Follow
Share
Read More
This discussion has been closed for comment. Start a New Discussion.
I am hoping that the prednisone withdrawal will not be so bad as you fear, and may even bring some relief.

How exciting that the spiders are leaving. I was afraid they were somewhat permanent little vessel breaks, and you would have to adjust to them, but seems NOT, and I am glad to be wrong. I do think those spiders have perhaps moved to my garden. The rains have made everything out there quite lush and overgrown and there's just a ton of spiders this year; the birds are quite excited about it!

I hope today is a good one, Lea.
(8)
Report

It's been a while so I'm really glad I looked to see how you were doing today.
Yay!!! Prayers are answered! I will continue to pray for you. And yes, my Friday is happier knowing this too!
(5)
Report

Hope....yes....the SeaBands! I completely forgot about those so ty for the reminder. I won't take supplements for anything right now bc I'm certain everything makes this dizziness worse. Plus I've begun the titration down from prednisone and am expecting ugly symptoms tonight. Ugh. The eye floaters are down to one small spider in my left peripheral vision, which I pretty much tune out at this point. Ty for the list of items you used to get relief.....it may come in handy. Its 3 weeks yesterday since the Skyrizi iv that started it all. The neuropathy in my feet may respond to acupuncture I read...,my bff had good results w it from a trigger finger issue where it'd lock up nightly and wake her up in pain. 5 treatments later, it's gone for good. Idk if Kaiser offers acupuncture or not. Anyone have experience with it?

Thank you for all the positive feedback about my bloodwork numbers! We're hopeful and grateful for GOOD PET scan results Next week to confirm these suspicions of remission.

When I get scared and worried, I HAVE to keep reminding myself that I found that DIME on the floor of the ER that day the cancer was discovered. Which was not some insignificant coincidence but a clearly divine message that things would be ok.....that God's got my back. Miracles DO happen to ordinary people, thats a fact! 😁
(10)
Report

Lea, SUCH AMAZINGLY WONDERFUL NEWS!!! I became so teary-eyed reading your Extremely Fantastic update and I had to read your message twice - to continue the "happy tears!" May you continue to feel better and better and receive positive updates and advances forward!! I'm so very happy for you ...as is everyone in our "forum family!" :)

...on a separate note, I also wanted to mention that when I previously had taken a bad fall a while back, shortly after that, I experienced similar to what you had described regarding the eye floaters and these shadows in my eye that looked like an insect...it was maddening - and I was nervous about it. It took around 6 - 8 weeks to fully disappear, and what I think helped me were two products that I had gotten on Amazon (if you go on to the site, and type in "get ride of eye floaters" a lot of supplements will be shown. For me, I used an eye gel and an eye lubricant from Refresh, which helped sooth my eyes...and then I had taken a supplement called "Bodymune EyeCare All Natural Supplement for Eye Floaters"...I changed over after a month to taking "Dr Whitaker Ocular Pressure & Retina Defense Supplement" - both are on the Amazon site. I thankfully started noticing improvements each week.

...and regarding the dizziness/ vertigo that you mentioned, it may be a long shot, but I'm not sure if you ever tried using the "Sea Bands" - it focuses on acupressure and pressure points...and in some cases, it states that it may help with the dizzy feeling. And also, you may want to type in "anti dizziness" on the Amazon site, and there are certain supplements that deal specifically with this, and it may just be worth giving it a look at..and reading some of the customer reviews. (and you may want to make sure from your dr that it's ok to try them)

My heartfelt wish for you is that that's all it would take for you to find relief, and to return to feeling completely renewed!!

Wishing you All Blessed days!!!!
(7)
Report

Scripture du jour: Back in the 70s growing up, I loved incense. And now I love scented candles. Ocean. Campfire. Pine. Clean Linen. Even if you don't like faux fragrance, we all love how favorite aromas make us feel. In the Bible, our prayers are likened to incense.�� �May my prayer be set before you like incense; may the lifting up of my hands be like the evening sacrifice.� - Psalm 141:2 "Then another angel with a gold incense burner came and stood at the altar. And a great amount of incense was given to him to mix with the prayers of God�s people as an offering on the gold altar before the throne.��The smoke of the incense, mixed with the prayers of God�s holy people, ascended up to God from the altar where the angel had poured them out." - Revelation 8:3-4 "And when he took the scroll, the four living beings and the twenty-four elders fell down before the Lamb. Each one had a harp, and they held golden bowls filled with incense, which are the prayers of God�s people." - Revelation 5:8 Why are our prayers compared to incense?�� - Its raw material comes from God. - It is ignited in a "burning censer" (our hearts). - It is pleasant & relaxing to our senses and brings peace to our environment/situation. - It's fragrance ascends upward naturally. - It pleases the heart of our Heavenly Father and perfumes heaven. As we "stand in the gap" with our intercessary prayers for lealonnie1, remember that it is also aromatherapy for God! He loves that we are praying for her!
(10)
Report

Your news Lealonnie, makes my Friday even happier. 😊😊😊
(7)
Report

Lea , I am SO SO happy to hear this positive news. Fist pumping for you! YEAH!! ✊️
(5)
Report

