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And I agree Lea life is already enough of a chit show without having god setup tests and intentionally creating suffering for people. That would make him a sadist and the ultimate psychopathic narcissist.
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Lea, nothing useful to add but (((hugs))) and healing to you.
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(((((Lea)))) I'm sorry you are not feeling any benefits of less prednisone. Surely in time you will see your own sweet face again. Sorry to hear about the dreams too. I know they don't help.

As you say, nothing has helped. It's so ironic that you are NRD for the cancer and your back has healed, and yet you are suffering from the effects of the treatments, but I guess that is not unheard of. DD's last chemo knocked her for a loop and she still hasn't gotten back to where she was before she had it, and there is at least one more coming in a few months. But she is nothing like as bad as you are - just very tired and some what wobbly at times.

Hope you have a decent visit with your dd. Oh I just read about the antidepressants. 😓

I firmly believe that we know our bodies best and usually know what's best for us. I haven't been 100% right but mostly. This not a comment on whether or not you are right - just my own experience. I think it is important that we have a say in our own treatment,

Is it any relief to have decided that you will take no more cancer treatments? That's a big decision.

I believe in being persistent in prayer so I continue to pray for healing and a better life for you and for God to wrap His arms around you and give you comfort. Yes. it always has been in His hands.
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Just checking in to send you a 👋.

Also, praying for you on Sunday evening.

You’re treasured ‘round here! 🩷
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Lea, I am glad that you don’t feel as if you’re being tested. I do understand that others sometimes feel as if they are.

All of us have our own challenges throughout our lives.

Some of us have extreme challenges that we face, such as in your case. We do what we can and as you say, the rest is in God’s hands.

I remember telling an older woman once that I was praying for patience. She said to me, “Oh honey, never pray for patience. Pray for wisdom instead!” I have tried to remember her words.

So many times we become thoroughly confused when we are going through a difficult situation.

After the dust settles, sometimes we see things that we missed. Hindsight is 20/20.
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Lea: Prayers for feeling better, dear lady. 💚
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Good morning LL, thinking of you. I'm down here is Heaven's Waiting Room (south FL) with my 94- yr old Mom and her 104-yr old sister. Even at this age they are bickering and sniping with each other like teenagers. I'm ready to commit a murder/suicide. My long-suffering hubs is on the side lines being his best passive self and I'm all for him doing it. LL, I wish you a long and healthy life...but not *that* long...!
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Good morning, Lea, Up here in Canada's frozen north - a snow dump is forecast for somewhere south of us. Thinking of you too. No bickering seniors here, thankfully!!!

Prayers as usual for healing and well being. I know God hears us but I don't know His timing. ((((((hugs)))))
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I just looked at a bottle of 20 oz Gatorade my DH has in the frig. There are 270 mg of salt in a 20 oz bottle. In 20 oz of diet coke there is only 67 mg of salt. When the average person should only consume 2000mg a day (1 teas) it looks like to me Gatorade has a lot of salt. Its over 10% of what you need daily. So for me, since I need to watch my salt, I would not drink too many of these. I definitely would not be adding salt to the bottle and my DH sweats buckets. Besides putting back lost salt thru sweating, Gatorade (I am reading the label) puts back electrolytes lost in sweating and carbs for refueling. I think its recommended when you have diarrhea or for prepping for a colonoscopy.

Just my opinion, so if Lea is not a "salt" person she may find it salty.
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Joann I wasnt talking about the Gatorade for Lea i was talking about it for me. Since she drank some Powerade which is like Gatorade I just wanted to know if it had a salty taste to it. Can you try some you have in your fridge and let me know? I had the regular kind with sugar and it was like drinking salt.
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Geaton,

Sounds fun! LOL 😆 Forgive my sarcasm.

What an accurate description, “Heaven’s Waiting Room!”

Don’t know if you are a Seinfeld fan or not, but I love his joke about his parents moving to FL after retiring. “My parents didn’t want to move to Florida but they turned 60 and that’s the law.”
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Lea,

Hope you’re feeling a bit better today.
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Good Monday morning Lea!
When my sister was fighting (and won) her battle with cancer, she recommended Liquid I.V. Hydration Multiplier, an electrolyte drink mix.

I never acted on her advice, was confused, and could not find it. It is packets of powder, not liquid in a bottle.
We only recently tried the tiny stick packet, using only 1/2 powder added to water. The water tastes really good! Faster hydration than water, if you have been outside in the sun and depleted your electrolytes. You can carry it in your purse and add it to your water.

As always, people should do their own research, and consider their b/p and diabetic needs.

Feel better soon Lea! Wanting a better day for you!
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Sp....gotcha. No, the Powerade w and w/o sugar did not taste salty to me at all and I am sensitive to salt. Shocking, I know 😑 I wonder if dh was playing a trick on you? I have tried the orange sugar free flavor and the blue flavor w sugar and neither one tastes salty. They're both rather bland and almost tasteless , imo.

