
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
PET scan was cancelled unless UC Health wants to do one or CT
Beatty yes - animal prints too!!!🐆
Prayers for the PET scan to be clear and for Chuck's tests this am to be good. So glad others have had a great response to ivig. I pray that you will too. As to getting a bed, God is in charge, He has a plan and His timing is perfect. I have to keep reminding myself of that re my move that is happening very slowly.
Trust in the LORD with all your heart and lean not on your own understanding;
in all your ways submit to him, and he will make your paths straight.
Proverbs 3:5-6
ETA hospital room for you - YAY!
Amazing isn't it?
We, as patients wait, work so hard to get into the hospital. (When required).
The next thing is, waiting, working even harder to get out!
You can do it!
Please tell Lea Woooooot!!!!!!! from me!
The Neuro ordered another brain MRI which may happen tonight. This is making me a little nervous tbh. Is he looking for cancer metastasis or a different disease that may have developed, I wonder? I wasn't expecting this, but a full neurological evaluation wasn't ever done on me so perhaps it's warranted after 8 weeks of all this chaos. Again, a rhetorical question where I'm not expecting anyone to have answers. I wanted a 2nd opinion, here it is. I said Yes to being claustrophobic, so bring on the calming meds.
I fully anticipate a sleepless night tonight and Hazel is on tv with Bewitched afterward! Hazel came from a cartoon in the Saturday Evening Post long long ago. How beloved she was andcwhat a gentler time it was in those days, huh?
You have so many people that are rooting for you and are there in spirit. Keep your eyes open for dimes.
I pray your MRI goes well and everything is fine neurologically.
Enjoy your Hazel and Bewitched but do try and get some sleep. Try wiggling your nose like Samantha maybe and dream up a spell for sleeping.
Good Night.
You are stronger than you realize and continue to inspire all of us on this forum.
The brain MRI took place at 8am. Uc Health couldn't obtain the one from the hospital in March which was actually a head and neck CT SCAN anyway. Just as well they want to be certain of whats going on here before they draw up a treatment plan. The PET scan had to be cancelled today in favor of coming here to be admitted last night ...I will just reschedule it. The neurology resident was in at 5 am and tested my eye coordination which was way off. I seem to be going downhill lately 😑 When I told her I feel like I drank a gallon of moonshine, she said that's the best description of VERTIGO she's ever heard. So there ya have it. Vertigo it is I guess.
The IV is in and I'm waiting to hear what's next,
Chuck got home at midnight last night so he's coming by later today.
Daughter, I can't believe we thought Bewitched was the bees knees! And gawd Darren was ugly 😂🤣
Pecan, I'm always worried to some degree with all I have on my plate and being asked if I want CPR and/ or a ventilator if I stop breathing. Issues that nobody thinks about until they have to. The room is standard but the view of the city lights out the window is fantastic.
Gershun, 2 hrs sleep I got last night w people traipsing in all night long!
Beatty and Golden, my rule is ONE item of animal print only 🤣😃, how about you?
ONE item of animal print???? You have more self control than I have. Let's see -. 2 scarves - one eternity, one warm, one nightie and dressing gown set (warm), one other nightie not so warm, one pair of snakeskin pattern pants, one dark animal print georgette wrap blouse with a lovely soft ruffle neck, and - the piece de resistance - an animal print jumpsuit, backless with a halter neck. The halter neck has long sashes on either side which you use to tie the halter and then fling them wherever they land. Of course, these days I wear a soft jacket thing on top and a black quartz and crystal knuckleduster ring with it. I wore that one to the dinner theatre though most people don't dress up to go out anymore, but I have to!!!
I gave away the 2 pairs of 3 1/2 " heels in snakeskin - one silver, one gold. They looked great with straight leg dark wash jeans, but safety has to come first, and comfort too.
I'm glad you have a great view of the city. Anything like that helps.
Somehow a funny episode with mother and opera has come to mind. I'll see if I can get it together and post it later. There weren't many times with mother that I laughed my head off. In fact, that may be the only one.
Prayers always - you are the first thing on my mind and heart in the morning and the last thing at night. (((((((hugs))))))
I am cutting down my wardrobe to fit in the condo. I won't have the luxury of 4 closets for everything. and I think R has more clothes than I have. He still fits his high school jeans.
Not to highjack your thread Lea but since you had asked I finally have an MRI scheduled. YAY! I went for a walk across the street and was limping quite badly today. One thing that pisses me off is how people stare. I'm almost tempted to say "Take a frigging picture why don't you!" Anyways..........so I came home angry, thought I'll call the booking number and Voila, I got through. She had a 5am. and a 11pm. availability for next Tuesday. I took the 11pm. one.
Anyways, back to Lea. :)
s o n g o f t h e c h i m n e y s w e e p i n M a r y P o p p i n s.
TG
IVIG starting in 20 minutes. TONS OF MEDS given beforehand to ward off allergic reactions. I'm in another world right now. Infusion will take 3 days.
Lumbar puncture was done earlier too, w at least one abnormal result so far 😑 Awaiting results of 4 tubes worth fluid to be tested.
915p tonight is a full spine MRI, God give me strength.
I couldn’t post again. I tried to keep up with reading most of the posts. I loved your comment about watching Bewitched.
That was one of my favorite shows when I was young. I watch the reruns too. I never figured out what Samantha saw in Darren though. Loved Aunt Clara! I had a nosey neighbor like Mrs. Kravitz once. LOL I moved out of the neighborhood to avoid her.
I so wanted to be able to twitch my nose and cast spells like Samantha!
Sending my love to you today and always.
New King James Version
I will lift up my eyes to the hills—
From whence comes my help?
2
My help comes from the Lord,
Who made heaven and earth.
3
He will not allow your foot to be moved;
He who keeps you will not slumber.
4
Behold, He who keeps Israel
Shall neither slumber nor sleep.
5
The Lord is your keeper;
The Lord is your shade at your right hand.
6
The sun shall not strike you by day,
Nor the moon by night.
7
The Lord shall preserve you from all evil;
He shall preserve your soul.
8
The Lord shall preserve your going out and your coming in
From this time forth, and even forevermore.
Serious prayers now for your comfort Lea, and no fear.
But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” 2 Corinthians 12:9
Slept like a log for 2.5 hrs too.
Now to wait it out for the MRI later and that's it for today.
Thanks for the prayers and posts of support.
Best new is......DD found Love After Lockup on this tv for me 😂🤣😃