
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Tonight starts the holiday of Shavuot (which I always call the holiday of the cheesecake. Traditionally we eat dairy).
It commemorates the giving of the Torah and especially the 10 Commandments to the Children of Israel.
Also praying for better days for you. I am sure your honey is appreciating all the attention. Does she have a sparkly collar? 😁
Nhwm......my big plans for the holiday weekend are the same as always. Hanging out at the house w my walker. I'm hoping and praying to God I'll be able to get back to SOME semblance of normalcy at SOME point down the road. Amen. To go from having a normal active life to THIS is something nobody can comprehend who hasn't been thru it. Honey the chiweenie loves that we're around to pet her 24/7 though....lol.
DD hasn't gotten engaged yet so we're not wedding planning quite yet. I hope to be in better physical condition to make her jewelry bouquet and to find a mother of the bride dress that isn't an X size due to steroids. 🙄
Thank you all for the kind sentiments about Chuck and his arthritis. It's a much better condition than it could be, that's for sure! We are grateful to God for that blessing and the rest that have come our way along this journey.
Anything planned for the holiday weekend? Are you feeling any better? Praying for you and Chuck and sending lots of love your way today.
How’s your little pooch doing? I believe they have a sense of what is going on. I bet that she knows life hasn’t been the same.
Before your cancer diagnosis, y’all were scouting out estate sales and other things. I’m so hoping that you will be able to get back to all the things that you enjoy.
Wait, I almost forgot. You have a wedding to plan with your daughter! Do you know what design that you’re going to do for the bouquet?
You’ve been preoccupied with your health and Chuck’s health for so very long! I can’t wait for things to settle down and you can begin to focus on fun things to do!
Have a good sleep tonight.
“Therefore encourage one another and build each other up, just as in fact you are doing.”
1 Thessalonians 5:11
My dH is thin and lean, never overweight, eats healthy, almost vegetarian but eats meat when I cook it for me. He has always been active, was riding his bike 50 miles before covid, and exercises now to Silver Sneakers exercise videos.
He has arthritis.
He says, "I guess so, it's in my chart".
I guess it is luck of the draw. I am 67 and don’t have arthritis.
I think you are right. Well, you are not wrong, because the doctors will tell you to eat healthy, maintain your weight, and exercise.
In so far as you can delay the onset of a terribly debilitating disease that you are going to get anyway. Not sure. I really do not know.
So, maybe a better chance of health over the long term.
I was just adding to the discussion.
Yes, Lealonnie. Adding that, in your 60's and don't have it yet would be a good indicator you may not get it. I agree.
I suppose people who exercise and eat healthy the majority of the time have a better chance of not getting it. Or am I wrong about this?
Do some elderly people never develop arthritis?
While there are about 27 million Americans with osteoarthritis, it is possible for a person to live their entire life without developing the condition. The number includes the elderly. Jul 7, 2022
Praise God!
That’s interesting.
My aunt was in her 30’s with RA. When I was a child, I remember wondering why her fingers were permanently bent.
She stayed as active as she could. She was like my mom and grandma. She was an incredible cook and seamstress.
She struggled with ironing and my uncle told her to hire someone to do the ironing.
I remember my aunt telling my mom that it was worth paying 50 cents for each article of clothing to be ironed! Oh my, oh prices have gone up, huh?
RA is an autoimmune disorder and entirely different than osteoarthritis
Happy to hear that Chuck is doing okay with the exception of arthritis.
Does everyone eventually end up having arthritis? Just curious.
My aunt had rheumatoid arthritis. I remember her hands being horribly affected by it. She lived in pain.
“Finally, brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things.” Philippians 4:8
One of my favourite bible verses. Think on good things. Praising God for His mercy!
"For the LORD is good; His mercy endures forever, and His faithfulness to all generations." Psalm 100:5
Geaton, I too am grateful for the sweet and sustaining friendships that have been cultivated on this thread! Amen. 😁 I look forward to coming here often to read the uplifting posts. They buoy my spirits.
Chuck is at the doctors office right now and I have a pit in my stomach. He's been having a lot of pain where his shoulder meets the first rib. We're hoping it's from too much photography and lugging around a heavy camera (but wrong arm for that). But history shows every time he's had odd pain, it's something awful. Last time he had a shoulder pain it was liver cancer. I am seriously praying to God for a break in these health crises we've been going thru non stop since 2019.
I'll update later once he's back and there's GOOD news to share. Then I have to go give blood for my IVIG infusion tomorrow.....our new hobby: doctors office appointments 🙄
LL, I'm praying for you right now. May God delight you in some way, today!
I go to most of his gigs that I can…
Feel better