Follow
Share
Read More
This discussion has been closed for comment. Start a New Discussion.
Find Care & Housing
Ty.....nope....they took ALL the food bags with them! They left us nothing! Honestly, I could write a book on the stepkids shenanigans alone. Madonna Mia, not even a piece- a -provolone or a stale heel of bread for a sick stepmother and liver transplanted father! 🤣

Sp, I like that song Titanium. I also told my son I felt like saying eff it all the other day just to hear how I have no business saying that. Oh no? Hey bud. Try being in my shoes sometime and THEN we'll talk about who has rights to say what 😑. Nobody should attempt to mute a person from speaking their truth in a family situation bc it's "unpleasant " to hear it.

Golden, I've seen NO IMPROVEMENT AT ALL from that IVIG, nope. And if I hear IT TAKES TIME once more, my chins will truly explode. Btw, to add insult to injury, none of my 16" necklaces fit around my neck now so I'm forced to wear the long ones. The evil wicked prednisone taper is down to 70mg till Sat when it drops to 60. I did find Quaker oatmeal CURED MY GERD so if whoever is struggling w such an issue, give it a try. I eat 1 serving of the swill for breakfast and I guess it acts like a sponge in my stomach, but no more TUMS, Pepto B or liquid antacid ever since, which is miraculous.
(7)
Report

Lea so glad you are out of exhile. Soinds like an alien probing would have been less painful and involved than that back surgery.

It is a good sign that you are only on ibuprofen now for the pain and not having to take stronger stuff for your back. Wishing you more healing in the coming days and weeks for your back and goid news for your pet scan on Thursday.

On the other hand your back rebuilding reminded me of the song Titanium. This could be your anthem when you want to say f--k it to everything.

https://m.youtube.com/watch?v=KxnpFKZowcs
(4)
Report

Welcome back! The surgery sounds like a total "ouchie" and very not amusing. Hopefully, the pain will wear off sooner than later, though ibuprofen for pain control sounds like good progress!

The wreath is beautifullllll and so very sparkly. I mean who doesn't like a super sparkly wreath? And if there is a person, well...just ignore them. They ain't right.

Wait 8 bags of food and they left you cheese and crackers? Hope it was some fancy shmancy cheese and amazing crackers. Beyond that all I can say that's just a shame! And for good dose, add it in Italian (una vergogna) and Yiddish (a shanda). Yeah, just showing off here.

Good luck with the PET. Hope it shows only good things. And give some thought to the treatment offered. Although maybe you want to give yourself a couple of weeks before plunging into another round?????? IDK, just a thought.



Take care!!!
(7)
Report

Lea,
Glad to see you are back!
Wonderful jewelry on the wreath!
Just beautiful.
(7)
Report

Welcome back, Lea. We missed you.

Your wreath is beautiful! Thanks for uploading the photo so we could see your lovely work.
(8)
Report

Yay, you are back!!!! So good to see you posting again.

Prayers for wisdom re the IVIG. As far as you are aware did the last rounds benefit you at all?

The stepdaughter and family are beyond understanding! Oh my goodness!

Looking forward to seeing you and Chuck in your lovely avatar again.
(7)
Report

Wooooooot!!!!!!!

So glad you're back!
(9)
Report

Hi everyone and THANK YOU for keeping the lights on for me this past week which has been a struggle for me, if I'm being honest. But I always am. Keeping it real is what this thread has been about.

Send, you all are not doing anything "to" me except allowing me to vent, to listen to me, to give me support, etc. "Immature children" would be the last words I'd use to describe what you've all represented to me the past few months. 😍

I've been able to read ALL the ongoing comments the past week, just not comment myself or log on or "like" anything. Your words have resonated with me and shored me up. SP, you never fail to make me laugh, especially when I need to most. Ty for that. Ty to Geaton and to everyone who's asked about me. I appreciate it. Riverdale, love you girlfriend 😘

Send, a deaf frog is fortunate in many ways but a hearing person in this world winds up inundated with information at every turn, some good, some bad, all mind boggling in terms of incurable cancer. I wound up spending too much time on my Stage 4 Melanoma FB group this week which is a depressing place, to say the least. More memorials get posted there than anything else 😣 Which is why the support here is so good for me.....its uplifting and positive.

The spine surgery was more than I'd anticipated. First from a general anesthesia standpoint bc it was represented to me as moderate sedation. The concern was me waking up during the burning/ablation of the tumor (9 minutes at high temp) process, flinching, and wrecking the procedure entirely. So general it was. It took 2.5 hours and required cementing 2 vertebrae and installing a jack, like a tiny car jack, at the base of the collapsed bones to act like scaffolding. Once the jack was cranked up, it would hold my spine up. The jack is made of titanium. The pain afterward was significant actually, worse than anticipated. Today is one week ago the surgery took place and I'm only taking ibuprofen.

But now I have back pain to add to dizziness which has not abated at all. The chaos continues, unfortunately. UC Health wants to do another IVIG round in 2 weeks but idk. That's 3 days @ 3 -4 hrs EACH visit just in IV time, so I'll think about it.

Thursday is my PET scan which will determine what comes next in terms of treatment or if I'm in remission etc. I'm nervous, to put it mildly.

