Follow
Share
Read More
This discussion has been closed for comment. Start a New Discussion.
(((((Lea))))) Awesome news!!! All of it. More sleep ahead I trust and a clear MRI!
(9)
Report

Lea,

Great news! 😊

Glad that you were able to rest a bit too.
(4)
Report

Lea: Good news. Hope you can get some sleep, dear lady.💝💝
(8)
Report

Love After Lockup— what a title! Sounds like perfect escapist TV. 😉 Enjoy!
(6)
Report

🌻
(4)
Report

Good morning, Lea. Time for some glitter~

"Serena had moussed her hair so it stood on end. Streaks of orange glitter shot from her temples into her hair. She wore a yellow tulle skirt over a sheer, clingy red dress and looked like a walking flame.”
― Lynne Ewing, Goddess of the Night

“I may only be four foot, eight inches, but all the more reason I've got to stand by every one of them. Now, where's my glitter?”
― Lisa Jenn Bigelow,

“...Just to clarify, beautiful like a unicorn bathed in glitter?”
― Emiko Jean

“A bitter experience can embitter and deter a quitter but not same for a fighter who’s determined to litter the narrative with glitter.”
― Vincent Okay Nwachukwu

These are all you, Lea - a walking flame, "Now where's my glitter", beautiful like a unicorn bathed in glitter, a fighter...

Hope you are sleeping still and recovering from yesterday, which must have been an ordeal, and that the ivig is blessing you.

Prayers for peace and healing and love always
(8)
Report

Scripture du jour: My 6th grade grandson has an all-schools dodgeball tournament today. I'm imagining all sorts of kids, energy, noise, smells and emotions. "And athletes cannot win the prize unless they follow the rules." - 2 Timothy 2:5 LL, so happy to read your last post. Praising God for it! Keep your eyes on His prize.
(6)
Report

At 10pm I was taken down for a 2 hour spinal MRI and fell asleep during a portion of it, believe it or not. Slept until 7 pm after getting back to my room which was blissful. I am feeling dizzy today but better in general, if that makes sense......more like a human being and no crying jags yesterday, you go girl!

I think the IVIG is all that's on schedule today, I hope, and test results. DD and Chuck will be by to visit later. Snow is forecasted all week 🙄

Snoopy, Love After Lockup was a DOOZIE last night and a few nurses were sucked into all the hootin & hollerin blasting from the tv set 😆😎. Schlock tv is my favorite. And I saw a few episodes of Diners Drive Ins And Dives which always makes me hungry, darn you Guy Fieri.

Love the glitter quotes Golden. Yesterday was def an ordeal but I'm no quitter. And I did bring along a pair of sterling dangling earrings....j/s

Ty for faithfully posting the scripture du jour Geaton.
(12)
Report

Lea, I don't think I mentioned the other thing my DH's neuro told him about IVIG, that it's a "cumulative" treatment, meaning each subsequent infusion builds on the last, even if it's months in between. So hopefully, with each consecutive infusion, you feel better and better.

So glad you were able to get some quality sleep, finally!
(7)
Report

Nge, yes, precisely as I was told about IVIG too, cumulative and I'll likely need an outpatient IV monthly or symptoms will come back. For how long? Who knows?

Lumbar puncture fluid shows brain and cord inflammation but no infection like meningitis. Other tests take a few days to come in but preliminary tests are in.

Spinal MRIs not read yet.

Steroids now INCREASED to 90 for the near future till I'm feeling better 😑

Looks like the original hypothesis still holds true......audiovestibular toxicity reaction to Yervoy infusion. Nobody can say whether this is permanent or not, but we're all going with temporary. No vertigo drugs work bc it's not true "vertigo" happening here.

Exemplary care here at UC Health with a very thoughtful team of neurologists looking at my case carefully, thank God.

I stay here for 2 more IVIG treatments over 2 days and then home. That's the plan.
(17)
Report

Thinking of you today, Lealonnie, and wishing you well.
(7)
Report

Wow! So much has happened since I’ve been away!

Great news that you’re feeling a little bit better! 😭😭

Praising God that they are treating you well!

Keeping up the prayers, here!
(7)
Report

Lea,

Hoping all goes smoothly and as planned. Being in the hospital is necessary but I know that you will be ready to go home soon.

Sending all my love to you today and always.
(5)
Report

Lea, my mom used to always fall asleep in the MRI machine too. My husband, on the other hand, panics and begins flailing. I've never had one, so I don't know how I would react.

Things seem to be going in a positive direction for you. I'm so glad.
(6)
Report

Lea: I, too, am always thinking of you. Virtual hugs sent.
(7)
Report

Huh? Who are you JeffreyPrince? Are you an admin for AgingCare?
(5)
Report

Thanks llama, GG, NHWM, Cxmoody, Fawnby and all who have been supportive to me all along.

Many more tests were conducted today and findings were made, not all positive. Test results are still pending including a CT scan today to determine possible spinal surgery. We know little right now. An ENT is coming in to talk about the possibility of a rare condition this may be...again, idk.

The 2nd IVIG treatment was administered today w/o an issue. I hope to feel better by Monday.

I can't say how fantastic this team of medical pros has been here at UC Health. I'm grateful to be here. Concerned about "Test results" but it's all in God's hands.
(14)
Report

Lea,

I certainly wish all the best for you! Waiting for test results can be unnerving to say the least. I truly admire your faith. I agree, that it is all in God’s hands. I’m going to say extra prayers for you and your family tonight.
(7)
Report

Lea, sorry the prednisone had to be increased again. I sure hope it is doing what it is supposed to do. Glad you were feeling a bit better earlier and I hope and pray you will feel better soon with the help of the ivig.

Sounds like you are getting great care and have confidence in the staff where you are. That is a blessing.

