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Scripture du jour: "Let all that I am wait quietly before God, for my hope is in Him." - Psalm 62:5 Because LL's thread is quiet this morning... therefore we wait and pray.
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Lea,

I am so happy to hear that you were able to sleep after dealing with so much. I’m sure that exhaustion doesn’t even begin to describe how you felt.

Sending all of my love as usual.
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Ty Golden. Imo there is nothing better than an NDE story. God bless you.

So now UC Health put in an urgent request to Kaiser for the spine surgery to happen next tues. They have 72 hrs to respond. We will see. O/w Kaiser will have to schedule me for the near future hopefully. UC Health wanted me to go from there to rehab yesterday and I was like, uh, no. Pt evaluated me for safety w the walker and strength, determining I was fine w both, so no ty to rehab. How do you spell Enough is Enough Already? We're not curing this dizziness folks, one way or another. Period.

My IVs all blew while I was hospitalized due to high dose steroids causing fragile veins, so I had to have a glide-line installed in my upper arm in a larger blood vessel. Even blood draws were terrible from regular veins that were not an issue beforehand. Steroids are dangerous. Hopeful to taper off this crap w minimal issues and before the rest of my bones disintegrate 🙄

Gershun, my dizziness is 24/7. I was given an RX for Atarax to help me sleep. Slept like a LOG for 8 hrs straight which helps A LOT w worry and obsession. I highly recommend it as its not a benzo.
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I’m praying for your taper. May it go smoothly, and for your body to cooperate, LL.

Also, for the arrangement to be smooth for the surgery.

So glad you’re him!
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Scripture du jour: "God�is striding ahead of you. He�s right there with you. He won�t let you down; He won�t leave you. Don�t be intimidated. Don�t worry.� - Deuteronomy 31:8 (The Message) LL, "scary prospects" are no match for the God of the universe, who knows how many hairs you have on your head, and your prayers before you express them. Ride that prayer cloud like a cowgirl today!
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Home always feels better, glad you’re there. Prayers for rest and courage for the days ahead
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Hope you had a peaceful night snug at home. May your day bring light, love, and serenity.
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Lea - sent

Check for emjo.
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Lea: Prayers and hugs.💚
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Lea my thoughts return to you a lot during my days. Always wondering how you are doing and hoping you are getting your rest and not feeling dizzy.

It's hard to rest in God and to stop obsessing and worrying. I hope you are better at it than I am. I think I need a swift kick in my spiritual behind now and then.

Golden, yes I look forward to getting your message re: NDE.
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RD, not petty. Dimes and 10s and repetetive numbers like 11:11 are guardian angel signs ( I was just reading about 25 signs your guardian angel is with you) 😁

Ty for the tip grandma. 😍

FG, ty for the lovely prayer.

Golden, check your messages. And ty.
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Good evening, Lea. Glad you are home but not glad you are dealing with the dizziness and tapering off yet a higher dose of prednisone. No general anesthetic for the surgery is a good thing, but surgery still takes it out of anyone and I understand your concern. Also your apprehension about the clinical trial is what most would feel in your position, but I am still grateful you have that alternative.

What comes to mind is that -
... “With man this is impossible, but with God all things are possible.” Matthew 19:26

I believe this to be true. God has a plan for each of us and we can only walk it one step, one hour, one day at a time.

God is using you to touch many hearts. You are a strong warrior but even strong warriors need rest. I pray you get good rest at home with your loved ones. You dh and particularly your dd are a most wonderful support and advocate for you. What a blessing!

I have written out my NDE but would prefer to send it to you privately rather than post it here. Not sure why, except it is very personal. Gershun said she was interested and I will send it to her in a pm. I can't send to you as your messages are turned off and I respect that. Would using someone you trust as a go between work? Let me know. (((((((hugs))))) and love 💛
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Seems very petty but I found a dime on the ground and thought of you immediately. I never find dimes,maybe a penny here or there. Keeping you and your medical issues always in my mind. Just hope the solutions work out and you stay strong throughout. We all need you so.
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i just wanted to let you know I am thinking of you. I suffer from severe vertigo and Peppermint behind the ears and neck helps. Use coconut oil to dilute the oil.
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530pm I was discharged. Uc Health can do the spine surgery next week out patient but kaiser wont authorize it bc they can do it themselves. A big pita as always. So I go home and try to get it all coordinated w Dr C. I can use the melanoma doc here for a clinical trial opening up in a couple of weeks, sounds like, bc I do have the gene mutation necessary and there is no immunotherapy involved. Still a scary prospect.

