
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
I know that some days are rough for you. I certainly hope that the worst is behind you.
And I'll toast to your better day with a lovely Jameson's Stout on ice. :)
When we covered that material in class when I was teaching, most students were shocked. They didn't realise what they were doing to their bodies. It's basically the same idea as Alva posting about NSAIDS. Easily available and socially acceptable substances are not necessarily safe for us. I believe it is important to be informed so we can make wise choices.
Continuing to pray for your improvement and your strength to increase.
But as I've said before on here there is a lot of dysfunction in my family and alcohol is just another symptom of that.
To clarify, I am not militantly against me or anyone else having an alcoholic
drink. I have had the alcoholic drinks.
What I am against for me and anyone else is the heavy use of alcohol on a regular basis to deal with feelings/problems. That's when I believe people would be better off going to a therapist. When 2-3 drinks a day become regular for
anyone, I believe they are endangering their health.
For women more than 7 drinks a week is considered heavy drinking by current NIAAA standards.
Insofar as cocktails go, I don't drink but have no issue with those who do. When I did a Mexican themed Easter here, I made frozen margaritas for everyone w/o an issue. It took me a while to get to that place, but once I did, it was fine. We keep wine and a few other booze items here for cooking purposes and they're not an option for me, period. Chuck is a non drinker too, has been since he was around 18 and vomited after getting drunk. He said he'd NEVER drink again and he hasn't! He's one of those Militants too.......where if there's a bit of liqueur in a dessert like Tiramisu, he won't eat it. I remember when we were dating and went to Cancun. He mistakenly picked up a gin and tonic from the bar table we were sitting at and took a big sip. Omg he nearly DIED. For hours afterward he was melting down 🙄. It almost made me rethink my interest in him. Almost. 🤣😃😂
Praise to You, oh Lord who heals the sick and has compassion on those who are suffering.
Lea, I "see" you as getting better and better. May God speed up this process and restore you to a normal level of functioning soon.
Estate sales and glitter, and Lea back full force!
As far as any form of alcohol therapy goes, it's not for me. My view is that if I need alcohol therapy then I need a counsellor/therapist even more than alcohol or anything else to help me deal with my realities. Not for me, never has been. I've seen too much damage.
And all Gods people said Amen!!!
Drink a margarita instead! LOL 😆 At least you will have a tasty drink in a beautifully salt rimmed glass.
I think of Gatorade, Powerade and Jello as something that doctors tell us to drink at certain times. Oh, and broth too! You know, the clear liquid diet.
"Ok, just not great" is better than terrible and we are waiting for great!
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Bdub -so sorry your dad is going through that disease and those treatments too.
Prayers all around for protection from ill effects of treatment and for total healing from cancer.
“Glitter, sparkle, and shine but most of all be kind.”
Also, for this taper to just give you a break!
I'm feeling worse today than yesterday but I'm not surprised.....nature of the beast. I'm ok, just not great.
What's weird is all my facial hair has been growing in pure white the past 4 months, due to the depigmenation process that happens w immunotherapy. This includes eyelashes which is VERY WEIRD. As of yesterday, my upper lip hair is coming in BROWN. Which makes me think the poison is LEAVING my body after 4 months. Idk this to be true.....just a guess. I hope so.
Ty send......lol. Ward thanks you too 🤣
RD, I feel clear headed......I just feel more negative lately/weepy/sorry for myself due to the prednisone taper. Posting here on A.C. keeps me OUT of my own head and that's a good thing....lol.
Gershun, thank God you didn't fall in the shower! Gives me the heebie-jeebies to even think about you balancing on one leg in there 😑
FG. Amen to getting back to a normal way of life. Until it's taken away, we don't realize the importance of everyday actions (like the ability to walk) we take for granted.
First of all, the tap water in our area isn’t the greatest. I buy bottled water to drink.
She said if I was tired of bottled water that I should drink mineral water, and even the carbonated ones are fine as long as they don’t have sugar added to them.
Mineral water is still hydrating and has supplements that are good for us.
My doctor said that mineral water replaces electrolytes, supports bone and heart health, plus it prevents constipation.
I like it with a squeeze of lemon or lime.
I just tasted it, and not salty to me.
Even partial functioning would be wonderful!!!
I am so sorry Chuck's kids are like that. ((((hugs)))) to him and to you.
So sorry for poor Chuck. That was unacceptable.