
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
And, only one of Chuck’s hands needed!! Yipppeeeee! 🎉🥳🎉🥳 📣📣
Geaton, thanks again for the morning scripture messages. Always so well thought out! I’ve appreciated them!
Here's another related tidbit - my father was also in the food industry - he managed the purchasing and sales distribution for a company that produced all varieties of salads sold to the deli's, supermarkets, etc mainly in the northeast - such as, tuna salads, seafood salads, chicken salads, health salads, cole slaw, potato and macaroni salads, pickles, etc - the things you mentioned! You said that your dad prepared a lot of the salads in-house, but if he also used outside resources, can you imagine if they knew each other then! lol!
Thinking about the vagaries of life, I came on this scripture.
"The race is not to the swift, nor the battle to the strong, nor bread to the wise, nor riches to men of understanding, nor favor to men of skill; but time and chance happen to them all." Ecclesiastes 9:11
Indeed, and we don't know what is coming, but we know who we can rely on.
You're report of "BETTER" brought tears and still does. I have had miraculous "cures" of one item or another but that hasn't meant I haven't had related issues to work through. I have and they needed patience and persistence. Sometimes I think I don't pray for the right things. The only one that was absolutely healed with no more issues was the time I cut my toe badly and needed stitches. My immediate prayer was for the pain to go. It did completely and the thing healed up so well I could never even see a scar.
Have a good day all you golden girls. 💛💛💛
I am very happy that you’re feeling better.
Sending all my love to you today and always 💗.
And us "Golden Girls" are happy to be on this journey with you and cheer you on from all over the country/world.
Geaton, thank you for your daily scripture contributions. Feel free to start them back up any time 😁 I estimate, between pastrami, corned beef and roast beef, you've consumed 8.4 fingertips in your lifetime 😂🤣
Cx, the only thing I like almost as much as pickles and giardinera is SAUERKRAUT! Ha! Good link to Sterns. My good friend in WV visits a BIG pickle factory there where she stocks up on them and I'm jelly. I get stuck w Mt Olive 80oz jars bc I'm too cheap to buy 3 quarts of the good kosher garlic or half sours.
I am feeling a bit BETTER after this IVIG infusion, seems to me. I usually rate my dizziness every day on a scale from 1-10. Its normally at a 7 on a good day, sometimes an 8. Past 2 days it's at a 6. No need to clutch my walker so tightly either. Idk if you remember not that long ago Chuck was holding my hands trying to walk with me, which wasn't working out too well? Now he can hold out ONE hand to me and I can grabmonto it and down! So I'll say it quietly.......I feel on the road to recovery finally from this dizziness!
Today I titrate down to 40mg prednisone, too, which may set me back a bit, Idk. But the rollercoaster of emotions has died down along with the severity of the neck sweats. I still can't sleep between 1/ 2am - 5am, but that should resolve itself as the meds continue to decrease.
Thats my good news for today! Thanks to all you GOLDEN GIRLS for joining me and celebrating my victories along this crazy journey.
Love your stories about life in the deli.
I once got some some food from a mall food fair, and suddenly, when chewing had a bad bitter taste in my mouth. I spat it out and it was a cigarette butt!!! Eeeew!!!!! I took it back and showed the guy who I bought it from. His only comment was "You want more?". No way!!!
I couldn't buy food from any of their outlets for quite a few years and I like what they offer.
I think we all are golden girls here!!! Have a good night. 😊😊😊
A couple of times a year, we would go out to Stern’s, and load up on gallon jars of pickles. I bet they supplied lots of delis on LI.
https://en.m.wikipedia.org/wiki/Stern's_Pickle_Works
This thread. What a blessing. Such sweet memories.
I’m sooo glad that you’re not having any bad stuff from the latest treatment. I pray that it would help bring you back to your old self!
Happy Weekend, everyone!
And since you love pickles, you may really enjoy renting the movie, "Crossing Delancey'' - it's a NYC rom-com from the 1980's - it's about a matchmaker who arranges a romantic match for a pickle man ...it's one of my favorites!!
So glad that you didn’t experience any side effects.
Those memories with your dad and uncle sound so special. I think a lot of us cherish our memories with meal planning and eating our favorite foods.
I do think quality ingredients make all the difference in the world! I love horseradish too. I didn’t eat cheesecake as a child. I loved it after I tried it as an adult.
Don’t laugh, as a kid I kept imagining cheesecake would taste like cheese. I wouldn’t eat carrot cake either because I thought it would taste like carrots! LOL 😆
I like spicy pickles! There is a woman at our farmers market that has great pickles. I buy her pepper jelly too.
So my dad owned an Italian deli on Long Island when I was a kid growing up. I spent many a weekend day in that deli helping out, eating, watching dad and my uncle mix up potato, macaroni salad and coleslaw in HUGE stainless steel pots, etc. And driving workers to the ER who'd cut the tips of their fingers off slicing pastrami 🙄. My fondest memory is of the huge pickle barrels he had in the store.....one for giant half sour dills and one for giant full sour garlic dills. Nineteen cents each! So began my love relationship with pickles. Never have I been able to find these giant pickles again, either. We have a shop here The New York Deli News which flies in meats and cheesecakes and things directly from NYC, and used to put bowls of pickles on each table. Used to, being the key words. They stopped doing that when I'd come in and eat 3 bowls, probably 😂🤣. When a quart of Ba Tampte or Bubbies pickles commands $8, there you have it. Sometimes I'll go there to pick up hot horseradish (They grind it fresh) bc there's a BIG difference between it and the crap in the jar at the grocery store.
We also have The Bagel Deli featured on Diners Drive-Ins and Dives, which serves knishes (the real deal) and all the good Jewish rye/deli foods, so it's a good thing for a one-horse town like Denver 🤣.
Ty, no doubt I could plow thru a cheesecake single handedly myself. I was watching The Golden Girls Blanche do that last night at 3am actually, during one of my sleepless prednisone nights binge watching BY.
Geaton, I agree with FG that is a beautiful prayer you posted! Enjoy the time you have with your youngest son, too.
And Lealonnie, I continue to keep you and Chuck in my prayers and hope that the infusion will reverse any of the negative side effects you've been having.
Barb, you’re making this LI girl’s mouth water! Hope you’re having a lovely holiday!
I'm home from the infusion and no worse for the wear. Thank God. It took about 3.5 hours, no side effects. Gershun, I think there should be a Hallmark moment for infusions......there are 25 bays each w 4 recliners in my center alone. And it's always pretty full. We'd all like a card for those days, yup!
On the ride home, we had a typical Colo spring day with rain, hailstones, thunder, lightening and gusty winds. We managed to pull the car into the garage BEFORE the hailstones destroyed it, like they did the roof in 2013.
If I lived right across the street from them I would be in big trouble.
I wonder if Hallmark has cards for that.
Just think of the collection of cards there could possibly be.
Anyway, just trying to inject a little bit of humor into your day
Lea. :)
The Rockies are stunning! So are the aspen trees in Colorado.
Your dog sounds precious and just a tad bit spoiled! LOL
Barb,
The holiday of the Cheesecake sounds awesome!