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Oh cx, I am sorry but understand that it was worth it.

Lea - a big BIG high five from my dd about your NED results. She was so excited for you. She knows better than I what that means. (((((hugs)))))

"It's not my fault. when I was a baby, I was dropped in a pile of pink glitter, and I've been really sparkly ever since."

Works for me!! Now where are my earrings?
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cx,

Me too. I love hearing about everyone’s grandchildren. I don’t have grandchildren but everyone who has them says how special of a relationship it is. My friends say that it’s very different from raising our own children. It’s fun to spend time with them without the responsibilities of being the parent!
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I love your grandson stories, LL!

My four year old sweetheart and I collided on Sunday, when he ran across the playground, yelling my name, and running into my legs. And my feet. And my right big toe didn't make it out of the fray unscathed.

Off to Urgent Care I went, yesterday. Fractured!

I shall be wearing a Surgical Shoe for the next four weeks.

Worth it?

Oh, yes!

He will be sixteen some day, and NOT running across the playground towards me, yelling, "DeeDee! DeeDee!"

Music to my ears!
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Glad your afternoon was filled with the sunshine only a baby can shine!!!!
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Yay, Lea. Awesome!
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Hi all. I consider today a success since I woke up and was able to walk to my recliner w/o the frame walker. Score 😁

Thurs morning is the IVIG infusion at Kaiser which lasts 4 hours, not including pharmacy prep time, IV prep time, lab time, etc,,,,,so all day basically. I hope this one kicks in and brings some relief.

My grandson came over for 2 hours yesterday while dad took mom to a medical procedure. She insisted on saying bye bye to him (2 years old) repeatedly so he refused to leave the foyer of our house for most of the time! We have a little window next to the front door he wanted to look out of, while playing with my Willow Tree angels, and only managed to break 2 of them in the process. Grandpa sux as a babysitter, did I mention that? 😂 But he did manage to lure him into the living room with a tub of watermelon and no napkins! Oh and M&Ms that DO melt in your hand after all. Who knew? All the moms and grandma's on earth, that's who! Ha. As soon as mom and dad came back, the little guy said ALL DONE BYE BYE UP and laughed. Lol. He was ready to go to Tokoyo Joe's and have a Bento Box with edamame. His tastes are apparently refined away from chicken nuggets and chocolate milk to soybeans and San Pellegrino sparkling water 🙄 Anyway, times have changed since we were raising kids, that's for sure, but the cuteness overload hasn't changed one bit! I told them to drop g/s off anytime they need a lunch date all to themselves.
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Resting on the promises that He cares for you!
And we do too.
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Thinking of you, Lea. 💗
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Scripture du jour What does God count as "success"? The word "success" occurs only once in the entire bible: "Don�t get off track, either left or right, so as to make sure you get to where you�re going. And don�t for a minute let this Book of The Revelation be out of mind. Ponder and meditate on it day and night, making sure you practice everything written in it. Then you�ll get where you�re going; then you�ll succeed. Haven�t I commanded you? Strength! Courage! Don�t be timid; don�t get discouraged.�God, your God, is with you every step you take.� - Joshua 1:1-8 (The Message) The Westminster Catechism states that "man's chief end is to glorify God and enjoy him forever." If we carry out this God-given purpose for our lives, we are a success in God's eyes (the only eyes that count). My former pastor used to say "says easy but does hard" (he was from Arkansas). Translation: easier said than done -- the glorifying part, that is. But I love the thought that God wants us to enjoy Him! Praying for you to succeed in glorifying God today...and enjoying Him!
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Lea, my ortho is a no nonsense one and has the bedside manner of a piranha. So if spit enters her eye I'll definitely say it's from you. LOL
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Gershun......ugh....I read your post on discussions about your foot. I'm sorry you are facing such a situation and I'd seriously explore surgery if it were me. I am stuck with a walker (can't even use a rollator it's too unsteady) and I hate it. My daughter in laws brother just had a big foot surgery which was VERY successful. Look at your options before you make a decision. Exercise can't fix everything and it's NOT in your head......none of us are making these issues up. I am sending you a hug and a prayer for wisdom in a tough situation. It's hard to keep a happy outlook in the face of such things, I know. It's ok to cry and feel angry too. 😘 And please feel free to spit in your orthos eye if she dares suggest counseling on Friday. Tell her its from me 😑

PS: go check your PMs
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Lea, I hate people I don't know touching me too. In fact I once thought I'd like to be an esthetician but didn't cause the thought of being so close to others and all that touching. UGH!

Lea, I did an update about my ongoing foot and ankle problems on General Topics thread if you are interested. I'd rather not type it all out again. It just depresses me.

Maybe, my foot problem is all in my mind? I'm talking to the orthopedic doc again on Friday. Last time I saw her, her last words to me were "Go get em!" My DH thought it was funny. It just riled me up. Maybe she'll tell me on Friday to talk to a counselor. She better not or I might lose it.
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Yes llama, lackluster in spite of the docs insisting it would fix something I didn't suffer from to begin with! Doctors, sheesh. Although I'd be open to trying just about anything at this point if the docs thought it'd help. I even tried Dramamine and Benadryl to no avail.

