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Good Morning Lealonnie!
Thanking the Lord that He hears our prayers.
And He will answer.
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Prayer du jour:

“Heal me, O LORD, and let me be healed; Save me, and let me be saved”
- Jeremiah 17:14
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You are waking up this morning after the first of your treatments yesterday. I know you prepared yourself for this to "kick your butt" and I am praying you have one tough butt!

I am so glad for the practical help you have coming and I will pray that even more support comes your way over the coming months.

Thank you for letting us be a part of your newest journey.
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Lealonnie,

So sorry to hear your news. I will pray for you.
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One down. You have been on my mind today. So glad you had a good meal… and a clear head. That alone can be worth it’s weight in gold:)
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lea - gladimhere recommends a heated mattress pad she bought this year. Would that be of any help to you? It's one she got on Amazon after returning one that wasn't good. Praying the chemo does it's job very effectively with few side effects and for good spirits for you and Chuck.
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Cxmoody, I can lie down on my heating pad on my back only to sleep or rest. I've always been a side sleeper but the pain and swelling on the right side from the liver, and the very bad pain on the left from cancer in the rib, makes it impossible. But if the heat hits the right spot on my thoracic spine, I'm comfortable.

No side effects so far ( it's too soon) but I feel clearer headed and was able to sit at the dinner table for 10 minutes longer than usual tonight which felt good 😍
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How is sleeping going, my friend? Can you lay down with your spinal pain?

Praying that your treatment is doing its job, with minimal side effects.
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Thank you everyone. Rapidswimmer, you DID do something to help, you offered me sincere words of comfort and support.

RD: ty, I'm not surprised to hear your mother The Bionic Woman is still hanging on. Heres an analogy....When I was a kid, I'd save my $ to buy small pets at the pet shop down the street. Newts were .49. It was gruesome how those newts would slither ALMOST down the drain, but I'd find them hanging on by 2 claws onto the grate. I'd have to rustle up a tweezer to pluck those guys out of the tub.

Alva I'm sincerely touched that you would have posted a prayer and prayer flag for me at a church on your route. That means a lot 😚

NHWM, no weird taste in my mouth. I'm not having chemo but 2 different immunotherapies, Yervoy and Obdiva. They are monoclonal antibodies that REV up and turn ON the body's immune system to rid the cancer and heal the diseased parts. Once the immune system is turned on, however, it can't be turned off. So side effects can be tricky. We're going for 3 more treatments, that's the goal. Immunotherapy is considered a bit gentler form of chemo, basically, and no port is needed. IV is inserted in my arm to deliver meds.

Bandy, Claire, CTTN, snoopy, thanks much for the prayers and kind words. Xoxo

And Geaton, thank you for taking the time to post such a meaningful prayer du jour.
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Lealonnie1,
I've only been on this forum for a short time but you have given me such good advise and really helped me deal with all I'm going through right now. Thank you very much for that. I only wish I could do/say something to help you in this time. I believe very much in the power of prayer and I will pray for you and Chuck. I pray the pain gets better and the cancer disappears.
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Sorry to hear this news. I think about you often as my mother continues to decline but seems to want to keep living. Your advice has always helped. Wishing you strength.
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Thinking of you, Lea. You’re not alone. We are all supporting you and wishing you the very best.
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Alva,

My MIL would complain about the metallic taste in food when she was getting chemo. She completely lost her taste for certain foods.
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Thank you Lea for updating us; baby yourself all you can. For me, on my chemo, the old fashioned kind, I hated the sort of copper penny taste I sometimes got.
I posted a prayer and a prayer flag for you today at my church I pass on the way to the library; this month's flags full of soft greens and look like spring. My thoughts are with you.
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Yes Cxmoody, I just got home from my first double infusion. I'm okay, ate a whole cbd gummie (5:1 cbd to thc) and am lying down on my heating pad taking a rest. I made myself eat some lunch too bc the doctor said small meals of hi protein all day are important with this treatment. I lost 1+ lbs just since Tues. I ordered some high cal protein powder from Amazon too and Chuck got frozen fruit chunks and oat milk for smoothies. Thanks for your prayers.
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I am imagining that your first treatment is done, today, and that you’re home for a well-deserved rest.

