
First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Praying for all to go well!
Sending a prayer and positive thought!
Still I am certain to see the goodness of the LORD in the land of the living.
Wait patiently for the LORD; be strong and courageous. Wait patiently for the LORD!…
Psalm 27:13,14
Feeling a bit nervous but in capable hands for this.
Thanks for all the prayers, hugs, support and words of encouragement everyone. You all rock 😁
Praying for your path to surgery to be straightened and for it and healing to happen, in Jesus name!
This scripture caught my heart this morning:
“Be kind to each other, tenderhearted, forgiving one another, just as God through Christ has forgiven you. ”
—Ephesians 4:32
- with the emphasis on being kind and forgiving those blankety blank people who are messing with our beloved Lea,
She is a daughter of the King and deserving of the best treatment!!! 👑
Crowns are sparkly!
cxmoody - I have no words... Prayers for mercy! I know the feeling that they will live for ever.
Romans 8:28 tells us:
And we know that all things work together for good to them that love God, for them that are the called according to HIS purpose.
All things! I know it is challenging to trust in HIS promises when the medical world has apparently gone mad but, HIS word is the only hope we often have.
Psalm 46:10
Be still, and know that I am God...
Sometimes being still and trusting is the hardest thing we will ever do. As I am sure you know all about that right now.
I just want to encourage you to continue to look up and trust, no matter what things look like, because our God is a miracle working God and HE knows you, HE will never leave you or forsake you.
Continued prayers for a miracle that moves hearts and saves souls.
Great big warm hug!
Ll, you asked about my mother. Well, remember how my mother was discharged from hospice? Well, I walked into her MC on Monday, and she was gone on a mini-bus trip to see our city’s lakefront!
Remember how a couple of years ago, she was down to skin and bones and not eating? Convinced that she had to partake in some kind of all day and year-long Lenten fast?
Well, she now doesn’t remember that she’s eaten (insists that they don’t feed her) ,so her MC lets her have as many nutritious snacks as she likes. Back in the jeans she used to wear, and no longer unsteady on her feet!
She is going to live forever 🤦🏻♀️ , and we will both be driven absolutely bonkers by her dementia!
I’m concerned, like you were, that she will run out of money eventually, and it will be off to a Medicaid bed somewhere.
Please, Lord, have mercy on us both!
Big sigh.
Anyway, I pray that the road to your spinal repair gets smoother already!
We also pray that her PET scan will show no cancer and that all of Chucks tests and scans show good results as well.
We know that you are holding them both in the palm of Your hand and we thank You for seeing them through thus far.
Please give them continued strength and courage for the road ahead, and most importantly peace.
It's in Jesus name we pray. Amen.
I will be heading down to Florida tomorrow for a long weekend for my grandsons and girlfriends baby shower and won't be back until late Monday evening. But I will continue to keep you both in my prayers and will look forward to reading the update then.
Anyway, no word from my oncologist or his team about this, nor did they have any care plan FOR a collapsed spine. Or a case manager, it would appear. Which is why I sought out a second opinion in the first place.....after hospital 1 didn't recognize the situation EITHER after treating me for 6 days. Scary what transpires in our health care system nowadays. Chuck is seriously livid about all this, but happy to think a competent ortho team will be in charge of my surgery. Thank you GOD and DD. Let's all send up a prayer for this to actually HAPPEN now.
Meanwhile, the poor man has to juggle HIS liver scan appointments now which were scheduled IF this procedure is really happening. Along w my PET scan yet again. You can't make this stuff up, it's too stooopit.
Gershun, last couple days have been low bio rhythm ones I think. Let's agree to feel our emotions but hope for "joy in the morning." I'm on board for that.
Cxmoody, any updates on your mom? Sending YOU a hug today bc I know you've been thru many ups and downs w her care.
I’m so sorry for your losses.
You two are such encouragements to members of this board. Sending prayers and big hugs to you both.
Lea, I'm sorry you are grieving things. It must be something that's going around cause I've been feeling sadness these last couple of days too. For lots of things.
Here's praying God will lift us all up.
I can't personally imagine how people get through the tough/hard times without God, can you? I wouldn't have made it this far in my life had it not been for God, giving me the strength, courage and grace to carry on.
It is also important to remember that "weeping may endure for the night, but joy comes in the morning." Psalm 30:5
I feel grief for a lot of things today, tbh. But not for your glitter quotes Golden!
Lmama, I called Dr Cs office yesterday and they are in limbo too, the nurse said, waiting for the urgent request for surgery to be approved or denied. Turns out I have an in person appointment w him next Weds and a PET scan same day.
I'll check in later
Step daughter sounds like a narc and best kept at a distance.
Glad your son brought your precious grandson over to brighten your day.
Prayers for an orderly procession of treatments, and their success, of course, and for relief from prednisone effects, but that it is doing it's job.
Just one glitter quote today. Hope I'm not repeating myself lol. Even so they are worth it, I think
Lea this applies to you -
I'm 80% glitter and 20% sparkles.✨🌟✨
Don't forget to put on your earrings!
Still praying as The Lord brings you to mind. Today’s prayers are for the oncologist’s office to get their act together. It’s sooo darn frustrating to be at their mercy!!
I am happy to hear that you slept well.
What a great roofer to offer to get you Starbucks!
Your grandson sounds precious. I wish that you could bottle up his energy to sell some to me. Hahaha 🤪, I am dragging my feet today, procrastinating on heading back into the kitchen to finish cleaning.
Sounds like you have your stepdaughter’s number. That situation is sad for you and Chuck. I know that neither of you expect her to change but it’s still unsettling.
Please keep us posted when you hear back from your doctor.
Will be thinking of you and praying for you.
My step daughter called Chuck last night after ghosting him since early Dec ( actually since his liver transplant and hasn't seen him since, living 75 min away, and 4/29 is 1 year) to pretend she was "just told" about my cancer. She then proceeded to say it sounds like I'm "doing better" and talked all about herself moving forward. Poor Chuck looked like he aged 10 yrs after that call. Even my ROOFER gave me a big discount on recent work he did, and asked if he could bring me a Starbucks! Yet my husband's 32 yo daughter offered no help, no words of encouragement, no nothing but narcissistic yakking about her recent weight gain!
Toxic people need to be ignored. #Truth
Shortly afterwards, my lovely stepson called to see what foods he could cook for us and bring over in an effort to help. My son came by also w my 2 yo grandson who loves running up and down my long hallway.
Thanks for the love, the prayers, scriptures and good wishes. The Atarax helped me sleep well last night, TG.
Lea, thinking of you this morning and sending my love to you.
This scripture is on my mind this morning.
“Kind words are like honey—sweet to the soul and healthy for
the body.”
Proverbs 16:24
Let us all remember the power of words - to hurt or to heal.
Praying for the surgery time and by whom to be sorted out without too much fuss and delay, for relief from the dizziness and successful tapering off the prednisone, Also , of course, that there be no cancer cells survive in your body - not one.
May God be lifted up. Wonderful that the Atarax gives you a goodnight's sleep!