
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
I can understand why you wouldn’t want to eat a sugary dessert with your gut out of whack. I’m glad that the rest of your family enjoyed it.
Will be praying for you before Tuesday, on Tuesday and after Tuesday! 😊
No PET scan or appointment with Dr C on Wednesday Golden, nope, I'll have to reschedule. Nor have I heard one word from that office! Furthermore, the request to extend the clinical trials at UC Health was denied by Kaiser! I can't even talk about it, I'm so disgusted. DD is working with the oncologist at UC Health to "word the request properly" (which Dr C dropped the ball on and thus the denial) so the matter will be addressed correctly instead of thrown in the trash heap. Sigh. This is why I say the Tues surgery approval at UC Health is a miracle.
I can't even keep track of all these moving parts here, so I sure don't expect anyone else to. I'm looking like 5 miles of bad road today Golden BUT wearing a favorite pair of earrings I've had for decades 😍😘. You can't teach an old dawg new tricks.
NHWM, my gut is a disaster zone thanks to the roids. I'm eating nothing to further the damage before this Tues surgery which included liver cake w food coloring, so I watched while they ate. I can take no Alka Seltzer 5 days prior, the meds prescribed are doing little to help me, Pepto bismol and Tums aren't either, so I'll have to ask for IV meds upon arrival at the facility on tues (as were given to me in the hospital). I will put out the flag when this steroid chit show is finally over with, let me tell you.
."Keep calm and just sparkle." -Reiki.✨
Countdown to surgery and one problem fixed. I guess the PET scan is not happening on Wednesday. Its hard to keep track of everything.
Sending gentle hugs and love.💖
I hope you and Chuck enjoyed a big slice of your daughter’s cake!
I remember all of the delicious pastries that you bought for your mom from the bakery that she liked. You must have brought dozens and dozens to her throughout her stay at her facility.
You two have been through and are going through so much. Such brave troopers!!! Such love!!!
Hats off and blessings to dd. I am sure she is doing well! Such a cute idea. Chocolate cake in any way, shape or form is a winner.
Prayers as always, Lea. " For he will command his angels concerning you to guard you in all your ways; they will lift you up in their hands, so that you will not strike your foot against a stone."
Psalms 91:11-12
Your daughter sounds so cute! 😊
Happy Anniversary to Chuck!
Thanks for sharing your journeys.
I know that they have made so many of us better advocates for themselves.
As I am sitting here, I am going to ask my dermatologist to check an area that she told me three months ago that we should maybe keep an eye on!
Tell Chuck thank you for us, as well.
So thankful for you!
That is what I read too, but an article further down stated:
Not all 13 x 9 inch pans are created equal....
"What’s the Deal?
Because there are no defined standards for bakeware, not all 13×9 pans are actually, well, 13 inches by 9 inches. Sometimes it might be due to a thicker edge, sometimes it might just be due to the pan’s design. Regardless, it’s important that you use a pan that is the right size. Otherwise, you could end up ruining your recipe. That’s bad news for these yummy 13×9 desserts!".
I guess it really matters to good cooks or chefs.
This is not the time to be doubting yourself or your sanity.
A coincidence today is the event in the L.A. area for donors and donor recipients, celebrating how these donors had saved the lives of their recipients.
Many donors organs went to save several people's lives. 💖💖
There is no significant difference between a 13- by 9-inch cake pan and a 9- by 13-inch cake pan. They are the same thing. Yes, you read that correctly. For example, pans made by different manufacturers may vary slightly by depth—two inches versus 2¼ inches.
Thank goodness.....😂🤣
both Chuck & Leolonnie!
Yes, I checked Lea, your mind is still in tact, and you make a good argument, there are differences in baking dishes 13 x 9 vs. 9 x 13!
My DD is baking a liver shaped chocolate cake in his honor and asked me to say a prayer for her since she's not a baker or cook in general. She called me from the grocery store and we argued for 10 min over the difference between a 13"x9" baking dish and a 9"x 13" baking dish, I kid you not. 🙄 She may require more prayers than I've got in me at this point, folks 😂🤣
Geaton, I hope you are correct in that many other peoples' future health journeys will be posivitively impacted by all the rich information I (and others) have provided here. When the internet is used in a positive way, to share useful info, much good CAN come as a result. What's the saying? Nothing is wasted in God's economy?
I agree. Consider it done. I will be praying.
I propose we all pray early Tuesday morning for Lea's surgeon to be guided by the divine hands during the operation.
Great news! So happy that your surgery was approved.
I am leaving you with a gift—peace of mind and heart. And the peace I give is a gift the world cannot give. So don’t be troubled or afraid.
My "insurance" IS provided thru Kaiser which most people don't understand who aren't in their system. It makes no sense for them to have approved a surgery thru an out of network hospital they could do less expensively themselves. Which is why I'm calling it a miracle.
As far as questions go, I have more I can't answer than I can so....the prednisone taper sucks, the weight gain sucks, stick a pin in me and after I literally burst, I'm DONE 😑. Thats how I feel. THAT BLOATED and finished with this drug. How I feel about "myself" is grateful to be alive at this point in time.
Ty, yuck yuck with the cemented joke. Love It! 😂 I want to be on the other side of this now, so let's git er done. I'm pretty sure moderate sedation is used for this procedure vs general, so that's good. I was seriously impressed w the ortho team at UC Health so I feel good it'll be over with soon.