
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Lea - a big BIG high five from my dd about your NED results. She was so excited for you. She knows better than I what that means. (((((hugs)))))
"It's not my fault. when I was a baby, I was dropped in a pile of pink glitter, and I've been really sparkly ever since."
Works for me!! Now where are my earrings?
Me too. I love hearing about everyone’s grandchildren. I don’t have grandchildren but everyone who has them says how special of a relationship it is. My friends say that it’s very different from raising our own children. It’s fun to spend time with them without the responsibilities of being the parent!
My four year old sweetheart and I collided on Sunday, when he ran across the playground, yelling my name, and running into my legs. And my feet. And my right big toe didn't make it out of the fray unscathed.
Off to Urgent Care I went, yesterday. Fractured!
I shall be wearing a Surgical Shoe for the next four weeks.
Worth it?
Oh, yes!
He will be sixteen some day, and NOT running across the playground towards me, yelling, "DeeDee! DeeDee!"
Music to my ears!
Thurs morning is the IVIG infusion at Kaiser which lasts 4 hours, not including pharmacy prep time, IV prep time, lab time, etc,,,,,so all day basically. I hope this one kicks in and brings some relief.
My grandson came over for 2 hours yesterday while dad took mom to a medical procedure. She insisted on saying bye bye to him (2 years old) repeatedly so he refused to leave the foyer of our house for most of the time! We have a little window next to the front door he wanted to look out of, while playing with my Willow Tree angels, and only managed to break 2 of them in the process. Grandpa sux as a babysitter, did I mention that? 😂 But he did manage to lure him into the living room with a tub of watermelon and no napkins! Oh and M&Ms that DO melt in your hand after all. Who knew? All the moms and grandma's on earth, that's who! Ha. As soon as mom and dad came back, the little guy said ALL DONE BYE BYE UP and laughed. Lol. He was ready to go to Tokoyo Joe's and have a Bento Box with edamame. His tastes are apparently refined away from chicken nuggets and chocolate milk to soybeans and San Pellegrino sparkling water 🙄 Anyway, times have changed since we were raising kids, that's for sure, but the cuteness overload hasn't changed one bit! I told them to drop g/s off anytime they need a lunch date all to themselves.
And we do too.
PS: go check your PMs
Lea, I did an update about my ongoing foot and ankle problems on General Topics thread if you are interested. I'd rather not type it all out again. It just depresses me.
Maybe, my foot problem is all in my mind? I'm talking to the orthopedic doc again on Friday. Last time I saw her, her last words to me were "Go get em!" My DH thought it was funny. It just riled me up. Maybe she'll tell me on Friday to talk to a counselor. She better not or I might lose it.
Graygrammie: The vestibular system helps provide the brain with information about your movement, positioning, and where you are in space. My brain is misfiring these signals, I'm told. The symptoms of a vestibular balance disorder include:
Dizziness.
Feeling off-balance.
Feeling as if you are floating or as if the world is spinning. (Drunk for me)
Blurred vision (and floaters, still)
Disorientation.
Falling or stumbling.
Hearing loss, tinnitus
I also have swollen eyes and eye issues bc all those systems are interconnected. Blurry vision prevents me using my desktop or seeing in the mirror (Which is not all bad at this point). My head feels disconnected from my neck....like a bobble head which requires me to lay my head down or rest it against something most of the day. Can't shower w/o a walker, go up and down stairs, or do much of anything else in general. Imagine trying to do anything after drinking a gallon of moonshine, which is how I feel 24/7. Riding in the car is an ordeal requiring me to lean the seat back to rest my head, too. Bumps and ruts in the road cause nausea.
Plus I'm hyper sensitive to noises of any kind, light, odors and stimuli in general. The startle reflex is ramped up so I wear earplugs in the house, but it comes and goes. The ringing in my ears is a constant high pitched drone. The combination of symptoms makes for a very disabling situation which social security classifies as a disability that they pay SSDI for.
Never heard of a Rife machine but I'm sure it'll be recommended soon.