A**holiness 🤣🤣🤣🤣🤣
(4)
Report

Lea: What fantastic news on your blood work! That is great! Sending love and virtual hugs.💜
(8)
Report

Lea,

So happy to hear about your blood work!!!!! So happy. Heading to bed now with a heart full of gratitude for your news.
(6)
Report

Lea, I'll welcome your spirit there. Maybe if you are you can give my doc a nudge. See if he's still breathing. :)
(3)
Report

Lea Praise God, the change in Dr C is another answer to prayer.

a**holiness - that's funny!
(3)
Report

Gershun omg you have me laughing about a**holiness! So true! I hope your doc looks up from his computer on Tues when we'll both be together in spirit that day.
(4)
Report

My doctor doesn't even look up from his computer when I see him. He probably couldn't recognize me if he saw me five minutes after I left my appt.

Speaking of which I go see him on Tuesday. Oh joy, oh bliss.
(5)
Report

A**holes usually aren't aware they are a**holes. That's part of their a**holiness!
(8)
Report

Pecan......please be sure to check your PMs bc I sent you one awhile back I'm not sure you've seen.

I wasn't clear with my UC Health consult. I AM going in person to meet with Dr M who's a melanoma specialist, on April 18th. My oncologist Dr C will confer with her afterward about how they feel it best for me to proceed w/o being able to take standard IT treatments anymore. With limited options in that regard, I'm thrilled my DD made this appointment for me. UC Health also has clinical trials going on, as a last resort, if need be, that Kaiser does not.

I'm not in the clear except by virtue of the excellent bloodwork numbers. We suspect remission based on that and the lack of pain, that my calcium was sky high in hospital bc the bone tumors were leaching calcium into my bloodstream as they deteriorated after treatment 2, etc, but the PET scan will tell the story.

Funny thing today w Dr C. He was super involved in my test results and what transpired w the neurologist. He was recommending how to best titrate off the prednisone (can you say Jabba the Hut?😑) safely and then called me on the phone w the good liver number news. While at the appt, he said how "its a good thing I'm not some asshole you can't even communicate with or talk to." !!!!!!! DD was patched in over my cell phone listening and I almost heard her snort! It was all I could do to not lol, too. I can't believe he said those words, and have no idea what prompted it either, unless he has access to A.C. and this thread. Maybe he saw himself as being a bit too much OF a non listening A-hole in the past and had a change of heart. Idk.

😁😂🤣😃

He was acting like a real doctor today and happy I'm going to UC Health where he will stay on top of my case. I'm grateful for that, tbh.
(11)
Report

Smiling here on my sofa, so very grateful to hear your positive news
(7)
Report

Lea!
Thanking the Lord for answering prayers concerning you.
His mercies are never ending.
(10)
Report

Great news!!!
(7)
Report

NeedHelpWithMom still cant post, but wants to say how thrilled she is to read my blood numbers are NORMAL! 😁

Get with the program A.C. and restore our accounts already, FOR CRYING OUT LOUD 😑😶😏😣🤐

Thanks ladies and to newbiewife for lurking and wishing me well. I'm really glad you stuck around! 😁 You've always had MY respect and admiration, thats for sure.
(10)
Report

I am so happy for you. So you ended up a blessed day!

((HUG))💞
(6)
Report

Woo-hoo! Let's hear it for good labs!
(7)
Report

Praise be to God on your behalf Lea! I'm so excited for you!
(9)
Report

What wonderful news! I’m doing a happy dance in California. Hope you are in remission forever and your side effects go away soon.
(11)
Report

Hallelujah! I've been lurking and reading here several times a day since the beginning of your cancer journey (and before, with Chuck's liver transplant journey), not sure what to say that others haven't. Even though I know you only through what you write, I feel as though a pall has been lifted from a dear friend. Like Alva, I'm not religious and don't have prayers to offer, only my deepest respect, admiration, and heartfelt wishes for long remission and improving side effects.
(11)
Report

I'm with you cxmoody doing a HAPPY DANCE here in NC. God is SO good!!!
And yes, He does answer prayers. Those of us that pray will continue to until you get a clean bill of health.
(8)
Report

PolarBear, ty so much for recounting that NDE story! You lifted my spirits even higher today bc I love nothing more than hearing about these types of experiences!
(6)
Report

Dancing a jig here for this wonderful, awesome news!

It has been a privilege to pray alongside you and your cheering section here.

Looking forward to dancing a similar dance after your PET scan comes through!
(7)
Report

Wonderful news 🎆👏🏻
(7)
Report

I am so very glad to hear this news, and the blood work I think is dramatic news. My calendar starts to look like your own I imagine, as I write in your tests and appointments when they come. I had an appt written in for UC on the 18th, but I am thinking now that this means that time is Dr. C consulting with UC on all your current status and history, and their deciding together what next steps are.
I imagine you are good and tired. The adrenalin with appts and tests and all gets so high that you end in a sort of post traumatic stress.
Thank you for such a full update Lea. I hope you get rest the rest of the day.
(6)
Report

This discussion has been closed for comment. Start a New Discussion.
Start a Discussion
Subscribe to
Our Newsletter