
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Sp, I took 2 extra D3s today. I'm not feeling as horrid today, so who knows, right? 😁
Golden......I've had doctors assure me of all sorts of things that never happened! Who's ever heard of losing weight while nursing? Or sleeping while on steroids? 😂 I'm definitely going to taper down by 5mgs moving forward though...I think that's the prudent thing to do here.
Something has to give soon, and that is our prayer for you, as you and Chuck both deserve to be able to enjoy both your second leases on life.
I'm keeping you both lifted up in front of the ONLY One who can help you.
I hear you as to how frustrating the weight gain is, especially if you know someone who has lost weight on the same meds. For me if 10% of people on the drug gain weight I am one of them - or get insomnia. When I delivered my third child -an 8 lb baby and the placenta and all, I weighed only 4 lbs less when I left hospital than when I went in 9 months pregnant. The doc was surprised and said, "You will lose that once you start nursing" Oh, yeah??? Not a chance!!! I had to diet every extra pound off, never mind nursing him for 6 months, having 2 other kids and a dh to care for. It's very hard work and discouraging. I know that. 💛
Hope the extra D3 helps.
Geaton, I'm not sick of posting.....just sick of my life as it stands right now. Shrunken down to the size of a nickel and lived within the confines of a few hundred square feet for the past few months.
Thank you for the prayers Ladies.....I can surely use them.
"...your Father knows what you need before you ask Him." Matt 6:8
Father God, we pray that you touch Lea, even this day, and ease her suffering. Lift her spirits as only you can and comfort her in her trials. I ask this in Jesus name.
"But unto you that fear my name shall the Sun of righteousness arise with healing in his wings; and ye shall go forth, and grow up as calves of the stall." Malachi 4:2
I agree with graygrammie you may want to taper slower some even recommend alternating tapering. Prednisone is some bad stuff. I think aliens invented it.
🚀👾👽
Praying that your withdrawal symptoms will ease up soon and that you will begin to feel better soon.
Sending love to you today and always.
Hang in there super sparkler woman! 🌟✨🎇🎆💖
"The darkest hour is always before dawn" Thomas Fuller
I pray in the mighty name of Jesus that these horrible side effects leave you sooner than later so you can start to enjoy your life once again.
And all God's people say Amen and Amen!!!
Geaton, if your grandson has an RFID gizmo that allows him access to other people's private things, how's that NOT something that shouldn't be confiscated? The world has gone berserk 😑 I believe those radio frequency id readers are illegal and wallets are sold to house them so that they can't be read or transmit signals.
Golden, I agree with buying frivolous things once in a while. And leaving the List up on the WM+ app so I can delete from it when Chuck stops off at Safeway for a few things. I'm afraid to join Costco bc I let our membership lapse due to spending too much! 😂🤣 I miss their giant rotisserie chickens though.
Praying for that pesky taper to ease off on its symptoms, already!
“The LORD says, ‘I will rescue those who love me. I will protect those who trust in my name.’”—Psalm 91:14
Praying God's will be done - thank you. There are times I need to pray that as I have no sense/leading of what else to pray. I know praying scripture is also good.
Online ordering - oh my goodness. I often start an order and then leave it a few days to be sure. I order my supplements on line and my groceries so we are not talking frivolities here, but still...
I do believe that an occasional frivolity is good for the soul, even if not for the pocketbook!!!😁😁😁
Was there a local paper your deli advertised in? Write to them.
Very interesting about your dad using outside distributors also - the Long Island deli's were a favorite of my father's to follow up with and visit at that time. For the first seventeen yrs of my life until I moved out, all that I lived on was deli food!
I pray that same thing, thy will be done, after asking for your complete healing.
Because I don't want to demand things from God, but still asking Him anything.
Do you love the verse that Golden provided?
Romans 8:37.
Here is Romans 8:37, 8:38, and 8:39.
37 Yet in all these things we are more than conquerors through Him who loved us. 38 For I am persuaded that neither death nor life, nor angels nor principalities nor powers, nor things present nor things to come, 39 nor height nor depth, nor any other created thing, shall be able to separate us from the love of God which is in Christ Jesus our Lord.
Have a happy Sunday!
Oh, and adding this:
Yesterday, my Costco order started at $235.00! Of course, I wasn't going to spend all that at the end of the month. So, I cut back the order to $65.00.
Then, clicked 'Place your order'. Later, I thought more about it, and rescheduled the order 4 days from now. Then, after some time passes, I am going to cancel it. I tell you this because you may be new to ordering online.
Knowing all the possible choices will help you to stop ordering too much stuff.
It happens! But my May budget is spent.
Ty gg and llama and NHWM. Yesterday deteriorated into a dizzy-fest in late afternoon w the taper but that's ok. I hung out in bed and feel better this morning. I am expecting setbacks.
Hope.....I went to Nassau Community College for awhile. Getting knocked out w mono for 6 weeks set me back a lot and contributed to me dropping out and making other unwise decisions in life. I'm still trying to think of dad's deli name.....there's nobody left to ask! Idk why Old Spice keeps popping into my head. I'm sure dad also used outside food distributors bc it was just he and my uncle running the deli. They did a lot of cooking, but not all of it.
Golden, what I usually pray for is "Thy will be done" bc I'm never sure what God's will is for me. That's the hard part: waiting and wondering. I also pray for Acceptance. If this is my new norm, I have to accept it. If it's temporary, same thing. One way or another, even w the state of the cancer, Acceptance of what IS is at the core of everything. Which leads to the one day at a time mentality. If you told me 3+ months ago I'd STILL be dizzy as chit today, I'd have freaked out and been depressed. Thank God we don't have crystal balls 😏
What's on your agenda for this Memorial day weekend? Nothing much for us ....same old same old. After signing up for the WM+ app, I'm ordering way too much stuff online. 😑. My goal for today and tomorrow: order NOTHING ONLINE FRIM ANYWHERE 😂🤣
Good morning, Lea. Prayers for a good day for you!
"Yet in all these things we are more than conquerors through Him who loved us."
Romans 8:37
Now y'all will be thinking about that this weekend-of-many-cookouts, lol.
Lea, so glad to hear of positive steps in the right direction each day.