Graygrammie: The vestibular system helps provide the brain with information about your movement, positioning, and where you are in space. My brain is misfiring these signals, I'm told. The symptoms of a vestibular balance disorder include:

Dizziness.
Feeling off-balance.
Feeling as if you are floating or as if the world is spinning. (Drunk for me)
Blurred vision (and floaters, still)
Disorientation.
Falling or stumbling.
Hearing loss, tinnitus

I also have swollen eyes and eye issues bc all those systems are interconnected. Blurry vision prevents me using my desktop or seeing in the mirror (Which is not all bad at this point). My head feels disconnected from my neck....like a bobble head which requires me to lay my head down or rest it against something most of the day. Can't shower w/o a walker, go up and down stairs, or do much of anything else in general. Imagine trying to do anything after drinking a gallon of moonshine, which is how I feel 24/7. Riding in the car is an ordeal requiring me to lean the seat back to rest my head, too. Bumps and ruts in the road cause nausea.

Plus I'm hyper sensitive to noises of any kind, light, odors and stimuli in general. The startle reflex is ramped up so I wear earplugs in the house, but it comes and goes. The ringing in my ears is a constant high pitched drone. The combination of symptoms makes for a very disabling situation which social security classifies as a disability that they pay SSDI for.

Never heard of a Rife machine but I'm sure it'll be recommended soon.

Cxmoody, isn't parasthesia similar to neuropathy? No fun there, that's for sure. My neuropathy in hands and feet is pretty mild (also from immunotherapy) fortunately, and also seems to come and go. Sometimes it feels like there's a buzzer on my toes....other times pins and needles, other times nothing.
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Lea: That's why I said the Meclizine could be and IS lack luster. Basically Dramamine, I did not find it helpful to alleviate my Presyncope.
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Gray,
I had to look that one up! 😂

Oh, my goodness! Yes, I’ll just run right out and spend $10,000 on a machine to ZAP my paresthesia away! 🤪🤪
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Aw, Lea, so sorry things aren't getting better head-wise. I looked up "vestibular response" to try to understand what you are experiencing. You are one tough lady to keep pushing on!

Anyone tell you to try a Rife machine yet? (Unsolicited advice my husband received -- and rejected.)
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"Empirical evidence " isn't all it's cracked up to be, either, bc when they can't find enough of it, the "experts" resort to blaming US for our symptoms. It's an issue in our Mind, our Head, our Attitude, what we're Eating or not Eating, what Exercises we're Doing or Not Doing, and yada yada. And me, I'm one who HATES massage bc I detest people I don't know touching my body! 😂🤣😃 Also with me, my mind has not been affected by this toxicity THANK GOD, so to talk to me you'd never know anything was wrong. Just dizzy, pffft, no biggie. No blood spurting from my mouth or gobbledygook slurring from my lips, so she's A-ok. Not the case, but nobody gets it nevertheless.

Ty Gershun. I have been wondering how your ankle is doing these days? Updates?

Golden, it would be nice if a visit or 12 to a shrink could fix all this chit, wouldn't it??? As if we wouldn't be first in line at that door! Chuck and I are extremely fortunate to have my DD helping us w our health issues, understanding what's going on and being our advocate. Amen to that.
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LL and Golden, I sooo get you.

If I had a dollar for every time that some well meaning, exasperated relative suggested "massage" or "Plexus" or some other thing for my symptoms, I would be rich. Oh, and maybe I should "lift weights"! That's another one.

Mayo can't help me. Spent LOTS of time there, and saw MANY docs. They offered me a "class" in how to deal with my symptoms. I asked the Neuro. if the class was about Thinking Positive, Join a Faith Community, try to move, when you're not in pain, and while you're at it, throw in some unicorn and rainbows. He held back his giggle. I told him, "I thought so". Saw regular, local docs. Big city docs. Chiropractors. Tried every alternative therapy, as well. THOUSANDS of dollars spent. Oh, and I've HAD massage. Saw a practice of acupuncturists. They didn't think they could help.

Can you tell that this is something that sets me off? Gaaaaah!
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Lea, I just pray that God heals you of all that you are suffering through. No lessons to be learned. Just the blissful comfort of no dizziness and you feeling like your true self again.

Why God allows us to suffer in the ways we personally suffer? Only God knows that. But I'm sure he loves you and wants you to feel great. Just keep believing that.
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Good afternoon, Lea. Re the counselling and exercise suggestion. Many people just don't get it. I think finally my dd is getting that more exercise and a visit to a psychiatrist will not solve my CFS/FM problems. It's taken a long time, but finally, about a month ago I think I got through to her. That's critical for me as she may be overseeing my care at some point.

So glad your dd is very in tune with your condition and your needs. It's important that someone knowledgeable is there to advocate for you.

