors here in Vancouver where I live. I have put my name on a registry waiting list for a new doc which can take forever but at least I've done something. In the meantime I guess I just have to tolerate the doc I have. I'll try praying for him. God does work miracles.
Let's all keep praying for each other. Prayer is powerful.