Praying tonight for good test results, good chat with the ENT, and resolutions for the conditions you have.

Happy you have your sterling dangling earrings with you! A little bling helps.✨ I know many of us here wish we could just take all this trouble away from you. ((((((hugs)))))
(8)
Report

Scripture du jour: "Concerned about 'Test results' but it's all in God's hands." (- lealonnie1) God�s hands are mentioned over one hundred times in�the Bible. Of course, God doesn't actually have hands, but they represent His power and control, His ability to create/destroy, His provisions for us, His protection over us, His affection for us, His comfort and assurance for us. �So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.� � Isaiah 41:10� �With a mighty hand and outstretched arm; His love endures forever.�� � Psalm 136:12 �A person can do nothing better than to eat and drink and find satisfaction in their own toil. This too, I see, is from the hand of God.� � Ecclesiastes 2:24� �When you give it to them, they gather it up; when you open your hand, they are satisfied with good things.� � Psalm 104:28� �Yet you, Lord, are our Father. We are the clay, you are the potter; we are all the work of your hand.� � Isaiah 64:8 �In his hand is the life of every creature and the breath of all mankind.�� ��Job 12:10 �You open your hand and satisfy the desires of every living thing.�� ��Psalm 145:16� �Humble yourselves, therefore, under God�s mighty hand, that he may lift you up in due time.�� ��1 Peter 5:6 �His splendor was like the sunrise; rays flashed from his hand, where his power was hidden.��� ��Habakkuk 3:4 �So I reflected on all this and concluded that the righteous and the wise and what they do are in God�s hands...� ��Ecclesiastes 9:1� "...In your hands are strength and power to exalt and give strength to all.� � 1 Chronicles 29:12 "See, I have written your name on the palms of My hands." � Isaiah 49:16 ...and many more. Wherever you are in life's circumstances, know that God's hands are big enough for it � He can and will hold you tight...so ride it out with Him!
(7)
Report

Good morning! Lea, hope you had some sleep last night and today is peaceful (amend that to as peaceful as possible when med staff are poking at you). Saying a prayer this morning for you.
(3)
Report

An orthopedic surgeon came in before 7am today, which is never a good sign. I had a spine MRI and CT scan both. Essentially, I broke my back ( badly fractured) when the bone cancer first showed up, at the T6 -T7 level mid back, where I had all that excruciating pain I called the "hole in my back." It is a hole that now needs to be repaired with cement to be stabilized, then the tumor ablated (what's left of it) and then radiation applied (so it doesn't come back). Idk the schedule, I'll find out later. Thank God I came to UC Health is all I have to say.

The last IVIG is scheduled gor today. No idea of release. Doc said he thinks i should feel better (dizzy wise) tomorrow. His lips to God's ears bc I am ready for a break here.
(17)
Report

Lea- It's painful just reading about your back being "broken" and "with a hole." Gosh! I can't imagine the pain. I too am thankful for the good doctors you have at the UC hospital.
(10)
Report

Lealonnie, what a blessing that you are now receiving such great care and finally getting some much needed answers, so you can now move forward in your total and complete healing.
It certainly was the hand of God that brought you to this hospital and these doctors. God knows just what we need and just when we need it, and it sounds like as always, His timing was perfect in your cancer journey.
I continue to pray for you and Chuck daily, and know(like Geaton777 said)that God has you in the palms of His hands.
(8)
Report

Oh Lea. I am so glad the doctors where you are now are doing such a good job, and shocked that other drs. have overlooked, if that is the right word, the condition of your spine. No one wants more surgery, yet that is what you are facing and it sounds like they can fix it. I am amazed how well you have managed with a fractured spine. Good heavens!!!

But you must be exhausted from all these issues. You are a very resilient person, one of the most resilient, but you do need a break. Praying for a break, for some good news, for some unexpected benefit that will lift your spirits.

Thank you, Lord for Lea, and the good care she is receiving. Bless her, Lord with ease of mind and body. Guide those who care for her and are working to heal her. Refresh her spirit and give her peace and comfort, in Jesus name.

Sending hugs and love. You are some fierce woman!!!! 💃
(8)
Report

Lea,

I’m so sorry about your back issues. My gosh, that is so awful.

I just said a special prayer for every inch of your body to be restored to wellness.

Sending all my love to you.
(6)
Report

I am adding an Amen and Amen to the prayer golden23 wrote below.
And for those of you who don't know what amen means, it means "so be it."
(11)
Report

Fg, it was my DD the RN who called UC Health for this 2nd opinion on my behalf. She also saved Chucks life literally 2x so credit needs to be given where credit is due. Thanks to God as well, naturally, His inspiration and to nurses who advocate for their loved ones and go to bat for them while we flounder around like fish out of water. Amen and amen.

PB, the pain now is so much better in my thoracic spine. What irks the snot out of me is the lack of looking into this the other hospital did and Dr C too. Knowing the severity/size of the bone tumor, and that it was deteriorating with immunotherapy......what happens next w the spine/bone structure???? Hello? 😑

N HWM, ty 😍

Golden, fierce eh? Idk about that. I keep thinking about falling in my closet last week and how that could have turned out. 😑

I've had 2 IVs go bad now and swell up the tissues in my arms. So they had to put one in my upper arm in a large vein just now which we hope will hold for this last IVIG infusion. Still waiting to hear the surgical plan moving forward which I suspect will not happen here at UC Health but at Kaiser instead.
(8)
Report

Lea, thanks to your daughter and God's plan!!
(8)
Report

Lea,

Your daughter sounds like one smart cookie! You taught her well. 😊
(5)
Report

This discussion has been closed for comment. Start a New Discussion.
Start a Discussion
Subscribe to
Our Newsletter