((((hugs)))) to you this afternoon and prayers, always prayers. God has put you on the top of my prayer list!
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Thanks send. We know what the issue/diagnosis is.....my body is having a severe toxic reaction to the 2nd immunotherapy treatment in the form of a central nervous system vestibular response ie: dizzy/hearing loss etc. What we don't know is how to get rid of it or calm it down. Or if it's permanent. The IVIG monthly infusions are thought to be useful to help me. So was the prednisone which is an anti inflammatory.
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Please excuse the 'shot in the dark' research. Dizzyness could be Candida.
After taking antibiotics, a yeast overgrowth can occur.
Search instead for dizzyness with yeast infection.
Ask your doctors. See a functional medicine doctor?

Search Results
One of the major toxins that's produced by candida overgrowth is acetaldehyde, which the liver converts into a harmless substance. When our neurons are 'blocked', this can lead to feeling intoxicated and experiencing brain fog, vertigo and loss of balance.May 13, 2021

Candida: Symptoms, Treatments & Causes | Holland & Barrett
Holland & Barrett
https://www.hollandandbarrett.com › ... › Womens Health

Other:
Candida and Prednisone:
Additional predisposing factors for Candida infection include the use of antibiotics, oral contraceptives, or adrenal corticosteroids (such as prednisone). Underlying health conditions that may predispose someone to Candida overgrowth include pregnancy, diabetes, and HIV infection.
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Llama, meclizine was the very first thing prescribed to me in the hospital way back in early March for "vertigo" which wasn't vertigo, and did nothing to help my symptoms. Actually made them worse since the spinning sensation wasn't there in the first place, I've only ever felt dead drunk. Lately, when some true vertigo symptoms have cropped up, the meclizine also did nothing to alleviate the symptoms. I'm never an easy fix 😑

As far as me being glad to have this thorn in my side and be as totally debilitated as I am, appreciating the gift....yeah no. This situation can be spun in a variety of ways, but some RELIEF would be very much appreciated right now. I can be grateful for remission and still long for relief from over 3 months of pure suffering for both myself and Chuck. Ty for your prayer cxmoody....incremental healing sounds divine today.
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Scripture du jour In pondering LL's lingering problem of dizziness, amid the celebrating of her remission status, the Apostle Paul was brought to my mind. Although a mightly man of God, who was given visions, powers, and was the recipient of multiple miracles, he continued to have a thorn in his side -- which many scholars believe was a physical ailment or problem. Three times he prayed to for it to be taken away and as far as we know, it never was. (I couldn't help but think, "only" three times??) Why would God allow this? "Because of the extravagance of those revelations, and so I wouldn�t get a big head, I was given the gift of a handicap to keep me in constant touch with my limitations. Satan�s angel did his best to get me down; what he in fact did was push me to my knees. No danger then of walking around high and mighty! At first I didn�t think of it as a gift, and begged God to remove it. Three times I did that, and then he told me, My grace is enough; it�s all you need. My strength comes into its own in your weakness. Once I heard that, I was glad to let it happen. I quit focusing on the handicap and began appreciating the gift. It was a case of Christ�s strength moving in on my weakness. Now I take limitations in stride, and with good cheer, these limitations that cut me down to size�abuse, accidents, opposition, bad breaks. I just let Christ take over! And so the weaker I get, the stronger I become." - 2 Corinthians 12:7-10 (The Message) For sure we've prayed more than 3 times for the Lord to end LL's dizziness. And I'm not implying here that she's meant to have it forever, or that it's to keep her from "having a big head" about her remission. The Lord has His reasons (and we may never know why). It's our job to keep our eyes on Him and not on our circumstances, and to revel in His strength, glorified through our reliance on Him in our weaknesses. May you be focused like a laser beam on the Lord today!
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I am adding an Amen and Amen to both cxmoody and golden23's prayers, and trusting that Your will be done.
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Praying in agreement for a decrease of these troublesome symptoms. Praise God for he is a God who hears us and heals us.

“Never stop praying.” —1 Thessalonians 5:17
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Praying for your brain to CALM DOWN already.

LORD, we know that Your mercies are new every morning. Great is Your faithfulness. We ask for mercy on our friend. Would You please give her the gift of some incremental healing today? She needs hope that her situation will eventually resolve. We thank You, and ask this in the mighty name of Jesus. Amen.
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Lea: I believe that I asked you if you've tried Meclizine for the vertigo/room spinning? Maybe it would be a bit lack luster or perhaps worth a try. Idk.
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Isaiah 40 NJKV

The everlasting God, the Lord,
The Creator of the ends of the earth,
Neither faints nor is weary.
His understanding is unsearchable.
He gives power to the weak,
And to those who have no might He increases strength.
Even the youths shall faint and be weary,
And the young men shall utterly fall,
But those who wait on the Lord
Shall renew their strength;
They shall mount up with wings like eagles,
They shall run and not be weary,
They shall walk and not faint.

Dedicated to Lea, Geaton, and Gershun today.
And to everyone who needs to renew their strength.
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No worries at all dear Geaton. I echo NHWMs sentiments and will see you tomorrow.
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