No change in dizziness. Which is disappointing I will admit. So is the prospect of going into surgery this debilitated. At least there's no general anesthesia involved, but 1-2 weeks of recovery 😐

PET scan scheduled in 9 days.

Now starts the taper yet again from an even higher dose of steroids, God help me.

Thats it for now. Glad to be home with Honey by my side.

Thanks as always for the uplifting words Ladies.
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Lealonnie, isn't it amazing that God is able to work through so many people including your wonderful daughter and the many doctors both you and Chuck have seen to get His job done here on earth?
He is so good like that. I'm glad that you're getting to witness it first hand.
You will have such a powerful testimony when this is all said and done, and I have no doubt that God will use you in a mighty way to be a witness to others who are going through similar things as you.

I want to share a prayer that I read in one of my devotions this morning and couldn't help but think of you, as a lot of us on here lift you up daily in prayer and it's nice to know that God doesn't get annoyed with us for doing so. In fact He welcomes it.

"Heavenly Father, thank You that You don't get annoyed or frustrated with my persistent asking. Thank You that You are a Father who lovingly bends down to listen and invites me to ask You for my daily bread.
Today Lord, my daily bread is Lealonnie and her complete healing. Help me to remember Father, that You delight in hearing my requests. I praise You in advance for how You will answer and provide.
In Jesus' name, Amen."
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((((((hugs))))) Lea. I am sure it would be good for you to be at home. I echo the hope prayer. Be careful of the closets!
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Maybe today cxmoody.
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Praying for you here in Fl, LL!

When do you go home?
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Thinking of you today, Lea. 💗
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Geaton,

I love scriptures regarding hope.

Sometimes, hope is all that we have. I don’t think we should ever take someone’s hopes and dreams away by not believing in possibilities.

There have been many times in my life where I have lost hope and became discouraged. Then, others shared their hope with me and I was able to find hope again and things usually worked out.

Thank you for sharing scriptures on hope. I know that Lea will appreciate your messages of hope, so will many others.
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Scripture du jour: As we patiently wait together with LL for the IVIG infusions to take hold... "Be joyful in hope,�patient in affliction,�faithful in prayer." - Romans 12:12 ..."hope" is mentioned first, not last. Please continue to faithfully lift her and her family up in prayer and praise.
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Lea: Oh! That broken back news must have been hard to hear. Virtual hugs and prayers sent, dear lady.💜💜
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Lea,

Your daughter thought of everything. I see those commercials for Lume. Haven’t tried it.
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Pecan, nope....no change at all in the dizziness w the IVIG infusions, last one finishing up now. Can take weeks to kick in so........😣

Dd brought me a nightgown, slippers, Lume deodorant (hint for steroid stench?) A Vornado fan w remote and a cooling blanket for the vicious sweats I'm having, so that was sweet and very helpful.
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((((Lea)))
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Thank you, Lord, for LL’s DDRN! Thank you for inspiring her to fight for the best care for her Mama. Thank you for the wisdom you’ve given the docs at UC. We are all so thankful.
Thank you for our dear friend. She’s such a treasure to us.
And, please forgive my uncharitable thoughts about the docs that overlooked this break.
Amen!
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Lea,

Your daughter sounds like one smart cookie! You taught her well. 😊
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Lea, thanks to your daughter and God's plan!!
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Fg, it was my DD the RN who called UC Health for this 2nd opinion on my behalf. She also saved Chucks life literally 2x so credit needs to be given where credit is due. Thanks to God as well, naturally, His inspiration and to nurses who advocate for their loved ones and go to bat for them while we flounder around like fish out of water. Amen and amen.

PB, the pain now is so much better in my thoracic spine. What irks the snot out of me is the lack of looking into this the other hospital did and Dr C too. Knowing the severity/size of the bone tumor, and that it was deteriorating with immunotherapy......what happens next w the spine/bone structure???? Hello? 😑

N HWM, ty 😍

Golden, fierce eh? Idk about that. I keep thinking about falling in my closet last week and how that could have turned out. 😑

I've had 2 IVs go bad now and swell up the tissues in my arms. So they had to put one in my upper arm in a large vein just now which we hope will hold for this last IVIG infusion. Still waiting to hear the surgical plan moving forward which I suspect will not happen here at UC Health but at Kaiser instead.
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