Follow
Share
Read More
This discussion has been closed for comment. Start a New Discussion.
Oh (((((((Lea))))). No words right now, just heartfelt (((((((hugs)))))) and prayers. You didn't need this! You both need a break!
(5)
Report

Lord,

The floodwaters are REALLY deep now. The enemy has come for this marriage.

We ask that YOUR peace would descend on this household. Not the peace that this world would bring, but YOURS. The peace that passes understanding.

We ask that you bring Chuck some kind of refreshment. We ask that you allow whatever help that should need to come in to get there fast. Perhaps it is a family member. Perhaps an outsider. Someone to take off some of the load. We’re trusting YOU with this, Lord.

We feel so far away, and that we can’t do any good. But, YOU can, Lord, and there is an army of us praying for our friend. Be the answer, Lord. Be their help. Be their consolation.

Most of all, Lord, please be their healer. Please, Lord. Step in. Our friends are suffering so. Bring healing in their bodies, minds, and in their marriage.

We thank You, Lord. You are mighty. You are wonderful. We ask all of this in the name of Jesus.

Amen.
(10)
Report

@cxmoody - Amen and amen! Lord, make it so.
(5)
Report

Lealonnie the past couple of years has been very hard on you both. And as caregivers ourselves we know that we ALL have our breaking point. And it sounds like Chuck has reached his. He just needs a break from it all, as I know you do too, but unfortunately you're now the one with the major health issues, so not sure what kind of break you can get, except like already suggested having more hands on help coming in to help you both.
Plus I believe that the added stress of you having the PET scan today and finding out whether it'll be good news or bad, probably just added to his already mountain of stress.
I know you both love each other dearly, and you both have been pushed to your limits, with everything you've been dealing with for over 2 years.
So both of you just need to take some deep breaths and remember the love that brought you together in the first place.
We are all praying for some peace and respite for you both.
(9)
Report

Lea,

Thanks for being real. You are one of the most sincere people on this forum.

You don’t pull any punches and more people should adopt your attitude.

I am so glad that you spoke your truth. I cried when I read your last post, because when I was struggling with certain things in my life, I didn’t always know how to speak my truth.

It took lots of time and effort in therapy for me to realize that I had bottled up my emotions for many years in order to be polite to others.

Once again, in spite of your pain, you have been a beacon of light for all of us by being so transparent and genuine.

I despise Pollyanna types who pretend everything is okay when it’s not. Things only change for the better when people speak their truth.

God bless you, Lea. I wish you the very best that life has to offer. You have given so much warmth and kindness to your family, especially to your DH. We have seen this over and over in your posts.

You are wise beyond words. You are smart enough to know that you were not born to be anyone’s doormat. I love your spirit. You make no apologies to anyone for expecting to be treated with respect.

You have generously shared your love with your family and friends.

I know that when most people give a gift to others they don’t expect anything in return. A gift is a gift. It isn’t a trade, but I believe that everyone in this world wants to be respected and appreciated by those who love them.

We don’t have to entertain others when we aren’t up for it. There’s a time to be social and a time to value solitude.

I have faith that you and Chuck will work through this situation. You have worked through things together in the past and you will continue to do so now and in the future.
(8)
Report

In agreement and Amen to your prayer cxmoody.
(5)
Report

What a morning Lea. Maybe you should say to hell with all of it and just take it all off literally. Wouldnt that be a shock for stepdaughter and family. Lea in the raw and uncensored. 😂😯😇

Both you and Chuck are under so much stress with the unknowns of what's going on and what's going to happen with your cancer.

I get that Chuck doesnt want to cut off ties with his stepdaughter (don't agree with it since shes a real piece of work) but there is a place and time for visits and the morning of your pet scan after just having back surgery last week and still feeling dizzy is not the day.
(7)
Report

PET scan results show a significant improvement in overall cancer, spinal tumors are totally gone, liver tumors are down to a minimum, hip lesion is gone, some ribs are fractured which is what's causing pain in my right side (!) from tumors breaking up, and the biggest lymph node tumor reduced in size by 1 cm. Dr C will be reading the scan for a more accurate report of whats going on, but the 2 immunotherapy treatmeants kicked BUTT!

Thank you all for the kind words of support about Chuck also. We're burned out and exhausted. We talked a bit and can breathe a little more after the results of this scan. He reminded me he's here for the long haul, and I told him he needs to get out of here more. Go play trivia, visit his kids more, I can ask DD to come by while he's gone, things like that.

His DD (my stepdaughter) is on her way here now. I'm lying in bed w my heating pad, he bought pastries, and they can entertain one another while I allow the pain pill to take effect.

I'm sure clinical trials are in order since cancer is still present in my body, but right now, it doesn't seem urgent. I'd love to be left alone for awhile to recover from the dizziness and then see what's next.

Barb, I have an appt tomorrow with the social worker at UC Health!
(11)
Report

What great PET scan results, LL!

Pull the covers over your head and feign sleep. Let Chuck do the entertaining.
(7)
Report

Such good news! Thank God, and thank you for sharing it! I pray that you can get some good rest, now.

You are treasured here!
(6)
Report

Lea,

I couldn’t be happier to hear your wonderful news! Continuing to pray for you and Chuck.

Both of you have been through so much.

You have been at each other’s sides, before your major health issues began, during the hardest times and I have no doubt that you will be with each other until the end of your journey together.

Please keep us posted on what Dr. C has to say.

Sending all my love to you.
(5)
Report

I am so happy you have this news to continue on with. Hoping it generally reduces the stress levels in your home.
(6)
Report

Yay !! Now take a nap 😃
(5)
Report

Barb,

You made me giggle just now about pulling up the covers and feigning sleep.