The stepdaughter and family is in town and showed up yesterday while I was in bed in a nightgown and Chuck was at the laundromat washing a king size comforter Honey puked all over. 😑 He called and I said OH That's Nice I Hope Honey Can Answer The Door Because I Can't. They waited till he got home, brought in 8 bags of groceries and put them on the kitchen counter (supposedly cheese and crackers for our dinner), stayed 2 hours and proceeded to take those bags WITH them when they left! 😂🤣😃 Can't make this stuff up, folks! They plan to surprise us AGAIN either today or tomorrow with another visit, too, yay!

Anyway, I will post all this gibberish before I lose it and see about getting my avatar back.

PS: I've uploaded a photo of my Christmas vintage jewelry wreath for my avatar until I can use my desktop again. It's made w a Styrofoam base, coated, painted gold, and pinned and glued w jewels.
(15)
Report

Continued prayer for you, Lea, and for any tests/treatments happening or coming up. God hears our prayers.

Hoping you are recovering from the back surgery with no complications and that in some way it has helped your QOL.

Looking forward to seeing you back here soon. ((((((hugs)))))
(4)
Report

Good morning Lea.
Take some deep breaths.
I know it's hard when you are healing to be put under pressure to answer to your peeps and others following you.
We are not immature children who should be pressuring you, or making demands on the forum admins, or jumping to conclusions about what is happening to you or the website.

Respect for your privacy at this time, and continued prayers for you and Chuck.

Feel free Lea!
(3)
Report

Why is Lea off of the site? Is it because of technical issues? It seems like they should have been resolved by now.

Lea,

We truly miss you. 💗
(2)
Report

I tried sending a message to Admin several times from my phone but it wouldn’t go through. I will try again later on my laptop. Hope you all will send admin a message to let them know we want Lealonnie back.
(4)
Report

Scripture du jour: What's the difference between expectation and anticipation? �Expectation is projecting an imagined reality onto the future. Anticipation is looking forward with excitement to what is coming, resting in the assurance that it will be good regardless of what form it takes.� (Source: https://redeeminggrace.faith/moving-from-expectation-to-anticipation/) We are anticipating that lealonnie will return to her thread shortly. We probably expect things to "go back to normal". But this may not be the case. What we can 100% anticipate are the riches and goodness of the kingdom of God through the hope of the resurrection. It is anticipation because it is far beyond our control, yet it speaks to the deepest desires of our hearts. And it is guaranteed. Therefore I release control in order to allow God to dazzle and woo me. He knows the desires of my heart far better than I do, for He created them and shares in them. "Whatever is good and perfect is a gift coming down to us from God our Father, who created all the lights in the heavens.�He never changes or casts a shifting shadow." - James 1:17
(9)
Report

Where are you Lea? 🕵I hope you didn't get abducted by aliens 👽. This ban is bunch of horse 💩
(4)
Report

Missing you, LL!
(4)
Report

I’m hoping she comes back, as well!
(5)
Report

When is Lea coming back? Does anyone know?
(2)
Report

Happy Monday, Lea.

“Throw glitter in today’s face.”

“Throw some glitter, make it rain.” (this for us who so badly need rain)

“Less bitter more glitter.” – Meghan Rhodes

Praying for you always...
(7)
Report

Looking forward to your return, LL! 😃!
(6)
Report

Scripture du jour: "Don�t forget to show hospitality to strangers, for some who have done this have entertained angels without realizing it!" - Hebrews 13:2 I love the thought that I might have "entertained" an angel at some point in my life. When new participants come to this forum, we welcome them by being hospitable. Even though this verse was written in the first century, it's not beyond God's capability for us to entertain angels digitally. What a fascinating possibility. Go forth and entertain some angels today!
(8)
Report

Good morning, Lea. I can't wait to hear from you again. Until then, we continue to pray for you.
(5)
Report

Yes, missed indeed. Hoping you are healing well from the back surgery.

“But for you who fear my name, the Sun of Righteousness will rise with healing in his wings. And you will go free, leaping with joy like calves let out to pasture.
Malachi 4:2

I'm sure we could all do with a good frolic right about now - with bells and sparkles on! 🔔✨
(9)
Report

The thread isn’t the same without you, Lea. You are missed! Sending you lots of hugs.
(6)
Report

Hope you're feeling better Lea, and that the surgery has given you some relief!
(7)
Report

JoAnn,
Good for your Sil!
No one should bother with the naysayers.
(3)
Report

Praying for our dear friend, Sunday afternoon in FL!
(8)
Report

Send, that was a great story. It reminded me of my SIL back in 1963. Colleges were harder to get into and SATs were much harder. She wanted to become a teacher and go to a local teachers college.

She was called into the guidance councelor's office and told she should not apply to any colleges, she just didn't have the grades. She went home and told her Mom what the counselor said and her Mom told her not to listen to the counselor. SIL applied and got in. She taught locally and later in private schools in the South where they moved to. She was well loved by her students and won awards. TG she didn't listen to that counsellor.
(8)
Report

Scripture du jour: "Teach us to number our days, that we may gain a heart of wisdom." - Psalm 90:12 Because life is short, clarifying what's truly important is essential. LL's posts have helped so many of us with this. I'm numbering the days until she can post again. Still praying and waiting. Be blessed today!
(6)
Report

Miss your updates Lea. Can't wait till you get out of jail👮🚔 Hope you have your bling💎 on this weekend. If I could I would send you a nail file in a cake 🎂 so you could get sprung sooner.
(9)
Report

Hoping that you are doing well, Lea

Many hugs sent your way!
(8)
Report

This discussion has been closed for comment. Start a New Discussion.
Start a Discussion
Subscribe to
Our Newsletter