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I hope you get to that sale. So sorry about more dizziness. Not much more to say. I am always hoping to hear better news from you.
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Lea,

I am so sorry that November started off so crappy for you.

I certainly don’t blame you for not wanting to continue being miserable.

Maybe these symptoms will pass before the estate sale. I surely hope that they do.

Sending love and support your way.
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Unfortunately, the IVIG has caused SUCH dizziness the past few days that I'm having to hang onto countertops and banisters just to walk! I'm seriously FED UP with all this crap and my own attempts to fix this toxic reaction which apparently will NOT be fixed. Period. I'm done with IVIGs for good now, since there is no doubt in my mind they WORSEN my symptoms dramatically. I have a phone appointment with Dr C on Tuesday and plan to tell him to please cancel the rest of damn infusions that are scheduled.

I thought October was a "bad month" until I was shown what "bad" really feels like! 😑 I guess I forgot.

There is an estate sale Friday and Saturday on my street. We'd very much like to try going since I haven't been out to a sale since early January. I sincerely hope these symptoms ease up some so I can go with Chuck. I would really enjoy that.
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Lea: Yes! You did it! Such great news.
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Fantastic! Glad that you were able to walk out by yourself.
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Yay for making it through another round of IVIG. Hope it does what it is supposed to do for you and side effects are minimal this time.
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Well now that is WOO HOO for sure Lealonnie!!!
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The good news is that I was able to walk out of the building myself, just holding onto Chucks arm! 😁 My head was swimming, but I DID IT! HA!
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Oh, girl, I wish we could all come keep you company! 🙂
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Sitting here in the cancer center getting my IVIG which Dr C has cut down from 3 bags to 1 due to me being super dizzy for 10 days after the last one. I guess we're all just stabbing in the dark here, as usual 😏

Watching the 6" of snow we had over the weekend melt in the mile high bright sunshine as I recline.
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Hey Lea! Good Monday morning! A 1/4 mile walk is something!! Good on you!!! Hope the treatment gives you some dizziness relief and perks you up.
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Lea,

Sending love, hugs and prayers your way.
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Lealonnie, I'm praying that the IVIG infusion you get tomorrow will bring only positive results your way, and that your annoying dizziness will subside soon.
You continue to be in my prayers daily.
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So glad to hear you were able to walk as far as you did. That’s wonderful news.
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Wowwww! 1/4 mile! That’s so great! 🎉🎉

May all go well with your infusion, tomorrow. 😀
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It is great that you were able to walk yesterday. It must have felt good to look back and realize that there has been progress.
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Hi GG. I've stopped updating a lot because nothing much has changed. I'm still dizzy, still not going out, same old same old. It was 8 months on the 23rd.

I scheduled another IVIG infusion for myself on Monday. I took October off bc I didn't feel like the infusions were doing anything beneficial for me. But I've had a bad month, dizziness wise, so I'll have another IVIG. That's it for plans next week.

Yesterday I had to have blood drawn at a different office than I usually go to. The lab was way in the back of the large building. I went in in a wheelchair, as usual, but decided to try walking out myself, just holding onto Chucks arm. I did it........all the way out to the car! The walk was probably 1/4 mile and I was ok afterward!

I remember not that long ago I tried holding on to Chuck's hands to try walking in the house w/o my walker and could not do it. So I'm definitely getting better 😁

Thanks for asking.
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Hello, Lea. I had to go on a hunt to find this thread. Seems things have been very quiet here, not sure if that is a good thing or not. How are you today? And what does your coming week look like?
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Prayers, just prayers.
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Lea, may God grant you peace and freedom from anxiety and stress.

This past year has been very stressful for me as well for a number of reasons. I too have been struggling to stay above the stress and anxiety. You are right! Anxiety makes everything so much harder. In fact I find myself at times having anxiety about getting anxiety. It's a vicious circle.

I read on another forum where someone said to not anticipate stress and learn to accept it cause by so doing you make it not so scary and it starts to go away. I've been trying that and it kind of works.

Still praying...............(for you)
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Need said it so well.

And, I am glad to hear that the dizziness has backed off a bit!

May God lead and guide you with the new situation you’re dealing with.
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Lea,

You got that right! Life is a roller coaster of emotions, especially in times of uncertainty.

I’m so sorry that you have had to endure so much. You started this post back in February. It’s been a horrendous journey. I’m glad that you have a good support system. You are loved.

There have been some joyful and meaningful moments along the way too. I sense that you don’t take many things for granted these days.

For what it’s worth, I have seen your strength throughout this entire process.

Many others have crumbled when they have been faced with difficult challenges in their lives. Some like you, are able to face just about anything that life has thrown their way.

You have stood your ground and thoroughly researched everything while being proactive throughout this ordeal. I don’t know that I could have handled a situation like yours as well as you have.

Nothing can prepare us for going through something like this. It’s funny how we always think of these things happening to others. We tend to avoid thinking that it will happen to us.

I imagine that it would take me quite awhile just to wrap my head around it in order to accept it, let alone make sense of it and move forward.

You are plugging along and doing the best that you can. I admire so much about your way of thinking and I hope that if I found myself in your shoes one day that I would be inspired by your spirit.

Take care, Lea.
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Thank you GrayGrammie and NHWM. I'm pluggin along. The severe dizziness has let up as my stress has abated a bit. The stress will be an ongoing thing to deal with, unfortunately, so a rollercoaster for my symptoms methinks. I'm not trying to be mysterious, just not ready to talk about what's happening right now. Trying hard to let go and let God handle things I have no control over.
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Checking in to let you know you are on my mind today.
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Thinking of you, Lea. 💗
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Peace and quite are tough commodities to attain. I wish for you all the best and that the dizziness diminishes.
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Thanks RD. I'm sick of looking for strength and just want some peace and quiet, and to heal w/o dealing with any issues from anyone. Amen
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Just hoping for a day that feels better for you and you find the strength you need.
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Geaton, I've noticed that stress DEFINITELY ramps up my symptoms. Since nobody really understands the vestibular system, chalk it off to ONE MORE thing medical science doesn't understand 🙄
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LL, sitting here with my coffee, reading about you getting overwhelming and shocking news and I'm sorry for this development... remember that God is not overwhelmed or shocked at anything so keep leaning hard into Him through it all. Also, even though I know you don't have BPPV, stress definitely ramps mine up and for the life of me I can't figure out the connection since it's supposedly an equilibrium thing. May you receive "calm seas" in your body and peace in your heart. xoxo ((hugs))
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