My sweet MIL did this when her evil mother would visit her in the hospital during her cancer treatments.

I waited until her mom left before I would visit my MIL. When I saw her sleeping, I would head towards the door to get a coffee from the cafeteria and wait to see if she would wake up in a short while.

My MIL would see that it was me and ask me to stay and visit with her. She then confessed that she was pretending to be asleep so she didn’t have to endure her mom’s abuse.

Her mom was so evil that she told everyone that her daughter was faking cancer to get attention! How does a person fake losing weight from being sick and being bald from chemo?

My sweet MIL was her only child and she treated her like crap. Needless to say, my MIL decided to never be her mom’s caregiver.

When she refused going into a facility, my MIL hired 24/7 care from private caregivers. Her father did very well in life and left more than enough money to hire private caregivers.
(6)
Report

***Update 2****

Dr C just called with the Amazing News, as he called it.....that he can't find ONE GOSH DARN THING wrong with my PET scan, that where it was once lit up all yellow, it's now all BLACK! He used the word amazing and awesome several times and said the 2 treatments did exactly as they were intended to do. We can now back off worrying about more treatments or clinical trials for now, thank God. I don't get to see photos or scans in my portal reports, just written words.....so Dr C said he can't wait to show me the scan photos next week.

This is the break we've needed. And the meaning of me finding that dime on the ER floor back in January. It was God and dad saying yes you're sick, but things will be ok. Have faith. Which waxed and waned, admittedly, but never disappeared or stopped me from praying for a miracle after only 2 treatments.

😁
(19)
Report

Wonderful !!!! 😁😄😃😀.
(9)
Report

Good news on your scan Lea!

But I agree. Entertaining while you are ill should be off the table in my opinion. I'm sure your Chuck feels helpless and doesn't know what the right thing to do is but bringing in the mob while you are feeling like cr*p should be obvious you'd think. But I think men's minds and hearts aren't as closely connected as women's are and what seems obvious to us isn't with them.

I don't like entertaining even when I'm feeling great. I'm not unsociable but sitting around making nice with people in my home or theirs isn't my cup of tea. Never has been. Now get me outside at a barbecue or a beach setting where I can move around a bit and not feel trapped and I'm fine.

Maybe when you are feeling better plan for that.
(11)
Report

Scripture du nuit I couldn't let this go until tomorrow... Through scripture the Lord acknowledges that anger is part of being human and that it's not a sin to be angry. "Go ahead and be angry. You do well to be angry � but don�t use your anger as fuel for revenge. And don�t stay angry. Don�t go to bed angry. Don�t give the Devil that kind of foothold in your life." - Ephesians 4:26-27 (The Message) I'm so glad that Chuck didn't let the sun go down on his anger/frustration and that you were magnanimous about it. A strong finish for this good news day! May you have a peaceful sleep (both of you). xoxox
(11)
Report

Lea,

I am so very happy for you! It’s wonderful to hear your fabulous news!

Geaton,

Lovely scripture and oh, so true!

I think the Apostle, Paul had such wisdom when he wrote Ephesians, as well as in his other writings.

Paul suffered in his life. I’m sure that he experienced many of the same emotions that we do now.
(9)
Report

Woooohooo!!! Happy dance time! May this be the start of a long list of good things.
(9)
Report

That is wonderful, wonderful news, Lea! So happy for you and your family!
(8)
Report

I just got home from going out to eat with some friends, and came on to see what the news was from your PET scan and OMG!!! I couldn't be more thrilled to read the GREAT news!
That is a major praise and proof positive of the power of prayer. I hope and pray that both you and Chuck can now breath a little easier and actually get some rest.
And I think a nice vacation is in order when you're feeling up to it. Somewhere where you can just relax and not think about anything else but each other.
I will continue to keep you both lifted up before His thrown.
May God bless you and keep you.
(9)
Report

Lea!
Praising the Lord God for His tender mercies towards you.
He is not done blessing you yet!

Give the good news some time to sink in, this is amazing and powerful.

He is the Creator of the whole world and the universe, yet personal and involved in the healing and details of your life. 💟
(8)
Report

Great news about your pet scan. Very happy you had so much success with the 2 treatments.
(11)
Report

Weeeeee!!! What great news! I prayed for delight and got ecstatic instead... thank you, Lord! Yay!!!
(11)
Report

Faith is believing in things unseen. It is SO incredible when you finally get that glimpse of what faith has done and can do. So happy. I have been believing for you every day!
(10)
Report

Singing praises to God for His everlasting mercies which are new every day, God bless both you and Chuck and your union. May your witness bear much fruit. This is so awesome!!!

Time to breath and continue to heal from the side effects.

The stars are sparkling tonight.
(10)
Report

😊😊😊😊😊😊
(9)
Report

It must feel like a tremendous burden has lifted. I can't wait to hear where you go from here whether that means back to normal or whatever else which hopefully will seem like small potatoes after the last few months. I know you will get "you" back.
(10)
Report

Lealonnie, I’m so glad about your positive medical news!

As for having company right now, I totally understand. I hate people flocking over to see me when I’m sick or recovering. It is so exhausting! I wonder how it even got to be a thing to show up to be entertained by someone who has medical issues. In my case they usually haven’t helped, just were there for a social hour.

I hope you can burrow into your most comfortable nest and ignore. Sending hugs.
(11)
Report

This discussion has been closed for comment. Start a New Discussion.
Start a Discussion
Subscribe to
Our Newsletter