I’ve been praying as The Lord brings you to mind.

Update us when you can.

🫂🫂
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Lealonnie, I thought of you and Chuck yesterday, out of the blue. And now I see your post. I am so sorry for your troubles, while glad to hear that Chuck is doing so well post-transplant.
I will keep you both in my heart, with thoughts and energy for getting through each day, for guidance for your treatment team, and for healing. Know that you both are held in the light, as much as my heart can manage.
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Prayer du jour:

"Dear Lord, on behalf of LL, I ask for grace for her and Chuck to endure the challenge that is before them. You know she wants to live. You know she doesn’t want her body to change. You know she doesn’t want to be sick. You also know why she must meet this challenge, why she must go down this frightening path. She wants to avoid it. She wants the doctors to tell her the diagnosis was wrong. She wants her life back the way it was. She does not understand … But she knows if she puts her hand in Yours, You will guide her. You will give her courage. You will comfort her. I ask for Your grace for her and Chuck and their family now and forever. Amen"

Notre Dame Book of Prayer
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Lealonnie, you are being included in my prayers.
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Lealonnie1, I am so sorry to hear this! Praying for healing and comfort for you.
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I hear you. That panicky feeling that you must have just stepped into another life is no joke.

And when you love someone that much, it’s just as painful to think of leaving them as it is to think of them leaving you.

There are so few words that can even touch this, but sending many, many hugs.
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Dimes. It used to be pennies. Looks like rising inflation has hit heaven too! (Just trying to make you smile.)
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Thank you Hope. I don't feel brave, just scared of what lies ahead and of leaving my soulmate all alone. I wish you could make this disappear too. You really nailed it about how gobsmacked we are with all this.
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Oh Lea! I am so, so sorry. I know this has got to feel like you have slipped into the 7th circle.

I had to read your post twice. At first, I thought I read it wrong. Then, it seemed like a sick joke by someone who hijacked your account.

I wish we could make it not so.

I echo cxmoody, we are holding you up - in love and prayer. Both you and Chuck.

You are very brave, but just know no one here expects that. Your real pain and fear are ok, too, if and when you need to share. We have strong shoulders and care very much.

May the peace of God be with you, dear one. May He hold you in His strength and shelter you and Chuck with His mighty wings.
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Dear cxmoody, you've been there since the beginning and started the discussion thread here based on my Caringbridge daily updates on Chucks progress w his transplant. And all the dramatic ups and downs of those 7 weeks. You all propped me up, truly, during an incredibly stressful time. Chuck wound up getting a donor liver in 6 days after we arrived. I guess God knew we had to get back home asap to deal with my upcoming health. The armpit lumps started in Aug (we got home 6/15) but were pooh pooched away by the docs 😑
Anyway, thank you for being a good friend and so supportive this whole time. Big hugs to you and ty for the uplifting reading, too.
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Oh, dear Cyber-Friend,
You have been there for all of us, and now we will hold YOU up in prayer.

Here's the story from the bible about Moses' companions holding up his arms while a battle was fought. That's who we will be for you.

Exodus 17:12-14

12 When Moses' arms grew tired, Aaron and Hur brought a stone for him to sit on, while they stood beside him and held up his arms, holding them steady until the sun went down. 13 In this way Joshua totally defeated the Amalekites.
14 Then the Lord said to Moses, “Write an account of this victory, so that it will be remembered. Tell Joshua that I will completely destroy the Amalekites.”

So. Many. Hugs.
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Send, I read the survival rate for cancer patients on my 2 immunotherapy drugs after 5 years is 52%. We are happy with that number! 😁
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Well this sucks. I will keep you in my thoughts. I am sorry that you are in pain
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Lealonnie,
Knowing you are overwhelmed, I did not post the findings that said survival after 6 years on immunotherapy.
Just ask, but I cannot post the study on your pm privately.
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My prayers are with you both, Stay strong and keep us updated!
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