"POWERADE ION4 contains four electrolytes – Sodium, Potassium, Calcium and Magnesium – lost in sweat. Sodium and Potassium help you to retain fluid so you stay hydrated, as well as maintaining your blood volume, sweat rate and muscle blood flow."

Sendhelp, it would be nice if I could walk and be outside in the sun TO be in need of hydration. The Powerade was another useless suggestion to hydrate my already hydrated self by my DD the RN.

Geaton.....living to 104 or 106 like Goldens mother sounds horrible to me 😐. I remember reading about Goldens mom years ago when I first came to A.C. thinking omg, I'll die myself if my mother lives that long!

Golden, honesty, I do not expect to EVER get back to 100%. Those days are gone now I think. I'm not unrealistic. I'd like to be functional again and not bedbound or chairbound, though. Idk if that'll happen.

I have another IVIG scheduled for the 27th which is the 8 yr anniversary of dads passing. Maybe that's a good sign. Or, a sign of another dead end since the first 2 did bupkis. 🙄

Yesterday, not ONE of Chucks 5 kids contacted him in ANY WAY for Father's Day! Not even a text or Facebook message! How disgusting is that? A man who broke his back for them ( and still does) his whole life to be ignored on FD? They have no problem calling him for hours with THEIR PROBLEMS, or asking for money or whatever, though. The one estranged daughter who lives in Colo and pretended to call him in early May didn't contact him yesterday either, which imo hammered the final nail in that coffin. She made a loud statement and he heard it. My DD came by with gifts and to pay her respects, bc she genuinely loves the man who raised her since she was 11. I was glad she did, and very sad for him yesterday. If he was some NPD dude we read about here, that'd be a different story. But he's more like Ward Cleaver.

Thank you all for the kind words, I appreciate ALL OF THEM.
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sp,

I just read online that if you are properly hydrated it will taste salty. If you are dehydrated it won’t taste salty. Interesting…
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I am so sorry about the lack of contact yesterday. Just sad,no other words. Always hoping for some better days for you.
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Families.....can't pick 'em!
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Sp when DH comes home from golf, I will ask him. On the whole, he does not eat salt. He is a pepper person. He complains about things being salty when I don't. I like salt.
Me, I do not like Gatorade.
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I am a bit confused. If I drink Gatorade I might have more energy yet I am more likely to retain water?
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I doubt it RD. If you're dehydrated your body needs salt, it's that simple. Plus, there's not a TON of it in these electrolyte drinks anyway. Salt is a necessary mineral to have in the body. Vitamin B6 is a natural diuretic btw.
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Thank's Joann. Need i read that too about it. I thougt he was tricking me Lea. But we don't buy them very often if at all.
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Sp, what nhwm read may be true...who knows? I had a few 20 oz bottles of water today, tasted the Powerade and it still tastes the same to me, not salty, bland and tasteless mostly.
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So.......negative Nelly has good news for a change: today was a 6 in terms of dizziness, no need for the walker. And.....drumroll please.......the first and only time in 4 MONTHS I didn't have to go to bed after taking a shower! 😁 I came back to my recliner in the living room which is amazing, since a shower decimates me to the point of sheer exhaustion. This is progress I hope.

Down to 25mg of poison now, 20mg this Saturday. I realize tomorrow can be another chit show, but I'll take today as a WIN.
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We, like you Lealonnie will take any and all good news when it comes to your progress. I hope and pray that you will continue with the baby steps in getting back to a more "normal" and enjoyable way of life.
I'm continuing to keep you lifted up before His throne.
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Praise God for a tiny bit of relief from the dizziness!

And, for not collapsing after a shower! Yippee!

Hope you sleep well!
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Glad you could share a bit of good news Lea!

I remember when I first hurt my foot and for weeks afterward I couldn't put any weight on my foot. Showers were really hard. In retrospect I don't know why I didn't get one of those shower chairs. No, I balanced on one foot in the shower, teetering and tottering away. When I was finished I would feel like I'd just been in the ring with Mike Tyson. It's amazing the muscles you use when trying not to use other ones. So I sort of relate to how you have felt.

But I'm glad your dizziness is down to a 6. Let's get it down to nothing shall we? All our lips to God's ear.
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Lea,

Yay!
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I’m not crazy about Gatorade or Powerade. I drink it once in awhile. I like iced tea. I’ve been drinking iced mint tea. It’s refreshing in our heat! I don’t use sugar in it. I find it is more thirst quenching without sugar.
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Lea: Praise God for some relief from the dizziness.
So sorry for poor Chuck. That was unacceptable.
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So thankful you are having a little respite, Lea. I understand the exhaustion after a shower. I have had that for years due to the CFS/FM.

Even partial functioning would be wonderful!!!

I am so sorry Chuck's kids are like that. ((((hugs)))) to him and to you.
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