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One more week of tapering! Thank God! May those side effects be gone, forever !

Now, on to getting rid of that darn dizziness!

Maybe you and your son could wear matching T-shirts and hats, which say, “Not Answering Any Questions. Have a nice day!”, while you take that wheelchair ride around the neighborhood. 👩‍🦽 😀

Hope you have a lovely, quiet evening, alone! 😂
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Lea,

Sending all my love to you. Hoping you will start to feel like yourself again very soon.
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Been visiting w DD today and sitting outside which was nice. Just checking in to say all is okay and I'm able to turn my head today w/o a big issue....which is good news! 😁
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Yay!
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I’m so glad, enjoy the day, Lea.
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Yay Lea!
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Bm
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Oh my, Lea! That is amazing news!!
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Oh, so great to hear!

Turning your head! Outside!!

Thank you, Lord, for small mercies!!
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Lea: Glad that you were able to turn your head and be outside with your DD. Great news!
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LL, that bit of good news is awesome! Glad you got out and enjoyed the day.
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Lea,
So good to hear!
You are on your way to more healing.
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Wonderful happy progress!
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Got up at NOON today bc my headache is epic due to this final taper to 5mgs. I was having bad brain buzzes (longer and more intense) the night before last when trying to fall asleep so my sleep has been disturbed. I was speaking w DD yesterday and she asked me if I had been eating grapefruit, by chance. Yes....I'd eaten a bowl of it the morning I'd had the brain buzzes, in fact. Turns out grapefruit ramps up the effects of SSRI meds like Paxil a LOT! Ugh. So into the trash the remains of the jar went. DD works in a large cardiac clinic as an RN and has a lot of patients who eat grapefruit and wind up having ugly side effects w it interacting w their meds. I know Chuck can't eat it or certain oranges which interact w his anti rejection meds. So last night no brain buzzes when falling asleep, thank God.

Aside from the mind numbing headache, I feel pretty good today! The first time ever I feel like I WILL recover from this toxic reaction I've had. On the 27th I'm having another IVIG and I'm curious to see if it'll help me feel better this time since I'll be OFF the damn steroids which I've always contended MADE me dizzy. We'll see.

Hope you all have a great Sunday!
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I am beyond grapefruit-ful that your daughter is such a wonderful RN!!!!
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Yes, everyone should have a nurse in the family.
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Lea,

So happy that your daughter passed along this information to you.

I have started asking my pharmacist about interactions with meds when I have a script filled. I have found that they are more knowledgeable than doctors!
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LL, yay for that update! My Mom's a retired RN... she taught me so much useful stuff. I totally agree that everyone should have a nurse in the fam!
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LL glad you had a better day yesterday! Hope today is even better! Those Paxil zaps are really disturbing!
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Today Chuck informed me our hot water heater is leaking and needs replacemement....ugh. One thing after another. Stressful things don't stop happening when illness sets in, that's for sure. He's trying to figure out if his son can help him do an install so we can avoid the gigantic fee a plumber charges, and I'm looking at Home Depot online for a replacement unit.


Meanwhile, Chucks estranged DD wants to meet w him for lunch tomorrow to sort out their issues ( her issues, in reality) before he arrives at the hospital for her c section next week on the 25th. He wants to meet his new granddaughter regardless. She hasn't contacted me once or asked about me once since my cancer diagnosis which is the utmost disrespect for both her dad and me. She hasn't asked after HIM either after his liver transplant, only caused grief for all of us. It's doubtful she'll apologize so Chuck is not hopeful for a fruitful meeting tomorrow. I hope they can work it out. For me, I want nothing to do with her again but will not stand in Chucks way if he wants to go visit.

I'm struggling w dizziness and a bad headache today. The heat is oppressive, too. Day 3 of a taper is always bad, and today is no exception. No more brain buzzes since throwing the grapefruit away.....😁
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Lea,

It is always something! Hope you find the best solution for your hot water heater problem.

I also hope that Chuck and his daughter can find peace, especially since he has a new grandchild on the way.

DH is being wise not to have high expectations from his daughter, considering her track record. Still, it would be nice if they could live in some sort of harmony.
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LL, how old is that water heater? The bottom sent out of mine after about 30 years (installed new in the late 70s/early 80s). Yes, NHWM, it is always something. When we were about to get married my FIL (an insurance salesman) said, "You never get done spending money" which astonished my 23-yr old self (and let me just say that money management was never my strong suit). I thought he was just being a cynical miser. How right he was!
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So glad that the brain zaps have stopped! What a brilliant DD you have! 👸🏻

Gaaaaah on the water heater! Home ownership is sure not for sissies! A year ago, we had to replace a complete A/C system, the dishwasher, and the washing machine, all around the same time! And, the house is only 7 years old! 😜

Girl, I’m praying that the next infusion you have is able to work wonders for ya! 🙌
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Geaton,

How true! Your FIL was correct. Most people who get married and have children end up spending a lot of money.

I am fascinated by people who are successful in saving a lot of money.

Years ago I read about a librarian in New Hampshire. He was able to stash away $4 million dollars. He left all of his fortune to his alma mater. He was single, no children and lived very simply.
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Sorry to hear about your water heater. The water heater gave up the ghost at my parents’ house three weeks ago. Always lotsa fun to get a call about it when you are 3,000 miles away from said water heater . The fun just never stops.

Hoping you have a good result from your next infusion.
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Lea,

My dh installed heaters as part of his previous job. The company always sent two guys, each physically able to handle their share of the weight, and more, of navigating a wet cylindrical object out of a tight spot and replacing it with same. This is probably one of the more physically demanding jobs in the field for both parties.

Rather than Chuck being physically hands on in this process, maybe his son and his friend?
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It's not still under warranty?
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Lea: Ugh on your water heater. I wish Chuck peace with his daughter.
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Bm
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Lea,

How is the water heater research going?
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