
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
I love the glitter, glam and sparkle quotes. So cute!
I’m so sorry that you have to wait for a bed.
Okay. I will shush and pray.
Hoping that everything comes together for your good!
And, for Chuck too.
Ty NHWM, send and cxmoody. I've waited this long, I'm ok waiting a little longer. Plus bad tv is on tonight yassssssss 🤣😃 DrPimple Popper has a beaut of a cyst to drain, I hear.
Hahaha 🤣, enjoy Dr. Pimple Popper!
Gershun, how'd the doc appt go yesterday? You've been on my mind.
And while at a conference w his parents and the staff in school, a teacher said "Google" so my 6 yo grandson proceeded to draw on the blackboard a 1 with 100 zeroes after it which = a google. They were all speechless.
And in regards to your grandson, that is really amazing! I will wager that half the adults who use the term "google" have no idea it means more than just the name of a search engine, never mind a 6 year old! Good for you guys!
Have a great night!!
Yours wins the 🥇!
😘
Nge, totally unfocused and not even trying, that's me!
God I love me some sequins. Before all this chaos hit me and chuck and i were doing 10 estate sales a week, we hit one downtown in the home of a pretty famous local drag queen who had a sewing station in his basement where he had TONS of sequins and threads and baubles for his costumes he sewed by hand. I had fun picking thru all that flash along with some fab rings he had for $5 ea. I chose a sterling and clear crystal faceted stone LARGE one that I love. I wish you could come over and we'd get all dressed up in glitter and jewels and scarves and hats and carry fancy gold evening bags to complete the look. Then you could take home all of it. That would make me smile. Maybe you'd have somewhere to go where you could get all decked out and send me photos. I could live vicariously through you 😁
I truly believe they were there for you. Sending love and prayers.
When I was young and returning to Canada from England by boat it was the style for a proper young woman to wear an outfit, including hat and gloves on the day you landed. I LOVE big hats, When I was a poor student in Montreal I almost bought an amazing hat for about $200. In those days that was a lot of money. It was a navy straw and the brim swooped about 1/2 way down my back. In Montreal you could buy "clothes". I had a pair of 4" heel Italian leather red shoes. They were so comfortable I walked all over in them.
Once a few years ago, we went to an Elvis type show in Edmonton and I wore a sequined top. The cast went romping through the audience at one point and "Elvis" came and gave me a kiss and breathed into my ear that he had to come and see who was wearing the sequins lol
Later that week we went to another "Elvis" show. We like a table right by the stage, That "Elvis" pegged me for a little interaction too. Two Elvises in one week Wow. Got me heart beating, I'll tell you!
What you wrote reminded me of dressing up as gypsies as a kids. We had a trunk with all kinds of things in it and we decked ourselves out in skirts and petticoats and peasant blouses and strings and strings of necklaces. It sure would be fun to do that again but with sparkles and sequins as properly befits us older ladies lol. And how about fishnet stockings!!!
All this reminds me I have a dark blue long sleeved sheath lace dress with sequins all over. It's fairly subtle but the sparkle is there. I bought it to go the the dinner theatre and then covid happened. When this move is over we will go and I will wear it and think of you.
My doc appt. went okay. My DH came in with me yesterday thinking that maybe if he were there my doc would be more attentive. Sad if that would make a difference but there ya go. But honestly I don't think it made any diff.
Doc said he'd put in another request for an MRI but there is a central booking place for the whole city and once you are on the list I don't think there is anything to make it go faster. Sad but true.
I also have been suffering from tinnitus the last three weeks and it's been driving me mad. Pulsatile tinnitus. That's when the tinnitus goes in time with your pulse. It can mean something serious but my doc doesn't believe in my case I need to worry cause I don't have any of the risk factors for that. He checked my ears and said there is fluid there so he prescribed me a nasal spray called fluticasone. I've got an appt. with an ENT doc. Not till June though. So I hope this spray does something.
I wish I could say I've got an MRI scheduled but no......still I wait, and wait and wait. And limp and limp and limp.
But Lea, again thx for even asking. Like I've said before, my problems are minor in comparison to yours. Still praying for you.
Don't discount your health issues bc mine are "worse". They all suck, they all hurt, they all cause grief. Ty for the prayers and let's ask that God hear ALL of them, amen.
Now I'm going to have get some more sparkles in my life. 😄
My guilty pleasure is Eurovision🕺💃
The glitter, the hair, the outfits. Euro 'glamour' 🤪 animal prints, chiffon, tule, bejeweeled, and of course super gigantic gowns.
I had no idea about the IVIG cost. My bil has received four since getting covid at Christmas and being hospitalized since Jan. 19. (Moved to rehab yesterday, YAY!) His oncologist (bil had a rare cancer diagnosed six or seven years ago that we now think may be related the Phillips c-pap filters for which there is a class action suit) insisted that he be given IVIG and each time there was a remarkable step forward in recovery. So, seeing what IVIG did for him, I'm excited for this same opportunity for you.
May this day be filled with blessings for you.
Tomorrow at 1230pm I have a PET scan scheduled which I plan to go to. Lumps under armpits and pain in my side must be examined. Ugh. The decent thing about a PET scan is I get to sit on a recliner and post on my tablet during the 2 hr procedure.
GG, glad to hear the IVIG helped your bil. I'm praying to have relief from these horrible symptoms myself. Let's hope he gets HOME SOON from this ordeal.
Golden, my mother was still a fashion diva in AL (And even MC) until she died at 95. Even on hospice, her girls asked me if they could cut open her tops in back to dress her in something other than a nightgown so she'd look like herself lying in bed. I said sure. I dressed the woman for years in stylish clothing w matching costume jewelry and she was the talk of the senior places she lived at. Age has nothing to do with glamour 😍. You will never be sedate. Neither will I.
Beatty now I have to research Eurovision 😁
Today I go down to 60mg of prednisone which should kick my butt even worse than it did going down to 70. 🙄. I so hate this drug which hasn't seemed to help me....nothing has. I'm pretty ok until 1030am when I eat and take the meds, then by noon I'm reeling and swooning, crying and needing to get into bed, for petesake. Ridiculous. A Xanax or Ativan does help calm my body down, but makes the dizziness worse.....which is kind of irrelevant at this point.
And so it goes, at the 8 week mark today.
Praying that all goes well with Chucks’s appointments, and may his reports all be favorable.
And, praying for your Pet Scan. That it would show absolutely NOTHING.
Again, you’re a treasure, LL, and we so appreciate you.
I said a prayer for you this morning when I woke up.
Thinking of you 💗!