Cxmoody, isn't parasthesia similar to neuropathy? No fun there, that's for sure. My neuropathy in hands and feet is pretty mild (also from immunotherapy) fortunately, and also seems to come and go. Sometimes it feels like there's a buzzer on my toes....other times pins and needles, other times nothing.
I had to look that one up! 😂
Oh, my goodness! Yes, I’ll just run right out and spend $10,000 on a machine to ZAP my paresthesia away! 🤪🤪
Anyone tell you to try a Rife machine yet? (Unsolicited advice my husband received -- and rejected.)
Ty Gershun. I have been wondering how your ankle is doing these days? Updates?
Golden, it would be nice if a visit or 12 to a shrink could fix all this chit, wouldn't it??? As if we wouldn't be first in line at that door! Chuck and I are extremely fortunate to have my DD helping us w our health issues, understanding what's going on and being our advocate. Amen to that.
If I had a dollar for every time that some well meaning, exasperated relative suggested "massage" or "Plexus" or some other thing for my symptoms, I would be rich. Oh, and maybe I should "lift weights"! That's another one.
Mayo can't help me. Spent LOTS of time there, and saw MANY docs. They offered me a "class" in how to deal with my symptoms. I asked the Neuro. if the class was about Thinking Positive, Join a Faith Community, try to move, when you're not in pain, and while you're at it, throw in some unicorn and rainbows. He held back his giggle. I told him, "I thought so". Saw regular, local docs. Big city docs. Chiropractors. Tried every alternative therapy, as well. THOUSANDS of dollars spent. Oh, and I've HAD massage. Saw a practice of acupuncturists. They didn't think they could help.
Can you tell that this is something that sets me off? Gaaaaah!
Why God allows us to suffer in the ways we personally suffer? Only God knows that. But I'm sure he loves you and wants you to feel great. Just keep believing that.
So glad your dd is very in tune with your condition and your needs. It's important that someone knowledgeable is there to advocate for you.
((((hugs)))) to you this afternoon and prayers, always prayers. God has put you on the top of my prayer list!
After taking antibiotics, a yeast overgrowth can occur.
Search instead for dizzyness with yeast infection.
Ask your doctors. See a functional medicine doctor?
Search Results
One of the major toxins that's produced by candida overgrowth is acetaldehyde, which the liver converts into a harmless substance. When our neurons are 'blocked', this can lead to feeling intoxicated and experiencing brain fog, vertigo and loss of balance.May 13, 2021
Candida: Symptoms, Treatments & Causes | Holland & Barrett
Holland & Barrett
https://www.hollandandbarrett.com › ... › Womens Health
Other:
Candida and Prednisone:
Additional predisposing factors for Candida infection include the use of antibiotics, oral contraceptives, or adrenal corticosteroids (such as prednisone). Underlying health conditions that may predispose someone to Candida overgrowth include pregnancy, diabetes, and HIV infection.
As far as me being glad to have this thorn in my side and be as totally debilitated as I am, appreciating the gift....yeah no. This situation can be spun in a variety of ways, but some RELIEF would be very much appreciated right now. I can be grateful for remission and still long for relief from over 3 months of pure suffering for both myself and Chuck. Ty for your prayer cxmoody....incremental healing sounds divine today.
“Never stop praying.” —1 Thessalonians 5:17
LORD, we know that Your mercies are new every morning. Great is Your faithfulness. We ask for mercy on our friend. Would You please give her the gift of some incremental healing today? She needs hope that her situation will eventually resolve. We thank You, and ask this in the mighty name of Jesus. Amen.
The everlasting God, the Lord,
The Creator of the ends of the earth,
Neither faints nor is weary.
His understanding is unsearchable.
He gives power to the weak,
And to those who have no might He increases strength.
Even the youths shall faint and be weary,
And the young men shall utterly fall,
But those who wait on the Lord
Shall renew their strength;
They shall mount up with wings like eagles,
They shall run and not be weary,
They shall walk and not faint.
Dedicated to Lea, Geaton, and Gershun today.
And to everyone who needs to renew their strength.